Database: Medicines Registry (Sweden)

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Type of database: registry.

Primary purpose: The objective of the pharmaceutical registry is to enhance patient safety within the pharmaceutical industry.

Sponsor, manager or home institution: Socialstyrelsen.

Type of information: cross-sectional. age, sex, place of residence, medication use, number of drugs, number of patients.

Data Dictionary: Medicines Registry.

Click here to learn more.

Available type of information: shipments, medication use and ATC codes for all ages, drug groups for children 0-17 children; filtered by year, divided by age, monthly data divided by region, drug groups, ATC codes, regions, sex, measure (number of patients), year and month.

Source of information: The pharmaceutical register exclusively obtains data from the E-health authority, which requires all pharmaceutical trades to report their sales data. When a prescribed medication is dispensed, pharmacies must also furnish supplementary information to the E-health authority. The E-health authority, in turn, forwards information regarding prescription-based shipments to the National Board of Health and Welfare.

Data level: patient level.

Available data level: national level and regional level.

Number of records: About 100 million per year.

Date range: 2005 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available: Click here to access. Instructions to request data for restricted content: click here to learn more. Data can be downloaded in the formats CSV, XLSX. Data has access costs.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Socialstyrelsen databaseStructure::cross-sectional hasVariable::age hasVariable::sex hasVariable::place of residence hasVariable::medication use hasVariable::number of drugs hasVariable::number of patients hasDataDictionary::Data Dictionary: Medicines Registry availableVariable::number of drugs|shipments availableVariable::medication use availableVariable::age availableVariable::year availableVariable::region availableVariable::sex availableVariable::number of patients dataLevel::patient level availableDataLevel::national level availableDataLevel::regional level dataStart::2005 dataEnd::onwards dataAvailability::partially publicly available hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more hasDownloadableData::CSV hasDownloadableData::XLSX hasDataAccessCosts::Data has access costs isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine