Database: Registry of Histo and Cytopathology (The Netherlands)

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Type of Database: registry.

Primary purpose: Records organized pathology data to facilitate scientific study that improves the quality of diagnosis, treatment, and patient safety. Click here to learn more.

Sponsor, manager or home institution: the Pathological Anatomical National Automated Archive (PALGA).

Type of information: longitudinal. age, sex, diagnosis, primary tumour localization, tumour histology, tumour staging, comorbidities, medical procedures, screening, year.

Data dictionary - Registry of Histo and Cytopathology (The Netherlands).

Click here to learn more.

It is possible to integrate data from this Registry of Histo and Cytopathology with other databases. This linkage enriches the investigations since it provides much more information regarding each case. In the following website, it is possible to see the list of databases that have an easier proccess of linkage with the Histo and Cytopathology database along with the instructions to this process. Click here to learn more.

Available type of information: diagnosis (includes neoplasms); sex; year; age; tumour histology. Click here to learn more.

Source of information: Pathology reports are sent daily from laboratories around the Netherlands to the national database. Click here to learn more.

Data level: patient level.

Available data level: national level.

Number of Records: Since 2017, when there were more than 72 million pathology results stored, the number of registries has increased by approximately 2 million each year. Click here to learn more.

Date range: 1971 onwards. The registry has had nationwide information since 1991. Click here to learn more.

Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Public database: Click here to access. To facilitate the search process for cancer terms, the main thesaurus codes used are listed in this page: Click here to learn more. Data has access costs. Click here to learn more. Instructions to request data for restricted content Click here to learn more.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::the Pathological Anatomical National Automated Archive (PALGA) databaseStructure::longitudinal hasVariable::age hasVariable::sex hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour histology hasVariable::tumour staging hasVariable::comorbidities hasVariable::medical procedures hasVariable::screening hasVariable::year hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands) availableVariable::diagnosis availableVariable::sex availableVariable::year availableVariable::age availableVariable::tumour histology dataLevel::patient level availableDataLevel::national level dataStart::1971 dataEnd::onwards dataAvailability::partially publicly available hasDataAccessCosts::Data has access costs hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers Click here to learn more isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine