Ireland: Difference between revisions

From Beacon
 
(147 intermediate revisions by 6 users not shown)
Line 1: Line 1:
== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">irelandcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::Trinity St. James's Cancer Institute]]  


=== Compilation: Department of Health Databases ===
[[hasCancerCenter::Beaumont RCSI Cancer Centre]]


'''Sponsor, manager or home institution:''' Department of Health; Central Statistics Office.
[[hasCancerCenter::Saolta University Cancer Network Galway University Hospitals]]


'''Primary purpose:'''
</div>


'''Type of information:'''
== [[hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System]] ==


'''Source of Information:'''
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Data level:'''
=== [[hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation]] ===


'''Number of Records:'''
=== [[hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System]] ===
</div>


'''Date Range:'''
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry]] ===


'''Cancer Areas of Interest:'''
=== [[hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics]] ===
</div>


'''Open data access:'''
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/Contact for data request:'''
=== [[hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019]] ===


== [[Registries]] ==
=== [[hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey]] ===


=== National Cancer Registry ===
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution:''' National Cancer Registry of Ireland.
=== [[hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation]] ===


'''Primary purpose:'''
=== [[hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation]] ===
</div>


'''Type of information:'''
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Source of Information:'''
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023]] ===


'''Data level:'''
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Ireland)|Report: EU Country Cancer Profile 2025]] ===


'''Number of Records:'''
=== [[hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026]] ===


'''Date Range:'''
=== [[hasPolicyData::Studies_and_Data:_NCRI_Reports_and_Publications_(Ireland)|Studies and Data: NCRI Reports and Publication]] ===


'''Cancer Areas of Interest:'''
</div>


'''Open data access:'''
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/Contact for data request:'''
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation]] ===


=== Database: Vital Statistics ===
=== [[hasPatientAssociation::Patient Association: Irish Cancer Society (Ireland)|Patient Association: Irish Cancer Society]] ===


'''Sponsor, manager or home institution:''' Central Statistics Office (CSO)
=== [[hasPatientResource::Self-help_group:_East_Galway_&_Midlands_Cancer_Support_Centre_(Ireland)|Self-help group: East Galway & Midlands Cancer Support Centre]] ===


'''Primary purpose:''' Provide information about Marriages Registration, Death Registration, Stillbirths Registration, Live Births Registration and Mortality Differentials in Ireland.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research]] ==
</div>


'''Type of information:''' Age of bride and groom, Previous marital status of bride and groom, Area of residence of bride and groom before and after marriage, Occupation of bride and groom, Place of marriage and Type of marriage ceremony, Date of death, Address of residence of deceased, Place of death, Cause of death, Occupation of deceased, Age of deceased, Sex of deceased, Marital Status of deceased and Birth weight, Gestational Age, Date of birth of infant, Date of birth of parents, Marital status of mother, Number of previous children, County of residence of mother, Multiplicity, Occupation of parents, Baby's forename.
__NOTOC__
 
<span style="display:none">hasCancerCenter::Trinity St. James's Cancer Institute</span>
'''Available type of information:''' Births by age of mother and sex of child, area of residence, region, within and outside of marriage/civil partnership, average age of mother, within and outside of marriage/civil partnership, birth rate per 1,000 Population, date and month of occurrence, previous born children, period of gestation, birthweight, place of occurrence, nationality of mother, nationality of both parents, total number of hospital births, fertility rates, occupation of mother. Deaths occurring by area of residence, sex and age group, cause of death, sex and age group. Suicides by area of residence and sex. Published Suicide Deaths and Late Registered Deaths. Live Births and Stillbirths and Infant Mortality.
<span style="display:none">hasCancerCenter::Beaumont RCSI Cancer Centre</span>
 
<span style="display:none">hasCancerCenter::Saolta University Cancer Network Galway University Hospitals</span>
'''Source of Information:''' Methodology for each section of the Vital Statistics database can be found [https://www.cso.ie/en/methods/birthsdeathsandmarriages/ here].
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Compilation:_Department_of_Health_Databases_(CSO)_(Ireland)|Compilation: Department of Health Databases (CSO)</span>
'''Data level:''' Patient level.
<span style="display:none">hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System</span>
 
<span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry</span>
'''Available data level:''' Regional, national level.
<span style="display:none">hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics</span>
 
<span style="display:none">hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019</span>
'''Number of Records:''' Unknown.
<span style="display:none">hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Compilation: National Cancer Control Programme Guidelines</span>
'''Date Range:''' Varies for each section and variable.
<span style="display:none">hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Compilation: Department of Health Guidelines</span>
 
<span style="display:none">hasReport::Compilation:_Cancer_Statistics_Reports_(Ireland)|Compilation: Cancer Statistics Reports</span>
'''Cancer Areas of Interest:''' All.
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026</span>
'''Open data access:''' Data is partially publicly available. Data can be accessed [https://www.cso.ie/en/releasesandpublications/ep/p-vsar/vitalstatisticsannualreport2020/data/ here]. Information on how to access full database can be found [https://www.cso.ie/en/aboutus/lgdp/csodatapolicies/dataforresearchers/ here]. Reports can be found [https://www.cso.ie/en/statistics/birthsdeathsandmarriages/archive/publicationarchive2021/ here].
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Ireland)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research</span>
'''Information/Contact for data request:''' Contact information can be found [https://www.cso.ie/en/releasesandpublications/ep/p-vsys/vitalstatisticsyearlysummary2021/ here].
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Guidelines: Department of Health Guidelines Compilation</span>
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
<span style="display:none">hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation</span>
 
<span style="display:none">hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation</span>
=== Survey: Irish Health Survey 2019 ===
<span style="display:none">hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation</span>
 
<span style="display:none">hasReport::Reports: Cancer Statistics Reports Compilation (Ireland)|Reports: Cancer Statistics Reports Compilation</span>
'''Sponsor, manager or home institution:''' Central Statistics Office.
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
'''Primary purpose:''' Is the Irish version of the European Health Interview Survey (EHIS), and the goal is to obtain reliable information about health care status and usage in order to create more effective policies.
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
'''Type of information:''' Health behavior and health care usage information, including smoking behavior; filtered by economic situation, gender, age, region, and disability status. Survey questions can be found [https://www.cso.ie/en/media/csoie/releasespublications/documents/ep/irishhealthsurveymainresults/2019/IHS_questionnaire.pdf here].
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
'''Source of Information:''' Responses to the survey questions conducted all over Ireland.
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
'''Data level:''' Patient level.
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
'''Available data level: ''' Regional, national level.
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
 
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
'''Number of Records:''' 7,621 respondents.
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
 
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
'''Date Range:''' 2019. Survey was also conducted in 2015.
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
'''Cancer Areas of Interest:''' All cancer areas related to smoking.
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
'''Open data access:''' Data is partially publicly available. Publicly available data can be accessed [https://data.cso.ie/product/IHS here]. Information on how to access full database can be found [https://www.cso.ie/en/aboutus/lgdp/csodatapolicies/dataforresearchers/ here].
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Information/Contact for data request:''' Contact information can be found [https://www.cso.ie/en/releasesandpublications/ep/p-ihsmr/irishhealthsurvey2019-mainresults/contactdetails/ here].
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
=== Survey: Healthy Ireland Survey ===
 
'''Sponsor, manager or home institution:''' Department of Health, Statistics and Analytics Unit.
 
'''Primary purpose:''' Obtain information about the health status and behavior of the irish population.
 
'''Type of information:''' Survey responses about topics including general health, smoking, alcohol, weight management, health service utilisation, dental and oral health, skin protection, menstrual health and period poverty, suicide awareness, impact of COVID-19 on health behaviors. The survey questionnaire used for the 2022 survey can be found [https://www.gov.ie/pdf/?file=https://assets.gov.ie/241132/074cd4af-0103-4e6d-b65c-a4fa23afd83d.pdf#page=null here].
 
'''Available type of information:''' Survey reports for all the years.
 
'''Source of Information:''' Responses from survey questionnaire.
 
'''Data level:''' Patient level.
 
'''Available data level:''' National level.
 
'''Number of Records:''' Around 7,500 respondents.
 
'''Date Range:''' 2014-2022.
 
'''Cancer Areas of Interest:''' All cancer areas related to smoking.
 
'''Open data access:''' Data is not publicly available. Reports can be found [https://www.gov.ie/en/collection/231c02-healthy-ireland-survey-wave/ here]. Information on how to access microdata can be found [https://www.gov.ie/pdf/?file=https://assets.gov.ie/7633/091ed7356f04477889be53cf38f5841f.pdf#page=null here].
 
'''Information/Contact for data request:''' Contact information was not found.
 
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
 
== [[Latest Policymaking Initiatives]] ==
 
=== Compilation: Cancer Statistics Reports ===
 
'''Sponsor, manager or home institution:''' National Cancer Registry of Ireland.
 
'''Primary purpose:'''' Provide reports about cancer data collected by the institute.
 
'''Type of information:''' Annual financial reports, strategic plans, cancer trends & projections, statistical reports, cancer atlases, research publications, all Ireland cancer statistics, infographics.
 
''''Level:''' National level.
 
'''Access to information:''' Information can be found [https://www.ncri.ie/publications here].
 
== [[Cancer-related Patient Associations and Resources]] ==

Latest revision as of 13:02, 21 January 2026

forresearchers forpatients forproviders forpolicymakers irelandcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Trinity St. James's Cancer Institute

Beaumont RCSI Cancer Centre

Saolta University Cancer Network Galway University Hospitals

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Databases: Department of Health Databases (CSO) Compilation[edit | edit source]

Database: National Oncology Drugs Management System[edit | edit source]

Registries[edit | edit source]

Database: National Cancer Registry[edit | edit source]

Database: Vital Statistics[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: Irish Health Survey 2019[edit | edit source]

Survey: Healthy Ireland Survey[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: National Cancer Control Programme Guidelines Compilation[edit | edit source]

Guidelines: Department of Health Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: National Cancer Strategy 2017-2026[edit | edit source]

Studies and Data: NCRI Reports and Publication[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Association: Irish Cancer Society[edit | edit source]

Self-help group: East Galway & Midlands Cancer Support Centre[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Trinity St. James's Cancer Institute hasCancerCenter::Beaumont RCSI Cancer Centre hasCancerCenter::Saolta University Cancer Network Galway University Hospitals hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System hasDatabase::Compilation:_Department_of_Health_Databases_(CSO)_(Ireland)|Compilation: Department of Health Databases (CSO) hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019 hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Compilation: National Cancer Control Programme Guidelines hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Compilation: Department of Health Guidelines hasReport::Compilation:_Cancer_Statistics_Reports_(Ireland)|Compilation: Cancer Statistics Reports hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023 hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Ireland)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Guidelines: Department of Health Guidelines Compilation hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation hasReport::Reports: Cancer Statistics Reports Compilation (Ireland)|Reports: Cancer Statistics Reports Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

Retrieved from "https://wiki.beaconcancer.org/index.php?title=Ireland&oldid=36136"
Powered by MediaWiki
Powered by Semantic MediaWiki