Romania: Difference between revisions

hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer hasCancerType::D10-D36: Benign tumour hasCancerType::unknown

@@ Line 1: / Line 1: @@
+<span style="display:none">forresearchers</span>
+<span style="display:none">forpatients</span>
+<span style="display:none">forproviders</span>
+<span style="display:none">forpolicymakers</span>
+<span style="display:none">romaniacountry</span>
+[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
 == Cancer Centers ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-== Healthcare System ==
+[[hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology]]
-The Romanian healthcare system operates under a social health insurance model, aiming for universal coverage. However, in practice, it covered 89% of the population as of 2017. The system is governed by the Ministry of Health and administered by the National Health Insurance House (NHIH). Both these bodies are represented locally through district public health authorities and district health insurance houses (DHIHs).
-The healthcare system is financed from four main sources: national health insurance funds, the state budget, local budgets, and out-of-pocket (OOP) payments. OOP payments include direct payments for private services, co-payments for medicines, and potentially sizable informal payments.
-The benefits provided by this system encompass a range of services. Primary care is provided by family physicians, who play a gatekeeper role, although direct access to specialists is possible for certain conditions. Specialist consultations, hospital care, and emergency services are provided by a network of various providers, such as outpatient departments, polyclinics, and specialized medical centers, but access can be uneven, with rural areas facing more challenges than urban areas.
+[[hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy]]
-To be eligible for these benefits, individuals must contribute to the national health insurance fund, a mandate that applies to employees, employers, and the self-employed. Certain groups like students, pensioners, and unemployed individuals receive state-funded health insurance.
+</div>
-Data management has been digitalized with the creation of national electronic systems for medical prescriptions and the insured. Hospitals and clinics are obliged to maintain patient records and are transitioning to Electronic Health Records (EHRs). The system faces challenges, including data standardization and interoperability across different healthcare providers.
+== [[hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System]] ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+</div>
 == Administrative or Claims Data ==
-=== Database: Mortality by cause of death ===
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-[http://80.96.186.4:81/metadata/viewStatisticalResearch.htm?locale=en&researchId=5162] [http://80.96.186.4:81/metadata/view.file?researchId=5162&type=questionnaire&file=Buletin%20statistic%20pentru%20deces%203.pdf]
-'''Sponsor, manager or home institution:''' National Institute of Statistics (Institutul Naţional de Statistică).
-'''Primary purpose:''' Registry the number of deaths for statistics purposes.
-'''Type of information:''' Commune; City; Municipality; Date; Number of the document from the civil status register; Code SIRUTA; Personal numeric code; Name and surname; Sex; Number of children born alive during life (for women only); Date of death; Date of birth; Marital status; Date of birth of the surviving spouse; Employee; Level of education; Citizenship; Ethnicity; Domicile; Place of death; Country where he died; Country where he was born; Causes of death; Antecedent causes; The initial morbid state; Other important morbid conditions; Manner of death; Status of the autopsy.
-'''Available type of information:''' Deceased by causes of death; Macro-regions, Development regions and counties; Gender; Deceased with usual residence in Romania.
-'''Source of Information:''' Death statistical bulletins made by the civil registry.
-'''Data level:''' Patient-level.
-'''Available data level:''' Regional and national level.
-'''Number of Records:''' Unknown.
-'''Date Range:''' 1990 onwards.
-'''Cancer Areas of Interest:''' Unknown.
-'''Open data access:''' Partially publicly available. To find statistics about death, on the domain page, go to the topic [http://statistici.insse.ro:8077/tempo-online/#/pages/tables/insse-table] "A.2 VITAL STATISTICS" > "DEATH", then choose the indicator you want to see. Instructions to request data for restricted content [https://insse.ro/cms/ro/content/solicitare-informa%C8%9Bii].
-'''Information/Contact for data request:''' Contact information [https://insse.ro/cms/ro/content/contactati-ne-prin].
-=== Database: Diagnosis Related Group (DRG) ===
-[https://www.drg.ro/index.php?p=drg]
-'''Sponsor, manager or home institution:''' National Institute of Health Services Management.
-'''Primary purpose:''' Characterize the hospital's patient care in order to evaluate the results, increase efficiency, and administrate the hospital's financing system. Classifies the patients simultaneously by type of pathology and cost of care.
-'''Type of information:''' [[Type of information - DRG Romania]].
-'''Available type of information:''' [[Available type of information - DRG Romania]].
-'''Source of Information:''' Hospitals and ambulatory care reports.
-'''Data level:''' Patient-level.
-'''Available data level:''' National, regional, and hospital levels.
-'''Number of Records:''' Unknown.
-'''Date Range:''' 2002 onwards.
-'''Cancer Areas of Interest:''' [[Cancer areas of interest - DRG Romania]].
-'''Open data access:''' Medical and pediatrical oncology data can be acessed in [https://www.drg.ro/index.php?p=indicatori&s=2023_04 this] website. The quarterly indicators for evaluating the activity of hospitals are available [http://www.drg.ro/indicatori/CNAS/indicatori.php here].
-'''Information/Contact for data request:''' [https://www.drg.ro/index.php?p=contact Contact information]
-<!--
-=== Database: ===
-'''Sponsor, manager or home institution:'''
-'''Primary purpose:'''
-'''Type of information:'''
-'''Available type of information:'''
-'''Source of Information:'''
-'''Data level:'''
-'''Available data level:'''
-'''Number of Records:'''
-'''Date Range:'''
-'''Cancer Areas of Interest:'''
-'''Open data access:'''
-'''Information/Contact for data request:'''
--->
-== [[Registries]] ==
-=== Database: National Registry of Childhood Cancer (RNCCR) ===
-[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]
-'''Sponsor, manager or home institution''': Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
-'''Type of information''': The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf this] document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext here]. Data refers to people aged between 0 and 14 years.
-The variables available to be registered by the sources in the database are:
-CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), date of clinical onset, date of relapse, reason for reporting, registration base (data source), tumor location, topographical code, laterality.
-Histopathological/cytological examination (behavior, morphological code, degree, cod ICC3 primary, cod ICC3 category, cod ICC3 subcategory).
-Toronto staging (diagnostic class, level 1, level 2).
-TNM staging for solid tumors not included in Toronto staging (stadium type, TNM classification).
-Treatment (stadium type, tnm classificationsurgery date, chemotherapy, radiotherapy, hormone therapy, immunotherapy, other treatments, transplant, diagnostic class, therapeutic protocol, another therapeutic protocol, treatment abroad, type of treatment abroad, tara, end of therapy date, response to treatment, refusal, reason for refusal, abandon, dropout reason).
-Tracking (date of last contact, status, the last doctor, death, the main cause, secondary cause).
-'''Source of information''': Reports from pediatric oncologic centers.
-'''Data level''': Patient-level.
-'''Date range''': 2009 onwards.
-'''Data access''': To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database [http://oncped.iocn.ro/ page]. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.
-'''Cancer areas of interest''': Unknown.
-'''Information/contact for data request''': [https://srohp.ro/contact/ Contact information].
-=== Database: North-West Regional Cancer Registry ===
-[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]
-'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN).
-'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
-'''Type of information:''' The variables available to be registered by the sources in the database are: CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), reason for reporting, registration base (data source).
-Histopathological / cytological examination: Date of examination and result, tumor location, topographical code, laterality, behavior, morphological code, differentiation degree, stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer.
-Treatment: Type of treatment, date of initiation. Informs if there was a refusal to the treatment.
-Tracking: Date of last contact, name of the last doctor consulted, date of death, main cause and secondary cause of death.
+=== [[hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network]] ===
-'''Available type of information:''' Number of new cases of cancer by region, type of cancer, and year;
+=== [[hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)]] ===
-Annual incidence by 100.000 inhabitants by type of cancer, sex, region, and year;
+</div>
-Sexual rate (M/F) of new cases of cancer by region, type of cancer, and year;
+== Registries ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-Percentage distribution of new cases of cancer by region, type of cancer, sex, age group, and year;
+=== [[hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death]] ===
-Number of deaths by cancer by type of cancer, sex, and region (for the counties of Cluj and Bistriÿa-Nÿsÿud);
+=== [[hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)]] ===
+</div>
-Crude rate of mortality by 100.000 inhabitants by sex and region (for the counties of Cluj and Bistriÿa-Nÿsÿud);
+== Clinical Practices Guidelines ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-Standardized mortality rate by 100.000 inhabitants (related to the world population) by age, sex, and region (for the counties of Cluj and Bistriÿa-Nÿsÿud).
+=== [[hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline]] ===
+</div>
-'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
+== Latest Policymaking Initiatives ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Data level:''' Patient-level.
+=== [[hasReport::Report:_IOCN_(Romania)|Report: IOCN]] ===
-'''Available data level:''' Regional-level.
+=== [[hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health]] ===
-'''Number of Records:''' Unknown.
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023]] ===
-'''Date Range:''' Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Romania)|Report: EU Country Cancer Profile 2025]] ===
-'''Cancer Areas of Interest:''' The list can be checked [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc here]. Some specific cancer locations are excluded, and those can be seen [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc here].
+=== [[hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026]] ===
-'''Open data access:''' Some information is available in reports published [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html here].
+=== [[hasReport::Report:_National_Plan_to_Prevent_and_Combat_Cancer_2023-2030_(Romania)|Report: National Plan to Prevent and Combat Cancer 2023-2030]] ===
-'''Data access:''' To request access to patient-level data, contact the Northwest Cancer Registry by the e-mail shown [http://nwcanportal.iocn.ro/OncReg/ here].
-'''Information/Contact for data request:''' [https://www.old.iocn.ro/en Contact information]
+</div>
-== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
+== Cancer-related Patient Associations and Resources ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-== [[Electronic Health Records]] ==
+=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation]] ===
-== [[Clinical Practices Guidelines]] ==
+=== [[hasPatientAssociation::Patient Association: Renasterea Foundation (Europa Donna Romania) (Romania)|Patient Association: Renasterea Foundation (Europa Donna Romania)]] ===
-== [[Cancer-related Patient Associations and Resources]] ==
+=== [[hasPatientAssociation::Patient_Association:_Federation_of_Cancer_Patients_Associations (FABC)_(Romania)|Patient Association: Federation of Cancer Patients Associations (FABC)]] ===
-=== Compilation: ESMO Patient Guides ===
+=== [[hasPatientAssociation::Association:_Asociatia_Heal_(Romania)|Association: Asociatia Heal]] ===
-'''Sponsor, manager or home institution:''' European Society for Medical Oncology
+=== [[hasPatientAssociation::Patient_Association:_Dăruiește_Viață_(Romania)|Patient Association: Dăruiește Viață]] ===
-'''Primary purpose:''' To translate complex medical language into understandable information for patients.
+=== [[hasPatientResource::Self-help_Group:_Comunitatea_Oncologică_din_România_(Romania)|Self-help Group: Comunitatea Oncologică din România]] ===
-'''Available guides:''' Adverse Reactions of Immunotherapy; Survival; CML;Colorectal Cancer; Endometrial Cancer; LAM; Follicular Lymphoma; Non-Small Cell Lung Cancer; Breast Cancer.
+</div>
-'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
+== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research]] ==
+</div>
-'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-romanian [6]].
+__NOTOC__
+<span style="display:none">hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology</span>
+<span style="display:none">hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy</span>
+<span style="display:none">hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System</span>
+<span style="display:none">hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network</span>
+<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)</span>
+<span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death</span>
+<span style="display:none">hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)</span>
+<span style="display:none">hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry</span>
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline</span>
+<span style="display:none">hasReport::Report:_IOCN_(Romania)|Report: IOCN</span>
+<span style="display:none">hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health</span>
+<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023</span>
+<span style="display:none">hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026</span>
+<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides</span>
+<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research</span>
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline</span>
+<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation</span>
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
+<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
+<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
+<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
+<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
+<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
+<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
+<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
+<span style="display:none">hasCancerType::C50: Breast cancer</span>
+<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
+<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
+<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
+<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
+<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
+<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
+<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
+<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
+<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
+<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
+<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
+<span style="display:none">hasCancerType::unknown</span>