Database: National Oncology Drugs Management System (Ireland)

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Type of database: administrative/claims data.

Primary purpose: To organize and oversee the utilization of cancer medications nationally.

Sponsor, manager or home institution: National Cancer Control Programme (NCCP); Health Service Executive; National Cancer Drug Management Programme; Primary Care Reimbursement Service (PCRS).

Type of information: longitudinal. Data dictionary is not available. Patient demographics, number of drugs, usage of cancer drugs, and expenditures on cancer medications; Other patients' information comprises their name, date of birth, sex, address, and contact details (if provided), as well as their PPS or medical card number or long-term illness card number (if available). Click here to learn more.

Source of Information: The hospital personnel enters the necessary data into an internet-based system supervised and run by PCRS. PCRS provides NCCP with anonymous and combined reports generated from the system. The data is gathered every month.

Data level: patient level.

Number of records: 21,030 claims submitted – 2021; 17,019 claims submitted – 2020; 15,640 claims submitted - 2019.

Date range: Data collection started in September 2012, and reporting procedure began in April 2013 onwards.

Cancer areas of interest: C00-D48: All neoplasms.

Data access: not publicly available. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::administrative/claims data dataOwner::National Cancer Control Programme (NCCP) dataOwner::Health Service Executive dataOwner::National Cancer Drug Management Programme dataOwner::Primary Care Reimbursement Service (PCRS) databaseStructure::longitudinal hasVariable::number of drugs hasVariable::medication use|cancer drugs hasVariable::healthcare costs|expenditures on cancer medications hasVariable::age|date of birth hasVariable::sex hasVariable::place of residence|address dataLevel::patient level dataStart::2012 dataEnd::onwards dataAvailability::not publicly available isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine