Romania: Difference between revisions

hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer hasCancerType::D10-D36: Benign tumour hasCancerType::unknown

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-== [[Cancer Centers]] ==
+<span style="display:none">forresearchers</span>
+<span style="display:none">forpatients</span>
+<span style="display:none">forproviders</span>
+<span style="display:none">forpolicymakers</span>
+<span style="display:none">romaniacountry</span>
+[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
-== [[Healthcare System]] ==
+== Cancer Centers ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-== [[Administrative or Claims Data]] ==
+[[hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology]]
-=== Database: Mortality by cause of death ===
-[http://80.96.186.4:81/metadata/viewStatisticalResearch.htm?locale=en&researchId=5162] [http://80.96.186.4:81/metadata/view.file?researchId=5162&type=questionnaire&file=Buletin%20statistic%20pentru%20deces%203.pdf]
-'''Sponsor, manager or home institution:''' National Institute of Statistics (Institutul Naţional de Statistică).
+[[hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy]]
-'''Primary purpose:''' Registry the number of deaths for statistics purpose.
+</div>
-'''Type of information:''' Commune / city / municipality, county / sector, date, number of the document from the civil status register, code siruta, personal numeric code, name and surname, sex, number of children born alive during life (for women only), date of death, date of birth, marital status, date of birth of the surviving spouse, occupational status employee, level of education, citizenship, ethnicity, domicile, place of death, country where he died, country where he was born, causes of death (cause - includes neoplasms -, antecedent causes, the initial morbid state, and other important morbid conditions), manner of death (naturally, indeterminate, accident, suicide, homicide), status of autopsy.
+== [[hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System]] ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+</div>
-'''Available type of information:''' POP206C - Deceased by causes of death, macro-regions, development regions and counties.
+== Administrative or Claims Data ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-POP206F - Deceased by gender and cause of death.
+=== [[hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network]] ===
-POP206I - Deceased with usual residence in Romania by causes of death, macro-regions, development regions and counties.
+=== [[hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)]] ===
-POP206L - Deceased with usual residence in Romania by sex and cause of death.
+</div>
-'''Source of Information:''' Death statistical bulletins made by the civil registry.
+== Registries ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Data level:''' Patient-level.
+=== [[hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death]] ===
-'''Available data level:''' Regional and national-level.
+=== [[hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)]] ===
+</div>
-'''Number of Records:''' Unknown.
+== Clinical Practices Guidelines ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Date Range:''' 1990 onwards.
+=== [[hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline]] ===
+</div>
-'''Cancer Areas of Interest:''' Unknown.
+== Latest Policymaking Initiatives ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Open data access:''' To find statistics about death, on the domain page of [http://statistici.insse.ro:8077/tempo-online/#/pages/tables/insse-table this] website, located in the topic "A.2 VITAL STATISTICS" choose the option "DEATH", then choose the indicator you want to see.
+=== [[hasReport::Report:_IOCN_(Romania)|Report: IOCN]] ===
-'''Data access''': To request access to restricted data, follow the instructions presented [https://insse.ro/cms/ro/content/solicitare-informa%C8%9Bii here].
+=== [[hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health]] ===
-'''Information/Contact for data request:''' [https://insse.ro/cms/ro/content/contactati-ne-prin Contact information].
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023]] ===
-<!--
-=== Database: ===
-'''Sponsor, manager or home institution:'''
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Romania)|Report: EU Country Cancer Profile 2025]] ===
-'''Primary purpose:'''
+=== [[hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026]] ===
-'''Type of information:'''
+=== [[hasReport::Report:_National_Plan_to_Prevent_and_Combat_Cancer_2023-2030_(Romania)|Report: National Plan to Prevent and Combat Cancer 2023-2030]] ===
-'''Available type of information:'''
-'''Source of Information:'''
+</div>
-'''Data level:'''
+== Cancer-related Patient Associations and Resources ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Available data level:'''
+=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation]] ===
-'''Number of Records:'''
+=== [[hasPatientAssociation::Patient Association: Renasterea Foundation (Europa Donna Romania) (Romania)|Patient Association: Renasterea Foundation (Europa Donna Romania)]] ===
-'''Date Range:'''
+=== [[hasPatientAssociation::Patient_Association:_Federation_of_Cancer_Patients_Associations (FABC)_(Romania)|Patient Association: Federation of Cancer Patients Associations (FABC)]] ===
-'''Cancer Areas of Interest:'''
+=== [[hasPatientAssociation::Association:_Asociatia_Heal_(Romania)|Association: Asociatia Heal]] ===
-'''Open data access:'''
+=== [[hasPatientAssociation::Patient_Association:_Dăruiește_Viață_(Romania)|Patient Association: Dăruiește Viață]] ===
-'''Information/Contact for data request:'''
+=== [[hasPatientResource::Self-help_Group:_Comunitatea_Oncologică_din_România_(Romania)|Self-help Group: Comunitatea Oncologică din România]] ===
--->
-== [[Registries]] ==
+</div>
-=== Database: National Registry of Childhood Cancer (RNCCR) ===
-[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]
-'''Sponsor, manager or home institution''': Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
+== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research]] ==
+</div>
-'''Type of information''': The information contained in the registry follows the recommendations of ENCR, so the dataset can be checked in [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf this] document. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus, which is presented [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext here]. Data refers to people aged between 0 and 14 years.
+__NOTOC__
+<span style="display:none">hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology</span>
-The variables available to be registered by the sources in the database are:
+<span style="display:none">hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy</span>
-CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), date of clinical onset, date of relapse, reason for reporting, registration base (data source), tumor location, topographical code, laterality.
+<span style="display:none">hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System</span>
+<span style="display:none">hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network</span>
-Histopathological/cytological examination (behavior, morphological code, degree, cod ICC3 primary, cod ICC3 category, cod ICC3 subcategory).
+<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)</span>
+<span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death</span>
-Toronto staging (diagnostic class, level 1, level 2).
+<span style="display:none">hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)</span>
+<span style="display:none">hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry</span>
-TNM staging for solid tumors not included in Toronto staging (stadium type, TNM classification).
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline</span>
+<span style="display:none">hasReport::Report:_IOCN_(Romania)|Report: IOCN</span>
-Treatment (stadium type, tnm classificationsurgery date, chemotherapy, radiotherapy, hormone therapy, immunotherapy, other treatments, transplant, diagnostic class, therapeutic protocol, another therapeutic protocol, treatment abroad, type of treatment abroad, tara, end of therapy date, response to treatment, refusal, reason for refusal, abandon, dropout reason).
+<span style="display:none">hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health</span>
+<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023</span>
-Tracking (date of last contact, status, the last doctor, death, the main cause, secondary cause).
+<span style="display:none">hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026</span>
+<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides</span>
-'''Source of information''': Reports from pediatric oncologic centers.
+<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research</span>
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline</span>
-'''Data level''': Patient-level.
+<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation</span>
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
-'''Date range''': 2009 onwards.
+<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
+<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
-'''Data access''': To require access to the patient-level database, it is necessary to send and e-mail to the address presented in the database [http://oncped.iocn.ro/ page]. It is also possible to simulate the access and see the available variables and search layout by inserting the login informations presented in the home page of the database website.
+<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
+<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
-'''Cancer areas of interest''': Unknown.
+<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
+<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
-'''Information/contact for data request''': [https://srohp.ro/contact/ Contact information].
+<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
+<span style="display:none">hasCancerType::C50: Breast cancer</span>
-=== Database: North-West Regional Cancer Registry ===
+<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
-[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]
+<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
+<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
-'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN).
+<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
+<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
-'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
+<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
+<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
-'''Type of information:''' The variables available to be registered by the sources in the database are: CNP, name, first name, date of birth, age, sex, county, city, address, date of cancer diagnosis, explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.), reason for reporting, registration base (data source).
+<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
+<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
-Histopathological / cytological examination: Date of examination and result, tumor location, topographical code, laterality, behavior, morphological code, differentiation degree, stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer.
+<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
+<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
-Treatment: Type of treatment, date of initiation. Informs if there was a refusal to the treatment.
+<span style="display:none">hasCancerType::unknown</span>
-Tracking: Date of last contact, name of the last doctor consulted, date of death, main cause and secondary cause of death.
-'''Available type of information:'''
-'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
-'''Data level:''' Patient-level.
-'''Available data level:'''
-'''Number of Records:''' Unknown.
-'''Date Range:''' 2008 onwards.
-'''Cancer Areas of Interest:''' The list can be checked [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc here]. Some specific cancer locations are excluded, and those can be seen [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc here].
-'''Open data access:''' To request access to patient-level data, contact the Northwest Cancer Registry by the e-mail shown [http://nwcanportal.iocn.ro/OncReg/ here].
-'''Information/Contact for data request:''' [https://www.old.iocn.ro/en Contact information]
-== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
-== [[Electronic Health Records]] ==
-== [[Clinical Practices Guidelines]] ==
-== [[Cancer-related Patient Associations and Resources]] ==