Database: National Registry of Childhood Cancer (RNCCR) (Romania): Difference between revisions
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'''Cancer areas of interest''': [[hasCancerType::C00-D48: All neoplasms]]. [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf Click here to learn more]. | '''Cancer areas of interest''': [[hasCancerType::C00-D48: All neoplasms]]. [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf Click here to learn more]. | ||
'''Data access''': [[dataAvailability::partially publicly available]]. [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content | '''Data access''': [[dataAvailability::partially publicly available]]. [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://srohp.ro/contact/ Click here to learn more.]]] | ||
'''Contact information''': [https://srohp.ro/contact/ Click here to learn more]. | '''Contact information''': [https://srohp.ro/contact/ Click here to learn more]. | ||
Revision as of 16:42, 19 June 2024
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Type of database: registry.
Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. Click here to learn more.
Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
Type of information: longitudinal. age; sex; region; diagnosis; primary tumor localization; tumor histology; tumor staging; medical procedures; hospital location; cancer incidence; number of deaths; causes of death; potential years of life lost, cancer survival; hospital discharges, number of visits, year. Data Dictionary - National Registry of Childhood Cancer (RNCCR). The information contained in the registry follows the recommendations of ENCR Click here to learn more. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus Click here to learn more. Data refers to people aged between 0 and 14 years.
Available type of information: age, sex, region, diagnosis, primary tumor localization, tumor histology, tumor staging, cancer incidence, cancer survival, causes of death, number of deaths, potential years of life lost, hospital discharges, number of visits, year.
Source of information: Reports from pediatric oncologic centers.
Data level: patient level.
Date range: 2009 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.
Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content: Click here to learn more.
Contact information: Click here to learn more.
