Data dictionary - Netherlands Cancer Registry (NKR)

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There are different types of variables available according to type of tumor and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumor, visit the data source: [1].

Patient records
Date of birth
Sex
Place/country of birth
Date of death
Patient number in the institution

Tumor data
Date of diagnosis
Basis for diagnosis
Topography
Morphology (WHO classification and FNCLCC grade)
TNM stage (clinical and post-surgical)
Additional tumor features (Behaviour, Localization, Size, Multifocality, Palpability)
Topography synchronous metastases
Molecular abnormalities in the tumor
Lymph nodes examination (Number and status)
Receptors status
Images for diagnosis
Degree of differentiation
Laboratory studies
Pathologic data biopsy

Treatment details
Surgical procedure (type, date of occurrence, date of discharge)
Lymph node dissection (type, date of occurrence, date of discharge)
Reconstructive surgery (type, date of occurrence, date of discharge)
Radiotherapy (type, start date, stop date, dosage)
Chemotherapy (type, start date, stop date, scheme)
Hormonal therapy (type, start date, stop date)
Target therapy (type, start date, stop date)
Immunotherapy (type, start date, stop date)
Complication during/after treatments (type, reintervention)
Metastasectomy (yes/no)
Reason for not performing an specific treatment
Resection margins
Other treatments (type, start date, stop date)

Follow-up data
Recurrence within 5 years of diagnosis
Relapses within 10 years of diagnosis
Follow up type (Local/regional recurrence)
Date of follow up
Basis for diagnosis of follow up
Pathological tumor size on follow up
Localization of follow-up recurrence
Lymph node follow-up examination (number examined, status)
Metastasis follow-up (number, type, basis for diagnosis, topography)
Treatment follow-up (type and date)
Progression (date, method of determination)
Lab results/Receptors status related to recurrence/metastasis

Risk Factors
Comorbidity
Rookstatus
Surgery history
Medical history of malignancy (type and date)
Family's medical history of malignancy (type and date)
Weight
Length
ASA-score
Alcohol use
Performance-score

Process data
Type of diagnostic image performed
Reason of diagnosis
Gene mutation research conducted
Date of gene mutation research
Hospital gene mutation research
Type, Date and Results of performed procedures (MRI, biopsies, sentinel lymph node examination, exploratory surgery, etc)
Date and type of consultation with specialists and radiotherapists
Participation in clinical scientific research
Hospital location of diagnosis, treatment and imaging
Tumor limits