Database: Socialstyrelsen National Patient Register (Sweden): Difference between revisions

Revision as of 13:29, 2 December 2025

Go back to Sweden page forresearchers

Type of database: administrative/claims data.

Primary purpose: The patient register serves multiple purposes. One of its main functions is to track the health development of the population over an extended period. In doing so, it helps to improve the possibilities of preventing and treating diseases. Additionally, the patient register contributes to the overall development of healthcare by providing valuable data and insights. It also enables healthcare providers to monitor the quality of their operations and identify areas where improvements may be needed.

Sponsor, manager or home institution: Socialstyrelsen.

Type of information: longitudinal. age, sex, marital status, place of residence, diagnosis, medical procedures, hospital location, type of medical activity, medication use, hospital discharges, type of patient discharge, length of stay, number of visits, types of visits, year.

Data Dictionary: Socialstyrelsen National Patient Register.

Click here to learn more.

Source of information: Healthcare providers must submit patient information to the patient register monthly, including hospital code and medical area. Data is submitted via a reporting portal or register service.

Data level: patient level.

Number of records: unknown.

Date range: 1964 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: not publicly available. Instructions to request data for restricted content: click here to learn more. Data has access costs. Click here to learn more.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia dataOwner::Socialstyrelsen databaseStructure::longitudinal hasVariable::age hasVariable::sex hasVariable::marital status hasVariable::place of residence hasVariable::diagnosis hasVariable::medical procedures hasVariable::hospital location hasVariable::type of medical activity hasVariable::medication use hasVariable::hospital discharges hasVariable::type of patient discharge hasVariable::length of stay hasVariable::number of visits hasVariable::types of visits hasVariable::year dataLevel::patient level numberRecords::unknown dataStart::1964 dataEnd::onwards hasCancerType::C00-D48: All neoplasms

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 '''Contact information:''' [https://www.socialstyrelsen.se/statistik-och-data/register/patientregistret/ Click here to learn more].
-{{Mouth}}
+<span style="display:none">Mouth</span>
-{{Throat}}
+<span style="display:none">Throat</span>
-{{Oropharynx}}
+<span style="display:none">Oropharynx</span>
-{{Nasopharynx}}
+<span style="display:none">Nasopharynx</span>
-{{Hypopharynx}}
+<span style="display:none">Hypopharynx</span>
-{{Larynx}}
+<span style="display:none">Larynx</span>
-{{Salivary glands}}
+<span style="display:none">Salivary glands</span>
-{{Lips}}
+<span style="display:none">Lips</span>
-{{Tonsils}}
+<span style="display:none">Tonsils</span>
-{{base of tongue}}
+<span style="display:none">base of tongue</span>
-{{Voice box}}
+<span style="display:none">Voice box</span>
-{{Esophagus}}
+<span style="display:none">Esophagus</span>
-{{Stomach}}
+<span style="display:none">Stomach</span>
-{{Small intestine}}
+<span style="display:none">Small intestine</span>
-{{Large intestine}}
+<span style="display:none">Large intestine</span>
-{{Colon}}
+<span style="display:none">Colon</span>
-{{Rectum}}
+<span style="display:none">Rectum</span>
-{{Anus}}
+<span style="display:none">Anus</span>
-{{Liver}}
+<span style="display:none">Liver</span>
-{{Gallbladder}}
+<span style="display:none">Gallbladder</span>
-{{Bile ducts}}
+<span style="display:none">Bile ducts</span>
-{{Pancreas}}
+<span style="display:none">Pancreas</span>
-{{Lung}}
+<span style="display:none">Lung</span>
-{{Trachea}}
+<span style="display:none">Trachea</span>
-{{Bronchi}}
+<span style="display:none">Bronchi</span>
-{{Pleura}}
+<span style="display:none">Pleura</span>
-{{Mediastinum}}
+<span style="display:none">Mediastinum</span>
-{{Bone}}
+<span style="display:none">Bone</span>
-{{Cartilage}}
+<span style="display:none">Cartilage</span>
-{{Osteosarcoma}}
+<span style="display:none">Osteosarcoma</span>
-{{Ewings sarcoma}}
+<span style="display:none">Ewings sarcoma</span>
-{{Skin}}
+<span style="display:none">Skin</span>
-{{Melanoma}}
+<span style="display:none">Melanoma</span>
-{{Scalp}}
+<span style="display:none">Scalp</span>
-{{Lips}}
+<span style="display:none">Lips</span>
-{{Hands}}
+<span style="display:none">Hands</span>
-{{Feet}}
+<span style="display:none">Feet</span>
-{{Muscle}}
+<span style="display:none">Muscle</span>
-{{Fat}}
+<span style="display:none">Fat</span>
-{{Tendon}}
+<span style="display:none">Tendon</span>
-{{Ligament}}
+<span style="display:none">Ligament</span>
-{{Blood vessels}}
+<span style="display:none">Blood vessels</span>
-{{Connective tissue}}
+<span style="display:none">Connective tissue</span>
-{{Sarcoma}}
+<span style="display:none">Sarcoma</span>
-{{Angiosarcoma}}
+<span style="display:none">Angiosarcoma</span>
-{{Liposarcoma}}
+<span style="display:none">Liposarcoma</span>
-{{Lobular}}
+<span style="display:none">Lobular</span>
-{{Breast}}
+<span style="display:none">Breast</span>
-{{Nipple}}
+<span style="display:none">Nipple</span>
-{{Areola}}
+<span style="display:none">Areola</span>
-{{Ductal}}
+<span style="display:none">Ductal</span>
-{{Vulva}}
+<span style="display:none">Vulva</span>
-{{Vagina}}
+<span style="display:none">Vagina</span>
-{{Cervix}}
+<span style="display:none">Cervix</span>
-{{Uterus}}
+<span style="display:none">Uterus</span>
-{{Ovary}}
+<span style="display:none">Ovary</span>
-{{Fallopian tubes}}
+<span style="display:none">Fallopian tubes</span>
-{{Endometrium}}
+<span style="display:none">Endometrium</span>
-{{Prostate}}
+<span style="display:none">Prostate</span>
-{{Testicles}}
+<span style="display:none">Testicles</span>
-{{Penis}}
+<span style="display:none">Penis</span>
-{{Kidney}}
+<span style="display:none">Kidney</span>
-{{Ureter}}
+<span style="display:none">Ureter</span>
-{{Bladder}}
+<span style="display:none">Bladder</span>
-{{Urethra}}
+<span style="display:none">Urethra</span>
-{{Eye}}
+<span style="display:none">Eye</span>
-{{Brain}}
+<span style="display:none">Brain</span>
-{{Spinal cord}}
+<span style="display:none">Spinal cord</span>
-{{Thyroid gland}}
+<span style="display:none">Thyroid gland</span>
-{{Parathyroid}}
+<span style="display:none">Parathyroid</span>
-{{Adrenal glands}}
+<span style="display:none">Adrenal glands</span>
-{{Pituitary gland}}
+<span style="display:none">Pituitary gland</span>
-{{Pancreas}}
+<span style="display:none">Pancreas</span>
-{{Thymus gland}}
+<span style="display:none">Thymus gland</span>
-{{Peritoneum}}
+<span style="display:none">Peritoneum</span>
-{{Pericardium}}
+<span style="display:none">Pericardium</span>
-{{Retroperitoneum}}
+<span style="display:none">Retroperitoneum</span>
-{{Mesothelium}}
+<span style="display:none">Mesothelium</span>
-{{Blood}}
+<span style="display:none">Blood</span>
-{{Bone marrow}}
+<span style="display:none">Bone marrow</span>
-{{Lymph nodes}}
+<span style="display:none">Lymph nodes</span>
-{{Spleen}}
+<span style="display:none">Spleen</span>
-{{Leukemia}}
+<span style="display:none">Leukemia</span>
+<span style="display:none">databaseType::administrative/claims data</span>
+<span style="display:none">dataOwner::Socialstyrelsen</span>
+<span style="display:none">databaseStructure::longitudinal</span>
+<span style="display:none">hasVariable::age</span>
+<span style="display:none">hasVariable::sex</span>
+<span style="display:none">hasVariable::marital status</span>
+<span style="display:none">hasVariable::place of residence</span>
+<span style="display:none">hasVariable::diagnosis</span>
+<span style="display:none">hasVariable::medical procedures</span>
+<span style="display:none">hasVariable::hospital location</span>
+<span style="display:none">hasVariable::type of medical activity</span>
+<span style="display:none">hasVariable::medication use</span>
+<span style="display:none">hasVariable::hospital discharges</span>
+<span style="display:none">hasVariable::type of patient discharge</span>
+<span style="display:none">hasVariable::length of stay</span>
+<span style="display:none">hasVariable::number of visits</span>
+<span style="display:none">hasVariable::types of visits</span>
+<span style="display:none">hasVariable::year</span>
+<span style="display:none">hasDataDictionary::Data Dictionary: Socialstyrelsen National Patient Register</span>
+<span style="display:none">dataLevel::patient level</span>
+<span style="display:none">numberRecords::unknown</span>
+<span style="display:none">dataStart::1964</span>
+<span style="display:none">dataEnd::onwards</span>
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
+<span style="display:none">dataAvailability::not publicly available</span>
+<span style="display:none">hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more</span>
+<span style="display:none">hasDataAccessCosts::Data has access costs</span>