Database: North-West Regional Cancer Registry (Romania): Difference between revisions

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<span style="display:none">romaniacountry</span>
<span style="display:none">forresearchers</span>


'''Type of database:''' [[databaseType::registry]].


[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]
'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.  


'''Sponsor, manager or home institution:''' [[dataOwner::Oncological Institute of Cluj (IOCN)]].
'''Sponsor, manager or home institution:''' [[dataOwner::Oncological Institute of Cluj (IOCN)]].


'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::year]]; [[hasVariable::age]]; [[hasVariable::sex]]; [[hasVariable::place of residence]]; [[hasVariable::hospital location]]; [[hasVariable::diagnosis]]; [[hasVariable::primary tumour localization]]; [[hasVariable::tumour histology]]; [[hasVariable::tumour staging]]; [[hasVariable::medical procedures]]; [[hasVariable::causes of death]]; [[hasVariable::number of deaths]]; [[hasVariable::cancer incidence]].  


'''Type of information:''' The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological / cytological examination: Date of examination and result; Tumor location; Topographical code; Laterality, Behavior, Morphological code, Differentiation degree, Stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer. Treatment: Type of treatment, Date of initiation. Informs if there was a refusal to the treatment. Tracking: Date of last contact, Name of the last doctor consulted, Date of death, Main cause and secondary cause of death.
[[hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry]].


'''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::diagnosis]]; [[availableVariable::year]]; [[availableVariable::sex]]; Annual incidence by 100.000 inhabitants;
'''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::diagnosis]]; [[availableVariable::year]]; [[availableVariable::sex]]; Annual incidence by 100.000 inhabitants;
Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; [[availableVariable::age]] group; [[availableVariable::number of deaths]] by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; [[availableVariable::age]] group; [[availableVariable::number of deaths]] by cancer; Crude rate of [[availableVariable::number of deaths|mortality]] by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).


'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
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'''Date Range:''' Regarding the county of Cluj, information is available from [[dataStart::2000]] [[dataEnd::onwards]]. There is data about other counties from 2008 onwards.
'''Date Range:''' Regarding the county of Cluj, information is available from [[dataStart::2000]] [[dataEnd::onwards]]. There is data about other counties from 2008 onwards.


'''Cancer Areas of Interest:''' [[hasCancerAreasList::Cancer Areas of Interest: Cancer areas of interest - North-West Regional Cancer Registry|North-West Regional Cancer Registry]] [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc]. Some specific cancer locations are excluded [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc].
'''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.old.iocn.ro/Document_Files/Rapoartele-Registrului-Regional-de-Cancer/00000901/fdhx8_RAPORT%20DE%20CANCER%20-%202019.pdf Click here to learn more]. Some specific cancer locations are excluded.


'''Data access:''' [[dataAvailability::partially publicly available]] [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[http://nwcanportal.iocn.ro/OncReg/]]].
[[Cancer areas of interest - North-West Regional Cancer Registry]]


'''Contact information:''' Information [https://www.old.iocn.ro/en].
'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.old.iocn.ro/en/Cancer-prevention-and-control-center/Regional-Cancer-Registry/Reports-of-the-Regional-Cancer-Registry.html Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.old.iocn.ro/en/modul--Contact.html click here to learn more]]].
 
'''Contact information:''' [https://www.old.iocn.ro/en/modul--Contact.html Click here to learn more].
 
<span style="display:none">Mouth</span>
<span style="display:none">Throat</span>
<span style="display:none">Oropharynx</span>
<span style="display:none">Nasopharynx</span>
<span style="display:none">Hypopharynx</span>
<span style="display:none">Larynx</span>
<span style="display:none">Salivary glands</span>
<span style="display:none">Lips</span>
<span style="display:none">Tonsils</span>
<span style="display:none">base of tongue</span>
<span style="display:none">Voice box</span>
<span style="display:none">Esophagus</span>
<span style="display:none">Stomach</span>
<span style="display:none">Small intestine</span>
<span style="display:none">Large intestine</span>
<span style="display:none">Colon</span>
<span style="display:none">Rectum</span>
<span style="display:none">Anus</span>
<span style="display:none">Liver</span>
<span style="display:none">Gallbladder</span>
<span style="display:none">Bile ducts</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Lung</span>
<span style="display:none">Trachea</span>
<span style="display:none">Bronchi</span>
<span style="display:none">Pleura</span>
<span style="display:none">Mediastinum</span>
<span style="display:none">Bone</span>
<span style="display:none">Cartilage</span>
<span style="display:none">Osteosarcoma</span>
<span style="display:none">Ewings sarcoma</span>
<span style="display:none">Skin</span>
<span style="display:none">Melanoma</span>
<span style="display:none">Scalp</span>
<span style="display:none">Lips</span>
<span style="display:none">Hands</span>
<span style="display:none">Feet</span>
<span style="display:none">Muscle</span>
<span style="display:none">Fat</span>
<span style="display:none">Tendon</span>
<span style="display:none">Ligament</span>
<span style="display:none">Blood vessels</span>
<span style="display:none">Connective tissue</span>
<span style="display:none">Sarcoma</span>
<span style="display:none">Angiosarcoma</span>
<span style="display:none">Liposarcoma</span>
<span style="display:none">Lobular</span>
<span style="display:none">Breast</span>
<span style="display:none">Nipple</span>
<span style="display:none">Areola</span>
<span style="display:none">Ductal</span>
<span style="display:none">Vulva</span>
<span style="display:none">Vagina</span>
<span style="display:none">Cervix</span>
<span style="display:none">Uterus</span>
<span style="display:none">Ovary</span>
<span style="display:none">Fallopian tubes</span>
<span style="display:none">Endometrium</span>
<span style="display:none">Prostate</span>
<span style="display:none">Testicles</span>
<span style="display:none">Penis</span>
<span style="display:none">Kidney</span>
<span style="display:none">Ureter</span>
<span style="display:none">Bladder</span>
<span style="display:none">Urethra</span>
<span style="display:none">Eye</span>
<span style="display:none">Brain</span>
<span style="display:none">Spinal cord</span>
<span style="display:none">Thyroid gland</span>
<span style="display:none">Parathyroid</span>
<span style="display:none">Adrenal glands</span>
<span style="display:none">Pituitary gland</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Thymus gland</span>
<span style="display:none">Peritoneum</span>
<span style="display:none">Pericardium</span>
<span style="display:none">Retroperitoneum</span>
<span style="display:none">Mesothelium</span>
<span style="display:none">Blood</span>
<span style="display:none">Bone marrow</span>
<span style="display:none">Lymph nodes</span>
<span style="display:none">Spleen</span>
<span style="display:none">Leukemia</span>
<span style="display:none">databaseType::registry</span>
<span style="display:none">dataOwner::Oncological Institute of Cluj (IOCN)</span>
<span style="display:none">databaseStructure::longitudinal</span>
<span style="display:none">hasVariable::year</span>
<span style="display:none">hasVariable::age</span>
<span style="display:none">hasVariable::sex</span>
<span style="display:none">hasVariable::place of residence</span>
<span style="display:none">hasVariable::hospital location</span>
<span style="display:none">hasVariable::diagnosis</span>
<span style="display:none">hasVariable::primary tumour localization</span>
<span style="display:none">hasVariable::tumour histology</span>
<span style="display:none">hasVariable::tumour staging</span>
<span style="display:none">hasVariable::medical procedures</span>
<span style="display:none">hasVariable::causes of death</span>
<span style="display:none">hasVariable::number of deaths</span>
<span style="display:none">hasVariable::cancer incidence</span>
<span style="display:none">hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry</span>
<span style="display:none">availableVariable::cancer incidence</span>
<span style="display:none">availableVariable::region</span>
<span style="display:none">availableVariable::diagnosis</span>
<span style="display:none">availableVariable::year</span>
<span style="display:none">availableVariable::sex</span>
<span style="display:none">availableVariable::age</span>
<span style="display:none">availableVariable::number of deaths</span>
<span style="display:none">availableVariable::number of deaths|mortality</span>
<span style="display:none">dataLevel::patient level</span>
<span style="display:none">availableDataLevel::regional level</span>
<span style="display:none">numberRecords::unknown</span>
<span style="display:none">dataStart::2000</span>
<span style="display:none">dataEnd::onwards</span>
<span style="display:none">dataAvailability::partially publicly available</span>
<span style="display:none">hasDownloadableData::PDF</span>
<span style="display:none">hasDataAccessInstructions::[https://www.old.iocn.ro/en/modul--Contact.html click here to learn more</span>
<span style="display:none">isDatabase</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>
<span style="display:none">Head</span>
<span style="display:none">Neck</span>
<span style="display:none">Oral</span>
<span style="display:none">Oral cavity</span>
<span style="display:none">Pharynx</span>
<span style="display:none">Pharyngeal</span>
<span style="display:none">Tongue</span>
<span style="display:none">Lingual</span>
<span style="display:none">Nasal cavity</span>
<span style="display:none">Nasal</span>
<span style="display:none">Sinonasal</span>
<span style="display:none">Sinus</span>
<span style="display:none">Sinuses</span>
<span style="display:none">Paranasal sinuses</span>
<span style="display:none">Ear</span>
<span style="display:none">Mandible</span>
<span style="display:none">Maxilla</span>
<span style="display:none">Jaw</span>
<span style="display:none">Esophageal</span>
<span style="display:none">Gastric</span>
<span style="display:none">Intestinal</span>
<span style="display:none">Bowel</span>
<span style="display:none">Colorectal</span>
<span style="display:none">Appendix</span>
<span style="display:none">Appendiceal</span>
<span style="display:none">Duodenum</span>
<span style="display:none">Jejunum</span>
<span style="display:none">Ileum</span>
<span style="display:none">Anal</span>
<span style="display:none">Perianal</span>
<span style="display:none">Hepatic</span>
<span style="display:none">Biliary</span>
<span style="display:none">Hepatobiliary</span>
<span style="display:none">Pulmonary</span>
<span style="display:none">Thorax</span>
<span style="display:none">Thoracic</span>
<span style="display:none">Chest</span>
<span style="display:none">Mediastinal</span>
<span style="display:none">Pleural</span>
<span style="display:none">Cutaneous</span>
<span style="display:none">Dermal</span>
<span style="display:none">Epidermal</span>
<span style="display:none">Subcutaneous</span>
<span style="display:none">Skeletal</span>
<span style="display:none">Osseous</span>
<span style="display:none">Chondral</span>
<span style="display:none">Extremity</span>
<span style="display:none">Axilla</span>
<span style="display:none">Axillary</span>
<span style="display:none">Mammary</span>
<span style="display:none">Cervical</span>
<span style="display:none">Uterine</span>
<span style="display:none">Endometrial</span>
<span style="display:none">Ovarian</span>
<span style="display:none">Tubal</span>
<span style="display:none">Fallopian</span>
<span style="display:none">Vaginal</span>
<span style="display:none">Vulvar</span>
<span style="display:none">Adnexal</span>
<span style="display:none">Renal</span>
<span style="display:none">Urothelial</span>
<span style="display:none">Ureteral</span>
<span style="display:none">Urethral</span>
<span style="display:none">Prostatic</span>
<span style="display:none">Testicular</span>
<span style="display:none">Penile</span>
<span style="display:none">Ocular</span>
<span style="display:none">Orbital</span>
<span style="display:none">Retinal</span>
<span style="display:none">Optic nerve</span>
<span style="display:none">Meninges</span>
<span style="display:none">Meningeal</span>
<span style="display:none">Cerebral</span>
<span style="display:none">Cerebellar</span>
<span style="display:none">Brainstem</span>
<span style="display:none">Lymphatic</span>
<span style="display:none">Lymphoid</span>
<span style="display:none">Lymphoma</span>
<span style="display:none">Hematologic</span>
<span style="display:none">Hematopoietic</span>
<span style="display:none">Myeloma</span>
<span style="display:none">Plasma cell</span>
<span style="display:none">Diaphragm</span>
<span style="display:none">Peripheral nerve</span>
<span style="display:none">Heart</span>
<span style="display:none">Cardiac</span>
<span style="display:none">Endocrine</span>

Latest revision as of 11:58, 14 December 2025

Go back to Romania page romaniacountry forresearchers

Type of database: registry.

Primary purpose: Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.

Sponsor, manager or home institution: Oncological Institute of Cluj (IOCN).

Type of information: longitudinal. year; age; sex; place of residence; hospital location; diagnosis; primary tumour localization; tumour histology; tumour staging; medical procedures; causes of death; number of deaths; cancer incidence.

Data Dictionary: Database: North-West Regional Cancer Registry.

Available type of information: cancer incidence; region; diagnosis; year; sex; Annual incidence by 100.000 inhabitants; Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; age group; number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).

Source of Information: Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date Range: Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.

Cancer Areas of Interest: C00-D48: All neoplasms. Click here to learn more. Some specific cancer locations are excluded.

Cancer areas of interest - North-West Regional Cancer Registry

Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to learn more.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Oncological Institute of Cluj (IOCN) databaseStructure::longitudinal hasVariable::year hasVariable::age hasVariable::sex hasVariable::place of residence hasVariable::hospital location hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour histology hasVariable::tumour staging hasVariable::medical procedures hasVariable::causes of death hasVariable::number of deaths hasVariable::cancer incidence hasDataDictionary::Data Dictionary: Database: North-West Regional Cancer Registry availableVariable::cancer incidence availableVariable::region availableVariable::diagnosis availableVariable::year availableVariable::sex availableVariable::age availableVariable::number of deaths availableVariable::number of deaths|mortality dataLevel::patient level availableDataLevel::regional level numberRecords::unknown dataStart::2000 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::PDF hasDataAccessInstructions::[https://www.old.iocn.ro/en/modul--Contact.html click here to learn more isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine