Austria: Difference between revisions
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'''Cancer Areas of Interest:''' All malignant and non-malignant primary brain tumour types including lymphomas and haematopoietic neoplasms. brain (C71.0–C71.9), meninges (C70.0–C70.9), spinal cord, cranial nerves and other parts of the central nervous system (C72.0–C72.9), pituitary and pineal glands (C75.1–C75.3), and olfactory tumours of the nasal cavity (C30.0). | '''Cancer Areas of Interest:''' All malignant and non-malignant primary brain tumour types including lymphomas and haematopoietic neoplasms. brain (C71.0–C71.9), meninges (C70.0–C70.9), spinal cord, cranial nerves and other parts of the central nervous system (C72.0–C72.9), pituitary and pineal glands (C75.1–C75.3), and olfactory tumours of the nasal cavity (C30.0). | ||
'''Information/Contact for data request:''' [https://www.meduniwien.ac.at/hp/npc/allgemeine-informationen/kontakt/ Contact information]. | '''Information/Contact for data request:''' [https://www.meduniwien.ac.at/hp/npc/allgemeine-informationen/kontakt/ Contact information]. | ||
Revision as of 23:31, 28 May 2023
Cancer Centers
Healthcare System
Austria employs a social health insurance system based on mandatory contributions from employees and employers. The system provides universal healthcare coverage to its citizens and residents, ensuring access to a wide range of medical services.
The Federal Ministry of Social Affairs, Health, Care, and Consumer Protection is responsible for overseeing the healthcare system in Austria. The country's social health insurance is administered by regional health insurance funds called Gebietskrankenkassen. There are nine regional funds, one for each of Austria's provinces, and several smaller specialized funds for specific professional groups.
The population receives comprehensive healthcare benefits through the system, including access to primary care, specialist care, hospital care, dental care, and prescription medications. The system also covers preventive care, maternity care, and rehabilitation services. Additionally, it provides financial support for patients with chronic illnesses or disabilities. To access healthcare benefits in Austria, individuals must have health insurance, which is mandatory for all residents. Individuals may access any level of the healthcare system with no restrictions, as there is no formal gatekeeping system in place.
To access the benefits provided by the Austrian healthcare system, an individual must be a citizen or a legal resident of the country. They also must be enrolled in the social health insurance system, which is typically achieved through mandatory contributions from both employees and employers. Additionally, family members of insured individuals, such as spouses and children, can access healthcare benefits without any additional contributions.
Claims data in Austria is primarily collected and managed by the regional health insurance funds. The country maintains a Central Patient Registry, which contains anonymized data on hospital admissions and discharges. Electronic health records (EHR) are being increasingly adopted, with the Austrian ELGA system providing a secure platform for healthcare providers to access and share patient information, including medical history, laboratory results, and radiology reports. The ELGA system is designed to improve coordination and continuity of care, while also maintaining strict data privacy and security measures.
Administrative or Claims Data
Database: Statistik Austria Patient Discharge
Sponsor, manager or home institution: Statistik Austria;
Primary purpose: Provide open access information about patient discharge.
Type of information: Age in 5-year groups STAT; Age in 5 year groups; Diagnosis ICD-9 4-digit code; Diagnosis ICD-10 4-digit; Diagnosis ISHMT; Diagnosis chapter; Dismissal type; Fund affiliation; Function code 1st-2nd digit; Function code 3rd-4th digit; Function code 5th-6th digit; Function code 3rd-6th digit; Non-profit; Gender; Gender nonbinary; Hospital; MEL (codes up to 2008); MEL (codes from 2009); MEL subchapters; MEL chapter; MEL operative/non-operative; Public law; PSY_SOM; Entity Type; Hospital location; Citizenship political; Cause of injury; Supply region; Utility sector; Residential state; Residence code; Residential district; State of residence. The full database is available here.
Available type of information: Hospital discharges, cancer incidence, cancer mortality, cancer prevalence and the survival probabilities of cancer patients.
Source of Information: Legal entities of hospitals with in-patient admissions are obliged to report.
Data level: Patient level.
Available data level: National and regional level.
Number of Records: Unknown.
Date Range: 1989 onwards.
Cancer Areas of Interest: Cancer Areas of Interest: Statistik Austria Patient Discharge
Open data access: Data is partially publicly available. Publicly available data can be found here. Information on how to access the data can be found here.
Information/Contact for data request: Contact information can be found here.
Registries
Database: Statistik Austria Cancer Registry
Sponsor, manager or home institution: Statistik Austria.
Primary purpose: Provide open access information about cancer incidence.
Type of information: Data Dictionary: Cancer Registry. More information and data dictionary on this and other datasets can be found here. Go to the Search bar and type "KRE 2020 - Krebsstatistik (Krebsregister)" and open the file.
Available type of information: Cancer incidence, cancer diseases, tumors, cancer registry, malignancies, tumor diseases, cancer statistics and health.
Source of Information: Hospitals are obliged to report cancer cases and deaths caused by cancer.
Data level: Patient level.
Available data level: National and regional level.
Number of Records: Unknown.
Date Range: 1983 onwards.
Cancer Areas of Interest: <C00-C14> Malignant neoplasms of the lip, oral cavity and pharynx; <C15-C26> Malignant neoplasms of digestive organs; <C30-C39> Malignant neoplasms of respiratory organs and other intrathoracic organs; <C40-C41> Malignant neoplasms of bone and articular cartilage; <C43> Malignant melanoma of the skin; <C45-C49> Malignant neoplasms of mesothelial and soft tissues; <C50> Malignant neoplasms of the mammary glands [mammary]; <C51-C58> Malignant neoplasms of female genital organs; <C60-C63> Malignant neoplasms of male genital organs; <C64-C68> Malignant neoplasms of urinary organs; <C69-C72> Malignant neoplasms of the eye, brain and other parts of the central nervous system;<C73-C75> Malignant neoplasms of thyroid and other endocrine glands; <C76-C80> Malignant neoplasms of unspecified, secondary and unspecified localization; <C81-C96> Malignant neoplasms of lymphoid, haematopoietic and related tissues; <C97> Malignant neoplasms as primary tumors at multiple sites; <C97> Malignant neoplasms as primary tumors at multiple sites; <D00-D03, D05-D09> Carcinoma in situ; <D00-D03, D05-D09> Carcinoma in situ.
Open data access: Data is partially publicly available. Publicly available data can be found here. Information on how to access the data can be found here.
Information/Contact for data request: Contact information can be found here.
Database: Statistik Austria Cause of Death Registry
Sponsor, manager or home institution: Statistik Austria.
Primary purpose: Provide open access information about cause of death.
Type of information: Data Dictionary: Statistik Austria Cause of Death Registry. More information and data dictionary on this and other datasets can be found here. To access the full list go to Search Table and type: "STF - Statistik der Standesfälle einschließlich Todesursachenstatistik", and then see Deceased - demographic characteristics and Deceased - causes of death.
Available type of information: Cancer incidence and mortality for all malignomas (C00–C97, excl. C44) by sex over time; Cancer incidence and mortality by tumour site, annual average from 2018 to 2020; Cancer incidence and mortality by federal provinces, annual average from 2018 to 2020.
Source of Information: Death data in Austria comes from registrar reports, including deaths of residents abroad since 2009. Results are classified by the person's last known residence.
Data level: Patient level.
Available data level: National and regional level.
Number of Records: Approximately 85,000.
Date Range: 1970 onwards.
Cancer Areas of Interest: Malignant neoplasm of brain and CNS; Malignant neoplasms of thyroid; Malignant neoplasm of bladder; Malignant neoplasm of kidney; Malignant neoplasm of prostate; Malignant neoplasm of ovary; Malignant neoplasm of other parts of uterus; Malignant neoplasm of cervix uteri; Malignant neoplasm of breast; Malignant melanoma of skin; Malignant neoplasm of trachea, bronchus and lung; Malignant neoplasm of larynx; Malignant neoplasm of pancreas; Malignant neoplasm of gallbladder and of biliary tract; Malignant neoplasm of liver and intrahepatic bile ducts; Malignant neoplasm of colon, rectum, anus and anal canal; Malignant neoplasm of small intestine; Malignant neoplasm of stomach; Malignant neoplasm of oesophagus; Malignant neoplasm of lip, oral cavity, pharynx; Malignant neoplasms, stated or presumed to be primary, of lymphoid, haematopoietic and related tissue; Leukemia; Morbus Hodgkin and lymphoma; Other malignant neoplasm.
Open data access: Data is partially publicly available. Publicly available data can be found here. Information on how to access the data can be found here.
Information/Contact for data request: Contact information can be found here.
Database: The Austrian Brain Tumour Registry (ABTR)
Sponsor, manager or home institution: Austrian Society of Neuropathology and the Institute of Neurology (Neuropathology) of the Medical University of Vienna.
Primary purpose: Provide a population-based database on individual types of malignant and non-malignant brain tumors.
Type of information: Type of information - ABTR Austria.
Source of Information: All Austrian pathology or neuropathology departments/units involved in brain tumour diagnostics and the Austrian National Cancer Registry.
Data level: Patient-level.
Number of Records: 1,807 cases as of 2005.
Date Range: 2005 onwards.
Cancer Areas of Interest: All malignant and non-malignant primary brain tumour types including lymphomas and haematopoietic neoplasms. brain (C71.0–C71.9), meninges (C70.0–C70.9), spinal cord, cranial nerves and other parts of the central nervous system (C72.0–C72.9), pituitary and pineal glands (C75.1–C75.3), and olfactory tumours of the nasal cavity (C30.0).
Information/Contact for data request: Contact information.
Databases for Clinical Trials, Surveys and Biobanks
Survey: Health Survey 2019
Sponsor, manager or home institution: Statistik Austria.
Primary purpose: Provides representative data on the state of health, health behavior, and use of health services for the Austrian population aged 15 and over.
Type of information: Data Dictionary: Variable descriptions of the 2019 health survey. To find the original data dictionary, click here and go to Data Offering - Standardized Datasets (SDS) > Health Survey > Sample metadata > ATHIS 2019 - complete data set.
Source of Information: Survey responses.
Data level: Respondent level.
Number of Records: 15,461 respondents.
Date Range: 2019 and 2014.
Cancer Areas of Interest: Unknown.
Open data access: Data is not publicly available. More information about the database can be found here. Information on how to access the data can be found here.
Information/Contact for data request: Contact information can be found here.
Patient Association: Europa Donna Austria
Primary purpose: To provide guidance and support to women diagnosed with breast cancer, while advocating for their interests in public and political forums.
Contact information: Contact [6].
Self-help Group: Austrian Cancer Aid
Primary purpose: To serve as a comprehensive contact point for cancer prevention and early detection, providing support for patients and their relatives, promoting cancer research, and raising public awareness about cancer.
Contact information: Contact [7].
Self-help group: SHG Brain Tumor Vienna
Primary purpose: To provide a supportive space for individuals affected by brain tumors and their relatives to share experiences, receive information, and interact with each other, both in person and virtually.
Contact information: Contact [8].
Self-help group: Mamma Mia
Primary purpose: To offer support and information to those affected by breast cancer and their families, promote scientific research, and foster cooperation between health institutions and experts, all aimed at aiding women in this challenging life situation.
Contact information: Contact [9].
Self-help group: Multiple Myeloma Self-Help Austria
Primary purpose: To provide support, foster community, enhance patient-doctor communication, and promote quality of life for multiple myeloma patients and their families.
Contact information: Contact [10].
Self-help group: Myeloma and Lymphoma Aid Austria
Primary purpose: To provide extensive advice, foster patient-doctor communication, organize informative events, and promote the exchange of experiences to support those affected by myeloma and lymphoma and their relatives.
Contact information: Contact [11].
Self-help group: Self-help Colon Cancer
Primary purpose: To provide support for people affected by colon cancer.
Contact information: Contact [12].
Self-help group: Self-Help Prostate Cancer
Primary purpose: To provide support for people affected by prostate cancer.
Contact information: Contact [13].
Self-help group: Austria's laryngeal and throat breathers registered association
Primary purpose: To support and advocate for individuals without a larynx or those who breathe through their throats, focusing on their rehabilitation and representation in public and within similar organizations.
Contact information: Contact [14].
