Database: North-West Regional Cancer Registry (Romania): Difference between revisions
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'''Sponsor, manager or home institution:''' [[dataOwner::Oncological Institute of Cluj (IOCN)]]. | '''Sponsor, manager or home institution:''' [[dataOwner::Oncological Institute of Cluj (IOCN)]]. | ||
'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::year]]; [[hasVariable::age]]; [[hasVariable::sex]]; [[hasVariable::place of residence]]; [[hasVariable::hospital location]]; [[hasVariable::diagnosis]]; [[hasVariable::primary tumor localization]]; [[hasVariable::tumor histology]]; [[hasVariable::tumor staging]]; [[hasVariable::medical procedures]]; [[hasVariable::causes of death]]; [[hasVariable::number of deaths]]; [[hasVariable::cancer incidence]]. [[hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry]]. | '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::year]]; [[hasVariable::age]]; [[hasVariable::sex]]; [[hasVariable::place of residence]]; [[hasVariable::hospital location]]; [[hasVariable::diagnosis]]; [[hasVariable::primary tumor localization]]; [[hasVariable::tumor histology]]; [[hasVariable::tumor staging]]; [[hasVariable::medical procedures]]; [[hasVariable::causes of death]]; [[hasVariable::number of deaths]]; [[hasVariable::cancer incidence]]. | ||
[[hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry]]. | |||
'''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::diagnosis]]; [[availableVariable::year]]; [[availableVariable::sex]]; Annual incidence by 100.000 inhabitants; | '''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::diagnosis]]; [[availableVariable::year]]; [[availableVariable::sex]]; Annual incidence by 100.000 inhabitants; | ||
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'''Date Range:''' Regarding the county of Cluj, information is available from [[dataStart::2000]] [[dataEnd::onwards]]. There is data about other counties from 2008 onwards. | '''Date Range:''' Regarding the county of Cluj, information is available from [[dataStart::2000]] [[dataEnd::onwards]]. There is data about other counties from 2008 onwards. | ||
'''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.old.iocn.ro/Document_Files/Rapoartele-Registrului-Regional-de-Cancer/00000901/fdhx8_RAPORT%20DE%20CANCER%20-%202019.pdf Click here to learn more]. Some specific cancer locations are excluded. [[Cancer areas of interest - North-West Regional Cancer Registry]] | '''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.old.iocn.ro/Document_Files/Rapoartele-Registrului-Regional-de-Cancer/00000901/fdhx8_RAPORT%20DE%20CANCER%20-%202019.pdf Click here to learn more]. Some specific cancer locations are excluded. | ||
[[Cancer areas of interest - North-West Regional Cancer Registry]] | |||
'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.old.iocn.ro/en/Cancer-prevention-and-control-center/Regional-Cancer-Registry/Reports-of-the-Regional-Cancer-Registry.html Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.old.iocn.ro/en/modul--Contact.html click here to learn more]]]. | '''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.old.iocn.ro/en/Cancer-prevention-and-control-center/Regional-Cancer-Registry/Reports-of-the-Regional-Cancer-Registry.html Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.old.iocn.ro/en/modul--Contact.html click here to learn more]]]. | ||
'''Contact information:''' [https://www.old.iocn.ro/en/modul--Contact.html Click here to learn more]. | '''Contact information:''' [https://www.old.iocn.ro/en/modul--Contact.html Click here to learn more]. | ||
Revision as of 09:59, 28 June 2024
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Type of database: registry.
Primary purpose: Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
Sponsor, manager or home institution: Oncological Institute of Cluj (IOCN).
Type of information: longitudinal. year; age; sex; place of residence; hospital location; diagnosis; primary tumor localization; tumor histology; tumor staging; medical procedures; causes of death; number of deaths; cancer incidence.
Data Dictionary: Database: North-West Regional Cancer Registry.
Available type of information: cancer incidence; region; diagnosis; year; sex; Annual incidence by 100.000 inhabitants; Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; age group; number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
Source of Information: Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
Data level: patient level.
Available data level: regional level.
Number of Records: unknown.
Date Range: Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more. Some specific cancer locations are excluded.
Cancer areas of interest - North-West Regional Cancer Registry
Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to learn more.
Contact information: Click here to learn more.
