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| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == Cancer Centers == | | == Cancer Centers == |
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| == Healthcare System ==
| | [[hasCancerCenter::Trinity St. James's Cancer Institute]] |
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| Ireland operates a complex healthcare system with both public and private providers and payers. The Health Service Executive (HSE) is the primary provider, delivering health and social care services both directly and through contracted professionals. While there is access to public healthcare for all residents, Ireland does not have universal primary care coverage, and the access to and charges for services depend on an individual's circumstances.
| | [[hasCancerCenter::Beaumont RCSI Cancer Centre]] |
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| The population is divided into two categories. About 36% of the population holds medical cards, allocated primarily based on a low income, which grants them access to certain services without charge, including GP and hospital care, and lower costs for prescription medicines. Around 64% of the population does not have a medical card, although some of this group (about 10% of the total population) holds a GP visit card, granting free GP care. This includes all children under 6 and adults above 70, regardless of income.
| | [[hasCancerCenter::Saolta University Cancer Network Galway University Hospitals]] |
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| Despite public access, the two-tier system means many public services have substantial waiting lists. To bypass these, around 46% of the population have private health insurance (PHI), providing preferential access to some services. It should be noted that there is a portion of the population (around 20%) that is not covered by either a medical card, a GP visit card, or PHI.
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| The HSE and other specialized agencies manage health data, including claims data and registries. Implementation of a unified electronic health record system has been an ongoing effort, with many hospitals and clinics maintaining individual systems. Privacy and security are ensured according to the General Data Protection Regulation (GDPR).
| | == [[hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System]] == |
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| == Administrative or Claims Data == | | == Administrative or Claims Data == |
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| === Compilation: Department of Health Databases (CSO) === | | === [[hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation]] === |
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| '''Sponsor, manager or home institution:''' Department of Health; Central Statistics Office.
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| '''Primary purpose:''' Databases provided by the Department of Health and made available through the Central Statistics Office website to disseminate data.
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| '''Type of information:''' Data on discharge, diagnostics, and procedures for inpatients. Age-Standardised Data for Principal Procedure; Age-Standardised Morbidity Rate for Principal Procedures; In-Patient and Daycase Principal Procedures and Average Length of Hospital Stay; Hospital Discharges of In-Patients, Daycases and Length of Stay (All Procedures); Hospital Discharges of In-Patients, Daycases and Length of Stay (National Data); All Procedures; In-Patient and Daycase Procedures and Average Length of Hospital Stay; Age-Standardised Discharge Data for Principal Diagnosis; Age-Standardised Data for Principal Diagnosis; Age-Standardised Morbidity Rate for All Procedures; Age-Standardised Discharge Data for Principal Procedures; Age-Standardised Discharge Data for All Procedures; Age-Standardised Discharge Rate for All Procedures; Age-Standardised Morbidity Rate for All Procedures; Age-Standardised Hospital Discharge Data for Selected Principal Procedures; Age-Standardised Discharge Data for Selected Principal Procedures; Age-Standardised Morbidity Data for Selected Principal Procedures; Age Specific Data for Selected Procedures; In-Patient and Daycase with Principal Diagnosis and Average Length of Hospital Stay; In-Patient Hospital Discharge Data for Principal Diagnoses; Hospital Discharge Data for Principal Diagnoses; Hospital Discharge Rates for Principal Diagnoses; In-Patient Hospital Discharge Data for Principal Procedures; Hospital Discharge Data for Principal Procedures; Hospital Discharges of In-Patients, Daycases and Length of Stay (All Diagnoses); Age-Standardised Data for Selected Principal Procedures; Age-Standardised Data for Principal Procedures; Potential Years of Life Lost; Selected Principal Procedures; Age-Standardised Data for All Procedures. Filtered by year, age group, sex, type of procedure, principal and additional procedure, selected principal procedure, area, ISHMT, county, and HSE region, and cause of death.
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| '''Source of Information:''' Unknown.
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| '''Data level:''' National level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' Varies.
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| '''Cancer Areas of Interest:''' Varies for each dataset. Neoplasms; Malignant neoplasm - colon, rectum, anus; Malignant neoplasms - trachea, bronchus, lung; Malignant neoplasm - skin; Malignant neoplasm - breast; Malignant neoplasm - uterus; Malignant neoplasm - ovary; Malignant neoplasm - prostate; Malignant neoplasm - bladder; Other malignant neoplasms; Carcinoma in situ; Benign neoplasm of colon, rectum, anus; Leiomyoma of the uterus; Other benign/uncertain neoplasms; Malignant neoplasm of lip, oral cavity, pharynx; Malignant neoplasm of the esophagus; Malignant neoplasm of the stomach; Malignant neoplasm of rectum and anus; Malignant neoplasm of liver and the intrahepatic bile ducts; Malignant neoplasm of the pancreas; Malignant neoplasm of larynx and trachea/bronchus/lung; Malignant neoplasm of cervix uteri; Malignant neoplasm of other parts of the uterus; Malignant neoplasm of the kidney; Malignant neoplasm of lymph/haematopoietic tissue; All other malignant neoplasms; Cancer of trachea, bronchus, and lung; Malignant neoplasm of the larynx; Cancer.
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| '''Open data access:''' Publicly available. Access the databases [https://data.cso.ie/#] through the filtering tool. Go to the "Other Public Sector Bodies" tab in "Browse" to enter the Department of Health's folder. In that folder, you will find several databases of health statistics with lists of cancer areas of interest.
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| '''Information/Contact for data request:''' Contact information [https://www.cso.ie/en/aboutus/contactus/].
| | === [[hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System]] === |
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| == Registries == | | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | === [[hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry]] === |
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| === Database: National Cancer Registry === | | === [[hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics]] === |
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| '''Sponsor, manager or home institution:''' National Cancer Registry of Ireland.
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| '''Primary purpose:''' Collect and disseminate cancer incidence statistics.
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| '''Type of information:''' Address 1; Address 2; Address 3; Address 4; Address 5; Address Id; Admission Type; Age At Incidence; Also Known As; Approximate Treatment Date; Care of Address; Clinical M; Clinical N; Clinical T; Clinical Tumour Size; Closed Date; Comment Date; Comment Id; Consultant; County Id; Date of Birth; Date of Death; Date of Incidence; Date of Metastasis; Date of Notification; Date of Recurrence; Date of Treatment; Date of Tumour Marker; Do Not Contact; Firstname; Firstname 2; Grade; Histology Lab Number; Hospital of Source of Notification; Hospital of Treatment; House Name; House Number; ICD-10-O-3; Incidence Report Ready; Maiden Name; Main Address; Management Id; Marker Id; Marker Type; Marker Value; Medical Oncology Code; Medical Oncology Comment; Medical Records Number; Metastasis Id; Metastasis Topography; Method Of Diagnosis; Method Of Presentation; Morphology Code ICD-O3; Morphology Code ICD-O3 Group; Morphology Description Id; Mortality Status; Neo Adjuvant; Node Evaluation; Nodes Positive; Nodes Sampled; Notes; Pathological M; Pathological N; Pathological T; Pathological Tumour Size; Pathology Lab Id; Pathology Subtext; Patient Cervical Check Report Status; Patient Date of Cervical Check Report; Patient Id; Postcode; PPS Number; Procedure Category; Procedure Group; Purpose of Treatment; Sex; Side; Source Id; Source Of Notification Id; Staging Site Topography; Surname; Treatment Coding System; Treatment Id; Treatment Site Topography; Tumour Cervical Check Report Status; Tumour Date of Cervical Check Report; Tumour Death Certificate Only; Tumour Id; Tumour Status; Tumour Survival; Tumour Topography. Data dictionary information [https://www.ncri.ie/data/data-we-collect].
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| '''Available type of information:''' Cancer incidence and survival by year, age, stage, type of cancer, sex, county, region and childhood cancer.
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| '''Source of Information:''' Data is collected from hospital medical records by nurses acting as hospital liaisons. Death information is collected using death certificates.
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| '''Data level:''' Patient level.
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| '''Available data level:''' Regional and national level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1994 onwards.
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| '''Cancer Areas of Interest:''' All invasive, minus NMSC (C00-C43, C45-C96); lip (C00); base of tongue (C01); mouth and pharynx (C01-C14); other tongue (C02); gum (C03); floor of mouth (C04); palate (C05); other mouth (C06); parotid (C07); other salivary (C08); tonsil (C09); oropharynx (C10); nasopharynx (C11); pyriform (C12); hypopharynx (C13); other mouth/pharynx (C14); oesophagus (C15); stomach (C16); small intestine (C17); colon (C18); colorectal (C18-C21); rectosigmoid (C19); rectum (C20); anus (C21); liver (C22); gallbladder (C23); other biliary (C24); pancreas (C25); other digestive (C26); nasal cavity/middle ear (C30); sinuses (C31); larynx (C32); trachea (C33); lung (C34); thymus (C37); mediastinum (C38); other chest (C39); bones, joints of limbs (C40); bones, joints head and trunk (C41); melanoma skin (C43); non-melanoma skin (NMSC) (C44); mesothelioma (C45); kaposi's sarcoma (C46); peripheral nerves (C47); peritoneum (C48); connective tissues (C49); breast (C50); vulva (C51); vagina (C52); cervix (C53); corpus uteri (C54); uterus NOS (C55); ovary (C56); other female genital (C57); placenta (C58); penis (C60); prostate (C61); testis (C62); other male genital (C63); kidney (C64); renal pelvis (C65); ureter (C66); bladder (C67); other urinary (C68); eye (C69); meninges (C70); brain (C71); spinal cord (C72); thyroid (C73); adrenal (C74); other endocrine (C75); III-defined site (C76); unknown primary site (C80); Hodgkin's lymphoma (C81); lymphoma (total) (C81-C85); follicular non-Hodgkin's lymphoma (C82); all non-Hodgkin's lymphoma (C82-C85); diffuse non-Hodgkin's lymphoma (C83); peripheral and cutaneous T cell lymphoma (C84); other and unspecified NHL (C85); malignant immunoproliferative disease (C88); multiple mieloma (C90); lymphoid leukaemia (C91); leukaemia (total) (C91-C95); myeloid leukaemia (C92); monocytic leukaemia (C93); other specified leukaemia (C94); unspecified leukaemia (C95); other lymphoid and haematopoietic (C96); all non-invasive cancers (D00-D48); in-situ: melanoma (D03); in-situ: carcinoma of skin (D04); in situ: breast (D05); in situ cervix (D06); benign: brain & CNS (D32-D33); uncertain: brain & CNS (D42-D43); All cancers except NMSC (C00-C097 ex 044); biliary (C23-C24); bladder cancer invasive (C67); bladder cancer invasive/in situ/uncertain (C67/D09.0/D41.4); bone & cartilage cancer (C40-C41); cervical (C53); chronic myeloid leukaemia (C92.1); chronic myeloproliferative disease (M9960-9964/3); hypopharyngeal (C12-C13); kidney & related cancer (C64-C66 & C68); melanoma of choroid (C69.3); multiple melanoma (C90.0); myelodysplastic syndromes (M-9980-9989/3); oral & pharyngeal cancer ex salivary glands (C01-C06 & C09-C13); oral cancer (C03-C06); oropharyngeal cancer (C09-C10); ovary & uterine adnexal cancer (C56, C57.0-57.7); penis & related cancers (C60 & C63); pleural (C38.4 & C45); polycythaemia vera (M-9950/3); rectal/anal cancer (C19-C21); salivary gland cancer (C08-C09); soft tissue cancer (C47 & C49); vaginal/vulvar & related cancer (C51-C52, C57.8-C57.9).
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| '''Open data access:''' Partially publicly available [https://www.ncri.ie/data/incidence-statistics]. Instructions to request data for restricted content [https://www.ncri.ie/data/data-request].
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| '''Information/Contact for data request:''' Contact information [https://www.ncri.ie/contact].
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| === Database: Vital Statistics ===
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| '''Sponsor, manager or home institution:''' Central Statistics Office (CSO).
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| '''Primary purpose:''' Provide information about Marriages Registration, Death Registration, Stillbirths Registration, Live Births Registration and Mortality Differentials in Ireland.
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| '''Type of information:''' Age of bride and groom, Previous marital status of bride and groom, Area of residence of bride and groom before and after marriage, Occupation of bride and groom, Place of marriage and Type of marriage ceremony, Date of death, Address of residence of deceased, Place of death, Cause of death, Occupation of deceased, Age of deceased, Sex of deceased, Marital Status of deceased and Birth weight, Gestational Age, Date of birth of the infant, Date of birth of parents, Marital status of the mother, Number of previous children, County of residence of mother, Multiplicity, Occupation of parents, Baby's forename.
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| '''Available type of information:''' Births by age of mother and sex of the child, area of residence, region, within and outside of marriage/civil partnership, the average age of mother, within and outside of marriage/civil partnership, the birth rate per 1,000 Population, date and month of occurrence, previous born children, period of gestation, birthweight, place of occurrence, nationality of mother, nationality of both parents, total number of hospital births, fertility rates, occupation of the mother. Deaths occur by area of residence, sex and age group, cause of death, sex and age group. Suicides by area of residence and sex. Published Suicide Deaths and Late Registered Deaths. Live Births and Stillbirths and Infant Mortality.
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| '''Source of Information:''' Methodology for each section of the Vital Statistics database [https://www.cso.ie/en/methods/birthsdeathsandmarriages/].
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| '''Data level:''' Patient level.
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| '''Available data level:''' Regional, national level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' Varies for each section and variable.
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| '''Cancer Areas of Interest:''' Neoplasm (C00-D48); malignant neoplasm (C00-C99); malignant neoplasm of lip (C00); base of tongue (C01); other and unspecified parts of tongue (C02); gum (C03); floor of mouth (C04); palate (C05); other and unspecified parts of mouth (C06); parotid gland (C07); other and unspecified major salivary glands (C08); tonsil (C09); oropharynx (C10); nasopharynx (C11); piriform sinus (C12); hypopharynx (C13); other and ill-defined sites in the lip; oral cavity and pharynx (C14); esophagus (C15); stomach (C16); small intestine (C17); colon (C18); rectosigmoid junction (C19); rectum (C20); anus and anal canal (C21); liver and intrahepatic bile ducts (C21); gallbladder (C22); other and unspecified parts of biliary tract (C24); pancreas (C25); other and ill-defined digestive organs (C26); nasal cavity and middle ear (C30); accessory sinuses (C31); larynx (C32); trachea (C33); bronchus and lung (C34); thymus (C37); heart; mediastinum and pleura (C38); other and ill-defined sites in the respiratory system and intrathoracic organs (C39); bone and articular cartilage of limbs (C40); bone and articular cartilage of other and unspecified sites (C41); melanoma of skin (C41); other malignant melanoma of skin (C43); mesothelioma (C45); kaposi sarcoma (C46); peripheral nerves and autonomic nervous system (C47); retroperitoneum and peritoneum (C48); other connective and soft tissue (C49); breast (C50); vulva (C51); vagina (C52); cervix uteri (C53); corpus uteri (C54); uterus; part unspecified (C55); ovary (C56); other and unspecified female genital organs (C57); placenta (C58); penis (C60); prostate (C61); testis (C62); other and unspecified male genital organs (C63); kidney; except renal pelvis (C64); renal pelvis (C65); ureter (C66); bladder (C67); other and unspecified urinary organs (C68); eye and adnexa (C69); meninges (C70); brain (C71); spinal cord; cranial nerves and other parts of central nervous (C72); thyroid gland (C73); adrenal gland (C74); other endocrine glands and related structures (C75); other and ill-defined sites (C76); secondary and unspecified malignant neoplasm of lymph nodes (C77); secondary malignant neoplasm of respiratory and digestive organs (C78); secondary malignant neoplasm of other and unspecified sites (C79); malignant neoplasm of other and unspecified sites (C79); malignant naoplasm without specification of site (C80); Hodgkin lymphoma (C81); follicular lymphoma (C82); non-follicular lymphoma (C83); mature T/NK-cell lymphomas (C85); other specified types of T/NK-cell lymphoma (C86). malignant immunoproliferative diseases (C88); multiple myeloma and malignant plasma cell neoplasms (C90); lymphoid leukaemia (C91); myeloid leukaemia (C92); monocytic leukaemia (C93); other leukemia of specified cell type (C94); leukaemia of unspecified cell type (C95); other and unspecified malignant neoplasm of lymphoid; haematopoietic and related issue (C96); malignant neoplasms of independent (primary) multiple sites (C97); carcinoma in situ of oral cavity; oesophagus and stomach (D00); carcinoma in situ of other and unspecified digestive organs (D01); carcinoma in situ of middle ear and respiratory system (D02); melanoma in situ (D03); carcinoma in situ of skin (D04); carcinoma in situ of breast (D05); carcinoma in situ of cervix uteri (D06); carcinoma in situ of other and unspecified genital organs (D07); carcinoma in situ of other and unspecified sites (D09); benign neoplasm of mouth and pharynx (D10); benign neoplasm of major salivary glands (D11); benign neoplasm of colon; rectum; anus and anal canal (D12); benign neoplasm of other and ill-defined parts of digestive system (D13); benign neoplasm of middle ear and respiratory system (D14); benign neoplasm of other and unspecified intrathoracic organs (D15); benign neoplasm of bone and articular cartilage (D16); lipomatous neoplasm (D17); hemangioma and lymphangioma, any site (D18); benign neoplasm of mesothelial tissue (D19); benign neoplasm of soft tissue of retroperitoneum and peritoneum (D20); other benign neoplasmsof connective and other soft tissue (D21); melanocytic naevi (D22); other benign neoplasm of skin (D23); benign neoplasm of breast (D24); leiomyomna of uterus (D25); other benign neoplasm of ovary (D27); benign neoplasm of other and unspecified female genital organs (D28); benign neoplasm of male genital organs (D29); benign neoplasm of urinary organs (D30); benign neoplasm of ete and adnexa (D31); benign neoplasm of meninges (D32); benign neoplasm of brain and other parts of central nervous system (D33); benign neoplasm of thyroid gland (D34); benign neoplasm of other and unspecified endocrine glands (D35); benign neoplasm of other and unspecified sites (D36); neoplasm of uncertain or unknown behavior of oral cavity and digestive organs (D37); neoplasm of uncertain or unknown behavior of middle ear and respiratory and intrathoracic organs (D38); neoplasm of uncertain or unknown behavior of female genital organs (D39); neoplasm of uncertain or unknown behavior of male genital organs (D40); neoplasm of uncertain or unknown behavior of urinary organs (D41); neoplasm of uncertain or unknown behavior of meninges (D42); neoplasm of uncertain or unknown behavior of brain and central nervous system (D37); neoplasm of uncertain or unknown behavior of endocrine glands (D44); other neoplasm of uncertain or unknown behaviour of other and unspecified sites (D48).
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| '''Open data access:''' Partially publicly available [https://www.cso.ie/en/releasesandpublications/ep/p-vsar/vitalstatisticsannualreport2020/data/]. Instructions to request data for restricted content [https://www.cso.ie/en/aboutus/lgdp/csodatapolicies/dataforresearchers/]. Reports information [https://www.cso.ie/en/statistics/birthsdeathsandmarriages/archive/publicationarchive2021/].
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| '''Information/Contact for data request:''' Contact information [https://www.cso.ie/en/releasesandpublications/ep/p-vsys/vitalstatisticsyearlysummary2021/].
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| === Database: National Oncology Drugs Management System ===
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| [https://www.hiqa.ie/areas-we-work/health-information/data-collections/national-oncology-drugs-management-system]
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| '''Sponsor, manager or home institution:''' National Cancer Control Programme (NCCP); Health Service Executive; National Cancer Drug Management Programme; Primary Care Reimbursement Service (PCRS).
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| '''Primary purpose:''' To organize and oversee the utilization of cancer medications nationally.
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| '''Type of information:''' Patient demographics, usage of cancer drugs, and expenditures on cancer medications; Other patients' information comprises their name, date of birth, gender, address, and contact details (if provided), as well as their PPS or medical card number or long-term illness card number (if available). Information about the data contained in the database [https://www.hiqa.ie/areas-we-work/health-information/data-collections/national-oncology-drugs-management-system].
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| '''Source of Information:''' The hospital personnel enters the necessary data into an internet-based system supervised and run by PCRS. PCRS provides NCCP with anonymous and combined reports generated from the system. The data is gathered every month.
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| '''Data level:''' Patient level.
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| '''Number of Records:''' 21,030 claims submitted – 2021; 17,019 claims submitted – 2020; 15,640 claims submitted - 2019.
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| '''Date Range:''' Data collection started in September 2012, and reporting procedure began in April 2013.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' Not publicly available. Instructions to request data for restricted content [https://www.hse.ie/eng/staff/pcrs/pcrs-publications/].
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| '''Information/Contact for data request:''' Contact information [https://www.hiqa.ie/areas-we-work/health-information/data-collections/national-oncology-drugs-management-system].
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| == Databases for Clinical Trials, Surveys and Biobanks == | | == Databases for Clinical Trials, Surveys and Biobanks == |
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| === Survey: Irish Health Survey 2019 === | | === [[hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019]] === |
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| '''Sponsor, manager or home institution:''' Central Statistics Office.
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| '''Primary purpose:''' Is the Irish version of the European Health Interview Survey (EHIS), and the goal is to obtain reliable information about health care status and usage in order to create more effective policies.
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| '''Type of information:''' Health behavior and health care usage information, including smoking behavior; filtered by economic situation, gender, age, region, and disability status. Survey questions can be found [https://www.cso.ie/en/media/csoie/releasespublications/documents/ep/irishhealthsurveymainresults/2019/IHS_questionnaire.pdf here].
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| '''Source of Information:''' Responses to the survey questions conducted all over Ireland.
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| '''Data level:''' Patient level.
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| '''Available data level: ''' Regional, national level.
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| '''Number of Records:''' 7,621 respondents.
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| '''Date Range:''' 2019. The survey was also conducted in 2015.
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| '''Cancer Areas of Interest:''' All cancer areas related to smoking.
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| '''Open data access:''' Partially publicly available [https://data.cso.ie/product/IHS]. Instructions to request data for restricted content [https://www.cso.ie/en/aboutus/lgdp/csodatapolicies/dataforresearchers/].
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| '''Information/Contact for data request:''' Contact information [https://www.cso.ie/en/releasesandpublications/ep/p-ihsmr/irishhealthsurvey2019-mainresults/contactdetails/].
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| === Survey: Healthy Ireland Survey ===
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| '''Sponsor, manager or home institution:''' Department of Health, Statistics, and Analytics Unit.
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| '''Primary purpose:''' Obtain information about the health status and behavior of the Irish population.
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| '''Type of information:''' Survey responses about topics including general health, smoking, alcohol, weight management, health service utilization, dental and oral health, skin protection, menstrual health and period poverty, suicide awareness, the impact of COVID-19 on health behaviors. The survey questionnaire used for the 2022 survey information [https://www.gov.ie/pdf/?file=https://assets.gov.ie/241132/074cd4af-0103-4e6d-b65c-a4fa23afd83d.pdf#page=null].
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| '''Available type of information:''' Survey reports for all the years.
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| '''Source of Information:''' Responses from survey questionnaire.
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| '''Data level:''' Patient level.
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| '''Available data level:''' National level.
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| '''Number of Records:''' Around 7,500 respondents.
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| '''Date Range:''' 2014-2022.
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| '''Cancer Areas of Interest:''' All cancer areas related to smoking.
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| '''Open data access:''' Partially publicly available [https://www.gov.ie/en/collection/231c02-healthy-ireland-survey-wave/]. Instructions to request data for restricted content [https://www.gov.ie/pdf/?file=https://assets.gov.ie/7633/091ed7356f04477889be53cf38f5841f.pdf#page=null].
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| '''Information/Contact for data request:''' Contact information was not found.
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| == [[Electronic Health Records]] == | | === [[hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey]] === |
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| == [[Clinical Practices Guidelines]] == | | == Clinical Practices Guidelines == |
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| == [[Latest Policymaking Initiatives]] == | | === [[hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation]] === |
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| === Compilation: Cancer Statistics Reports === | | === [[hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation]] === |
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| '''Sponsor, manager or home institution:''' National Cancer Registry of Ireland.
| | == Latest Policymaking Initiatives == |
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| '''Primary purpose:''' Provide reports about cancer data collected by the institute.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023]] === |
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| '''Type of information:''' Annual financial reports, strategic plans, cancer trends & projections, statistical reports, cancer atlases, research publications, all Ireland cancer statistics, infographics.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Ireland)|Report: EU Country Cancer Profile 2025]] === |
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| '''Level:''' National level.
| | === [[hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026]] === |
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| '''Access to information:''' Information can be found [https://www.ncri.ie/publications here].
| | === [[hasPolicyData::Studies_and_Data:_NCRI_Reports_and_Publications_(Ireland)|Studies and Data: NCRI Reports and Publication]] === |
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| |
|
| == [[Cancer-related Patient Associations and Resources]] ==
| | </div> |
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| |
|
| === Compilation: ESMO Patient Guides === | | == Cancer-related Patient Associations and Resources == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Sponsor, manager or home institution:''' European Society for Medical Oncology
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation]] === |
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| '''Primary purpose:''' To translate complex medical language into understandable information for patients.
| | === [[hasPatientAssociation::Patient Association: Irish Cancer Society (Ireland)|Patient Association: Irish Cancer Society]] === |
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| '''Available guides:''' Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects;
| | === [[hasPatientResource::Self-help_group:_East_Galway_&_Midlands_Cancer_Support_Centre_(Ireland)|Self-help group: East Galway & Midlands Cancer Support Centre]] === |
| Personalised Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
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| '''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research]] == |
| | </div> |
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| |
|
| '''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-english [2]]. | | __NOTOC__ |
| | <span style="display:none">hasCancerCenter::Trinity St. James's Cancer Institute</span> |
| | <span style="display:none">hasCancerCenter::Beaumont RCSI Cancer Centre</span> |
| | <span style="display:none">hasCancerCenter::Saolta University Cancer Network Galway University Hospitals</span> |
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System</span> |
| | <span style="display:none">hasDatabase::Compilation:_Department_of_Health_Databases_(CSO)_(Ireland)|Compilation: Department of Health Databases (CSO)</span> |
| | <span style="display:none">hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System</span> |
| | <span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry</span> |
| | <span style="display:none">hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics</span> |
| | <span style="display:none">hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019</span> |
| | <span style="display:none">hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey</span> |
| | <span style="display:none">hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Compilation: National Cancer Control Programme Guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Compilation: Department of Health Guidelines</span> |
| | <span style="display:none">hasReport::Compilation:_Cancer_Statistics_Reports_(Ireland)|Compilation: Cancer Statistics Reports</span> |
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023</span> |
| | <span style="display:none">hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026</span> |
| | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Ireland)|Compilation: ESMO Patient Guides</span> |
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research</span> |
| | <span style="display:none">hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation</span> |
| | <span style="display:none">hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Guidelines: Department of Health Guidelines Compilation</span> |
| | <span style="display:none">hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation</span> |
| | <span style="display:none">hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation</span> |
| | <span style="display:none">hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation</span> |
| | <span style="display:none">hasReport::Reports: Cancer Statistics Reports Compilation (Ireland)|Reports: Cancer Statistics Reports Compilation</span> |
| | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation</span> |
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | <span style="display:none">hasCancerType::unknown</span> |
