Database: Socialstyrelsen Cancer Registry (Sweden)

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Type of database: registry

Primary purpose: To map the occurrence and change of cancer diseases over time.

Sponsor, manager or home institution: Socialstyrelsen.

Type of information: cross-sectional. age, year, diagnosis, primary tumour localization, tumour histology, tumour staging, hospital location, number of deaths, causes of death, region, sex, place of residence.

Data Dictionary: Socialstyrelsen Cancer Registry.

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Available type of information: number of diagnostics; Cases per 100,000; cancer incidence; age; sex; diagnosis, and year.

Source of Information: The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.

Data level: patient level.

Available data level: regional level and national level.

Number of records: 60,000 cases registered every year. Click here to learn more.

Date range: 1970 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available: click here to access. Instructions to request data for restricted content: click here to learn more. Data can be downloaded in the formats CSV, XLSX. Data has access costs.

Contact information: Click here to learn more.