Romania: Difference between revisions

hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer hasCancerType::D10-D36: Benign tumour hasCancerType::unknown

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-== [[Cancer Centers]] ==
+<span style="display:none">forresearchers</span>
+<span style="display:none">forpatients</span>
+<span style="display:none">forproviders</span>
+<span style="display:none">forpolicymakers</span>
+<span style="display:none">romaniacountry</span>
+[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
-== [[Healthcare System]] ==
+== Cancer Centers ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-== [[Administrative or Claims Data]] ==
+[[hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology]]
-=== Database: Mortality by cause of death ===
-[http://80.96.186.4:81/metadata/viewStatisticalResearch.htm?locale=en&researchId=5162] [http://80.96.186.4:81/metadata/view.file?researchId=5162&type=questionnaire&file=Buletin%20statistic%20pentru%20deces%203.pdf]
-'''Sponsor, manager or home institution:''' National Institute of Statistics (Institutul Naţional de Statistică).
+[[hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy]]
-'''Primary purpose:''' Registry the number of deaths for statistics purpose.
+</div>
-'''Type of information:''' Commune / city / municipality, county / sector, date, number of the document from the civil status register, code siruta, personal numeric code, name and surname, sex, number of children born alive during life (for women only), date of death, date of birth, marital status, date of birth of the surviving spouse, occupational status employee, level of education, citizenship, ethnicity, domicile, place of death, country where he died, country where he was born, causes of death (cause - includes neoplasms -, antecedent causes, the initial morbid state, and other important morbid conditions), manner of death (naturally, indeterminate, accident, suicide, homicide), status of autopsy.
+== [[hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System]] ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+</div>
-'''Available type of information:''' POP206C - Deceased by causes of death, macro-regions, development regions and counties.
+== Administrative or Claims Data ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-POP206F - Deceased by gender and cause of death.
+=== [[hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network]] ===
-POP206I - Deceased with usual residence in Romania by causes of death, macro-regions, development regions and counties.
+=== [[hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)]] ===
-POP206L - Deceased with usual residence in Romania by sex and cause of death.
+</div>
-'''Source of Information:''' Death statistical bulletins made by the civil registry.
+== Registries ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Data level:''' Patient-level.
+=== [[hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death]] ===
-'''Available data level:''' Regional and national-level.
+=== [[hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)]] ===
+</div>
-'''Number of Records:''' Unknown.
+== Clinical Practices Guidelines ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Date Range:''' 1990 onwards.
+=== [[hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline]] ===
+</div>
-'''Cancer Areas of Interest:''' Unknown.
+== Latest Policymaking Initiatives ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Open data access:''' To find statistics about death, on the domain page of [http://statistici.insse.ro:8077/tempo-online/#/pages/tables/insse-table this] website, located in the topic "A.2 VITAL STATISTICS" choose the option "DEATH", then choose the indicator you want to see.
+=== [[hasReport::Report:_IOCN_(Romania)|Report: IOCN]] ===
-'''Data access''': To request access to restricted data, follow the instructions presented [https://insse.ro/cms/ro/content/solicitare-informa%C8%9Bii here].
+=== [[hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health]] ===
-'''Information/Contact for data request:''' [https://insse.ro/cms/ro/content/contactati-ne-prin Contact information].
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023]] ===
-=== Database: Diagnosis Related Group (DRG) ===
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Romania)|Report: EU Country Cancer Profile 2025]] ===
-[https://www.drg.ro/index.php?p=drg]
-'''Sponsor, manager or home institution:''' National Institute of Health Services Management.
+=== [[hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026]] ===
-'''Primary purpose:''' Characterize the hospital's patient care in order to evaluate the results, increase efficiency, and administrate the hospital's financing system. Classifies the patients simultaneously by type of pathology and cost of care.
+=== [[hasReport::Report:_National_Plan_to_Prevent_and_Combat_Cancer_2023-2030_(Romania)|Report: National Plan to Prevent and Combat Cancer 2023-2030]] ===
-'''Type of information:''' [[Type of information - DRG Romania]]
-'''Available type of information:''' Data available on medical and pediatric oncology are on cases of the disease and related procedures. The following indicators are provided:
+</div>
-Frequency of cases (absolute numbers and percentages, Total and by sections Acute/Chronic);
-Number of days of hospitalization (Total, respectively by Acute and Chronic wards);
-Average length of stay - DMS (separated by Acute and Chronic wards).
-All cited indicators are available by main diagnostic category (CMD) and by diagnostic group (DRG). Data can be selected for different years and months.
+== Cancer-related Patient Associations and Resources ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-It is also possible to see some information about hospitals:
+=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation]] ===
-Index of concordance between the diagnosis at admission and the diagnosis at discharge;
-The percentage of patients with surgical interventions from the total number of patients discharged from surgical wards;
-Case Complexity Index.
-Quarterly indicators for evaluating the activity of hospitals:
+=== [[hasPatientAssociation::Patient Association: Renasterea Foundation (Europa Donna Romania) (Romania)|Patient Association: Renasterea Foundation (Europa Donna Romania)]] ===
-[[Available type of information - DRG Romania]]
+=== [[hasPatientAssociation::Patient_Association:_Federation_of_Cancer_Patients_Associations (FABC)_(Romania)|Patient Association: Federation of Cancer Patients Associations (FABC)]] ===
+=== [[hasPatientAssociation::Association:_Asociatia_Heal_(Romania)|Association: Asociatia Heal]] ===
-'''Source of Information:''' Hospitals and ambulatory care reports.
+=== [[hasPatientAssociation::Patient_Association:_Dăruiește_Viață_(Romania)|Patient Association: Dăruiește Viață]] ===
-'''Data level:''' Patient-level.
+=== [[hasPatientResource::Self-help_Group:_Comunitatea_Oncologică_din_România_(Romania)|Self-help Group: Comunitatea Oncologică din România]] ===
-'''Available data level:''' National, regional, and hospital levels.
+</div>
-'''Number of Records:'''
+== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research]] ==
+</div>
-'''Date Range:''' 2002 onwards.
+__NOTOC__
+<span style="display:none">hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology</span>
-'''Cancer Areas of Interest:''' [[Cancer areas of interest - DRG Romania]]
+<span style="display:none">hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy</span>
+<span style="display:none">hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System</span>
-'''Open data access:''' [https://www.drg.ro/index.php?p=indicatori&s=2023_04 Medical and pediatrical oncology data]. [http://www.drg.ro/index.php?p=indicatoriperf&s=2007s Hospital's data].
+<span style="display:none">hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network</span>
+<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)</span>
-'''Information/Contact for data request:''' [https://www.drg.ro/index.php?p=contact Contact information]
+<span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death</span>
-<!--
+<span style="display:none">hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)</span>
-=== Database: ===
+<span style="display:none">hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry</span>
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline</span>
-'''Sponsor, manager or home institution:'''
+<span style="display:none">hasReport::Report:_IOCN_(Romania)|Report: IOCN</span>
+<span style="display:none">hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health</span>
-'''Primary purpose:'''
+<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023</span>
+<span style="display:none">hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026</span>
-'''Type of information:'''
+<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides</span>
+<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research</span>
-'''Available type of information:'''
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline</span>
+<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation</span>
-'''Source of Information:'''
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
+<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
-'''Data level:'''
+<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
+<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
-'''Available data level:'''
+<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
+<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
-'''Number of Records:'''
+<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
+<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
-'''Date Range:'''
+<span style="display:none">hasCancerType::C50: Breast cancer</span>
+<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
-'''Cancer Areas of Interest:'''
+<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
+<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
-'''Open data access:'''
+<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
+<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
-'''Information/Contact for data request:'''
+<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
--->
+<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
+<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
-== [[Registries]] ==
+<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
-=== Database: National Registry of Childhood Cancer (RNCCR) ===
+<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
-[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]
+<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
+<span style="display:none">hasCancerType::unknown</span>
-'''Sponsor, manager or home institution''': Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
-'''Type of information''': The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf this] document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext here]. Data refers to people aged between 0 and 14 years.
-The variables available to be registered by the sources in the database are:
-CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), date of clinical onset, date of relapse, reason for reporting, registration base (data source), tumor location, topographical code, laterality.
-Histopathological/cytological examination (behavior, morphological code, degree, cod ICC3 primary, cod ICC3 category, cod ICC3 subcategory).
-Toronto staging (diagnostic class, level 1, level 2).
-TNM staging for solid tumors not included in Toronto staging (stadium type, TNM classification).
-Treatment (stadium type, tnm classificationsurgery date, chemotherapy, radiotherapy, hormone therapy, immunotherapy, other treatments, transplant, diagnostic class, therapeutic protocol, another therapeutic protocol, treatment abroad, type of treatment abroad, tara, end of therapy date, response to treatment, refusal, reason for refusal, abandon, dropout reason).
-Tracking (date of last contact, status, the last doctor, death, the main cause, secondary cause).
-'''Source of information''': Reports from pediatric oncologic centers.
-'''Data level''': Patient-level.
-'''Date range''': 2009 onwards.
-'''Data access''': To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database [http://oncped.iocn.ro/ page]. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.
-'''Cancer areas of interest''': Unknown.
-'''Information/contact for data request''': [https://srohp.ro/contact/ Contact information].
-=== Database: North-West Regional Cancer Registry ===
-[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]
-'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN).
-'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
-'''Type of information:''' The variables available to be registered by the sources in the database are: CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), reason for reporting, registration base (data source).
-Histopathological / cytological examination: Date of examination and result, tumor location, topographical code, laterality, behavior, morphological code, differentiation degree, stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer.
-Treatment: Type of treatment, date of initiation. Informs if there was a refusal to the treatment.
-Tracking: Date of last contact, name of the last doctor consulted, date of death, main cause and secondary cause of death.
-'''Available type of information:''' Number of new cases of cancer by region, type of cancer, and year;
-Annual incidence by 100.000 inhabitants by type of cancer, sex, region, and year;
-Sexual rate (M/F) of new cases of cancer by region, type of cancer, and year;
-Percentage distribution of new cases of cancer by region, type of cancer, sex, age group, and year;
-Number of deaths by cancer by type of cancer, sex, and region (for the counties of Cluj and Bistriÿa-Nÿsÿud);
-Crude rate of mortality by 100.000 inhabitants by sex and region (for the counties of Cluj and Bistriÿa-Nÿsÿud);
-Standardized mortality rate by 100.000 inhabitants (related to the world population) by age, sex, and region (for the counties of Cluj and Bistriÿa-Nÿsÿud).
-'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
-'''Data level:''' Patient-level.
-'''Available data level:''' Regional-level.
-'''Number of Records:''' Unknown.
-'''Date Range:''' Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
-'''Cancer Areas of Interest:''' The list can be checked [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc here]. Some specific cancer locations are excluded, and those can be seen [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc here].
-'''Open data access:''' Some information is available in reports published [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html here].
-'''Data access:''' To request access to patient-level data, contact the Northwest Cancer Registry by the e-mail shown [http://nwcanportal.iocn.ro/OncReg/ here].
-'''Information/Contact for data request:''' [https://www.old.iocn.ro/en Contact information]
-== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
-== [[Electronic Health Records]] ==
-== [[Clinical Practices Guidelines]] ==
-== [[Cancer-related Patient Associations and Resources]] ==