Romania: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">romaniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology]]
<!--
=== Database: ===


'''Sponsor, manager or home institution:'''
[[hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy]]


'''Primary purpose:'''
</div>


'''Type of information:'''
== [[hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System]] ==
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</div>


'''Available type of information:'''
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Source of Information:'''
=== [[hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network]] ===


'''Data level:'''
=== [[hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)]] ===


'''Available data level:'''
</div>


'''Number of Records:'''
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date Range:'''
=== [[hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death]] ===


'''Cancer Areas of Interest:'''
=== [[hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)]] ===
</div>


'''Open data access:'''
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/Contact for data request:'''
=== [[hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline]] ===
-->
</div>


== [[Registries]] ==
== Latest Policymaking Initiatives ==
=== Database: National Registry of Childhood Cancer (RNCCR) ===
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]


'''Sponsor, manager or home institution''': Romanian Society of Pediatric Onco-Hematology.
=== [[hasReport::Report:_IOCN_(Romania)|Report: IOCN]] ===


'''Type of information''': The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf this] document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext here]. Data refers to people aged between 0 and 14 years.
=== [[hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health]] ===


The variables available to be registered by the hospitals in the database are:
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023]] ===
CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registry of the diagnosis - hospitalization, death, biopsy...), date of clinical onset, date of relapse, reason for reporting, registration base (data source), tumor location, topographical code, laterality.


Histopathological/cytological examination (behavior, morphological code, degree, cod ICC3 primary, cod ICC3 category, cod ICC3 subcategory).
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Romania)|Report: EU Country Cancer Profile 2025]] ===


Toronto staging (diagnostic class, level 1, level 2).
=== [[hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026]] ===


TNM staging for solid tumors not included in Toronto staging (stadium type, TNM classification).
=== [[hasReport::Report:_National_Plan_to_Prevent_and_Combat_Cancer_2023-2030_(Romania)|Report: National Plan to Prevent and Combat Cancer 2023-2030]] ===


Treatment (stadium type, tnm classificationsurgery date, chemotherapy, radiotherapy, hormone therapy, immunotherapy, other treatments, transplant, diagnostic class, therapeutic protocol, another therapeutic protocol, treatment abroad, type of treatment abroad, tara, end of therapy date, response to treatment, refusal, reason for refusal, abandon, dropout reason).


Tracking (date of last contact, status, the last doctor, death, the main cause, secondary cause).
</div>


'''Source of information''': Regional Institutional Cancer Registries, pathology and cytology laboratories, oncology ambulatory service and oncology wards in hospitals, medical services belonging to ministries with their own health network (Ministry of National Defense and Ministry of Transportations and Telecommunications), and death certificates.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Data level''': Patient-level (restricted access).
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Date range''': 2008 onwards.
=== [[hasPatientAssociation::Patient Association: Renasterea Foundation (Europa Donna Romania) (Romania)|Patient Association: Renasterea Foundation (Europa Donna Romania)]] ===


'''Data access''': To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database [http://oncped.iocn.ro/ page]. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.
=== [[hasPatientAssociation::Patient_Association:_Federation_of_Cancer_Patients_Associations (FABC)_(Romania)|Patient Association: Federation of Cancer Patients Associations (FABC)]] ===


'''Cancer areas of interest''': The list can be checked [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc here]. Some specific cancer locations are excluded, and those can be seen [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc here].
=== [[hasPatientAssociation::Association:_Asociatia_Heal_(Romania)|Association: Asociatia Heal]] ===


'''Information/contact for data request''': [https://srohp.ro/contact/ Contact information].
=== [[hasPatientAssociation::Patient_Association:_Dăruiește_Viață_(Romania)|Patient Association: Dăruiește Viață]] ===


=== Database: Mortality by cause of death ===
=== [[hasPatientResource::Self-help_Group:_Comunitatea_Oncologică_din_România_(Romania)|Self-help Group: Comunitatea Oncologică din România]] ===
[http://80.96.186.4:81/metadata/viewStatisticalResearch.htm?locale=en&researchId=5162] [http://80.96.186.4:81/metadata/view.file?researchId=5162&type=questionnaire&file=Buletin%20statistic%20pentru%20deces%203.pdf]


'''Sponsor, manager or home institution:''' National Institute of Statistics (Institutul Naţional de Statistică).
</div>


'''Primary purpose:'''
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research]] ==
</div>


'''Type of information:'''
__NOTOC__
Commune / City / Municipality
<span style="display:none">hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology</span>
County / Sector
<span style="display:none">hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy</span>
Date
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System</span>
Number of the document from the Civil Status Register
<span style="display:none">hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network</span>
Code SIRUTA
<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)</span>
Personal numeric code
<span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death</span>
Name and surname
<span style="display:none">hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)</span>
Sex
<span style="display:none">hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry</span>
number of Children born alive during life (for women only)
<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline</span>
Date of death
<span style="display:none">hasReport::Report:_IOCN_(Romania)|Report: IOCN</span>
Date of birth
<span style="display:none">hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health</span>
Marital status
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023</span>
Date of birth of the surviving spouse
<span style="display:none">hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026</span>
Occupational status Employee
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides</span>
Level of education
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research</span>
Citizenship
<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline</span>
Ethnicity
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation</span>
Domicile
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
Place of death
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
Country where he died
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
Country where he was born
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
Causes of death (cause, antecedent causes, the initial morbid state, and other important morbid conditions)
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
Manner of death (naturally, indeterminate, accident, suicide, homicide)
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
Was the autopsy performed?
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
 
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
'''Available type of information:''' National, macroregion, development region, county, place and areas of residence.
<span style="display:none">hasCancerType::C50: Breast cancer</span>
 
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
'''Source of Information:''' Death statistical bulletins made by the civil registry.
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
 
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
'''Data level:''' Patient-level (restricted access) and regional level (open access).
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
 
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
'''Available data level:'''
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
 
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
'''Number of Records:'''
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
 
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
'''Date Range:''' 1990 onwards.
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
 
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
'''Cancer Areas of Interest:'''
<span style="display:none">hasCancerType::unknown</span>
 
'''Open data access:'''
 
'''Information/Contact for data request:'''
 
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
 
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
 
== [[Cancer-related Patient Associations and Resources]] ==

Latest revision as of 13:16, 22 January 2026

forresearchers forpatients forproviders forpolicymakers romaniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG) hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR) hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline hasReport::Report:_IOCN_(Romania)|Report: IOCN hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023 hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown