Denmark: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">denmarkcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
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Denmark citizens have access to universal healthcare funded by income tax. The national government regulates, plans and assesses healthcare. Regional government provides most of the healthcare services, while municipalities are responsible nursing homes, home care, school health services, disease prevention, rehabilitation and non-specialized long-term care. Citizens must register with a general practitioner who will refer patients to other specializations according to need. The CPR-number is an unique electronic personal identifier of Denmark permanent residents and configures an important tool to connect data across registries and databases.
[[hasCancerCenter::Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital]]


== [[Administrative or Claims Data]] ==
</div>


=== [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel5951E82D767242D28F4FBF4B3DD7CD48 Database: The Danish National Patient Registry (DNPR)] ===
== [[hasHealthcareSystem::Healthcare_System_(Denmark)|Healthcare System]] ==
[https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel7D18BC3E7A234C1FBA1FF09361363EFD [1]] [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4655913/pdf/clep-7-449.pdf [2]]
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'''Primary purpose''': Gather information to serve as a basis for budget calculations and statistical comparison.
== Administrative or Claims Data ==
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'''Sponsor, manager or home institution''': The Danish Health Data Authority.
=== [[hasDatabase::Database:_The_Danish_National_Patient_Registry_(DNPR)_(Denmark)|Database: The Danish National Patient Registry (DNPR)]] ===


'''Type of information''': Patient data (CPR number, and area of residence), admission data (hospital and department codes, admission type, patient contact type, referral information, contact reason, and dates of admission and discharge), diagnosis (primary, secondary, referral, temporary, procedure-related, and supplementary), treatments information (surgery, anesthesia, intensive care, and others including cancer treatments), and examinations.
=== [[hasDatabase::Database:_The_National_Health_Insurance_Service_Register_(SSR)_(Denmark)|Database: The National Health Insurance Service Register (SSR)]] ===


[[Data dictionary - Danish National Patient Registry ]]
=== [[hasDatabase::Database:_The_Medicines_Statistics_Register_(NPR)_(Denmark)|Database: The Medicines Statistics Register (NPR)]] ===
</div>


'''Available type of information''': Statistics on diagnosis and operations. Both data can be filtered by year, sex, age, region of residence, hospital region, hospital and specialty.
== Registries ==
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Diagnosis data presents number of stays as the only measure and also includes the filters of action diagnosis, type of admission, duration and age grouping in psychiatry.
=== [[hasDatabase::Database:_The_Danish_Cancer_Register_(Denmark)|Database: The Danish Cancer Register]] ===


Operations data presents number of operations and number of primary operations as measures and also includes the mode of admission filter.
=== [[hasDatabase::Databases: RKKPs Clinical Quality Databases Compilation (Denmark)|Databases: RKKPs Clinical Quality Databases Compilation]] ===


'''Source of information''': Collected from monthly mandatory public and private hospitals' reports.
=== [[hasDatabase::Database:_Hospital_Utilization_Information_(Denmark)|Database: Hospital Utilization Information]] ===


'''Data level''': Patient level.
=== [[hasDatabase::Database:_The_Cause_of_Death_Register_(DAR)_(Denmark)|Database: The Cause of Death Register (DAR)]] ===


'''Number of records''': Nationwide coverage since 1978. Considering the period between 1977–2012, the DNPR registered 8,085,603 persons, accounting for 7,268,857 inpatient, 5,953,405 outpatient, and 5,097,300 emergency department contacts.
=== [[hasDatabase::Database:_Cancer_Survivorship_(Denmark)|Database: Cancer Survivorship]] ===
</div>


'''Cancer areas of interest''': The list can be checked in [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel5951E82D767242D28F4FBF4B3DD7CD48 this] website
== Databases for Clinical Trials, Surveys and Biobanks ==


'''Date range''': 1977 onwards.
=== [[hasDatabase::Database: Diet, Cancer and Health (DCI) (Denmark)|Database: Diet, Cancer and Health (DCI)]] ===


'''Data access''': To request data from the restricted content, read the instructions presented [https://sundhedsdatastyrelsen.dk/da/forskerservice here].
== Clinical Practices Guidelines ==


'''Open data access''': Some information is openly available [https://www.esundhed.dk/home/emner/operationer%20og%20diagnoser/landspatientregisteret%20avanceret%20udtraek#tabpanel5951E82D767242D28F4FBF4B3DD7CD48 here].
=== [[hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Guidelines: Danish Cancer Society Guidelines]] ===


'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
=== [[hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Guidelines: Danish Health Autority Guidelines]] ===


=== Database: The National Health Insurance Service Register (SSR) ===
=== [[hasClinicalGuidelines::Guidelines: DMCG Guidelines Compilation (Denmark)|Guidelines: DMCG Guidelines Compilation]] ===
[https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=10 [3]] [https://journals.sagepub.com/doi/epdf/10.1177/1403494810394718[4]]


'''Sponsor, manager or home institution''': The Danish Health Data Agency.
== Latest Policymaking Initiatives ==
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'''Type of information''': Presents information about services that are supported by public health insurance (patient data: CPR number, age, sex, place of residence, etc.; provider data: specialty, service number, practice office, etc.; service data: type, date, fee triggered from the Public Health Insurance). It is possible to acquire more details about each patient context by linking with the National Patient Register and the Cause of Death Register data.
=== [[hasReport::Reports:_RKKP_Screenings_(Denmark)|Reports: RKKP Screenings]] ===


'''Source of information''': Reports from the providers that are sent to The Danish Health Data Agency.
=== [[hasReport::Reports: Kræftens Bekæmpelse Reports and Publications Compilation (Denmark)|Reports: Kræftens Bekæmpelse Reports and Publications Compilation]] ===


'''Data level''': Patient level.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Denmark)|Report: EU Country Cancer Profile 2023]] ===


'''Date range''': 1990 onwards.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Denmark)|Report: EU Country Cancer Profile 2025]] ===


'''Data access''': Access is restricted and can be obtained by applying for data via the research service at the research service at the  [https://www.ssi.dk/ Statens Seruminstitut].
=== [[hasReport::Reports:_Annual_reports_on_new_cancer_cases_(Denmark)|Reports: Annual reports on new cancer cases]] ===


'''Information/contact for data request''': [https://www.ssi.dk/om-ssi/kontakt Contact information].
=== [[hasReport::Report:_Analysis_of_developments_in_the_field_of_cancer_(Denmark)|Report: Analysis of developments in the field of cancer]] ===


=== [https://sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/sygdomme-laegemidler-og-behandlinger/laegemiddelstatistikregisteret Database: The Medicines Statistics Register (NPR)] ===
</div>
[https://www.whocc.no/atc_ddd_index/?code=L01AA01&showdescription=yes [5]] [https://academic.oup.com/ije/article/46/3/798/2447869[6]]


'''Sponsor, manager or home institution''': The Danish Medicines Agency.
== Cancer-related Patient Associations and Resources ==
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'''Type of information''': Information on prescriptions  dispensed  to  residents  of  long-termcare institutions. L01XY - Combinations of antineoplastic agents; V03AF - Detoxifying agents used in connection with high dose treatment of antineoplastic agents; V10X - Radiopharmaceuticals used in the treatment of cancer.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Denmark)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Source of information''': Reports from pharmacies, hospital pharmacies, the Statens Serum Institut and Denmark's Food Research, and convenience stores that do not sell over-the-counter medicines reserved for pharmacies.
=== [[hasPatientAssociation::Patient Association: Danish Breast Cancer Association (Europa Donna Denmark) (Denmark)|Patient Association: Danish Breast Cancer Association (Europa Donna Denmark)]] ===


'''Data level''': Patient level.
=== [[hasPatientAssociation::Patient_Association:_ALK-positive_lung_cancer_(Denmark)|Patient Association: ALK-Positive Lung Cancer]] ===


'''Number of records''': Receives 96 million reports per year. Current total number unknown.
=== [[hasPatientAssociation::Patient_Association:_The_Bladder_Cancer_Association_(Denmark)|Patient Association: The  Bladder Cancer Association]] ===


'''Date range''': 1994 onwards.
=== [[hasPatientAssociation::Patient_Association:_Danish_Myeloma_Association_(Denmark)|Patient Association: Danish Myeloma Association]] ===


'''Cancer areas of interest''': Unknown.
=== [[hasPatientAssociation::Patient_Association:_DANYCA_(Denmark)|Patient Association: DANYCA]] ===


'''Data access''': National and regional numbers can be accessed [https://www.medstat.dk/da here]. The patient level data from this database is restricted, for this purpose read the instructions presented [https://sundhedsdatastyrelsen.dk/da/forskerservice here].
=== [[hasPatientAssociation::Breast_Cancer_Society_(Denmark)|Patient Association: Breast Cancer Society]] ===


'''Information/contact for data request''': [https://sundhedsdatastyrelsen.dk/da/kontakt Contact information].
=== [[hasPatientAssociation::Patient_Association:_The_association_for_children_affected_by_cancer_(Denmark)|Patient Association: The association for children affected by cancer]] ===


=== [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler#tabpanel158AFB3B131B4E8CAD6AEDC787AE3F98 Database: Pharmacies' sales of medicines] ===
=== [[hasPatientAssociation::Patient_Association:_The_Brain_Tumour_Association_(Denmark)|Patient Association: The Brain Tumour Association]] ===
[https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler#tabpanel18B4E75E9B0C46F197ADB5133C6375EA[7]]


'''Sponsor, manager or home institution''': The Danish Health Data Agency.
=== [[hasPatientAssociation::Patient_Association:_KIU_(Denmark)|Patient Association: KIU]] ===


'''Type of information''': Quantitative measures related to medications' sales (total quantity sold, total revenue, average shipping price per unit of quantity, regions' health insurance subsidy, pharmacy's total purchase price, pharmacy's purchase price per amount, number of buyers per quarter).
=== [[hasPatientAssociation::Patient_Association:_NETpa_(Denmark)|Patient Association: NETpa]] ===


'''Source of information''': The Medicines Statistics Register (NPR).
=== [[hasPatientAssociation::Patient_Association:_Birthmark_Cancer_(Denmark)|Patient Association: Birthmark Cancer]] ===


'''Data level''': National level.
=== [[hasPatientAssociation::Patient_Association:_NETKU_(Denmark)|Patient Association: NETKU]] ===


'''Number of records''': Unknown.
=== [[hasPatientAssociation::Patient_Association:_Pancreas_Network_(Denmark)|Patient Association: Pancreas Network]] ===


'''Date range''': 2018 onwards.
=== [[hasPatientAssociation::Patient_Association:_PROPA_(Denmark)|Patient Association: PROPA]] ===


'''Data access''': It is openly available [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler here].
=== [[hasPatientAssociation::Patient_Association:_Bowel_Cancer_Association_(Denmark)|Patient Association: Bowel Cancer Association]] ===


'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
=== [[hasPatientResource::Resource:_Sammenholdet_App_(Denmark)|Resource: Sammenholdet App]] ===


=== [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanel7E2094C00E7D43AFBEEC71B851C3A8A7 Database: Use of medicines during pregnancy] ===
=== [[hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guides: Help and Information]] ===
[https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanel7E2094C00E7D43AFBEEC71B851C3A8A7 [8]]


'''Sponsor, manager or home institution''': The Danish Health Data Agency.
=== [[hasPatientResource::Self-help_group:_The_Thistles_(Denmark)|Self-help group: The Thistles]] ===


'''Type of information''': Quantitative measures related to medications' sales to pregnant women.
</div>


'''Source of information''': The Medicines Statistics Register (LSR).
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Denmark)|Quality of Life and Palliative Care Research]] ==
</div>


'''Data level''': National level.
__NOTOC__
 
<span style="display:none">hasCancerCenter::Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital</span>
'''Date range''': It is based on the year of birth, which ranges from 2001 to 2018.
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Denmark)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_The_Danish_National_Patient_Registry_(DNPR)_(Denmark)|Database: The Danish National Patient Registry (DNPR)</span>
'''Data access''': It is openly available [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanelD9F24CFC14FF4DC3BF89F53942438A68 here].
<span style="display:none">hasDatabase::Database:_The_National_Health_Insurance_Service_Register_(SSR)_(Denmark)|Database: The National Health Insurance Service Register (SSR)</span>
 
<span style="display:none">hasDatabase::Database:_The_Medicines_Statistics_Register_(NPR)_(Denmark)|Database: The Medicines Statistics Register (NPR)</span>
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
<span style="display:none">hasDatabase::Database:_The_Danish_Cancer_Register_(Denmark)|Database: The Danish Cancer Register</span>
 
<span style="display:none">hasDatabase::Databases_Compilation:_RKKPs_Clinical_Quality_Databases_(Denmark)|Databases Compilation: RKKP's Clinical Quality Databases</span>
== [[Registries]] ==
<span style="display:none">hasDatabase::Database:_Hospital_Utilization_Information_(Denmark)|Database: Hospital Utilization Information</span>
 
<span style="display:none">hasDatabase::Database:_The_Cause_of_Death_Register_(DAR)_(Denmark)|Database: The Cause of Death Register (DAR)</span>
=== [https://sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/sygdomme-laegemidler-og-behandlinger/cancerregisteret Database: The Danish Cancer Register] ===
<span style="display:none">hasDatabase::Database:_Cancer_Survivorship_(Denmark)|Database: Cancer Survivorship</span>
[https://journals.sagepub.com/doi/epdf/10.1177/1403494810393562 [9]] [https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=23 [10]]
<span style="display:none">hasDatabase::Database: Diet, Cancer and Health (DCI) (Denmark)|Database: Diet, Cancer and Health (DCI)</span>
 
<span style="display:none">hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Danish Cancer Society Guidelines</span>
'''Primary purpose''': Collects and processes new diagnosed cancer cases in Denmark.
<span style="display:none">hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Danish Health Autority Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_DMCG_Guidelines_(Denmark)|Compilation: DMCG Guidelines</span>
'''Sponsor, manager or home institution''': The Danish Health Data Authority.
<span style="display:none">hasReport::Reports:_RKKP_Screenings_(Denmark)|Reports: RKKP Screenings</span>
 
<span style="display:none">hasReport::Compilation:_Kræftens_Bekæmpelse_Reports_and_Publications_(Denmark)|Compilation: Kræftens Bekæmpelse Reports and Publications</span>
'''Type of information''': ICD-10 diagnosis, tumor characteristics (morphology, topography, behaviour, laterality, stage), date of diagnosis, basis for diagnosis, and dissemination of the disease in relation to the time of diagnosis. Information on treatment and notifying hospital can be found in linkage with the Danish National Patient Register  (NPR); Cause of death  and  place  of  death  can  be  found in  linkage  with  the  Danish  Register of  Causes  of Death.
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Denmark)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Reports:_Annual_reports_on_new_cancer_cases_(Denmark)|Reports: Annual reports on new cancer cases</span>
'''Source of information''': 1943 – 2003 on reports from hospitals and practicing specialists. From 2004 onwards, data was collected from the National Patient Register (LPR), the Danish Health Authority's Electronic Reporting System (SEI) and the National Register of Pathology (LRP).
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Denmark)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_ALK-positive_lung_cancer_(Denmark)|Patient Association: ALK-Positive Lung Cancer</span>
'''Data level''': Patient level.
<span style="display:none">hasPatientAssociation::Patient_Association:_The_Bladder_Cancer_Association_(Denmark)|Patient Association: The Bladder Cancer Association</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Danish_Myeloma_Association_(Denmark)|Patient Association: Danish Myeloma Association</span>
'''Date range''': 1943 onwards.
<span style="display:none">hasPatientAssociation::Patient_Association:_DANYCA_(Denmark)|Patient Association: DANYCA</span>
 
<span style="display:none">hasPatientAssociation::Breast_Cancer_Society_(Denmark)|Patient Association: Breast Cancer Society</span>
'''Number of Records:''' Unknown.
<span style="display:none">hasPatientAssociation::Patient_Association:_The_association_for_children_affected_by_cancer_(Denmark)|Patient Association: The association for children affected by cancer</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_The_Brain_Tumour_Association_(Denmark)|Patient Association: The Brain Tumour Association</span>
'''Cancer areas of interest''': Unknown.
<span style="display:none">hasPatientAssociation::Patient_Association:_KIU_(Denmark)|Patient Association: KIU</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_NETpa_(Denmark)|Patient Association: NETpa</span>
'''Data access''': Restricted access. To request data access contact the Danish Health Data Agency's Research Service as explained [https://sundhedsdatastyrelsen.dk/da/forskerservice here]. Some open access data can be checked in the datasets of Cancer Incidence and Cancer Survival, both detailed forward and present in the [https://sundhedsdatastyrelsen.dk/da Danish Health Data Agency's] website.
<span style="display:none">hasPatientAssociation::Patient_Association:_Birthmark_Cancer_(Denmark)|Patient Association: Birthmark Cancer</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_NETKU_(Denmark)|Patient Association: NETKU</span>
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
<span style="display:none">hasPatientAssociation::Patient_Association:_Pancreas_Network_(Denmark)|Patient Association: Pancreas Network</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_PROPA_(Denmark)|Patient Association: PROPA</span>
=== [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B Database: New cancer cases report] ===
<span style="display:none">hasPatientAssociation::Patient_Association:_Bowel_Cancer_Association_(Denmark)|Patient Association: Bowel Cancer Association</span>
[https://www.esundhed.dk/Emner/Kraeft/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B [11]] [https://www.esundhed.dk/Emner/Kraeft/-/media/104DE53EDC164EB4A051B9EAFD1CE627.ashx [12]]
<span style="display:none">hasPatientResource::Resource:_Sammenholdet_App_(Denmark)|Resource: Sammenholdet App</span>
 
<span style="display:none">hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guide: Help and Information</span>
'''Primary purpose''': Display quantitative information about new cancer cases annually to political professionals, researchers and general public.
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Denmark)|Quality of Life and Palliative Care Research</span>
 
<span style="display:none">hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guides: Help and Information</span>
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
<span style="display:none">hasDatabase::Databases: RKKPs Clinical Quality Databases Compilation (Denmark)|Databases: RKKPs Clinical Quality Databases Compilation</span>
 
<span style="display:none">hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Guidelines: Danish Cancer Society Guidelines</span>
'''Type of information''': Cancer incidence, prevalence, number of tumors per 100,000 citizens, age-standardized value for the number of tumors (per 100,000 citizens), age- and sex-standardized value for the number of tumors (per 100,000 citizens).
<span style="display:none">hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Guidelines: Danish Health Autority Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Guidelines: DMCG Guidelines Compilation (Denmark)|Guidelines: DMCG Guidelines Compilation</span>
'''Source of information''': The Danish Cancer Register.
<span style="display:none">hasReport::Reports: Kræftens Bekæmpelse Reports and Publications Compilation (Denmark)|Reports: Kræftens Bekæmpelse Reports and Publications Compilation</span>
 
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Denmark)|Patient Guides: ESMO Patient Guides Compilation</span>
'''Data level''': National level.
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
 
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
'''Date range''': From 1978 onwards.
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
 
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
'''Number of Records:''' 45,205 cases as of 2020.
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
 
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
'''Data access''': It is openly available [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B here].
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
 
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
'''Cancer areas of interest''': The list can be checked [https://www.esundhed.dk/Emner/Kraeft/-/media/FF20D765CB9B4C0EBED76AA7AAD87B15.ashx here].
<span style="display:none">hasCancerType::C50: Breast cancer</span>
 
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
 
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
=== [https://www.rkkp.dk/kvalitetsdatabaser/ Databases Compilation: RKKP's Clinical Quality Databases] ===
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
[https://www.rkkp.dk/globalassets/zdesign/media/subsites/nip/publikationer/2011danclindatabases_agjuly2011.pdf [13]]
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
'''Primary purpose:''' Inform about the quality of Denmark's clinical treatment and contribute to improve the health care system.
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
'''Sponsor, manager or home institution:''' Regionernes kliniske kvalitetsprogram (RKKP).
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Type of information:''' Quantitative indicators of cancer care quality and researches developed in the matter. The variables, cancer areas of interest and other individual information about each database can be checked in [https://www.rkkp-dokumentation.dk/Public/Default.aspx?msg=ChooseDB&error=WrongParm this] link.
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
'''Source of information:''' Registered data from nationwide clinicians is managed by clinical epidemiologists and discussed by in clinical auditions to produce recommendations to increase health care quality.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 27 cancer databases as of January 2023.
 
'''Date Range:''' Varies.
 
'''Cancer Areas of Interest:''' Varies.
 
'''Data access:''' All databases included can be found [https://www.rkkp.dk/kvalitetsdatabaser/ here]. Annual reports are openly available in each database's website. More specific data can be obtained following the instructions presented [https://www.rkkp.dk/systemer-og-support/afrapportering/adgang-til-data/ here].
 
'''Information/Contact for data request:''' [https://www.rkkp.dk/kontakt/ Contact information].
 
=== [https://www.statbank.dk/statbank5a/default.asp?w=412 Database: Hospital Utilization Information] ===
[https://www.dst.dk/da/Statistik/dokumentation/statistikdokumentation/sygehusbenyttelse [14]]
 
'''Sponsor, manager or home institution''': Statistics Denmark.
 
'''Type of information''': Inventory of annual public and private hospital utilization, hospital admitions, outpatient care and emergency admitions, including those related to neoplasic diagnosis related to sociodemographic factors filtered by region, diagnosis, emergency/non emergency, age, sex, year, key figures.
 
'''Source of information''': National Patient Register, which is validated by the Danish Health Data Agency.
 
'''Data level''': National level.
 
'''Number of Records:''' Unknown.
 
'''Date range''': Varies accordingly to the indicator selected.
 
'''Cancer Areas of Interest:''' It can be checked in [https://www.dst.dk/-/media/Kontorer/01-Befolkning/diagnosis.pdf this] list.
 
'''Data access''': It is openly available [https://www.statbank.dk/statbank5a/default.asp?w=412 here].
 
'''Information/contact for data request''': [https://www.dst.dk/en/kontakt Contact information].
 
=== [https://www.esundhed.dk/Emner/Hvad-doer-vi-af/Doedsaarsager#tabpanel5BFAA322B3104800ABE89BB431B8D149 Database: The Cause of Death Register (DAR)] ===
[https://www.esundhed.dk/Dokumentation/DocumentationExtended?id=17 [15]]
 
'''Primary purpose:''' Make the national number of deaths by causes available to research and statistics purpose.
 
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
 
'''Type of information''': Number of deaths (per 100,000 citizens, per 100,000 citizens - age standardized -, Number of deaths per 100,000 citizens - gender and age standardised -) filtered by geographic region, year and diagnosis.
 
'''Source of information''': Death certificates.
 
'''Data level''': Regional and national level.
 
'''Number of Records:''' Unknown.
 
'''Date range''': 1970 onwards.
 
'''Cancer Areas of Interest:''' It can be checked in the Cause of death groupings section presented in [https://www.esundhed.dk/Emner/Hvad-doer-vi-af/Doedsaarsager#tabpanelD0B799B928E64541919B0DF95BA7A873 this] website.
 
'''Data access''': Some information is openly available [https://www.esundhed.dk/Emner/Hvad-doer-vi-af/Doedsaarsager#tabpanel5BFAA322B3104800ABE89BB431B8D149 here]. Researchers can request for data contacting the Danish Health Data Agency Research service. Instructions are presented [https://sundhedsdatastyrelsen.dk/da/forskerservice here].
 
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
 
=== [https://www.esundhed.dk/home/emner/kraeft/kraeftoverlevelse#tabpanel7C3267ABF53E4D7BBAA9AFA8538C66FA Database: Cancer Survivorship] ===
[https://www.esundhed.dk/home/emner/kraeft/kraeftoverlevelse#tabpanel814CB8F7C53A4980B37DA6D5048D5D14 [16]]
 
'''Primary purpose:''' Make the national number of cancer survivorship publicly available to research and statistics purpose.
 
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
 
'''Type of information''': Cancer survival statistics in percent (relative to 1, 3, 5, and 10 years) filtered by the cancer diagnosis, survival and confidence limits, geographic region, sex, and year-periods.
 
'''Source of information''': Reports from the Cancer Register and the Central Person Register (CPR).
 
'''Data level''': Regional level.
 
'''Number of Records:''' Unknown.
 
'''Date range''': 2006 onwards.
 
'''Cancer Areas of Interest:''' All cancers (excluding skin cancer other than mole cancer) and for men (excluding prostate cancer) and women (excluding breast cancer). The detailed list can be checked in [https://www.esundhed.dk/home/emner/kraeft/-/media/82AA437E6A6B47FB8A9683469D90FA20.ashx this] document.
 
'''Data access''': Openly available [https://www.esundhed.dk/home/emner/kraeft/kraeftoverlevelse#tabpanel7C3267ABF53E4D7BBAA9AFA8538C66FA here].
 
'''Information/contact for data request''': [https://www.esundhed.dk/Kontakt Contact information].
<!--
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
 
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
 
== [[Latest Policymaking Initiatives]] ==
 
== [[Cancer-related Patient Associations and Resources]] ==
-->

Latest revision as of 02:33, 21 January 2026

forresearchers forpatients forproviders forpolicymakers denmarkcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: The Danish National Patient Registry (DNPR)[edit | edit source]

Database: The National Health Insurance Service Register (SSR)[edit | edit source]

Database: The Medicines Statistics Register (NPR)[edit | edit source]

Registries[edit | edit source]

Database: The Danish Cancer Register[edit | edit source]

Databases: RKKPs Clinical Quality Databases Compilation[edit | edit source]

Database: Hospital Utilization Information[edit | edit source]

Database: The Cause of Death Register (DAR)[edit | edit source]

Database: Cancer Survivorship[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Database: Diet, Cancer and Health (DCI)[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: Danish Cancer Society Guidelines[edit | edit source]

Guidelines: Danish Health Autority Guidelines[edit | edit source]

Guidelines: DMCG Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: RKKP Screenings[edit | edit source]

Reports: Kræftens Bekæmpelse Reports and Publications Compilation[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Reports: Annual reports on new cancer cases[edit | edit source]

Report: Analysis of developments in the field of cancer[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Association: Danish Breast Cancer Association (Europa Donna Denmark)[edit | edit source]

Patient Association: ALK-Positive Lung Cancer[edit | edit source]

Patient Association: The Bladder Cancer Association[edit | edit source]

Patient Association: Danish Myeloma Association[edit | edit source]

Patient Association: DANYCA[edit | edit source]

Patient Association: Breast Cancer Society[edit | edit source]

Patient Association: The association for children affected by cancer[edit | edit source]

Patient Association: The Brain Tumour Association[edit | edit source]

Patient Association: KIU[edit | edit source]

Patient Association: NETpa[edit | edit source]

Patient Association: Birthmark Cancer[edit | edit source]

Patient Association: NETKU[edit | edit source]

Patient Association: Pancreas Network[edit | edit source]

Patient Association: PROPA[edit | edit source]

Patient Association: Bowel Cancer Association[edit | edit source]

Resource: Sammenholdet App[edit | edit source]

Patient Guides: Help and Information[edit | edit source]

Self-help group: The Thistles[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Vejle Cancer Centre - The Patients' Cancer Hospital part of Lillebaelt Hospital hasHealthcareSystem::Healthcare_System_(Denmark)|Healthcare System hasDatabase::Database:_The_Danish_National_Patient_Registry_(DNPR)_(Denmark)|Database: The Danish National Patient Registry (DNPR) hasDatabase::Database:_The_National_Health_Insurance_Service_Register_(SSR)_(Denmark)|Database: The National Health Insurance Service Register (SSR) hasDatabase::Database:_The_Medicines_Statistics_Register_(NPR)_(Denmark)|Database: The Medicines Statistics Register (NPR) hasDatabase::Database:_The_Danish_Cancer_Register_(Denmark)|Database: The Danish Cancer Register hasDatabase::Databases_Compilation:_RKKPs_Clinical_Quality_Databases_(Denmark)|Databases Compilation: RKKP's Clinical Quality Databases hasDatabase::Database:_Hospital_Utilization_Information_(Denmark)|Database: Hospital Utilization Information hasDatabase::Database:_The_Cause_of_Death_Register_(DAR)_(Denmark)|Database: The Cause of Death Register (DAR) hasDatabase::Database:_Cancer_Survivorship_(Denmark)|Database: Cancer Survivorship hasDatabase::Database: Diet, Cancer and Health (DCI) (Denmark)|Database: Diet, Cancer and Health (DCI) hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Danish Cancer Society Guidelines hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Danish Health Autority Guidelines hasClinicalGuidelines::Compilation:_DMCG_Guidelines_(Denmark)|Compilation: DMCG Guidelines hasReport::Reports:_RKKP_Screenings_(Denmark)|Reports: RKKP Screenings hasReport::Compilation:_Kræftens_Bekæmpelse_Reports_and_Publications_(Denmark)|Compilation: Kræftens Bekæmpelse Reports and Publications hasReport::Report:_EU_Country_Cancer_Profile_2023_(Denmark)|Report: EU Country Cancer Profile 2023 hasReport::Reports:_Annual_reports_on_new_cancer_cases_(Denmark)|Reports: Annual reports on new cancer cases hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Denmark)|Compilation: ESMO Patient Guides hasPatientAssociation::Patient_Association:_ALK-positive_lung_cancer_(Denmark)|Patient Association: ALK-Positive Lung Cancer hasPatientAssociation::Patient_Association:_The_Bladder_Cancer_Association_(Denmark)|Patient Association: The Bladder Cancer Association hasPatientAssociation::Patient_Association:_Danish_Myeloma_Association_(Denmark)|Patient Association: Danish Myeloma Association hasPatientAssociation::Patient_Association:_DANYCA_(Denmark)|Patient Association: DANYCA hasPatientAssociation::Breast_Cancer_Society_(Denmark)|Patient Association: Breast Cancer Society hasPatientAssociation::Patient_Association:_The_association_for_children_affected_by_cancer_(Denmark)|Patient Association: The association for children affected by cancer hasPatientAssociation::Patient_Association:_The_Brain_Tumour_Association_(Denmark)|Patient Association: The Brain Tumour Association hasPatientAssociation::Patient_Association:_KIU_(Denmark)|Patient Association: KIU hasPatientAssociation::Patient_Association:_NETpa_(Denmark)|Patient Association: NETpa hasPatientAssociation::Patient_Association:_Birthmark_Cancer_(Denmark)|Patient Association: Birthmark Cancer hasPatientAssociation::Patient_Association:_NETKU_(Denmark)|Patient Association: NETKU hasPatientAssociation::Patient_Association:_Pancreas_Network_(Denmark)|Patient Association: Pancreas Network hasPatientAssociation::Patient_Association:_PROPA_(Denmark)|Patient Association: PROPA hasPatientAssociation::Patient_Association:_Bowel_Cancer_Association_(Denmark)|Patient Association: Bowel Cancer Association hasPatientResource::Resource:_Sammenholdet_App_(Denmark)|Resource: Sammenholdet App hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guide: Help and Information hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Denmark)|Quality of Life and Palliative Care Research hasPatientGuides::Patient_Guide:_Help_and_Information_(Denmark)|Patient Guides: Help and Information hasDatabase::Databases: RKKPs Clinical Quality Databases Compilation (Denmark)|Databases: RKKPs Clinical Quality Databases Compilation hasClinicalGuidelines::Danish_Cancer_Society_Guidelines_(Denmark)|Guidelines: Danish Cancer Society Guidelines hasClinicalGuidelines::Danish_Health_Autority_Guidelines_(Denmark)|Guidelines: Danish Health Autority Guidelines hasClinicalGuidelines::Guidelines: DMCG Guidelines Compilation (Denmark)|Guidelines: DMCG Guidelines Compilation hasReport::Reports: Kræftens Bekæmpelse Reports and Publications Compilation (Denmark)|Reports: Kræftens Bekæmpelse Reports and Publications Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Denmark)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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