Database: North-West Regional Cancer Registry (Romania): Difference between revisions

Revision as of 13:00, 20 June 2024

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Type of database: registry.

Primary purpose: Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.

Sponsor, manager or home institution: Oncological Institute of Cluj (IOCN).

Type of information: longitudinal. year; age; sex; place of residence; diagnosis; primary tumor localization; tumor histology; tumor staging; medical procedures; causes of death; number of deaths; cancer incidence. Data Dictionary: Database: North-West Regional Cancer Registry.

Available type of information: cancer incidence; region; diagnosis; year; sex; Annual incidence by 100.000 inhabitants; Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; age group; number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).

Source of Information: Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date Range: Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.

Cancer Areas of Interest: C00-D48: All neoplasms. See the full list here: North-West Regional Cancer Registry. Click here to learn more. Some specific cancer locations are excluded Click here to learn more.

Data access: partially publicly available. Click here to access. Instructions on how to request data for restricted content are available. Click here to learn more.

Contact information: Click here to learn more.

@@ Line 8: / Line 8: @@
 '''Sponsor, manager or home institution:''' [[dataOwner::Oncological Institute of Cluj (IOCN)]].
-'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry]].
+'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::year]]; [[hasVariable::age]]; [[hasVariable::sex]]; [[hasVariable::place of residence]]; [[hasVariable::diagnosis]]; [[hasVariable::primary tumor localization]]; [[hasVariable::tumor histology]]; [[hasVariable::tumor staging]]; [[hasVariable::medical procedures]]; [[hasVariable::causes of death]]; [[hasVariable::number of deaths]]; [[hasVariable::cancer incidence]]. [[hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry]].
 '''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::diagnosis]]; [[availableVariable::year]]; [[availableVariable::sex]]; Annual incidence by 100.000 inhabitants;
-Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; [[availableVariable::age]] group; [[availableVariable::number of deaths]] by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
+Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; [[availableVariable::age]] group; [[availableVariable::number of deaths]] by cancer; Crude rate of [[availableVariable::number of deaths|mortality]] by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
 '''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.