Austria: Difference between revisions

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=== [[hasPatientAssociation::Patient_Association:_Europa_Donna_Austria_(Austria)|Patient Association: Europa Donna Austria]] ===
=== [[hasPatientAssociation::Patient_Association:_Europa_Donna_Austria_(Austria)|Patient Association: Europa Donna Austria]] ===
[http://www.europadonna.at/index.php]
'''Primary purpose:''' To provide guidance and support to women diagnosed with breast cancer, while advocating for their interests in public and political forums.
'''Contact information:''' Information [http://www.europadonna.at/index.php/kontakt].


=== [[hasPatientResource::Self-help_Group:_Austrian_Cancer_Aid_(Austria)|Self-help Group: Austrian Cancer Aid]] ===
=== [[hasPatientResource::Self-help_Group:_Austrian_Cancer_Aid_(Austria)|Self-help Group: Austrian Cancer Aid]] ===
{{#subobject:Austrian Cancer Aid
|dct:title=Austrian Cancer Aid
|datatype=group
}}
[https://www.krebshilfe.net]
'''Primary purpose:''' To serve as a comprehensive contact point for cancer prevention and early detection, providing support for patients and their relatives, promoting cancer research, and raising public awareness about cancer.
'''Contact information:''' Information [https://www.krebshilfe.net/kontakt].


=== [[hasPatientResource::Self-help_group:_SHG_Brain_Tumor_Vienna_(Austria)|Self-help group: SHG Brain Tumor Vienna]] ===
=== [[hasPatientResource::Self-help_group:_SHG_Brain_Tumor_Vienna_(Austria)|Self-help group: SHG Brain Tumor Vienna]] ===
[https://www.shghirntumor.at]
'''Primary purpose:''' To provide a supportive space for individuals affected by brain tumors and their relatives to share experiences, receive information, and interact with each other, both in person and virtually.
'''Contact information:''' Information [https://www.shghirntumor.at/kontakt/].


=== [[hasPatientResource::Self-help_group:_Mamma_Mia_(Austria)|Self-help group: Mamma Mia]] ===
=== [[hasPatientResource::Self-help_group:_Mamma_Mia_(Austria)|Self-help group: Mamma Mia]] ===
[https://www.mammamia.or.at/index.php]
'''Primary purpose:''' To offer support and information to those affected by breast cancer and their families, promote scientific research, and foster cooperation between health institutions and experts, all aimed at aiding women in this challenging life situation.
'''Contact information:''' Information [https://www.mammamia.or.at/index.php/kontakt].


=== [[hasPatientResource::Self-help_group:_Multiple_Myeloma_Self-Help_Austria_(Austria)|Self-help group: Multiple Myeloma Self-Help Austria]] ===
=== [[hasPatientResource::Self-help_group:_Multiple_Myeloma_Self-Help_Austria_(Austria)|Self-help group: Multiple Myeloma Self-Help Austria]] ===
[https://www.multiplesmyelom.at/multiples-myelom-vorstellung-und-ziele]
'''Primary purpose:''' To provide support, foster community, enhance patient-doctor communication, and promote quality of life for multiple myeloma patients and their families.
'''Contact information:''' Information [https://www.multiplesmyelom.at/kontakt].


=== [[hasPatientResource::Self-help_group:_Myeloma_and_Lymphoma_Aid_Austria_(Austria)|Self-help group: Myeloma and Lymphoma Aid Austria]] ===
=== [[hasPatientResource::Self-help_group:_Myeloma_and_Lymphoma_Aid_Austria_(Austria)|Self-help group: Myeloma and Lymphoma Aid Austria]] ===
[https://myelom-lymphom.at/]
'''Primary purpose:''' To provide extensive advice, foster patient-doctor communication, organize informative events, and promote the exchange of experiences to support those affected by myeloma and lymphoma and their relatives.
'''Contact information:''' Information [https://myelom-lymphom.at/kontakt/].


=== [[hasPatientResource::Self-help_group:_Self-help_Colon_Cancer_(Austria)|Self-help group: Self-help Colon Cancer]] ===
=== [[hasPatientResource::Self-help_group:_Self-help_Colon_Cancer_(Austria)|Self-help group: Self-help Colon Cancer]] ===
[https://selbsthilfe-darmkrebs.at/]
'''Primary purpose:''' To provide support for people affected by colon cancer.
'''Contact information:''' Information [https://selbsthilfe-darmkrebs.at/].


=== [[hasPatientResource::Self-help_group:_Self-Help_Prostate_Cancer_(Austria)|Self-help group: Self-Help Prostate Cancer]] ===
=== [[hasPatientResource::Self-help_group:_Self-Help_Prostate_Cancer_(Austria)|Self-help group: Self-Help Prostate Cancer]] ===
[https://www.prostatakrebse.at/]
'''Primary purpose:''' To provide support for people affected by prostate cancer.
'''Contact information:''' Information [https://www.prostatakrebse.at/ueber-uns/selbsthilfegruppe-prostatakrebse/].


=== [[hasPatientResource::Self-help_group:_Austria's_laryngeal_and_throat_breathers_registered_association_(Austria)|Self-help group: Austria's laryngeal and throat breathers registered association]] ===
=== [[hasPatientResource::Self-help_group:_Austria's_laryngeal_and_throat_breathers_registered_association_(Austria)|Self-help group: Austria's laryngeal and throat breathers registered association]] ===
[https://www.halsatmer.at/]
'''Primary purpose:''' To support and advocate for individuals without a larynx or those who breathe through their throats, focusing on their rehabilitation and representation in public and within similar organizations.
'''Contact information:''' Information [https://www.halsatmer.at/kontakt/].


=== [[hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Austria)|Compilation: ESMO Patient Guides]] ===
=== [[hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Austria)|Compilation: ESMO Patient Guides]] ===
'''Sponsor, manager or home institution:''' European Society for Medical Oncology
'''Primary purpose:''' To translate complex medical language into understandable information for patients.
'''Available guides:''' Cancer Therapy During the COVID-19 Pandemic; Immunotherapy related side effects and their management; Survivorship;
Cancer pain; Multiple myeloma.
'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-german].
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Revision as of 16:56, 26 May 2024

Go back to Cancer Centers list.

Cancer Centers

Healthcare System

Austria employs a social health insurance system based on mandatory contributions from employees and employers. The system provides universal healthcare coverage to its citizens and residents, ensuring access to a wide range of medical services.

The Federal Ministry of Social Affairs, Health, Care, and Consumer Protection is responsible for overseeing the healthcare system in Austria. The country's social health insurance is administered by regional health insurance funds called Gebietskrankenkassen. There are nine regional funds, one for each of Austria's provinces, and several smaller specialized funds for specific professional groups.

The population receives comprehensive healthcare benefits through the system, including access to primary care, specialist care, hospital care, dental care, and prescription medications. The system also covers preventive care, maternity care, and rehabilitation services. Additionally, it provides financial support for patients with chronic illnesses or disabilities. To access healthcare benefits in Austria, individuals must have health insurance, which is mandatory for all residents. Individuals may access any level of the healthcare system with no restrictions, as there is no formal gatekeeping system in place.

To access the benefits provided by the Austrian healthcare system, an individual must be a citizen or a legal resident of the country. They also must be enrolled in the social health insurance system, which is typically achieved through mandatory contributions from both employees and employers. Additionally, family members of insured individuals, such as spouses and children, can access healthcare benefits without any additional contributions.

Claims data in Austria is primarily collected and managed by the regional health insurance funds. The country maintains a Central Patient Registry, which contains anonymized data on hospital admissions and discharges. Electronic health records (EHR) are being increasingly adopted, with the Austrian ELGA system providing a secure platform for healthcare providers to access and share patient information, including medical history, laboratory results, and radiology reports. The ELGA system is designed to improve coordination and continuity of care, while also maintaining strict data privacy and security measures.

Administrative or Claims Data

Registries

Databases for Clinical Trials, Surveys and Biobanks

Latest Policymaking Initiatives

Report: Austrian Cancer Report

Sponsor, manager or home institution: Österreichische Gesellschaft für Hämatologie & Medizinische Onkologie (OeGHO) and Österreichischen Krebshilfe.

Primary purpose: To present initiatives and innovations aimed at improving treatment concepts and care for people with cancer in Austria, providing an overview of epidemiological data and cancer research, and highlighting important innovations and challenges in the field of oncology.

Type of information: The most common tumor locations; Cancer survival; Development of hospice and palliative care per facility type.

Data level: National level.

Access to information: Access Information [1].

Report: EU Country Cancer Profile 2023

Sponsor, manager or home institution: OECD and European Commission.

Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.

Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.

Data level: National level.

Access to information: Access Information [2].

Cancer-related Patient Associations and Resources

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [3] and Palliative Care [4].