Database: National Registry of Childhood Cancer (RNCCR) (Romania)

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Type of database: registry.

Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. Click here to learn more.

Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.

Type of information: longitudinal. age; sex; region; diagnosis; primary tumour localization; tumour histology; tumour staging; medical procedures; hospital location; cancer incidence; number of deaths; causes of death; potential years of life lost, cancer survival; hospital discharges, number of visits, year. The information contained in the registry follows the recommendations of ENCR Click here to learn more. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus Click here to learn more. Data refers to people aged between 0 and 14 years.

Data Dictionary - National Registry of Childhood Cancer (RNCCR)

Available type of information: age, sex, region, diagnosis, primary tumour localization, tumour histology, tumour staging, cancer incidence, cancer survival, causes of death, number of deaths, potential years of life lost, hospital discharges, number of visits, year.

Source of information: Reports from pediatric oncologic centers.

Data level: patient level.

Date range: 2009 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content: Click here to learn more.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology databaseStructure::longitudinal hasVariable::age hasVariable::sex hasVariable::region hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour histology hasVariable::tumour staging hasVariable::medical procedures hasVariable::hospital location hasVariable::cancer incidence hasVariable::number of deaths hasVariable::causes of death hasVariable::potential years of life lost hasVariable::cancer survival hasVariable::hospital discharges hasVariable::number of visits hasVariable::year hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR) availableVariable::age availableVariable::sex availableVariable::region availableVariable::diagnosis availableVariable::primary tumour localization availableVariable::tumour histology availableVariable::tumour staging availableVariable::cancer incidence availableVariable::cancer survival availableVariable::causes of death availableVariable::number of deaths availableVariable::potential years of life lost availableVariable::hospital discharges availableVariable::number of visits availableVariable::year dataLevel::patient level dataStart::2009 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::PDF hasDataAccessInstructions::[https://srohp.ro/contact/ Click here to learn more. isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine