Lithuania: Difference between revisions

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=== Database: Activities of in-patient beds ===
=== Database: Activities of in-patient beds ===


'''Primary purpose:''' Provides information about the numbers and activities of in-patient beds in entire Lithuania.
'''Primary purpose:''' Provides information about the numbers and activities of in-patient beds in Lithuania.


'''Sponsor, manager or home institution''': Higienos Institutas.
'''Sponsor, manager or home institution''': Higienos Institutas.
Line 61: Line 61:
'''Available data level:''' National and regional level.
'''Available data level:''' National and regional level.


'''Number of Records:''' 2001 onwards.
'''Number of Records:''' Unknown.


'''Data range:'''
'''Data range:''' 2001 onwards.


'''Cancer Areas of Interest:'''  
'''Cancer Areas of Interest:''' Unknown.


'''Open data access''': Partially publicly available []. Instructions to request data for restricted content [].
'''Open data access''': Partially publicly available [https://stat.hi.lt/user-report-view.aspx?group_id=28]. Instructions to request data for restricted content [].


'''Information/contact for data request''': Contact information [].
'''Information/contact for data request''': Contact information at the footer of the page [https://stat.hi.lt/user-report-view.aspx?group_id=28].


=== Database: Cancer Procedures ===
=== Database: Cancer Procedures ===

Revision as of 13:26, 13 October 2023

Go back to Cancer Centers list.

Cancer Centers

Healthcare System

Lithuania

Administrative or Claims Data

Database: Cancer Prevention Statistics

[1]

Primary purpose: Provide reliable information about health in Lithuania.

Sponsor, manager or home institution: State Data Agency of Lithuania.

Available type of information: Number of breast cancer and cervical cancer screenings; Year; Proportion of women who had mammography test; Period of time since examination; Age; Income; Employment status; Educational level; Region of residence; Proportion of women who had a cervical smear test; Cigarette smoking habits of the population; Frequency of smoking, Gender; Population smoking habits of tobacco products; Number of cigarettes smoked daily by the smoking population; Number of cigarettes; Proportion of the population who consulted a specialist during the last 12 months; Specialization (includes oncologist).

Source of information: Health Interview Survey, Population Register of State Enterprise Centre of Registers and the State Social Insurance Fund Board under the Ministry of Social Security and Labour (SODRA).

Data level: Patient level.

Available data level: Regional level.

Number of Records: Comprises all permanent residents of the Republic of Lithuania, aged 15 years or older, living in private households. In 2019, 70.3% of this population group answered the survey.

Date range: 2005 onwards (cancer screenings, population smoking habits) and 2014 onwards (mammography and cervical smear tests, cigarette smoking habit, and the number of cigarettes smoked daily).

Cancer Areas of Interest: Breast cancer, cervical cancer, and respiratory tract cancer.

Open data access: Partially publicly available [2]. Instructions to request data for restricted content [3].

Information/contact for data request: Contact information [4].

Database: Activities of in-patient beds

Primary purpose: Provides information about the numbers and activities of in-patient beds in Lithuania.

Sponsor, manager or home institution: Higienos Institutas.

Available type of information: Number of hospital beds according to groups of bed profiles (specialties); Number of beds at the end of the year; Number of beds at the end of the year per 10,000 inhabitants; Average annual number of beds; Number of hospitalized patients; Number of hospitalized patients per 1000 inhabitants; The number of hospitalized patients - up to 14 years; Number of inpatients; Discharge from inpatients; 1,000 residents were discharged from inpatients; Among the inpatients - dead; Number of bed days; Bed functioning; Average lying time; Bed turnover; Lethality; Year; Institution name; County; Number of hospital beds according to profiles; The number of hospital beds according to groups of bed profiles and treatment facilities and Number of inpatient beds according to bed profiles and treatment facilities.

Source of information: Annual statistical reports from Compulsory Health Insurance Fund Information System (CHIF IS).

Data level: Patient level.

Available data level: National and regional level.

Number of Records: Unknown.

Data range: 2001 onwards.

Cancer Areas of Interest: Unknown.

Open data access: Partially publicly available [5]. Instructions to request data for restricted content [].

Information/contact for data request: Contact information at the footer of the page [6].

Database: Cancer Procedures

[7]

Primary purpose: Register and surveil the number of performed procedures.

Sponsor, manager or home institution: Institute of Hygiene (HI).

Type of information: Number of surgical operations and procedures performed in hospitals; Crude number and number per 100 000 inhabitants by type of surgical procedure - regarding cancer, it includes prostatectomy and mastectomy; Type of patient; Year; Hospital day cases; Type of diagnose; Age; Gender; Hospital days for inpatient cases (excluding inpatient nursing and rehabilitation cases in sanatoriums); Number of discharges (excluding inpatient nursing and rehabilitation cases in sanatoriums); Inpatient average length of stay (excluding inpatient nursing and rehabilitation cases in sanatoriums).

Source of information: Compulsory Health Insurance Fund Information System (CHIF IS).

Data level: Patient level.

Available data level: National level.

Number of Records: Contains information regarding the whole territory of Lithuania.

Date range: 2010 onwards (number of surgical operations) and 2001 onwards (all the other indicators).

Cancer Areas of Interest: Number of surgical operations comprises breast cancer and prostate cancer. The other indicators do not specify the types of cancer comprised.

Open Data access: Partially publicly available [8]. Instructions to request data for restricted content [9].

Information/contact for data request: Contact information [10].

Database: Disability caused by cancer

[11]

Primary purpose: Provide statistical information about people whose work capacity or life quality has been affected by illness.

Sponsor, manager or home institution: State Data Agency of Lithuania.

Type of information: Number of persons of working age with a reduced level of capacity for work established for the first time; Type of disease; Year, Gender, Capacity level; Age; Region; Number of children recognised as disabled for the first time.

Source of information: Data from the Disability and Working Capacity Assessment Office at the Ministry of Social Security and Labour.

Data level: Patient level.

Available data level: Regional level.

Number of Records: Unknown.

Date range: 2001 onwards.

Cancer Areas of Interest: Unknown.

Data access: Partially publicly available [12]. Instructions to request data for restricted content [13].

Information/contact for data request: Contact information [14].

Registries

Database: Cancer Registry

[15] [16]

Primary purpose: Produce a complete registration of cancer cases and cancer mortality across Lithuania.

Sponsor, manager or home institution: National Cancer Institute.

Type of information: Cancer incidence; Mortality; Prevalence; Survival; Patient name; Date of birth; Personal identification number; Place of residence; Primary tumor information; Date of diagnosis, ICD-10 code of the primary site and topography; Stage; Pathological TNM; Clinical TNM; ICD-O-3 code of morphology; Behavior; Most valid basis of diagnosis; Date source and name of the doctor who has diagnosed cancer.

Available type of information: Incidence rate (per 100,000 inhabitants); Gender; Age; Tumor location; Standardized incidence rate for the European population and for the world population (per 100,000 inhabitants); Survival rate; Mortality rate; Number of tumor cases; The TNM stage of the tumor; Number of survivors (after 1, 5, and 10 years from diagnosis) and relative survival (in %, after 1 and 5 years from diagnosis); Time since diagnosis.

Source of information: The register is continuously updated with reports about new cancer cases sent by primary, secondary, and tertiary healthcare institutions from across the country.

Data level: Patient level.

Available data level: National level.

Number of Records: Contains information regarding the whole territory of Lithuania. Contains more than 500,000 reports and, each year, more than 20,000 new cancer cases are added to the registry.

Date range: Regarding patient level data, there is data about diagnosed cancer cases from 1978 onwards and data about cancer mortality from 1990 onwards. National level data is available from 2006 onwards.

Cancer Areas of Interest: C00-C96, melanomas (D03), breast (D05), cervix (D06), bladder (D09.0); tumors of obscure and unknown course: ovaries (D39.1), nervous system (D42-43), lymphatic and hematopoietic tissues (D45-47); benign tumors of the nervous system (D32-33). (ICD-10-AM).

Data access: Partially publicly available [17]. Instructions to request data for restricted content [18].

Information/contact for data request: Contact information [19].

Clinical Practices Guidelines

Ministry of Health Protection Protocols

Sponsor, manager or home institution: Ministry of Health Protection of the Republic of Lithuania.

Primary purpose: To ensure the modern standard of diagnosis and treatment of various types of cancer for doctors at various levels of personal health care institutions.

Type of information: Epidemiology, risk factors, recommendations, diagnostics and treatments of various types of cancer.

Access to information: List of guidelines in Oncology fields [20].

LNDTA Guidelines

Sponsor, manager or home institution: Lietuvos nefrologijos, dializės ir transplantacijos asociacijos.

Primary purpose: To prepare recommendations on how to optimize the diagnosis and treatment of kidney diseases.

Type of information: Recommendations, diagnosis, monitoring, evaluation and treatments of kidney diseases.

Access to information: List of guidelines [21].

LPAD Guideline

Sponsor, manager or home institution: Ietuvos pulmonologų ir alergologų draugija.

Primary purpose: To guide health care professionals in diagnosing and treating lung cancer, considering the patient's individual needs, preferences, values, and characteristics.

Type of information: Epidemiology, diagnostics, treatments, palliative care, quality of life, follow up of lung cancers.

Access to information: Access information [22].

Cancer-related Patient Associations and Resources

Patients Communities

Sponsor, manager or home institution: Various institutions.

Primary purpose: To provide support, information, advocacy, and a sense of community for individuals affected by cancer, aiming to improve their quality of life and promote awareness, research, and better care.

Access to information: Information [23].

Compilation: ESMO Patient Guides

Sponsor, manager or home institution: European Society for Medical Oncology.

Primary purpose: To translate complex medical language into understandable information for patients.

Available guides: Surviving Cancer; AML; Follicular lymphoma; CML; Glioblastoma; Bone Sarcoma; Soft Tissue Sarcomas; Colorectal Cancer; Breast Cancer; Squamous Cell Carcinoma of the Head and Neck Region; Cancer of the Uterus (Endometrium).

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.

Access to information: List of guides [24].

Latest Policymaking Initiatives

Reports: Health statistics publications

Sponsor, manager or home institution: Higienus Intitutas.

Primary purpose: To present statistical information and data analysis related to specific health topics and healthcare aspects in Lithuania.

Type of information: Incidence, morbidity and mortality of malignant tumors; Rate of death from malignant tumors; Population (percentage) that participated in breast and cervical cancer prevention programs; Distribution of time from positive cervical test to biopsy; Distribution of time from cervical biopsy to confirmation of diagnosis; Distribution of time from confirmation of cervical cancer diagnosis to treatment; Distribution of time from breast biopsy to confirmation of diagnosis; Distribution of time from mammography to biopsy; Distribution of time from confirmation of breast cancer diagnosis to treatment.

Data level: National and regional level.

Access to information: Access Information [25]. Screenings information [26].

Report: EU Country Cancer Profile 2023

Sponsor, manager or home institution: OECD and European Commission.

Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.

Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.

Data level: National level.

Access to information: Access Information [27].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [28] and Palliative Care [29].