Database: Southern Regional Oncology Registry (ROR-Sul) (Portugal): Difference between revisions
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'''Sponsor, manager or home institution''': [[dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)]]. | '''Sponsor, manager or home institution''': [[dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)]]. | ||
'''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::types of visits]] and [[hasVariable::number of visits]] to health care stablishments, [[hasVariable::periodicity of physician consultation]], [[hasVariable::diagnosis]], [[hasVariable::primary | '''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::types of visits]] and [[hasVariable::number of visits]] to health care stablishments, [[hasVariable::periodicity of physician consultation]], [[hasVariable::diagnosis]], [[hasVariable::primary tumour localization]], [[hasVariable::tumour staging]], [[hasVariable::risk of cancer]], [[hasVariable::tumour histology]], [[hasVariable::medical procedures]], [[hasVariable::causes of death]], [[hasVariable::year]], [[hasVariable::sex]], [[hasVariable::region]]. | ||
[[hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)]]. | [[hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)]]. | ||
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[https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | ||
'''Available type of information''': [[availableVariable::cancer incidence]], [[availableVariable::number of deaths]] and [[availableVariable::cancer survival]] by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::region]], [[availableVariable::causes of death]], [[availableVariable::primary | '''Available type of information''': [[availableVariable::cancer incidence]], [[availableVariable::number of deaths]] and [[availableVariable::cancer survival]] by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::region]], [[availableVariable::causes of death]], [[availableVariable::primary tumour localization]], [[availableVariable::tumour histology]], [[availableVariable::tumour staging]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | ||
'''Source of information''': Data from public and private health institutions of the region. | '''Source of information''': Data from public and private health institutions of the region. | ||
Revision as of 14:45, 26 August 2024
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Type of database: registry.
Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
Sponsor, manager or home institution: Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG).
Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumour localization, tumour staging, risk of cancer, tumour histology, medical procedures, causes of death, year, sex, region.
Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal).
Available type of information: cancer incidence, number of deaths and cancer survival by year, age, diagnosis, sex, region, causes of death, primary tumour localization, tumour histology, tumour staging. Click here to learn more.
Source of information: Data from public and private health institutions of the region.
Data level: patient level.
Available data level: regional level.
Number of records: unknown.
Date range: Regional level is presented from 2002 to 2017, and 1998 - 2000/2001. The patient level date range is unknown.
Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.
Data access: partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website: click here to access. Instructions to request data for restricted content: click here to access.
Contact information: Click here to access.
