Database: Southern Regional Oncology Registry (ROR-Sul) (Portugal): Difference between revisions
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Go back to [[Portugal]] page | Go back to [[Portugal]] page | ||
<span style="display:none">forresearchers</span> | |||
'''Type of database:''' [[databaseType::registry]]. | '''Type of database:''' [[databaseType::registry]]. | ||
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'''Sponsor, manager or home institution''': [[dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)]]. | '''Sponsor, manager or home institution''': [[dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)]]. | ||
'''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::types of visits]] | '''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::types of visits]] and [[hasVariable::number of visits]] to health care stablishments, [[hasVariable::periodicity of physician consultation]], [[hasVariable::diagnosis]], [[hasVariable::primary tumour localization]], [[hasVariable::tumour staging]], [[hasVariable::risk of cancer]], [[hasVariable::tumour histology]], [[hasVariable::medical procedures]], [[hasVariable::causes of death]], [[hasVariable::year]], [[hasVariable::sex]], [[hasVariable::region]]. | ||
[[hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)]]. | |||
'''Source of information''': | [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | ||
'''Available type of information''': [[availableVariable::cancer incidence]], [[availableVariable::number of deaths]] and [[availableVariable::cancer survival]] by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::region]], [[availableVariable::causes of death]], [[availableVariable::primary tumour localization]], [[availableVariable::tumour histology]], [[availableVariable::tumour staging]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | |||
'''Source of information''': Data from public and private health institutions of the region. | |||
'''Data level''': [[dataLevel::patient level]]. | '''Data level''': [[dataLevel::patient level]]. | ||
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'''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | '''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. | ||
'''Data access''': [[dataAvailability::partially publicly available]]. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website | '''Data access''': [[dataAvailability::partially publicly available]]. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website: [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 click here to access]. Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access]]]. | ||
'''Contact information''': [https://www.dgs.pt/site/contactos.aspx Click here to access]. | '''Contact information''': [https://www.dgs.pt/site/contactos.aspx Click here to access]. | ||
<span style="display:none">databaseType::registry</span> | |||
<span style="display:none">dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)</span> | |||
<span style="display:none">databaseStructure::longitudinal</span> | |||
<span style="display:none">hasVariable::types of visits</span> | |||
<span style="display:none">hasVariable::number of visits</span> | |||
<span style="display:none">hasVariable::periodicity of physician consultation</span> | |||
<span style="display:none">hasVariable::diagnosis</span> | |||
<span style="display:none">hasVariable::primary tumour localization</span> | |||
<span style="display:none">hasVariable::tumour staging</span> | |||
<span style="display:none">hasVariable::risk of cancer</span> | |||
<span style="display:none">hasVariable::tumour histology</span> | |||
<span style="display:none">hasVariable::medical procedures</span> | |||
<span style="display:none">hasVariable::causes of death</span> | |||
<span style="display:none">hasVariable::year</span> | |||
<span style="display:none">hasVariable::sex</span> | |||
<span style="display:none">hasVariable::region</span> | |||
<span style="display:none">hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)</span> | |||
<span style="display:none">availableVariable::cancer incidence</span> | |||
<span style="display:none">availableVariable::number of deaths</span> | |||
<span style="display:none">availableVariable::cancer survival</span> | |||
<span style="display:none">availableVariable::year</span> | |||
<span style="display:none">availableVariable::age</span> | |||
<span style="display:none">availableVariable::diagnosis</span> | |||
<span style="display:none">availableVariable::sex</span> | |||
<span style="display:none">availableVariable::region</span> | |||
<span style="display:none">availableVariable::causes of death</span> | |||
<span style="display:none">availableVariable::primary tumour localization</span> | |||
<span style="display:none">availableVariable::tumour histology</span> | |||
<span style="display:none">availableVariable::tumour staging</span> | |||
<span style="display:none">dataLevel::patient level</span> | |||
<span style="display:none">availableDataLevel::regional level</span> | |||
<span style="display:none">numberRecords::unknown</span> | |||
<span style="display:none">dataEnd::2017</span> | |||
<span style="display:none">dataStart::1998</span> | |||
<span style="display:none">dataAvailability::partially publicly available</span> | |||
<span style="display:none">hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access</span> | |||
<span style="display:none">isDatabase</span> | |||
<span style="display:none">hasCancerType::C00-C97: All cancer types</span> | |||
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span> | |||
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> | |||
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> | |||
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> | |||
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span> | |||
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> | |||
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> | |||
<span style="display:none">hasCancerType::C50: Breast cancer</span> | |||
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> | |||
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> | |||
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> | |||
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> | |||
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> | |||
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> | |||
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> | |||
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> | |||
<span style="display:none">Head</span> | |||
<span style="display:none">Neck</span> | |||
<span style="display:none">Oral</span> | |||
<span style="display:none">Oral cavity</span> | |||
<span style="display:none">Pharynx</span> | |||
<span style="display:none">Pharyngeal</span> | |||
<span style="display:none">Tongue</span> | |||
<span style="display:none">Lingual</span> | |||
<span style="display:none">Nasal cavity</span> | |||
<span style="display:none">Nasal</span> | |||
<span style="display:none">Sinonasal</span> | |||
<span style="display:none">Sinus</span> | |||
<span style="display:none">Sinuses</span> | |||
<span style="display:none">Paranasal sinuses</span> | |||
<span style="display:none">Ear</span> | |||
<span style="display:none">Mandible</span> | |||
<span style="display:none">Maxilla</span> | |||
<span style="display:none">Jaw</span> | |||
<span style="display:none">Esophageal</span> | |||
<span style="display:none">Gastric</span> | |||
<span style="display:none">Intestinal</span> | |||
<span style="display:none">Bowel</span> | |||
<span style="display:none">Colorectal</span> | |||
<span style="display:none">Appendix</span> | |||
<span style="display:none">Appendiceal</span> | |||
<span style="display:none">Duodenum</span> | |||
<span style="display:none">Jejunum</span> | |||
<span style="display:none">Ileum</span> | |||
<span style="display:none">Anal</span> | |||
<span style="display:none">Perianal</span> | |||
<span style="display:none">Hepatic</span> | |||
<span style="display:none">Biliary</span> | |||
<span style="display:none">Hepatobiliary</span> | |||
<span style="display:none">Pulmonary</span> | |||
<span style="display:none">Thorax</span> | |||
<span style="display:none">Thoracic</span> | |||
<span style="display:none">Chest</span> | |||
<span style="display:none">Mediastinal</span> | |||
<span style="display:none">Pleural</span> | |||
<span style="display:none">Cutaneous</span> | |||
<span style="display:none">Dermal</span> | |||
<span style="display:none">Epidermal</span> | |||
<span style="display:none">Subcutaneous</span> | |||
<span style="display:none">Skeletal</span> | |||
<span style="display:none">Osseous</span> | |||
<span style="display:none">Chondral</span> | |||
<span style="display:none">Extremity</span> | |||
<span style="display:none">Axilla</span> | |||
<span style="display:none">Axillary</span> | |||
<span style="display:none">Mammary</span> | |||
<span style="display:none">Cervical</span> | |||
<span style="display:none">Uterine</span> | |||
<span style="display:none">Endometrial</span> | |||
<span style="display:none">Ovarian</span> | |||
<span style="display:none">Tubal</span> | |||
<span style="display:none">Fallopian</span> | |||
<span style="display:none">Vaginal</span> | |||
<span style="display:none">Vulvar</span> | |||
<span style="display:none">Adnexal</span> | |||
<span style="display:none">Renal</span> | |||
<span style="display:none">Urothelial</span> | |||
<span style="display:none">Ureteral</span> | |||
<span style="display:none">Urethral</span> | |||
<span style="display:none">Prostatic</span> | |||
<span style="display:none">Testicular</span> | |||
<span style="display:none">Penile</span> | |||
<span style="display:none">Ocular</span> | |||
<span style="display:none">Orbital</span> | |||
<span style="display:none">Retinal</span> | |||
<span style="display:none">Optic nerve</span> | |||
<span style="display:none">Meninges</span> | |||
<span style="display:none">Meningeal</span> | |||
<span style="display:none">Cerebral</span> | |||
<span style="display:none">Cerebellar</span> | |||
<span style="display:none">Brainstem</span> | |||
<span style="display:none">Lymphatic</span> | |||
<span style="display:none">Lymphoid</span> | |||
<span style="display:none">Lymphoma</span> | |||
<span style="display:none">Hematologic</span> | |||
<span style="display:none">Hematopoietic</span> | |||
<span style="display:none">Myeloma</span> | |||
<span style="display:none">Plasma cell</span> | |||
<span style="display:none">Diaphragm</span> | |||
<span style="display:none">Peripheral nerve</span> | |||
<span style="display:none">Heart</span> | |||
<span style="display:none">Cardiac</span> | |||
<span style="display:none">Endocrine</span> | |||
Latest revision as of 11:59, 14 December 2025
Go back to Portugal page
Type of database: registry.
Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
Sponsor, manager or home institution: Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG).
Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumour localization, tumour staging, risk of cancer, tumour histology, medical procedures, causes of death, year, sex, region.
Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal).
Available type of information: cancer incidence, number of deaths and cancer survival by year, age, diagnosis, sex, region, causes of death, primary tumour localization, tumour histology, tumour staging. Click here to learn more.
Source of information: Data from public and private health institutions of the region.
Data level: patient level.
Available data level: regional level.
Number of records: unknown.
Date range: Regional level is presented from 2002 to 2017, and 1998 - 2000/2001. The patient level date range is unknown.
Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.
Data access: partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website: click here to access. Instructions to request data for restricted content: click here to access.
Contact information: Click here to access.
