Romania: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">romaniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
== Cancer Centers ==
== Cancer Centers ==
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== [[Healthcare System]] ==
[[hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology]]
 
== [[Administrative or Claims Data]] ==
=== Database: Mortality by cause of death ===
[http://80.96.186.4:81/metadata/viewStatisticalResearch.htm?locale=en&researchId=5162] [http://80.96.186.4:81/metadata/view.file?researchId=5162&type=questionnaire&file=Buletin%20statistic%20pentru%20deces%203.pdf]
 
'''Sponsor, manager or home institution:''' National Institute of Statistics (Institutul Naţional de Statistică).
 
'''Primary purpose:''' Registry the number of deaths for statistics purpose.
 
'''Type of information:''' Commune / city / municipality, county / sector, date, number of the document from the civil status register, code siruta, personal numeric code, name and surname, sex, number of children born alive during life (for women only), date of death, date of birth, marital status, date of birth of the surviving spouse, occupational status employee, level of education, citizenship, ethnicity, domicile, place of death, country where he died, country where he was born, causes of death (cause - includes neoplasms -, antecedent causes, the initial morbid state, and other important morbid conditions), manner of death (naturally, indeterminate, accident, suicide, homicide), status of autopsy.
 
'''Available type of information:''' POP206C - Deceased by causes of death, macro-regions, development regions and counties.
 
POP206F - Deceased by gender and cause of death.
 
POP206I - Deceased with usual residence in Romania by causes of death, macro-regions, development regions and counties.
 
POP206L - Deceased with usual residence in Romania by sex and cause of death.
 
'''Source of Information:''' Death statistical bulletins made by the civil registry.
 
'''Data level:''' Patient-level.
 
'''Available data level:''' Regional and national-level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1990 onwards.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' To find statistics about death, on the domain page of [http://statistici.insse.ro:8077/tempo-online/#/pages/tables/insse-table this] website, located in the topic "A.2 VITAL STATISTICS" choose the option "DEATH", then choose the indicator you want to see.
 
'''Data access''': To request access to restricted data, follow the instructions presented [https://insse.ro/cms/ro/content/solicitare-informa%C8%9Bii here].
 
'''Information/Contact for data request:''' [https://insse.ro/cms/ro/content/contactati-ne-prin Contact information].
 
=== Database: Diagnosis Related Group (DRG) ===
[https://www.drg.ro/index.php?p=drg]
 
'''Sponsor, manager or home institution:''' National Institute of Health Services Management.
 
'''Primary purpose:''' Characterize the hospital's patient care in order to evaluate the results, increase efficiency, and administrate the hospital's financing system. Classifies the patients simultaneously by type of pathology and cost of care.
 
'''Type of information:''' [[Type of information - DRG Romania]]
 
'''Available type of information:''' [[Available type of information - DRG Romania]]
 
'''Source of Information:''' Hospitals and ambulatory care reports.
 
'''Data level:''' Patient-level.
 
'''Available data level:''' National, regional, and hospital levels.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 2002 onwards.
 
'''Cancer Areas of Interest:''' [[Cancer areas of interest - DRG Romania]]
 
'''Open data access:''' Medical and pediatrical oncology data can be acessed in [https://www.drg.ro/index.php?p=indicatori&s=2023_04 this] website. The quarterly indicators for evaluating the activity of hospitals are available [http://www.drg.ro/indicatori/CNAS/indicatori.php here].
 
'''Information/Contact for data request:''' [https://www.drg.ro/index.php?p=contact Contact information]
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=== Database: ===
 
'''Sponsor, manager or home institution:'''
 
'''Primary purpose:'''
 
'''Type of information:'''
 
'''Available type of information:'''
 
'''Source of Information:'''
 
'''Data level:'''
 
'''Available data level:'''
 
'''Number of Records:'''
 
'''Date Range:'''
 
'''Cancer Areas of Interest:'''
 
'''Open data access:'''
 
'''Information/Contact for data request:'''
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== [[Registries]] ==
=== Database: National Registry of Childhood Cancer (RNCCR) ===
[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]
 
'''Sponsor, manager or home institution''': Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
 
'''Type of information''': The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf this] document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext here]. Data refers to people aged between 0 and 14 years.
 
The variables available to be registered by the sources in the database are:
CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), date of clinical onset, date of relapse, reason for reporting, registration base (data source), tumor location, topographical code, laterality.
 
Histopathological/cytological examination (behavior, morphological code, degree, cod ICC3 primary, cod ICC3 category, cod ICC3 subcategory).
 
Toronto staging (diagnostic class, level 1, level 2).
 
TNM staging for solid tumors not included in Toronto staging (stadium type, TNM classification).
 
Treatment (stadium type, tnm classificationsurgery date, chemotherapy, radiotherapy, hormone therapy, immunotherapy, other treatments, transplant, diagnostic class, therapeutic protocol, another therapeutic protocol, treatment abroad, type of treatment abroad, tara, end of therapy date, response to treatment, refusal, reason for refusal, abandon, dropout reason).
 
Tracking (date of last contact, status, the last doctor, death, the main cause, secondary cause).
 
'''Source of information''': Reports from pediatric oncologic centers.
 
'''Data level''': Patient-level.


'''Date range''': 2009 onwards.
[[hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy]]


'''Data access''': To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database [http://oncped.iocn.ro/ page]. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.
</div>


'''Cancer areas of interest''': Unknown.
== [[hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System]] ==
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</div>


'''Information/contact for data request''': [https://srohp.ro/contact/ Contact information].
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


=== Database: North-West Regional Cancer Registry ===
=== [[hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network]] ===
[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]


'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN).
=== [[hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)]] ===


'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
</div>


'''Type of information:''' The variables available to be registered by the sources in the database are: CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), reason for reporting, registration base (data source).
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


Histopathological / cytological examination: Date of examination and result, tumor location, topographical code, laterality, behavior, morphological code, differentiation degree, stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer.
=== [[hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death]] ===


Treatment: Type of treatment, date of initiation. Informs if there was a refusal to the treatment.
=== [[hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)]] ===
</div>


Tracking: Date of last contact, name of the last doctor consulted, date of death, main cause and secondary cause of death.
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Available type of information:''' Number of new cases of cancer by region, type of cancer, and year;
=== [[hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline]] ===
</div>


Annual incidence by 100.000 inhabitants by type of cancer, sex, region, and year;
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


Sexual rate (M/F) of new cases of cancer by region, type of cancer, and year;
=== [[hasReport::Report:_IOCN_(Romania)|Report: IOCN]] ===


Percentage distribution of new cases of cancer by region, type of cancer, sex, age group, and year;
=== [[hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health]] ===


Number of deaths by cancer by type of cancer, sex, and region (for the counties of Cluj and Bistriÿa-Nÿsÿud);
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023]] ===


Crude rate of mortality by 100.000 inhabitants by sex and region (for the counties of Cluj and Bistriÿa-Nÿsÿud);
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Romania)|Report: EU Country Cancer Profile 2025]] ===


Standardized mortality rate by 100.000 inhabitants (related to the world population) by age, sex, and region (for the counties of Cluj and Bistriÿa-Nÿsÿud).
=== [[hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026]] ===


'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
=== [[hasReport::Report:_National_Plan_to_Prevent_and_Combat_Cancer_2023-2030_(Romania)|Report: National Plan to Prevent and Combat Cancer 2023-2030]] ===


'''Data level:''' Patient-level.


'''Available data level:''' Regional-level.
</div>


'''Number of Records:''' Unknown.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date Range:''' Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Cancer Areas of Interest:''' The list can be checked [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc here]. Some specific cancer locations are excluded, and those can be seen [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc here].
=== [[hasPatientAssociation::Patient Association: Renasterea Foundation (Europa Donna Romania) (Romania)|Patient Association: Renasterea Foundation (Europa Donna Romania)]] ===


'''Open data access:''' Some information is available in reports published [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html here].
=== [[hasPatientAssociation::Patient_Association:_Federation_of_Cancer_Patients_Associations (FABC)_(Romania)|Patient Association: Federation of Cancer Patients Associations (FABC)]] ===


'''Data access:''' To request access to patient-level data, contact the Northwest Cancer Registry by the e-mail shown [http://nwcanportal.iocn.ro/OncReg/ here].
=== [[hasPatientAssociation::Association:_Asociatia_Heal_(Romania)|Association: Asociatia Heal]] ===


'''Information/Contact for data request:''' [https://www.old.iocn.ro/en Contact information]
=== [[hasPatientAssociation::Patient_Association:_Dăruiește_Viață_(Romania)|Patient Association: Dăruiește Viață]] ===


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
=== [[hasPatientResource::Self-help_Group:_Comunitatea_Oncologică_din_România_(Romania)|Self-help Group: Comunitatea Oncologică din România]] ===


== [[Electronic Health Records]] ==
</div>


== [[Clinical Practices Guidelines]] ==
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research]] ==
</div>


== [[Cancer-related Patient Associations and Resources]] ==
__NOTOC__
<span style="display:none">hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology</span>
<span style="display:none">hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System</span>
<span style="display:none">hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network</span>
<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)</span>
<span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death</span>
<span style="display:none">hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)</span>
<span style="display:none">hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry</span>
<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline</span>
<span style="display:none">hasReport::Report:_IOCN_(Romania)|Report: IOCN</span>
<span style="display:none">hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:16, 22 January 2026

forresearchers forpatients forproviders forpolicymakers romaniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG) hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR) hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline hasReport::Report:_IOCN_(Romania)|Report: IOCN hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023 hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown