Database: Registry of Histo and Cytopathology (The Netherlands): Difference between revisions

Revision as of 17:34, 25 April 2024

Primary purpose: Records organized pathology data to facilitate scientific study that improve the quality of diagnosis, treatment, and patient safety.

Sponsor, manager or home institution: the Pathological Anatomical National Automated Archive (PALGA).

Type of information: Data dictionary - Registry of Histo and Cytopathology (The Netherlands) [1].

It is possible to integrate data from this Registry of Histo and Cytopathology with other databases. This linkage enriches the investigations since it provides much more information regarding each case. In the following website, it is possible to see the list of databases that have an easier proccess of linkage with the Histo and Cytopathology database along with the instructions to this process [2].

Available type of information: diagnosis (includes neoplasms); sex; year; age; medical procedure (cytology or histology) [3][4].

Source of information: Pathology reports are sent daily from laboratories around the Netherlands to the national database [5].

Data level: patient level.

Available data level: national level.

Number of Records: Since 2017, when there were more than 72 million pathology results stored, the number of registries has increased by approximately 2 million each year [6].

Date range: 1971 onwards. The registry has had nationwide information since 1991 [7].

Cancer Areas of Interest: C00-D48: All neoplasms [8].

Data access: partially publicly available. Public database: [9]. To facilitate the search process for cancer terms, the main thesaurus codes used are listed in this page [10]. Instructions to request data for restricted content [11].

Contact information: Information [12].

@@ Line 6: / Line 6: @@
 '''Sponsor, manager or home institution''': [[dataOwner::the Pathological Anatomical National Automated Archive (PALGA)]].
-'''Type of information''': [[hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands)]]
+'''Type of information''': [[hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands)]] [https://www.palga.nl/voor-pathologen/protocollen].
-It is possible to integrate data from the Netherlands Cancer Registry (NKR) and this pathology registry. This adjustment makes the investigation much richer in information since it permits the researcher to have more information on each case. It is useful to obtain pathology history, information about sections or tissues, follow-up, and additional information about tumors from the NKR [https://www.palga.nl/en/gegevensaanvragen-engels/koppelingen-engels.html].
+It is possible to integrate data from this Registry of Histo and Cytopathology with other databases. This linkage enriches the investigations since it provides much more information regarding each case. In the following website, it is possible to see the list of databases that have an easier proccess of linkage with the Histo and Cytopathology database along with the instructions to this process [https://www.palga.nl/en/gegevensaanvragen-engels/koppelingen-engels.html].
-'''Available type of information''': number of diagnostics; [[availableVariable::diagnosis]] (includes neoplasms); [[availableVariable::sex]]; [[availableVariable::year]]; [[availableVariable::age]]; [[availableVariable::medical procedure]] (cytology or histology). To facilitate the search process for cancer terms, the main thesaurus codes used are listed in the document [https://www.palga.nl/assets/uploads/Gegevensaanvragen/Zoekvragen/deel%20E%20retrivaltermennieuw1B_10-2020.pdf].
+'''Available type of information''': [[availableVariable::diagnosis]] (includes neoplasms); [[availableVariable::sex]]; [[availableVariable::year]]; [[availableVariable::age]]; [[availableVariable::medical procedure]] (cytology or histology) [https://www.palgaopenbaredatabank.nl/menu/main/home][https://www.palga.nl/en/public-database.html].
 '''Source of information''': Pathology reports are sent daily from laboratories around the Netherlands to the national database [https://www.palga.nl/data/openbare-databank].
@@ Line 22: / Line 22: @@
 '''Date range''': [[dataStart::1971]] [[dataEnd::onwards]]. The registry has had nationwide information since 1991 [https://www.palga.nl/data/openbare-databank].
-'''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]].
+'''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]] [https://www.palga.nl/voor-pathologen/palga-on-line-thesaurus?filter_retrievalterm%5B%5D=7&search=].
-'''Data access''': [[dataAvailability::partially publicly available]] [https://www.palgaopenbaredatabank.nl/menu/main/home], [https://www.palga.nl/en/public-database.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers]]].
+'''Data access''': [[dataAvailability::partially publicly available]]. Public database: [https://www.palgaopenbaredatabank.nl/menu/main/home]. To facilitate the search process for cancer terms, the main thesaurus codes used are listed in this page [https://www.palga.nl/voor-pathologen/palga-on-line-thesaurus?page_70=4]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers]]].
 '''Contact information''': Information [https://www.palga.nl/gegevensaanvragen/adviseurs.html].