Lithuania

Administrative or Claims Data

Database: Cancer Prevention Statistics

[1]

Primary purpose: Provide reliable information about health in Lithuania.

Sponsor, manager or home institution: State Data Agency of Lithuania.

Type of information: Number of breast cancer and cervical cancer screenings (by year); Proportion of women who had mammography test (by period of time since examination, age, and year); Proportion of women who had a cervical smear test (by period of time since examination, age, and year); Cigarette smoking habits of the population (by frequency of smoking, gender, age, and year)

Source of information: Health Interview Survey, Population Register of State Enterprise Centre of Registers and the State Social Insurance Fund Board under the Ministry of Social Security and Labour (SODRA).

Data level: National level (open access) and Patient level (restricted access).

Number of Records: Unknown.

Date range: 2005 onwards (cancer screenings) and 2014 onwards (mammography and cervical smear tests, cigarrette smoking habit).

Cancer Areas of Interest: Breast cancer, and cervical cancer.

Data access: To request access to patient level data, follow the instructions presented here.

Information/contact for data request: Contact information.

Registries

Database: Cancer Registry

[1] [2]

Primary purpose: Produce a complete registration of cancer cases across Lithuania.

Sponsor, manager or home institution: National Cancer Institute.

Type of information: Patient level information = cancer incidence, mortality, prevalence and survival. Patient information (full name, date of birth, personal identification number, place of residence), and primary tumor information (date of diagnosis, ICD10 code of primary site and topography, stage, pathological TNM, clinical TNM, ICD-O-3 code of morphology, behavior, most valid basis of diagnosis - has cancer histological verification or not -, date source and name of the doctor who has diagnosed cancer).

National level information = Incidence rate (per 100,000 inhabitants), standardized incidence rate for the European population and for the world population (per 100,000 inhabitants), survival rate, number of deaths, mortality rate. All indicators are presented according to gender, age, and tumor location.

Number of tumor cases (in number and percentage) according to age, gender, location, and the TNM stage of the tumor.

Number of survivors (after 1, 5, and 10 years from diagnosis) and relative survival (in %, after 1 and 5 years from diagnosis) according to gender, tumor location, and time since diagnosis .

Source of information: The register is continuouslly updated with reports about new cancer cases sent by primary, secondary and tertiary health care institutions from across the country.

Data level: National level (open access) and patient level (restricted access).

Number of Records: Contains information regarding the whole territory of Lithuania. Contains more than 500,000 reports and, each year, more than 20,000 new cancer cases are added to the registry.

Date range: Regarding patient level data, there is information from 1978 onwards regarding diagnosed cancer cases, and from 1990 onwards regarding cancer mortality. National level data is available from 2006 onwards.

Cancer Areas of Interest: IC00-C96, D00-D09, D32-D33, D39.1, D42-D43, and D45-D47 (ICD-10-AM).

Data access: National level data can be accessed in this website. To request access for patient level data, contact the National Cancer Institute (contact address bellow).

Information/contact for data request: Contact information.