Denmark: Difference between revisions

From Beacon
 
(262 intermediate revisions by 5 users not shown)
Line 1: Line 1:
== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">denmarkcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


Denmark citizens have access to universal healthcare funded by income tax. The national government regulates, plans and assesses healthcare. Regional government provides most of the healthcare services, while municipalities are responsible nursing homes, home care, school health services, disease prevention, rehabilitation and non-specialized long-term care. Citizens must register with a general practitioner who will refer patients to other specializations according to need. The CPR-number is an unique electronic personal identifier of Denmark permanent residents and configures an important tool to connect data across registries and databases.
[[hasCancerCenter::Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital]]


== [[Administrative or Claims Data]] ==
</div>


=== The Danish National Patient Registry (DNPR) ===
== [[hasHealthcareSystem::Healthcare_System_(Denmark)|Healthcare System]] ==
[https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel7D18BC3E7A234C1FBA1FF09361363EFD [1]] [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4655913/pdf/clep-7-449.pdf [2]]
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
</div>


'''Sponsor, manager or home institution''': The Danish Health Data Authority.
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Type of information''': Patient data (CPR number, and area of residence), admission data (hospital and department codes, admission type, patient contact type, referral information, contact reason, and dates of admission and discharge), diagnosis (primary, secondary, referral, temporary, procedure-related, and supplementary), treatments information (surgery, anesthesia, intensive care, and othersincluding cancer treatments), and examinations.
=== [[hasDatabase::Database:_The_Danish_National_Patient_Registry_(DNPR)_(Denmark)|Database: The Danish National Patient Registry (DNPR)]] ===


'''Source of information''': Collected from monthly mandatory public and private hospitals' reports.
=== [[hasDatabase::Database:_The_National_Health_Insurance_Service_Register_(SSR)_(Denmark)|Database: The National Health Insurance Service Register (SSR)]] ===


'''Data level''': Patient level.
=== [[hasDatabase::Database:_The_Medicines_Statistics_Register_(NPR)_(Denmark)|Database: The Medicines Statistics Register (NPR)]] ===
</div>


'''Number of records''': Nationwide coverage since 1978. Considering the period between 1977–2012, the DNPR registered 8,085,603 persons, accounting for 7,268,857 inpatient, 5,953,405 outpatient, and 5,097,300 emergency department contacts.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date range''': 1977 onwards.
=== [[hasDatabase::Database:_The_Danish_Cancer_Register_(Denmark)|Database: The Danish Cancer Register]] ===


'''Data access''': Restricted access. To be able to request data, read the instructions presented [https://sundhedsdatastyrelsen.dk/da/forskerservice here].
=== [[hasDatabase::Databases: RKKPs Clinical Quality Databases Compilation (Denmark)|Databases: RKKPs Clinical Quality Databases Compilation]] ===


'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
=== [[hasDatabase::Database:_Hospital_Utilization_Information_(Denmark)|Database: Hospital Utilization Information]] ===
=== The National Health Insurance Service Register (SSR) ===
[https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=10 [2]] [https://journals.sagepub.com/doi/epdf/10.1177/1403494810394718[2]]


'''Sponsor, manager or home institution''': The Danish Health Data Agency.
=== [[hasDatabase::Database:_The_Cause_of_Death_Register_(DAR)_(Denmark)|Database: The Cause of Death Register (DAR)]] ===


'''Type of information''': Presents information about services that are supported by public health insurance (patient data: CPR number, age, sex, place of residence, etc.; provider data: specialty, service number, practice office, etc.; service data: type, date, fee triggered from the Public Health Insurance). It is possible to acquire more details about each patient context by linking with the National Patient Register and the Cause of Death Register data.
=== [[hasDatabase::Database:_Cancer_Survivorship_(Denmark)|Database: Cancer Survivorship]] ===
</div>


'''Source of information''': Reports from the providers that is sent to The Danish Health Data Agency.
== Databases for Clinical Trials, Surveys and Biobanks ==


'''Data level''': Patient level.
=== [[hasDatabase::Database: Diet, Cancer and Health (DCI) (Denmark)|Database: Diet, Cancer and Health (DCI)]] ===


'''Date range''': 1990 onwards.
== Clinical Practices Guidelines ==


'''Data access''': Access is restricted and can be obtained by applying for data via the research service at the research service at the  [www.ssi.dk Statens Seruminstitut].
=== [[hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Guidelines: Danish Cancer Society Guidelines]] ===


'''Information/contact for data request''': [https://www.ssi.dk/om-ssi/kontakt Contact information].
=== [[hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Guidelines: Danish Health Autority Guidelines]] ===
=== [https://sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/sygdomme-laegemidler-og-behandlinger/laegemiddelstatistikregisteret The Medicines Statistics Register (LSR)] ===


'''Sponsor, manager or home institution''': The Danish Medicines Agency.
=== [[hasClinicalGuidelines::Guidelines: DMCG Guidelines Compilation (Denmark)|Guidelines: DMCG Guidelines Compilation]] ===


'''Type of information''': Information on prescriptions  dispensed  to  residents  of  long-termcare institutions.
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Source of information''': Reports from pharmacies, hospital pharmacies, the Statens Serum Institut and Denmark's Food Research, and convenience stores that do not sell over-the-counter medicines reserved for pharmacies.
=== [[hasReport::Reports:_RKKP_Screenings_(Denmark)|Reports: RKKP Screenings]] ===


'''Data level''': Patient level.
=== [[hasReport::Reports: Kræftens Bekæmpelse Reports and Publications Compilation (Denmark)|Reports: Kræftens Bekæmpelse Reports and Publications Compilation]] ===


'''Number of records''': Receives 96 million reports per year. Current total number unknown.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Denmark)|Report: EU Country Cancer Profile 2023]] ===


'''Date range''': 1995 onwards.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Denmark)|Report: EU Country Cancer Profile 2025]] ===


'''Data access''': The access to data from this database is restricted, for this purpose read the instructions presented [https://sundhedsdatastyrelsen.dk/da/forskerservice here].
=== [[hasReport::Reports:_Annual_reports_on_new_cancer_cases_(Denmark)|Reports: Annual reports on new cancer cases]] ===


'''Information/contact for data request''': [https://sundhedsdatastyrelsen.dk/da/kontakt Contact information].
=== [[hasReport::Report:_Analysis_of_developments_in_the_field_of_cancer_(Denmark)|Report: Analysis of developments in the field of cancer]] ===


=== [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler#tabpanel158AFB3B131B4E8CAD6AEDC787AE3F98 Pharmacies' sales of medicines] ===
</div>


'''Sponsor, manager or home institution''': The Danish Health Data Agency.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Type of information''': Quantitative measures related to medications' sales (total quantity sold, total revenue, average shipping price per unit of quantity, regions' health insurance subsidy, pharmacy's total purchase price, pharmacy's purchase price per amount, number of buyers per quarter).
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Denmark)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Source of information''': The Medicines Statistics Register (LSR).
=== [[hasPatientAssociation::Patient Association: Danish Breast Cancer Association (Europa Donna Denmark) (Denmark)|Patient Association: Danish Breast Cancer Association (Europa Donna Denmark)]] ===


'''Data level''': National level.
=== [[hasPatientAssociation::Patient_Association:_ALK-positive_lung_cancer_(Denmark)|Patient Association: ALK-Positive Lung Cancer]] ===


'''Number of records''': Unknown.
=== [[hasPatientAssociation::Patient_Association:_The_Bladder_Cancer_Association_(Denmark)|Patient Association: The  Bladder Cancer Association]] ===


'''Date range''': 2018 onwards.
=== [[hasPatientAssociation::Patient_Association:_Danish_Myeloma_Association_(Denmark)|Patient Association: Danish Myeloma Association]] ===


'''Data access''': It is openly available [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler here].
=== [[hasPatientAssociation::Patient_Association:_DANYCA_(Denmark)|Patient Association: DANYCA]] ===


'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
=== [[hasPatientAssociation::Breast_Cancer_Society_(Denmark)|Patient Association: Breast Cancer Society]] ===


=== [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanel7E2094C00E7D43AFBEEC71B851C3A8A7 Use of medicines during pregnancy] ===
=== [[hasPatientAssociation::Patient_Association:_The_association_for_children_affected_by_cancer_(Denmark)|Patient Association: The association for children affected by cancer]] ===


'''Sponsor, manager or home institution''': The Danish Health Data Agency.
=== [[hasPatientAssociation::Patient_Association:_The_Brain_Tumour_Association_(Denmark)|Patient Association: The Brain Tumour Association]] ===


'''Type of information''': Quantitative measures related to medications' sales to pregnant women.
=== [[hasPatientAssociation::Patient_Association:_KIU_(Denmark)|Patient Association: KIU]] ===


'''Source of information''': The Medicines Statistics Register (LSR).
=== [[hasPatientAssociation::Patient_Association:_NETpa_(Denmark)|Patient Association: NETpa]] ===


'''Data level''': National level.
=== [[hasPatientAssociation::Patient_Association:_Birthmark_Cancer_(Denmark)|Patient Association: Birthmark Cancer]] ===


'''Date range''': It is based on the year of birth, which ranges from 2001 to 2018.
=== [[hasPatientAssociation::Patient_Association:_NETKU_(Denmark)|Patient Association: NETKU]] ===


'''Data access''': It is openly available [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanelD9F24CFC14FF4DC3BF89F53942438A68 here].
=== [[hasPatientAssociation::Patient_Association:_Pancreas_Network_(Denmark)|Patient Association: Pancreas Network]] ===


'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
=== [[hasPatientAssociation::Patient_Association:_PROPA_(Denmark)|Patient Association: PROPA]] ===


== [[Registries]] ==
=== [[hasPatientAssociation::Patient_Association:_Bowel_Cancer_Association_(Denmark)|Patient Association: Bowel Cancer Association]] ===


=== [https://sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/sygdomme-laegemidler-og-behandlinger/cancerregisteret The Danish Cancer Register] ===  
=== [[hasPatientResource::Resource:_Sammenholdet_App_(Denmark)|Resource: Sammenholdet App]] ===
[https://journals.sagepub.com/doi/epdf/10.1177/1403494810393562 [3]] [https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=23 [4]]


'''Primary purpose''': Collects and processes new diagnosed cancer cases in Denmark.
=== [[hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guides: Help and Information]] ===


'''Sponsor, manager or home institution''': The Danish Health Data Authority.
=== [[hasPatientResource::Self-help_group:_The_Thistles_(Denmark)|Self-help group: The Thistles]] ===


'''Type of information''': ICD-10 diagnosis, tumor characteristics (morphology, topography, behaviour, laterality, stage), date of diagnosis, basis for diagnosis, and dissemination of the disease in relation to the time of diagnosis. Information on treatment and notifying hospital can be found in linkage with the Danish National Patient Register  (NPR); Cause  of  death  and  place  of  death  can  be  found in  linkage  with  the  Danish  Register  of  Causes  of Death.
</div>


'''Source of information''': 1943 – 2003 on reports from hospitals and practicing specialists. From 2004 onwards, data was collected from the National Patient Register (LPR), the Danish Health Authority's Electronic Reporting System (SEI) and the National Register of Pathology (LRP).
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Denmark)|Quality of Life and Palliative Care Research]] ==
</div>


'''Data level''': Patient level.
__NOTOC__
 
<span style="display:none">hasCancerCenter::Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital</span>
'''Date range''': 1943 onwards.
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Denmark)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_The_Danish_National_Patient_Registry_(DNPR)_(Denmark)|Database: The Danish National Patient Registry (DNPR)</span>
'''Cancer areas of interest''': Unknown.
<span style="display:none">hasDatabase::Database:_The_National_Health_Insurance_Service_Register_(SSR)_(Denmark)|Database: The National Health Insurance Service Register (SSR)</span>
 
<span style="display:none">hasDatabase::Database:_The_Medicines_Statistics_Register_(NPR)_(Denmark)|Database: The Medicines Statistics Register (NPR)</span>
'''Data access''': Restricted access. To request data access contact the Danish Health Data Agency's Research Service as explained [https://sundhedsdatastyrelsen.dk/da/forskerservice here]. Some open access data can be checked in the datasets of Cancer Incidence and Cancer Survival, both detailed forward and present in the [www.sundhedsdatastyrelsen.dk Danish Health Data Agency's] website.
<span style="display:none">hasDatabase::Database:_The_Danish_Cancer_Register_(Denmark)|Database: The Danish Cancer Register</span>
 
<span style="display:none">hasDatabase::Databases_Compilation:_RKKPs_Clinical_Quality_Databases_(Denmark)|Databases Compilation: RKKP's Clinical Quality Databases</span>
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
<span style="display:none">hasDatabase::Database:_Hospital_Utilization_Information_(Denmark)|Database: Hospital Utilization Information</span>
 
<span style="display:none">hasDatabase::Database:_The_Cause_of_Death_Register_(DAR)_(Denmark)|Database: The Cause of Death Register (DAR)</span>
=== [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B New cancer cases report] ===
<span style="display:none">hasDatabase::Database:_Cancer_Survivorship_(Denmark)|Database: Cancer Survivorship</span>
'''Primary purpose''': Display quantitative information about new cancer cases annually to political professionals, researchers and general public.
<span style="display:none">hasDatabase::Database: Diet, Cancer and Health (DCI) (Denmark)|Database: Diet, Cancer and Health (DCI)</span>
 
<span style="display:none">hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Danish Cancer Society Guidelines</span>
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
<span style="display:none">hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Danish Health Autority Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_DMCG_Guidelines_(Denmark)|Compilation: DMCG Guidelines</span>
'''Type of information''': Cancer incidence, prevalence, number of tumors per 100,000 citizens, age-standardized value for the number of tumors (per 100,000 citizens), age- and sex-standardized value for the number of tumors (per 100,000 citizens).
<span style="display:none">hasReport::Reports:_RKKP_Screenings_(Denmark)|Reports: RKKP Screenings</span>
 
<span style="display:none">hasReport::Compilation:_Kræftens_Bekæmpelse_Reports_and_Publications_(Denmark)|Compilation: Kræftens Bekæmpelse Reports and Publications</span>
'''Source of information''': The Danish Cancer Register.
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Denmark)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Reports:_Annual_reports_on_new_cancer_cases_(Denmark)|Reports: Annual reports on new cancer cases</span>
'''Data level''': National level.
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Denmark)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_ALK-positive_lung_cancer_(Denmark)|Patient Association: ALK-Positive Lung Cancer</span>
'''Date range''': From 1978 to 2020
<span style="display:none">hasPatientAssociation::Patient_Association:_The_Bladder_Cancer_Association_(Denmark)|Patient Association: The  Bladder Cancer Association</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Danish_Myeloma_Association_(Denmark)|Patient Association: Danish Myeloma Association</span>
'''Data access''': It is openly available [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B here].
<span style="display:none">hasPatientAssociation::Patient_Association:_DANYCA_(Denmark)|Patient Association: DANYCA</span>
 
<span style="display:none">hasPatientAssociation::Breast_Cancer_Society_(Denmark)|Patient Association: Breast Cancer Society</span>
'''Cancer areas of interest''': The list can be checked [https://www.esundhed.dk/Emner/Kraeft/-/media/FF20D765CB9B4C0EBED76AA7AAD87B15.ashx here].
<span style="display:none">hasPatientAssociation::Patient_Association:_The_association_for_children_affected_by_cancer_(Denmark)|Patient Association: The association for children affected by cancer</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_The_Brain_Tumour_Association_(Denmark)|Patient Association: The Brain Tumour Association</span>
'''Information/contact for data request''': [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B Contact information].
<span style="display:none">hasPatientAssociation::Patient_Association:_KIU_(Denmark)|Patient Association: KIU</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_NETpa_(Denmark)|Patient Association: NETpa</span>
=== [https://www.rkkp.dk/kvalitetsdatabaser/ Compilation: RKKP's Clinical Quality Databases] ===
<span style="display:none">hasPatientAssociation::Patient_Association:_Birthmark_Cancer_(Denmark)|Patient Association: Birthmark Cancer</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_NETKU_(Denmark)|Patient Association: NETKU</span>
'''Primary purpose:''' Inform about the quality of Denmark's clinical treatment and contribute to improve the health care system.
<span style="display:none">hasPatientAssociation::Patient_Association:_Pancreas_Network_(Denmark)|Patient Association: Pancreas Network</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_PROPA_(Denmark)|Patient Association: PROPA</span>
'''Sponsor, manager or home institution:''' Regionernes kliniske kvalitetsprogram (RKKP).
<span style="display:none">hasPatientAssociation::Patient_Association:_Bowel_Cancer_Association_(Denmark)|Patient Association: Bowel Cancer Association</span>
 
<span style="display:none">hasPatientResource::Resource:_Sammenholdet_App_(Denmark)|Resource: Sammenholdet App</span>
'''Type of information:''' Quantitative indicators of cancer care quality and researches developed in the matter. All databases included can be found [https://www.rkkp.dk/kvalitetsdatabaser/ here]. The variables, cancer areas of interest and other individual information about each database can be checked in [https://www.rkkp-dokumentation.dk/Public/Default.aspx?msg=ChooseDB&error=WrongParm this] link.
<span style="display:none">hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guide: Help and Information</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Denmark)|Quality of Life and Palliative Care Research</span>
'''Source of information:''' Registered data from nationwide clinicians is managed by clinical epidemiologists and discussed by in clinical auditions to produce recommendations to increase health care quality.
<span style="display:none">hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guides: Help and Information</span>
 
<span style="display:none">hasDatabase::Databases: RKKPs Clinical Quality Databases Compilation (Denmark)|Databases: RKKPs Clinical Quality Databases Compilation</span>
'''Data level:''' Patient level.
<span style="display:none">hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Guidelines: Danish Cancer Society Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Guidelines: Danish Health Autority Guidelines</span>
'''Number of Records:''' Unknown.
<span style="display:none">hasClinicalGuidelines::Guidelines: DMCG Guidelines Compilation (Denmark)|Guidelines: DMCG Guidelines Compilation</span>
 
<span style="display:none">hasReport::Reports: Kræftens Bekæmpelse Reports and Publications Compilation (Denmark)|Reports: Kræftens Bekæmpelse Reports and Publications Compilation</span>
'''Date Range:''' Varies.
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Denmark)|Patient Guides: ESMO Patient Guides Compilation</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
'''Cancer Areas of Interest:''' Varies.
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
'''Data access:''' Annual reports are openly available in each database's website. More specific data can be obtained following the instructions presented [https://www.rkkp.dk/systemer-og-support/afrapportering/adgang-til-data/ here].
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
'''Information/Contact for data request:''' [https://www.rkkp.dk/kontakt/ Contact information].
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
=== [https://www.statbank.dk/statbank5a/default.asp?w=412 Hospital Utilization Information] ===
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
'''Sponsor, manager or home institution''': Statistics Denmark.
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
 
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
'''Type of information''': Inventory of annual public and private hospital utilization, hospital admitions, outpatient care and emergency admitions, including those related to neoplasic diagnosis related to sociodemographic factors filtered by region, diagnosis, emergency/non emergency, age, sex, year, key figures.
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
 
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
'''Source of information''': National Patient Register, which is validated by the Danish Health Data Agency.
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
'''Data level''': National level.
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
'''Number of Records:''' Unknown.
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Date range''': Varies accordingly to the indicator selected.
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
'''Cancer Areas of Interest:''' It can be checked in [https://www.dst.dk/-/media/Kontorer/01-Befolkning/diagnosis.pdf this] list.
 
'''Data access''': It is openly available [https://www.statbank.dk/statbank5a/default.asp?w=412 here].
 
'''Information/contact for data request''': [https://www.dst.dk/en/kontakt Contact information].
 
=== [https://www.esundhed.dk/Emner/Hvad-doer-vi-af/Doedsaarsager#tabpanel5BFAA322B3104800ABE89BB431B8D149 The Cause of Death Register (DAR)] ===
[https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=17 [5]]
 
'''Primary purpose:''' Make the national number of deaths by causes available to research and statistics purpose.
 
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
 
'''Type of information''': Number of deaths (per 100,000 citizens, per 100,000 citizens - age standardized -, Number of deaths per 100,000 citizens - gender and age standardised -) filtered by geographic region, year and diagnosis.
 
'''Source of information''': Death certificates.
 
'''Data level''': National level.
 
'''Number of Records:''' Unknown.
 
'''Date range''': 1970 onwards.
 
'''Cancer Areas of Interest:''' It can be checked in the Cause of death groupings section presented in [https://www.esundhed.dk/Emner/Hvad-doer-vi-af/Doedsaarsager#tabpanelD0B799B928E64541919B0DF95BA7A873 this] website.
 
'''Data access''': Some information is openly available [https://www.esundhed.dk/Emner/Hvad-doer-vi-af/Doedsaarsager#tabpanel5BFAA322B3104800ABE89BB431B8D149 here]. Researchers can request for data contacting the Danish Health Data Agency Research service. Instructions are presented [https://sundhedsdatastyrelsen.dk/da/forskerservice here].
 
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
 
=== [https://www.esundhed.dk/home/emner/kraeft/kraeftoverlevelse#tabpanel7C3267ABF53E4D7BBAA9AFA8538C66FA Cancer Survivorship] ===
[https://www.esundhed.dk/home/emner/kraeft/kraeftoverlevelse#tabpanel814CB8F7C53A4980B37DA6D5048D5D14 [6]]
 
'''Primary purpose:''' Make the national number of cancer survivorship publicly available to research and statistics purpose.
 
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
 
'''Type of information''': Cancer survival statistics in percent (relative to 1, 3, 5, and 10 years) filtered by the cancer diagnosis, survival and confidence limits, geographic region, sex, and year-periods.
 
'''Source of information''': Reports from the Cancer Register and the Central Person Register (CPR).
 
'''Data level''': Regional level.
 
'''Number of Records:''' Unknown.
 
'''Date range''': 2006 onwards.
 
'''Cancer Areas of Interest:''' All cancers (excluding skin cancer other than mole cancer) and for men (excluding prostate cancer) and women (excluding breast cancer). The detailed list can be checked in [https://www.esundhed.dk/home/emner/kraeft/-/media/82AA437E6A6B47FB8A9683469D90FA20.ashx this] document.
 
'''Data access''': Openly available [https://www.esundhed.dk/home/emner/kraeft/kraeftoverlevelse#tabpanel7C3267ABF53E4D7BBAA9AFA8538C66FA here].
 
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
 
== [[Clinical Study Databases]] ==
 
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
 
== [[Latest Policymaking Initiatives]] ==
 
== [[Cancer-related Patient Associations]] ==

Latest revision as of 02:33, 21 January 2026

forresearchers forpatients forproviders forpolicymakers denmarkcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Database: Diet, Cancer and Health (DCI)[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: Danish Cancer Society Guidelines[edit | edit source]

Guidelines: Danish Health Autority Guidelines[edit | edit source]

Guidelines: DMCG Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital hasHealthcareSystem::Healthcare_System_(Denmark)|Healthcare System hasDatabase::Database:_The_Danish_National_Patient_Registry_(DNPR)_(Denmark)|Database: The Danish National Patient Registry (DNPR) hasDatabase::Database:_The_National_Health_Insurance_Service_Register_(SSR)_(Denmark)|Database: The National Health Insurance Service Register (SSR) hasDatabase::Database:_The_Medicines_Statistics_Register_(NPR)_(Denmark)|Database: The Medicines Statistics Register (NPR) hasDatabase::Database:_The_Danish_Cancer_Register_(Denmark)|Database: The Danish Cancer Register hasDatabase::Databases_Compilation:_RKKPs_Clinical_Quality_Databases_(Denmark)|Databases Compilation: RKKP's Clinical Quality Databases hasDatabase::Database:_Hospital_Utilization_Information_(Denmark)|Database: Hospital Utilization Information hasDatabase::Database:_The_Cause_of_Death_Register_(DAR)_(Denmark)|Database: The Cause of Death Register (DAR) hasDatabase::Database:_Cancer_Survivorship_(Denmark)|Database: Cancer Survivorship hasDatabase::Database: Diet, Cancer and Health (DCI) (Denmark)|Database: Diet, Cancer and Health (DCI) hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Danish Cancer Society Guidelines hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Danish Health Autority Guidelines hasClinicalGuidelines::Compilation:_DMCG_Guidelines_(Denmark)|Compilation: DMCG Guidelines hasReport::Reports:_RKKP_Screenings_(Denmark)|Reports: RKKP Screenings hasReport::Compilation:_Kræftens_Bekæmpelse_Reports_and_Publications_(Denmark)|Compilation: Kræftens Bekæmpelse Reports and Publications hasReport::Report:_EU_Country_Cancer_Profile_2023_(Denmark)|Report: EU Country Cancer Profile 2023 hasReport::Reports:_Annual_reports_on_new_cancer_cases_(Denmark)|Reports: Annual reports on new cancer cases hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Denmark)|Compilation: ESMO Patient Guides hasPatientAssociation::Patient_Association:_ALK-positive_lung_cancer_(Denmark)|Patient Association: ALK-Positive Lung Cancer hasPatientAssociation::Patient_Association:_The_Bladder_Cancer_Association_(Denmark)|Patient Association: The Bladder Cancer Association hasPatientAssociation::Patient_Association:_Danish_Myeloma_Association_(Denmark)|Patient Association: Danish Myeloma Association hasPatientAssociation::Patient_Association:_DANYCA_(Denmark)|Patient Association: DANYCA hasPatientAssociation::Breast_Cancer_Society_(Denmark)|Patient Association: Breast Cancer Society hasPatientAssociation::Patient_Association:_The_association_for_children_affected_by_cancer_(Denmark)|Patient Association: The association for children affected by cancer hasPatientAssociation::Patient_Association:_The_Brain_Tumour_Association_(Denmark)|Patient Association: The Brain Tumour Association hasPatientAssociation::Patient_Association:_KIU_(Denmark)|Patient Association: KIU hasPatientAssociation::Patient_Association:_NETpa_(Denmark)|Patient Association: NETpa hasPatientAssociation::Patient_Association:_Birthmark_Cancer_(Denmark)|Patient Association: Birthmark Cancer hasPatientAssociation::Patient_Association:_NETKU_(Denmark)|Patient Association: NETKU hasPatientAssociation::Patient_Association:_Pancreas_Network_(Denmark)|Patient Association: Pancreas Network hasPatientAssociation::Patient_Association:_PROPA_(Denmark)|Patient Association: PROPA hasPatientAssociation::Patient_Association:_Bowel_Cancer_Association_(Denmark)|Patient Association: Bowel Cancer Association hasPatientResource::Resource:_Sammenholdet_App_(Denmark)|Resource: Sammenholdet App hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guide: Help and Information hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Denmark)|Quality of Life and Palliative Care Research hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guides: Help and Information hasDatabase::Databases: RKKPs Clinical Quality Databases Compilation (Denmark)|Databases: RKKPs Clinical Quality Databases Compilation hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Guidelines: Danish Cancer Society Guidelines hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Guidelines: Danish Health Autority Guidelines hasClinicalGuidelines::Guidelines: DMCG Guidelines Compilation (Denmark)|Guidelines: DMCG Guidelines Compilation hasReport::Reports: Kræftens Bekæmpelse Reports and Publications Compilation (Denmark)|Reports: Kræftens Bekæmpelse Reports and Publications Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Denmark)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown