European Union: Difference between revisions

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=== [[hasDatabase:: Database: EUROCARE (European Union-wide Resources) | Database: EUROCARE]] ===
=== [[hasDatabase:: Database: EUROCARE (European Union-wide Resources) | Database: EUROCARE]] ===
{{forresearchers}}
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'''Primary purpose:''' To monitor cancer survival, measure cancer prevalence, and study patterns of care for cancer patients across Europe. [https://www.iss.it/en/eurocare-il-progetto Click here to learn more.]
'''Sponsor, manager or home institution:''' [[dataOwner::the Istituto Nazionale dei Tumori (INT Milan)]] and the [[dataOwner::Istituto Superiore di Sanità (Rome)]]. Patient-level data is owned by each individual cancer registry. [https://eu5results.iss.it/docs/Documentation_on_data_and_%20methods.pdf Click here to learn more].
'''Type of information:''' Cancer Site, Population, Age Class, ICSS - International Cancer Survival Standards, Time from Diagnosis, Sex, and Output Indicators including: Alive at Start, Observed Survival, Cumulative (OSC), Relative Survival, Cumulative (RSC), Relative SE's, Cumulative (RSEC), Dead, Expected Survival, Interval (ESI), Observed SE's, Interval (OSEI), RSC: Lower bound (95% CI), Lost to Follow Up, Expected Survival, Cumulative (ESC), Observed SE's, Cumulative (OSEC), RSC: Upper bound (95% CI), Observed Survival, Interval (OSI), Relative Survival, Interval (RSI), Relative SE's, Interval (RSEI).
'''Source of Information:''' 99 cancer registries from 29 countries participating in the study provided their patient-level data as of the 5th Edition of EUROCARE. [https://eu5results.iss.it/docs/Documentation_on_data_and_%20methods.pdf Click here to learn more].
'''Data level:''' [[dataLevel::national level]].
'''Number of Records:''' [[numberRecords::9,000,000]]. [https://eu5results.iss.it/docs/Documentation_on_data_and_%20methods.pdf Click here to learn more].
'''Date range:''' [[dataStart::2000]] to [[dataEnd::2007]].
'''Cancer Areas of Interest:''' [[hasCancerType::C00-C97: All cancer types]].
'''Data access:''' [[dataAvailability::publicly available]]. [https://eu5results.iss.it/forms/SA0007.aspx Click here to access]. Databases from previous editions of the EUROCARE study are also available. [https://www.iss.it/en/eurocare-database Click here to learn more].
'''Contact information:''' [https://www.iss.it/en/eurocare-chi-siamo Click here to learn more.]


=== [[hasDatabase::Database:_NordScreen_(European_Union_-_wide_Resources)|Database: NordScreen]] ===
=== [[hasDatabase::Database:_NordScreen_(European_Union_-_wide_Resources)|Database: NordScreen]] ===

Revision as of 14:09, 29 April 2024

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Administrative or Claims Data

Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance

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Cancer-related Patient Associations and Resources