Database: The Danish National Patient Registry (DNPR) (Denmark): Difference between revisions

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[https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel7D18BC3E7A234C1FBA1FF09361363EFD] [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4655913/pdf/clep-7-449.pdf]  
<span style="display:none">forresearchers</span> <span style="display:none">denmarkcountry</span>
Go back to [[Denmark]] page


'''Primary purpose''': Gather information to serve as a basis for budget calculations and statistical comparison.
'''Type of database:''' [[databaseType::administrative/claims data]].
 
'''Primary purpose''': Gather information to serve as a basis for budget calculations and statistical comparison. [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel7D18BC3E7A234C1FBA1FF09361363EFD Click here to learn more].  


'''Sponsor, manager or home institution''': [[dataOwner::The Danish Health Data Authority]].
'''Sponsor, manager or home institution''': [[dataOwner::The Danish Health Data Authority]].


'''Type of information''': [[hasDataDictionary::Data dictionary - Danish National Patient Registry]] [https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=5].
'''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::region]]; [[hasVariable::type of patient]]; [[hasVariable::sex]]; [[hasVariable::age]]; [[hasVariable::number of medical staff]]; [[hasVariable::medical procedures]]; [[hasVariable::hospital location]]; [[hasVariable::hospital discharges]]; [[hasVariable::diagnosis]]; [[hasVariable::number of visits]].


'''Available type of information''': [[availableVariable::type of cancer]], [[availableVariable::medical procedure]], [[availableVariable::year]], [[availableVariable::sex]], [[availableVariable::age]], [[availableVariable::place of residence]], [[availableVariable::hospital location]], [[availableVariable::type of hospital]], [[availableVariable::type of medical activity]], [[availableVariable::type of patient admission]], [[availableVariable::length of stay]].
[[hasDataDictionary::Data Dictionary - Danish National Patient Registry]].
 
[https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=5 Click here to learn more].
 
'''Available type of information''': [[availableVariable::diagnosis]], [[availableVariable::medical procedures]], [[availableVariable::year]], [[availableVariable::sex]], [[availableVariable::age]], [[availableVariable::place of residence]], [[availableVariable::hospital location]], [[availableVariable::type of hospital]], [[availableVariable::type of medical activity]], [[availableVariable::type of patient admission]], [[availableVariable::length of stay]].


'''Source of information''': Collected monthly from mandatory public and private hospitals' reports.
'''Source of information''': Collected monthly from mandatory public and private hospitals' reports.


'''Data level''': [[dataLevel::patient level]].
'''Data level''': [[dataLevel::patient level]].
'''Available data level''': [[availableDataLevel::regional level]].


'''Number of records''': Nationwide coverage since 1978. Considering the period between 1977–2012, the DNPR registered 8,085,603 persons, accounting for 7,268,857 inpatients, 5,953,405 outpatients, and 5,097,300 emergency department contacts.  
'''Number of records''': Nationwide coverage since 1978. Considering the period between 1977–2012, the DNPR registered 8,085,603 persons, accounting for 7,268,857 inpatients, 5,953,405 outpatients, and 5,097,300 emergency department contacts.  


'''Cancer areas of interest''': [[hasCancerAreasList::unknown]].
'''Cancer areas of interest''': [[hasCancerType::C00-D48: All neoplasms]]. [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel5951E82D767242D28F4FBF4B3DD7CD48 Click here to learn more].


'''Date range''': [[dataStart::1977]] [[dataEnd::onwards]].
'''Date range''': [[dataStart::1977]] [[dataEnd::onwards]].


'''Data access''': [[dataAvailability::partially publicly available]] [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel5951E82D767242D28F4FBF4B3DD7CD48]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://sundhedsdatastyrelsen.dk/da/forskerservice]]].
'''Data access''': [[dataAvailability::partially publicly available]]. [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel5951E82D767242D28F4FBF4B3DD7CD48 Click here to access]. Data can be downloaded in the formats [[hasDownloadableData::XLSX]]; [[hasDownloadableData::PDF]]; [[hasDownloadableData::JPEG]] and [[hasDownloadableData::PNG]]. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content  Instructions to request data for restricted content [[hasDataAccessInstructions::[https://sundhedsdatastyrelsen.dk/da/forskerservice/ansog-om-data click here to access]]].
 
'''Contact information''': [https://www.esundhed.dk/Kontakt Click here to access].


'''Contact information''': Information [https://www.esundhed.dk/Kontakt].
<span style="display:none">Mouth</span>
<span style="display:none">Throat</span>
<span style="display:none">Oropharynx</span>
<span style="display:none">Nasopharynx</span>
<span style="display:none">Hypopharynx</span>
<span style="display:none">Larynx</span>
<span style="display:none">Salivary glands</span>
<span style="display:none">Lips</span>
<span style="display:none">Tonsils</span>
<span style="display:none">base of tongue</span>
<span style="display:none">Voice box</span>
<span style="display:none">Esophagus</span>
<span style="display:none">Stomach</span>
<span style="display:none">Small intestine</span>
<span style="display:none">Large intestine</span>
<span style="display:none">Colon</span>
<span style="display:none">Rectum</span>
<span style="display:none">Anus</span>
<span style="display:none">Liver</span>
<span style="display:none">Gallbladder</span>
<span style="display:none">Bile ducts</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Lung</span>
<span style="display:none">Trachea</span>
<span style="display:none">Bronchi</span>
<span style="display:none">Pleura</span>
<span style="display:none">Mediastinum</span>
<span style="display:none">Bone</span>
<span style="display:none">Cartilage</span>
<span style="display:none">Osteosarcoma</span>
<span style="display:none">Ewings sarcoma</span>
<span style="display:none">Skin</span>
<span style="display:none">Melanoma</span>
<span style="display:none">Scalp</span>
<span style="display:none">Lips</span>
<span style="display:none">Hands</span>
<span style="display:none">Feet</span>
<span style="display:none">Muscle</span>
<span style="display:none">Fat</span>
<span style="display:none">Tendon</span>
<span style="display:none">Ligament</span>
<span style="display:none">Blood vessels</span>
<span style="display:none">Connective tissue</span>
<span style="display:none">Sarcoma</span>
<span style="display:none">Angiosarcoma</span>
<span style="display:none">Liposarcoma</span>
<span style="display:none">Lobular</span>
<span style="display:none">Breast</span>
<span style="display:none">Nipple</span>
<span style="display:none">Areola</span>
<span style="display:none">Ductal</span>
<span style="display:none">Vulva</span>
<span style="display:none">Vagina</span>
<span style="display:none">Cervix</span>
<span style="display:none">Uterus</span>
<span style="display:none">Ovary</span>
<span style="display:none">Fallopian tubes</span>
<span style="display:none">Endometrium</span>
<span style="display:none">Prostate</span>
<span style="display:none">Testicles</span>
<span style="display:none">Penis</span>
<span style="display:none">Kidney</span>
<span style="display:none">Ureter</span>
<span style="display:none">Bladder</span>
<span style="display:none">Urethra</span>
<span style="display:none">Eye</span>
<span style="display:none">Brain</span>
<span style="display:none">Spinal cord</span>
<span style="display:none">Thyroid gland</span>
<span style="display:none">Parathyroid</span>
<span style="display:none">Adrenal glands</span>
<span style="display:none">Pituitary gland</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Thymus gland</span>
<span style="display:none">Peritoneum</span>
<span style="display:none">Pericardium</span>
<span style="display:none">Retroperitoneum</span>
<span style="display:none">Mesothelium</span>
<span style="display:none">Blood</span>
<span style="display:none">Bone marrow</span>
<span style="display:none">Lymph nodes</span>
<span style="display:none">Spleen</span>
<span style="display:none">Leukemia</span>
<span style="display:none">databaseType::administrative/claims data</span>
<span style="display:none">dataOwner::The Danish Health Data Authority</span>
<span style="display:none">databaseStructure::longitudinal</span>
<span style="display:none">hasVariable::region</span>
<span style="display:none">hasVariable::type of patient</span>
<span style="display:none">hasVariable::sex</span>
<span style="display:none">hasVariable::age</span>
<span style="display:none">hasVariable::number of medical staff</span>
<span style="display:none">hasVariable::medical procedures</span>
<span style="display:none">hasVariable::hospital location</span>
<span style="display:none">hasVariable::hospital discharges</span>
<span style="display:none">hasVariable::diagnosis</span>
<span style="display:none">hasVariable::number of visits</span>
<span style="display:none">hasDataDictionary::Data Dictionary - Danish National Patient Registry</span>
<span style="display:none">availableVariable::diagnosis</span>
<span style="display:none">availableVariable::medical procedures</span>
<span style="display:none">availableVariable::year</span>
<span style="display:none">availableVariable::sex</span>
<span style="display:none">availableVariable::age</span>
<span style="display:none">availableVariable::place of residence</span>
<span style="display:none">availableVariable::hospital location</span>
<span style="display:none">availableVariable::type of hospital</span>
<span style="display:none">availableVariable::type of medical activity</span>
<span style="display:none">availableVariable::type of patient admission</span>
<span style="display:none">availableVariable::length of stay</span>
<span style="display:none">dataLevel::patient level</span>
<span style="display:none">availableDataLevel::regional level</span>
<span style="display:none">dataStart::1977</span>
<span style="display:none">dataEnd::onwards</span>
<span style="display:none">dataAvailability::partially publicly available</span>
<span style="display:none">hasDownloadableData::XLSX</span>
<span style="display:none">hasDownloadableData::PDF</span>
<span style="display:none">hasDownloadableData::JPEG</span>
<span style="display:none">hasDownloadableData::PNG</span>
<span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span>
<span style="display:none">hasDataAccessInstructions::[https://sundhedsdatastyrelsen.dk/da/forskerservice/ansog-om-data click here to access</span>
<span style="display:none">isDatabase</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>
<span style="display:none">Head</span>
<span style="display:none">Neck</span>
<span style="display:none">Oral</span>
<span style="display:none">Oral cavity</span>
<span style="display:none">Pharynx</span>
<span style="display:none">Pharyngeal</span>
<span style="display:none">Tongue</span>
<span style="display:none">Lingual</span>
<span style="display:none">Nasal cavity</span>
<span style="display:none">Nasal</span>
<span style="display:none">Sinonasal</span>
<span style="display:none">Sinus</span>
<span style="display:none">Sinuses</span>
<span style="display:none">Paranasal sinuses</span>
<span style="display:none">Ear</span>
<span style="display:none">Mandible</span>
<span style="display:none">Maxilla</span>
<span style="display:none">Jaw</span>
<span style="display:none">Esophageal</span>
<span style="display:none">Gastric</span>
<span style="display:none">Intestinal</span>
<span style="display:none">Bowel</span>
<span style="display:none">Colorectal</span>
<span style="display:none">Appendix</span>
<span style="display:none">Appendiceal</span>
<span style="display:none">Duodenum</span>
<span style="display:none">Jejunum</span>
<span style="display:none">Ileum</span>
<span style="display:none">Anal</span>
<span style="display:none">Perianal</span>
<span style="display:none">Hepatic</span>
<span style="display:none">Biliary</span>
<span style="display:none">Hepatobiliary</span>
<span style="display:none">Pulmonary</span>
<span style="display:none">Thorax</span>
<span style="display:none">Thoracic</span>
<span style="display:none">Chest</span>
<span style="display:none">Mediastinal</span>
<span style="display:none">Pleural</span>
<span style="display:none">Cutaneous</span>
<span style="display:none">Dermal</span>
<span style="display:none">Epidermal</span>
<span style="display:none">Subcutaneous</span>
<span style="display:none">Skeletal</span>
<span style="display:none">Osseous</span>
<span style="display:none">Chondral</span>
<span style="display:none">Extremity</span>
<span style="display:none">Axilla</span>
<span style="display:none">Axillary</span>
<span style="display:none">Mammary</span>
<span style="display:none">Cervical</span>
<span style="display:none">Uterine</span>
<span style="display:none">Endometrial</span>
<span style="display:none">Ovarian</span>
<span style="display:none">Tubal</span>
<span style="display:none">Fallopian</span>
<span style="display:none">Vaginal</span>
<span style="display:none">Vulvar</span>
<span style="display:none">Adnexal</span>
<span style="display:none">Renal</span>
<span style="display:none">Urothelial</span>
<span style="display:none">Ureteral</span>
<span style="display:none">Urethral</span>
<span style="display:none">Prostatic</span>
<span style="display:none">Testicular</span>
<span style="display:none">Penile</span>
<span style="display:none">Ocular</span>
<span style="display:none">Orbital</span>
<span style="display:none">Retinal</span>
<span style="display:none">Optic nerve</span>
<span style="display:none">Meninges</span>
<span style="display:none">Meningeal</span>
<span style="display:none">Cerebral</span>
<span style="display:none">Cerebellar</span>
<span style="display:none">Brainstem</span>
<span style="display:none">Lymphatic</span>
<span style="display:none">Lymphoid</span>
<span style="display:none">Lymphoma</span>
<span style="display:none">Hematologic</span>
<span style="display:none">Hematopoietic</span>
<span style="display:none">Myeloma</span>
<span style="display:none">Plasma cell</span>
<span style="display:none">Diaphragm</span>
<span style="display:none">Peripheral nerve</span>
<span style="display:none">Heart</span>
<span style="display:none">Cardiac</span>
<span style="display:none">Endocrine</span>

Latest revision as of 11:59, 14 December 2025

forresearchers denmarkcountry Go back to Denmark page

Type of database: administrative/claims data.

Primary purpose: Gather information to serve as a basis for budget calculations and statistical comparison. Click here to learn more.

Sponsor, manager or home institution: The Danish Health Data Authority.

Type of information: longitudinal. region; type of patient; sex; age; number of medical staff; medical procedures; hospital location; hospital discharges; diagnosis; number of visits.

Data Dictionary - Danish National Patient Registry.

Click here to learn more.

Available type of information: diagnosis, medical procedures, year, sex, age, place of residence, hospital location, type of hospital, type of medical activity, type of patient admission, length of stay.

Source of information: Collected monthly from mandatory public and private hospitals' reports.

Data level: patient level.

Available data level: regional level.

Number of records: Nationwide coverage since 1978. Considering the period between 1977–2012, the DNPR registered 8,085,603 persons, accounting for 7,268,857 inpatients, 5,953,405 outpatients, and 5,097,300 emergency department contacts.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Date range: 1977 onwards.

Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLSX; PDF; JPEG and PNG. Data requires a grant proposal to be accessed. Instructions to request data for restricted content Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::administrative/claims data dataOwner::The Danish Health Data Authority databaseStructure::longitudinal hasVariable::region hasVariable::type of patient hasVariable::sex hasVariable::age hasVariable::number of medical staff hasVariable::medical procedures hasVariable::hospital location hasVariable::hospital discharges hasVariable::diagnosis hasVariable::number of visits hasDataDictionary::Data Dictionary - Danish National Patient Registry availableVariable::diagnosis availableVariable::medical procedures availableVariable::year availableVariable::sex availableVariable::age availableVariable::place of residence availableVariable::hospital location availableVariable::type of hospital availableVariable::type of medical activity availableVariable::type of patient admission availableVariable::length of stay dataLevel::patient level availableDataLevel::regional level dataStart::1977 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::XLSX hasDownloadableData::PDF hasDownloadableData::JPEG hasDownloadableData::PNG hasGrantRequirement::Data requires a grant proposal to be accessed hasDataAccessInstructions::[https://sundhedsdatastyrelsen.dk/da/forskerservice/ansog-om-data click here to access isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine