European Union: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">europeanunion</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
== Administrative or Claims Data ==
== Administrative or Claims Data ==
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=== [[hasDatabase::Database:_European_Network_of_Centres_for_Pharmacoepidemiology_and_Pharmacovigilance_(European_Union_-_wide Resources)|Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance]]  ===
=== [[hasDatabase::Database:_European_Network_of_Centres_for_Pharmacoepidemiology_and_Pharmacovigilance_(European_Union)|Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance]]  ===
 
'''Primary purpose:''' To serve as a centralized electronic index for EU research organizations, networks, and data sources in the fields of pharmacoepidemiology and pharmacovigilance. It aims to facilitate connections between researchers and study sponsors by providing information on expertise and research experience across Europe. The database allows users to identify relevant research centers, data sources, and patient registries based on various criteria.
 
'''Sponsor, manager or home institution:''' European Medicines Agency (EMA).
 
'''Type of information:''' [[Data Dictionary: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance]] [https://www.encepp.eu/encepp/search.htm#].
 
'''Source of Information:''' The sources of the database are provided and maintained by the listed organizations, data providers, or registry holders.
 
'''Data level:''' national level and regional level..
 
'''Number of Records:''' unknown.
 
'''Date Range:''' unknown.
 
'''Cancer Areas of Interest:''' unknown.
 
'''Data Access:''' publicly available [https://www.encepp.eu/encepp/resourcesDatabase.jsp].
 
'''Contact Information:''' Information [https://www.encepp.eu/structure/structure_secretariat.shtml].


== Registries ==
== Registries ==
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=== [[hasDatabase::Compilation:_Eurostat_(European_Union_-_wide_Resources)|Compilation: Eurostat]]  ===
'''Primary purpose:''' To measure the health status, health determinants, and the use of health care services among EU citizens. It also provides information on mortality patterns and serves as a significant source of public health information, including data on the underlying causes of death according to WHO definitions.
'''Sponsor, manager or home institution:''' Eurostat.
'''Type of cancer-related databases:'''
[[Surgical operations and procedures performed in hospitals by ICD-9-CM – historical data (1990-2016)]]
[[Surgical procedures]]
[[Preventive Cancer Screenings]]
[[Self-reported last breast examination by X-ray among women by age and educational attainment level]]
[[Self-reported last breast examination by X-ray among women by age and degree of urbanisation]]
[[Self-reported last cervical smear test among women by age and educational attainment level]]
[[Self-reported last cervical smear test among women by age and degree of urbanisation]]
[[Self-reported last colorectal cancer screening test by sex, age and educational attainment level]]


[[Self-reported last colorectal cancer screening test by sex, age and degree of urbanisation]]
=== [[hasDatabase::Database: Eurostat Compilation (European Union)|Database: Eurostat Compilation]] ===


[[Self-reported last colonoscopy by sex, age and educational attainment level]]
=== [[hasDatabase::Database:_OECD_Health_Statistics_(European_Union)|Database: OECD Health Statistics]] ===


[[Self-reported last colonoscopy by sex, age and degree of urbanisation]]
=== [[hasDatabase::Database: European Health for All database (HFA-DB) (European_Union)|Database: European Health for All database (HFA-DB)]] ===


[[Self-reported last colorectal cancer screening test by sex, age and income quintile]]
=== [[hasDatabase::Database: European mortality database (MDB) (European Union)|Database: European mortality database (MDB)]] ===


[[Self-reported last colonoscopy by sex, age and income quintile]]
=== [[hasDatabase::Database:_Cancer_Incidence_in_Five_Continents_(European_Union)|Database: Cancer Incidence in Five Continents]] ===


[[Self-reported last breast examination by X-ray among women by age and income quintile]]
=== [[hasDatabase::Database:_European_Cancer_Information_System_(ECIS)_(European_Union)|Database: European Cancer Information System (ECIS)]] ===


[[Self-reported last cervical smear test among women by age and income quintile]]
=== [[hasDatabase::Database: EUROCARE (European Union) | Database: EUROCARE]] ===


[[Breast cancer and cervical cancer screenings - historical data (2000-2021)]]
=== [[hasDatabase::Database:_NordScreen_(European_Union)|Database: NordScreen]] ===


[[Self-reported cervical smear test by educational attainment level among women aged 20-69 (%)]]
=== [[hasDatabase::Database:_NORDCAN_(European_Union)|Database: NORDCAN]] ===


[[Self-reported colorectal cancer screening test by sex, age and educational attainment level among people aged 50-74 (%)]]
=== [[hasDatabase::Registry:_ECIR_-_European_Cancer_Inequalities_Registry_(European_Union)|Database: ECIR - European Cancer Inequalities Registry]] ===
 
[[Causes of death - deaths by country of residence and occurrence]]
 
[[Causes of death - standardised death rate by NUTS 2 region of residence]]
 
[[Causes of death - crude death rate by NUTS 2 region of residence]]
 
[[Causes of death - potential years of life lost by residence]]
 
[[Causes of death – death by country of residence and occurrence, monthly data]]
 
[[Causes of death – standardised death rate by country of residence, monthly data]]
 
[[Causes of death - deaths by NUTS 2 region of residence and occurrence, 3 year average]]
 
[[Causes of death - standardised death rate by NUTS 2 region of residence, 3 year average]]
 
[[Causes of death - crude death rate by NUTS 2 regions of residence, 3 year average]]
 
[[Causes of death - years and potential years of life lost by NUTS 2 regions of residence, 3 year average]]
 
[[Causes of death - infant mortality by country of residence]]
 
[[Causes of death - infant mortality by country of occurrence]]
 
[[Causes of death - infant mortality by NUTS 2 region of residence, 3 year average]]
 
[[Causes of death - infant mortality by NUTS 2 region of occurrence, 3 year average]]
 
[[Treatable and preventable mortality of residents by cause and sex]]
 
[[Infant deaths occurring in the country by cause]]
 
[[Infant deaths occurring in the EU by cause and age]]
 
[[Causes of death - absolute number]]
 
[[Causes of death - standardised death rate]]
 
[[Causes of death by NUTS 2 regions - crude death rate, 3 year average - females]]
 
[[Causes of death by NUTS 2 regions - crude death rate, 3 year average - males]]
 
[[Causes of death by NUTS 2 regions - crude death rate, 3 year average - total]]
 
[[Causes of death by NUTS 2 regions - absolute number, 3 year average - females]]
 
[[Causes of death by NUTS 2 regions - absolute number, 3 year average - males]]
 
[[Causes of death by NUTS 2 regions - absolute number, 3 year average - total]]
 
[[EU index of occupational diseases (2013=100) – experimental statistics]]
 
[[Death due to cancer, by sex]]
 
[[Death due to cancer by NUTS 2 regions]]
 
'''Data Access''': Partially publicly available in Health [https://ec.europa.eu/eurostat/databrowser/explore/all/all_themes?lang=en&display=list&sort=category]. Instructions to request data for restricted content [https://ec.europa.eu/eurostat/web/microdata/overview].
 
=== [[hasDatabase::Database:_OECD_Health_Statistics_(European_Union_-_wide_Resources)|Database: OECD Health Statistics]] ===
 
'''Sponsor, manager or home institution:''' The Organization for Economic Cooperation and Development (OECD).
 
'''Primary purpose:''' Provides health data and metadata for OECD countries and selected non-member economies.
 
'''Type of information:''' [[Data Dictionary: OECD Health Statistics]] [https://stats.oecd.org/index.aspx?queryid=30114#].
 
'''Source of Information:''' International Agency for Research on Cancer (IARC) and World Health Organisation Mortality Database.
 
'''Data level:''' national level.
 
'''Number of Records:''' unknown.
 
'''Date Range:''' 1960-2021.
 
'''Cancer Areas of Interest:''' [[Cancer Areas of Interest: OECD Health Statistics | OECD Health Statistics]] [https://stats.oecd.org/wbos/fileview2.aspx?IDFile=9dc6e690-fa1d-40fa-a279-b726e2616433].
 
'''Data access:'''  publicly available. [https://stats.oecd.org/index.aspx?queryid=30114#]
 
(To access Cancer Morbidity data, click the link and click in the section "Cancer" from the "Health Status" list);
 
(To access Cancer Mortality data, click the link and click in the section "Causes of mortality" from the "Health Status" list -> in the table, select the type of neoplasm in the section "variable").
 
'''Contact information:''' Information [mailto:health.contact@oecd.org].
 
=== [[hasDatabase::Compilation:_WHO_Health_Data_(European_Union_-_wide_Resources)|Compilation: WHO Health Data]] ===
 
'''Sponsor, manager or home institution:''' World Health Organization (WHO).
 
'''Primary purpose:''' To collect and provide essential health-related statistics, including indicators related to demographics, health status, determinants, and resources.
 
'''Type of cancer-related databases:'''
 
[[Prevalence of cancer (%)]]
 
[[Number of new cases of cancer]]
 
[[Prevalence of cancer (%), males]]
 
[[Prevalence of cancer (%), females]]
 
[[Number of new cases of cancer, males]]
 
[[Number of new cases of cancer, females]]
 
[[Incidence of cancer per 100 000]]
 
[[Number of all cases of cancer at year's end]]
 
[[Number of all cases cancer at year's end, males]]
 
[[Number of all cases cancer at year's end, females]]
 
[[Number of new cases of trachea, bronchus and lung cancer]]
 
[[Incidence of female breast cancer per 100 000]]
 
[[Number of new cases of female breast cancer]]
 
[[Incidence of cervix uteri cancer per 100 000]]
 
[[Number of new cases of cervix uteri cancer]]
 
[[Incidence of cancer per 100 000, males]]
 
[[Incidence of cancer per 100 000, female]]
 
[[SDR, trachea/bronchus/lung cancer, 0–64, per 100 000]]
 
[[SDR, trachea/bronchus/lung cancer, all ages, per 100 000]]
 
[[SDR, trachea/bronchus/lung cancer, 65+, per 100 000]]
 
[[SDR, trachea/bronchus/lung cancer, 65+, per 100 000, males]]
 
[[SDR, trachea/bronchus/lung cancer, 65+, per 100 000, females]]
 
[[SDR, cancer of the cervix uteri, 0–64, per 100 000]]
 
[[SDR, cancer of the cervix uteri, all ages, per 100 000]]
 
[[SDR, cancer of the cervix uteri, 65+, per 100 000]]
 
[[Incidence of trachea, bronchus and lung cancer per 100 000]]
 
[[Number of new cases of trachea, bronchus and lung cancer, males]]
 
[[Number of new cases of trachea, bronchus and lung cancer, females]]
 
[[Incidence of trachea, bronchus and lung cancer per 100 000, males]]
 
[[Incidence of trachea, bronchus and lung cancer per 100 000, females]]
 
[[SDR, trachea/bronchus/lung cancer, 0–64, per 100 000, males]]
 
[[SDR, trachea/bronchus/lung cancer, 0–64, per 100 000, females]]
 
[[SDR, trachea/bronchus/lung cancer, all ages, per 100 000, males]]
 
[[SDR, trachea/bronchus/lung cancer, all ages, per 100 000, females]]
 
[[SDR, Malignant neoplasm female breast, 0–64, per 100 000]]
 
[[SDR, Malignant neoplasm female breast, all ages, per 100 000]]
 
[[SDR, Malignant neoplasm female breast, 65+, per 100 000]]
 
[[Hospital discharges, all neoplasms]]
 
[[SDR, Malignant neoplasms, 65+, per 100 000]]
 
[[Hospital discharges, all neoplasms per 100 000]]
 
[[SDR, Malignant neoplasms, 0–64, per 100 000]]
 
[[SDR, Malignant neoplasms, 0–64, per 100 000, males]]
 
[[SDR, Malignant neoplasms, 0–64, per 100 000, females]]
 
[[SDR, Malignant neoplasms, 65+, per 100 000, males]]
 
[[SDR, Malignant neoplasms, 65+, per 100 000, females]]
 
[[SDR, Malignant neoplasms, all ages, per 100 000]]
 
[[SDR, Malignant neoplasms, all ages, per 100 000, males]]
 
[[SDR, Malignant neoplasms, all ages, per 100 000, females]]
 
'''Data Access:''' Publicly available [https://gateway.euro.who.int/en/datasets/european-health-for-all-database/#mortality-based-indicators].
 
'''Contact information:''' Information in Contact Us [https://gateway.euro.who.int/en/datasets/european-health-for-all-database/].
 
=== [[hasDatabase::Database:_European_Cancer_Information_System_(ECIS)_(European_Union_-_wide_Resources)|Database: European Cancer Information System (ECIS)]] ===
 
'''Sponsor, manager or home institution:''' European Commission.
 
'''Primary purpose:''' To provide accurate and comparable data on cancer, including incidence, prevalence, survival, and mortality statistics, in order to monitor and assess the cancer burden, support health policy interventions, and facilitate cancer epidemiological research across Europe.
 
'''Type of information:''' Cancer incidence estimates; Mortality estimates; Incidence and mortality historical data; Childhood incidence historical data; Survival estimates.
 
'''Source of Information:''' The sources vary by the European population-based cancer registries participating in the corresponding projects/studies. More information [https://ecis.jrc.ec.europa.eu/info/database_description.html].
 
'''Data level:''' European and National level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1953 onwards. More information [https://ecis.jrc.ec.europa.eu/info/registries_encr.php].
 
'''Cancer Areas of Interest:''' All.
 
'''Data access:''' Publicly available [https://ecis.jrc.ec.europa.eu/index.php].
 
'''Contact information:''' Information [mailto:JRC-ENCR@ec.europa.eu].
 
=== [[hasDatabase::Database:_NordScreen_(European_Union_-_wide_Resources)|Database: NordScreen]] ===
 
'''Sponsor, manager or home institution:''' Finnish Cancer Registry.
 
'''Primary purpose:''' To provide an interactive tool designed to present cervical cancer screening indicators in the Nordic countries.
 
'''Type of information:''' Country, Age groups, Year; Time interval; Test method; Test result; Test coverage; Test intensity.
 
'''Source of Information:''' The screening data originate from population-based screening registries varying from country to country.
 
'''Data level:''' National level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1986 - 2019.
 
'''Cancer Areas of Interest:''' Malignant neoplasms of the cervix uteri (C53).
 
'''Data access:''' Publicly available [https://nordscreen.org/analysis/cervical-cancer-screening/]. More information [https://www.tandfonline.com/doi/full/10.1080/0284186X.2019.1615637].
 
'''Contact information:''' Information in Contacts [https://nordscreen.org/analysis/cervical-cancer-screening/].
 
=== [[hasDatabase::Database:_NORDCAN_(European_Union_-_wide_Resources)|Database: NORDCAN]] ===
 
'''Sponsor, manager or home institution:''' [[dataOwner::The Association of the Nordic Cancer Registries (ANCR)]].
 
'''Primary purpose:''' To provide a freely accessible database of comparable cancer statistics for the Nordic countries.
 
'''Type of information:''' [[availableVariable::cancer incidence|Number of new cancer cases]] (incidence); [[availableVariable::number of deaths|Cancer mortality]]; [[availableVariable::cancer prevalence|Number of individuals living with a cancer]] diagnosis (prevalence); [[availableVariable::cancer survival]]; [[availableVariable::age]]; [[availableVariable::region|Country]]; [[availableVariable::year]]; [[availableVariable::sex]].
 
'''Source of Information:''' The sources vary from each national cancer registry and cause of death registry.
 
'''Data level:''' [[dataLevel::national level]].
 
'''Number of Records:''' [[numberRecords::unknown]].
 
'''Date Range:''' [[dataStart::1943]] [[dataEnd::onwards]].
 
'''Cancer Areas of Interest:''' [[hasCancerAreasList::neoplasms (C00-D48)]].
 
'''Data access:''' [[dataAvailability::publicly available]] [https://nordcan.iarc.fr/en/database].
 
'''Contact information:''' Information [https://nordcan.iarc.fr/en/contact].
 
=== [[hasDatabase::Registry:_ECIR_–_European_Cancer_Inequalities_Registry_(European_Union)|Registry: ECIR – European Cancer Inequalities Registry]] ===
 
'''Sponsor, manager or home institution:''' European Commission.
 
'''Primary purpose:''' To gather robust data on cancer prevention and care, enabling the identification of disparities and inequalities among EU Member States and regions as part of Europe's Beating Cancer Plan.
 
'''Type of information:''' Inequality dimensions: country, year, sex, education, income, level of urbanization, age, disability(ies), and employment. Indicators: cancer cases, cancer mortality, years of life lost, the total cost of cancer, diagnoses and treatments, childhood cancer, quality of life, alcohol consumption frequency, obesity, physical inactivity, fruits and vegetables consumption, smoking/passive smoking, breast, cervical and colorectal cancer screening and other environmental indicators. Also, it is possible to check out maps and graphs that present indicators related to cancer and country cancer profiles [https://cancer-inequalities.jrc.ec.europa.eu/country-cancer-profiles], analytical reports [https://cancer-inequalities.jrc.ec.europa.eu/focus-on-prevention-detection] and cancer inequalities factsheets [https://cancer-inequalities.jrc.ec.europa.eu/inequalities-factsheets].
 
'''Source of Information:''' The source varies according to the indicators. More information [https://cancer-inequalities.jrc.ec.europa.eu/stakeholders].
 
'''Data level:''' European level and National level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 2011 onwards.
 
'''Cancer Areas of Interest:''' Malignant neoplasms (C00-C97).
 
'''Data access:''' Publicly available [https://cancer-inequalities.jrc.ec.europa.eu/data-tool-by-country?ind=ALLMORT&ft=TOTAL].
 
'''Contact information:''' Information [https://cancer-inequalities.jrc.ec.europa.eu/contact].


=== [[hasDatabase::Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)|Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)]] ===
=== [[hasDatabase::Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)|Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)]] ===


'''Sponsor, manager or home institution:''' International Agency for Research on Cancer (IARC), Department of Epidemiology and Biostatistics, School of Public Health, Imperial College London (United Kingdom). [https://epic.iarc.fr/funding/]
=== [[hasDatabase::Database: Global Burden of Disease Study 2019 (European Union)| Database: Global Burden of Disease Study 2019]] ===
 
'''Primary purpose:''' The EPIC database primarily aims to study the impact of dietary, lifestyle, and environmental factors on the incidence of cancer and other chronic diseases across Europe.
 
'''Type of information:''' [[Data Dictionary: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe).]]
 
'''Source of Information:''' Data is collected via questionnaires and assessments from recruited participants in 25 centres across 10 European countries.
 
'''Data level:''' Participant level.
 
'''Number of Records:''' 521,000 [https://epic.iarc.fr/documents/tab-website-vitstat.pdf].
 
'''Date Range:''' 1993 onwards.
 
'''Cancer Areas of Interest:''' C00-D48: All neoplasms.


'''Data access:''' Not publicly available. Instructions to access restricted content [https://epic.iarc.fr/access/] [https://epic.iarc.fr/docs/epic-europe-accesspolicy-01feb2023.pdf].
=== [[hasDatabase::Database: European Federation for Cancer Images (EUCAIM) Compilation (European Union)|Database: European Federation for Cancer Images (EUCAIM) Compilation]] ===


'''Contact information:''' Information [https://epic.iarc.fr/contact-us/].
=== [[hasDatabase::Database: European Genome-phenome Archive (EGA) Compilation (European Union)|Database: European Genome-phenome Archive (EGA) Compilation]] ===
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=== [[hasDatabase::SHARE_-_Survey_of_Health,_Ageing_and_Retirement_in_Europe_(European_Union_-_wide_Resources)|SHARE - Survey of Health, Ageing and Retirement in Europe]] ===
=== [[hasDatabase::SHARE_-_Survey_of_Health,_Ageing_and_Retirement_in_Europe_(European_Union)|SHARE - Survey of Health, Ageing and Retirement in Europe]] ===
 
'''Sponsor, manager or home institution:''' National Institute on Aging (NIH); The Federal Ministry of Education and Research (BMBF); The Max Planck Society Munich Centre for the Economics of Aging (MEA).
 
'''Primary purpose:''' To investigate the impacts of health, social, economic, and environmental policies on the life-course of European citizens and beyond, serving as a research infrastructure for this purpose.
 
'''Type of information:''' Questions about activities; Assets; Activity; Behavioral risk; Cognitive function; Children; Consumption; Demographics and networks; Employment and pensions; Expectations; Financial transfers; Gripstrength; Health care; Household income; Housing; Computer Use; Interviewer; Linking; Mental health; Physical health; Social Networks; Social support; Savings Regret; Time Expenditures; End of life interview. More information about the questionnaires [https://share-eric.eu/data/data-documentation/questionnaires]. The variables and datasets can be accessed according to each wave [https://www.share-datadocutool.org/study-units/view/1].
 
'''Data level:''' Respondent level.
 
'''Number of Records:''' 140.000 respondents.
 
'''Date Range:''' 2004 onwards.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Data access:''' Not publicly available. Instructions to request data for restricted content [https://share-eric.eu/data/data-access].
 
'''Contact information:''' Information [https://share-eric.eu/data/contact].


=== [[hasDatabase::European_Health_Interview_Survey_(EHIS)_(European_Union_-_wide_Resources)|European Health Interview Survey (EHIS)]] ===
=== [[hasDatabase::European_Health_Interview_Survey_(EHIS)_(European_Union)|European Health Interview Survey (EHIS)]] ===


'''Sponsor, manager or home institution:''' Eurostat.
=== [[hasDatabase::Database: BBMRI-ERIC Compilation (European Union)|Database: BBMRI-ERIC Compilation]] ===


'''Primary purpose:''' To measure the health status, health determinants, and healthcare access among EU citizens in a harmonized and comparable manner across Member States.
=== [[hasDatabase::Database: CanServ Services Compilation (European Union)|Database: CanServ Services Compilation]] ===


'''Type of information:''' Health status: General health status (Minimum European health module): self-perceived health, chronic morbidity and activity limitation; Disease-specific morbidity; Accidents and injuries; Health-related absenteeism from work; Physical and sensory functional limitations (also cognitive limitations in wave 3); Difficulties in personal care activities / activities of daily living and help received/needed; Household activities / Instrumental activities of daily living and help received/needed; Pain; Aspect of mental health (psychological distress and mental well-being in the first wave, depressive symptoms in the second and third waves); Work-related health problems (only in the first wave). Health care: Hospitalisation (in-patient and day care); Consultations with doctors and dentists; Visits to specific health professionals; Use of home care services; Use of medicines; Healthcare preventive actions; Unmet needs for health care; Out-of-pocket payments for medical care (only in the first wave); Satisfaction with services provided by healthcare providers (only in the first wave); Visits to specific categories of alternative medicine practitioners (only in the first wave). Health determinants: Height and weight; Physical activity/exercise; Consumption of fruits, vegetables and juice; Drinking sugar-sweetened soft drinks (only in the third wave); Tobacco smoking behaviour and exposure to tobacco smoke; Use of e-cigarettes or similar electronic devices (only in the third wave); Alcohol consumption; Social support; Provision of informal care or assistance (only in the second and third waves); Illicit drug use (only in the first wave); Environment (only in the first wave); Background variables on demography and socio-economic characteristics. Age; Sex; Educational attainment level; Income quintile group; Degree of urbanization; Country of birth; Country of citizenship; Activity limitation.
=== [[hasDatabase::Database: Euro-BioImaging ERIC Compilation (European Union)|Database: Euro-BioImaging ERIC Compilation]] ===


'''Data level:''' Respondent level.
=== [[hasDatabase::Database: EMBL-EBI Databases and Resources Compilation (European Union)|Database: EMBL-EBI Databases and Resources Compilation]] ===


'''Number of Records:''' Population aged 15 or over living in private households residing in the territory of the EU countries.
=== [[hasDatabase::Database: IntoGen (European Union)|Database: IntoGen]] ===


'''Date Range:''' 2006-2020.
=== [[hasDatabase::Database:_European_Organisation_for_Research_and_Treatment_of_Cancer_(EORTC)_Compilation_(European_Union)|Database: European Organisation for Research and Treatment of Cancer (EORTC) Compilation]] ===


'''Cancer Areas of Interest:''' Malignant neoplasm of the trachea (C33); Malignant neoplasm of the bronchus and lung (C34); Malignant neoplasm of the colon (C18); Malignant neoplasm of the rectosigmoid junction (C19); Malignant neoplasm of the rectum (C20); Malignant neoplasm of the breast (C50); Malignant neoplasm of the cervix uteri (C53); Malignant neoplasm of the prostate (C61). [https://ec.europa.eu/eurostat/en/web/products-manuals-and-guidelines/-/ks-01-20-253]
=== [[hasDatabase::Database:_European_Genome‑phenome_Archive_(EGA)_Compilation_(European_Union)|Database: European Genome‑phenome Archive (EGA) Compilation]] ===


'''Data access:''' Partially publicly available [https://ec.europa.eu/eurostat/cache/metadata/en/hlth_det_esms.htm]. Instructions to request data for restricted content [https://ec.europa.eu/eurostat/web/microdata].


'''Contact information:''' Information [https://ec.europa.eu/eurostat/cache/metadata/en/hlth_det_esms.htm#contact1678715439901].
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=== [[hasDatabase::EHR:_THIN_Database_(European_Union)|EHR: THIN Database]] ===
=== [[hasDatabase::EHR:_THIN_Database_(European_Union)|EHR: THIN Database]] ===
[https://www.cegedim-health-data.com/cegedim-health-data/thin-the-health-improvement-network/]
'''Sponsor, manager or home institution:''' Cegedim Health Data.
'''Primary purpose:''' to provide precise, ethical, and actionable anonymized longitudinal health data for research and medical progress, supporting a range of stakeholders including researchers, healthcare practitioners, and pharmaceutical companies.
'''Type of information:''' The database includes groups of variables such as patient interaction data, diagnostic information, prescription and treatment data, medical actions and examinations, patient medical history, measurement and biological data, social and demographic information, reimbursement and pharmaceutical data, allergy and sensitivity records, and consolidated health attributes.
'''Data level:''' patient level
'''Number of Records:''' 69 million.
'''Cancer Areas of Interest:''' unknown.
'''Data access:''' Data is not publicly available. Instructions to request data for restricted content. [https://www.cegedim-health-data.com/cegedim-health-data/thin-the-health-improvement-network/]
'''Contact information:''' Information [https://www.cegedim-health-data.com/contact-us/].
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=== [[hasClinicalGuidelines::Compilation:_ESMO_Guidelines_(European_Union_-_wide_Resources)|Compilation: ESMO Guidelines]] ===
=== [[hasClinicalGuidelines::Guidelines: ESMO Guidelines Compilation (European Union)|Guidelines: ESMO Guidelines Compilation]] ===


'''Sponsor, manager or home institution:''' European Society for Medical Oncology.
=== [[hasClinicalGuidelines::Guidelines: ESTRO Guidelines Compilation (European Union)|Guidelines: ESTRO Guidelines Compilation]] ===


'''Primary purpose:''' Give providers recommendations prepared and reviewed by leading experts in each topic to help patients with the best care available.
=== [[hasClinicalGuidelines::Guidelines: EUSOMA Guidelines Compilation (European Union)|Guidelines: EUSOMA Guidelines Compilation]] ===


'''Available guidelines:''' [[Available Guidelines: ESMO Guidelines]].
=== [[hasClinicalGuidelines::European_guidelines_on_colorectal_cancer_screening_and_diagnosis_(European_Union)|Guidelines: European guidelines on colorectal cancer screening and diagnosis]] ===


'''Type of information:''' Guidelines for each step in the cancer journey including information on incidence and epidemiology; diagnosis, pathology and molecular biology; staging and risk assessment; management of advanced and metastatic disease; personalised medicine; long-term implications and survivorship; among other information specific to each cancer type. All guidelines have references and methodology sections.
=== [[hasClinicalGuidelines::2022_ESC_Guidelines_on_cardio-oncology_(European_Union)|Guidelines: 2022 ESC Guidelines on cardio-oncology]] ===


'''Access to information:''' List of guidelines [https://www.esmo.org/guidelines/guidelines-by-topic].
=== [[hasClinicalGuidelines::Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation (European Union)|Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation]] ===
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=== [[hasPolicyData::Data_Tool:_European_Core_Health_Indicators_(ECHI)_(European_Union_-_wide_Resources)|Data Tool: European Core Health Indicators (ECHI)]] ===  
=== [[hasPolicyData::Data_Tool:_European_Core_Health_Indicators_(ECHI)_(European_Union)|Data Tool: European Core Health Indicators (ECHI)]] ===


'''Sponsor, manager or home institution:''' European Commission; Eurostat.
=== [[hasReport::Report: OECD EU Country Cancer Profile (European Union)|Report: OECD EU Country Cancer Profile]] ===


'''Primary purpose:''' Provides an interactive platform for accessing a comprehensive set of health indicators, curated by experts, to offer comparable and relevant insights into health and health systems across Europe.
=== [[hasReport::Report: WHO Cancer Country Profile (European Union)|Report: WHO Cancer Country Profile]] ===


'''Type of information:''' Country; Year; Determinants of health indicators; Standardised death rate malignant neoplasm per 100.000 inhabitants total population; Standardised death rate malignant neoplasm per 100.000 inhabitants by sex: Malignant neoplasm of stomach; Malignant neoplasm of trachea, bronchus and lung, Malignant neoplasm of breast; Malignant neoplasm of cervix uteri; Malignant neoplasm of prostate; Malignant neoplasm of colon, rectosigmoid junction, rectum, anus and anal canal; Malignant melanoma of skin; Malignant neoplasm of lymphatic/haematopoietic tissue; Crude death rate per 100,000 inhabitants: all childhood cancers, total population of children; Crude death rate per 100,000 inhabitants: all childhood cancers by sex;  Proportion of women (aged 50-69) reporting a mammography in the past 2 years; Proportion of women with low, medium and high education level reporting a mammography in the past 2 years; Proportion of women (aged 20-69) reporting a pap smear test in the past 3 years; Proportion of women with low, medium and high education level reporting a pap smear test in the past 3 years; In-patient average length of stay of total population for neoplasms; Proportion of people (aged 50-74) reporting a colorectal cancer screening in the past 2 years; Proportion of people by sex (aged 50-74) reporting a colorectal cancer screening in the past 2 years; Proportion of persons with low, medium and high education level reporting a colorectal cancer screening in the past 2 years; Hospital discharges of total population in-patients for neoplasms per 100,000 inhabitants; Hospital day-cases of total population for neoplasms per 100,000 inhabitants; Hospital day-cases as % of total patient population, for neoplasms (ISHMT code 0200 = ICD-10 codes C00-D48); Number of partial excision of mammary gland per 100,000 inhabitants; Number of total mastectomy per 100,000 inhabitants; Relative survival rate for cancers, all patients and by sex (ICD-10 C00-C97).
=== [[hasReport::Report:_Commercial_determinants_of_cancer_control_policy_(Eurohealth)_(European_Union)|Report: Commercial determinants of cancer control policy (Eurohealth)]] ===


'''Data level:''' EU level and National level.
=== [[hasReport::Report:_Europes_Beating_Cancer_Plan_(European_Union)|Report: Europe's Beating Cancer Plan]] ===


'''Data Access:''' Partially publicly available [https://webgate.ec.europa.eu/dyna/echi/?indlist=76]. Instructions to request data for restricted content [https://ec.europa.eu/eurostat/web/microdata/overview].
=== [[hasReport::Report:_Childhood_cancer_inequalities_in_the_WHO_European_Region_(European_Union)|Report: Childhood cancer inequalities in the WHO European Region]] ===


'''Contact Information:''' Information [https://commission.europa.eu/about-european-commission/contact_en].
=== [[hasReport::Report:_Cancer_Care:_Assuring_Quality_to_Improve_Survival_(European_Union)|Report: Cancer Care: Assuring Quality to Improve Survival]] ===


=== [[hasReport::Report:_Commercial_determinants_of_cancer_control_policy_(Eurohealth)_(European_Union_-_wide_Resources)|Report: Commercial determinants of cancer control policy (Eurohealth)]] ===
=== [[hasReport::Report:_Cancer_screening_in_the_European_Union_(European_Union)|Report: Cancer screening in the European Union]] ===


'''Sponsor, manager or home institution:''' European Observatory on Health Systems and Policies; Eurohealth.
=== [[hasReport::Report:_Reducing_Social_Inequalities_in_Cancer:_Evidence_and_Priorities_for_Research_(European_Union)|Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research]] ===


'''Primary purpose:''' To examine and analyze the commercial determinants of cancer control policy and provide insights into how to govern them across the cancer continuum for the benefit of governments and the international community.
=== [[hasReport::Report:_Cancer_Care_for_the_LGBTQI+_Community:_Addressing_Inequalities_(European_Union)|Report: Cancer Care for the LGBTQI+ Community: Addressing Inequalities]] ===


'''Type of information:''' The dark side of the commercial determinants of cancer policy; Countering corporate tactics for better cancer prevention; The commercial drivers of cancer screening; Non-pharmaceutical technologies in cancer care; Commerical determinants of cancer medicines; Commercial and social determinants in palliative care; The role of governments and international agencies; Ethical questions surrounding the commercial determinants of health.
=== [[hasReport::Report:_Beating_Cancer_Inequalities_in_the_EU:_Spotlight_on_cancer_prevention_and_early_detection_(European_Union)|Report: Beating Cancer Inequalities in the EU: Spotlight on cancer prevention and early detection]] ===


'''Data level''': Global level.
=== [[hasPolicyData::Fact_sheet:_Alcohol_and_cancer_in_the_WHO_European_Region:_an_appeal_for_better_prevention_(European_Union)|Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention]] ===


'''Access to information:''' Access Information [https://eurohealthobservatory.who.int/publications/i/commercial-determinants-of-cancer-control-policy-%28eurohealth%29].
=== [[hasPolicyData::Fact_sheet:_Cancer_Factsheets_in_EU-27_countries_-_2022_(European_Union)|Fact sheet: Cancer Factsheets in EU-27 countries - 2022]] ===


=== [[hasReport::Report:_Europes_Beating_Cancer_Plan_(European_Union_-_wide_Resources)|Report: Europe's Beating Cancer Plan]] ===
=== [[hasGuide::Guide:_Screening_programmes:_a_short_guide._Increase_effectiveness,_maximize_benefits_and_minimize_harm_(European_Union)|Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm]] ===


'''Sponsor, manager or home institution:''' European Commission.
=== [[hasGuide::Guide:_Cancon_Guide_-_Improving_cancer_control_(European_Union)|Guide: Cancon Guide - Improving cancer control]] ===


'''Primary purpose:''' To provide a comprehensive overview of cancer-related policies and initiatives in Europe, aiming to address various aspects of cancer prevention, care, and research, while strengthening the European Health Union and enhancing EU preparedness and resilience.
=== [[hasInitiative::Initiatives:_The_European_Commission_Initiatives_on_Breast_(ECIBC)_and_Colorectal_Cancer_(ECICC)_(European_Union)|Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC)]] ===


'''Type of information:''' Introduction to a Cancer Plan for Europe; Modern Approaches to Cancer; Sustainable Cancer Prevention; Improving Early Detection of Cancer; Ensuring High Standards in Cancer Care; Improving the Quality of Life for Cancer Patients, Survivors, and Carers; Reducing Cancer Inequalities Across the EU; Childhood Cancer; Funding; International Collaboration and Coordination; Implementation and Governance.
=== [[hasPolicy::Screening:_Interactive_map_of_lung_cancer_screening_(European_Union)|Screening: Interactive map of lung cancer screening]] ===


'''Data level''': European level.
=== [[hasPolicy::Screening:EUCanScreen_(European_Union)|Screening: EUCanScreen]] ===


'''Access to information:''' Access Information [https://health.ec.europa.eu/system/files/2022-02/eu_cancer-plan_en_0.pdf].
</div>


=== [[hasReport::Report:_Cancer_Incidence_in_Five_Continents_(European_Union_-_wide_Resources)|Report: Cancer Incidence in Five Continents]] ===
== Cancer-related Patient Associations and Resources ==
 
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'''Sponsor, manager or home institution:''' The International Agency for Research on Cancer (IARC).
 
'''Primary purpose:''' Serves as a comprehensive resource for cancer researchers by compiling quinquennial data on incident cancers from high-quality registries worldwide.
 
'''Type of information:''' For European countries:  Major cancers incidence; No. cases by sex; Frequencie (%) by sex; Crude rate (per 100 000) by sex; Cum. rates; Age class; ASR world; ICD-10.
 
'''Data level''': Global level.
 
'''Access to information:''' Access Information [https://ci5.iarc.fr/CI5-XI/Default.aspx].
 
=== [[hasReport::Report:_Childhood_cancer_inequalities_in_the_WHO_European_Region_(European_Union_-_wide_Resources)|Report: Childhood cancer inequalities in the WHO European Region]] ===
 
'''Sponsor, manager or home institution:''' World Health Organization (WHO) Regional Office for Europe.
 
'''Primary purpose:''' To highlight and address inequalities in childhood cancer care across the WHO European Region by compiling evidence and making recommendations to improve the quality of care for children with cancer.
 
'''Type of information:''' The conceptual approach to childhood cancer inequalities;  Relevant factors and their magnitude; Inequalities across countries;  Main indicators; Universal health coverage across the cancer continuum; Gender as a cause of inequalities; Parental socioeconomic and education status as a driver of inequalities; Geographic causes of inequalities and the urban/rural divide; Other inequalities; Somatic late effects in children with cancer; Mental health and quality of life;  Impact of illness and treatment on schooling and other aspects of health and well-being; Effect of the child’s disease on the family; Reducing inequalities in childhood cancer between countries; Reducing inequalities in childhood cancer within countries; Reducing inequalities faced by survivors of childhood cancer; Global proportional distribution of cancer type by age group; Factors influencing childhood cancer inequalities; Leukaemia incidence and mortality; Estimated age-standardized mortality rates (world) in 2020; Mortality-to-incidence ratio; Proportion of childhood cancer patients living in urban and rural areas; Average number of days from diagnosis to first treatment.
 
'''Data level''': European level.
 
'''Access to information:''' Access Information [https://www.who.int/europe/publications/i/item/9789289057615].
 
=== [[hasReport::Report:_Cancer_Care:_Assuring_Quality_to_Improve_Survival_(European_Union_-_wide_Resources)|Report: Cancer Care: Assuring Quality to Improve Survival]]  ===
 
'''Sponsor, manager or home institution:''' OECD.
 
'''Primary purpose:''' To survey policy trends in cancer care, analyze survival rates, and provide recommendations for governments to improve cancer care quality and reduce the burden of cancer in their countries.
 
'''Type of information:''' Cancer care systems; Resources for cancer care; Cancer care practices; Governance of cancer care systems; Exploratory quantitative analysis; Policy recommendations; A list of experts on cancer care systems.
 
'''Data level''': European level.
 
'''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/cancer-care_9789264181052-en].
 
=== [[hasReport::Report:_Cancer_screening_in_the_European_Union_(European_Union_-_wide_Resources)|Report: Cancer screening in the European Union]] ===
 
'''Sponsor, manager or home institution:''' European Commission.


'''Primary purpose:''' To provide scientific advice on improving cancer screening across the EU.
=== [[hasPatientAssociation::Patient_Association:_European_Cancer_Patient_Coalition_(European_Union)|Patient Association: European Cancer Patient Coalition]] ===


'''Type of information:''' EU’s competence to act on cancer screening; The von der Leyen Commission; EU’s cancer screening initiatives; The evidence review report (ERR) by the Science Advice for Policy by European Academies consortium; Use of artificial intelligence and machine learning in cancer screening; Improving the participation in cancer screening; Making access to screening easy; Shared decision making; Recommendations.
=== [[hasPatientAssociation::Patient_Association:_Digestive_Cancers_Europe_(European_Union)|Patient Association: Digestive Cancers Europe]] ===


'''Data level''': European level.
=== [[hasPatientAssociation::Patient_Association:_EUROPA_UOMO_-_The_European_Prostate_Cancer_Coalition_(European_Union)|Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition]] ===


'''Access to information:''' Access Information [https://op.europa.eu/en/publication-detail/-/publication/519a9bf4-9f5b-11ec-83e1-01aa75ed71a1].
=== [[hasPatientAssociation::Patient_Association:_EUROPA_DONNA_-_European_Breast_Cancer_Coalition_(European_Union)|Patient Association: EUROPA DONNA - European Breast Cancer Coalition]] ===


=== [[hasReport::Report:_Reducing_Social_Inequalities_in_Cancer:_Evidence_and_Priorities_for_Research_(European_Union)|Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research]] ===
=== [[hasPatientAssociation::Patient_Association:_LuCE_-_Lung_Cancer_Europe_(European_Union)|Patient Association: LuCE - Lung Cancer Europe]] ===


'''Sponsor, manager or home institution:''' International Agency for Research on Cancer (IARC).
=== [[hasPatientAssociation::Patient_Association:_Acute_Leukemia_Advocates_Network_(ALAN)_(European_Union)|Patient Association: Acute Leukemia Advocates Network (ALAN)]] ===


'''Primary purpose:''' To summarize scientific evidence and identify research priorities for reducing social inequalities in cancer, with a focus on variations in incidence, survival, and mortality between countries and social groups, and to provide guidance for policymakers and public health officials on interventions to address these inequalities.
=== [[hasPatientAssociation::Patient_Association:_Childhood_Cancer_International_Europe_(European_Union)|Patient Association: Childhood Cancer International Europe]] ===


'''Type of information:''' The importance of social inequalities in the cancer continuum, methods for measuring socioeconomic status and inequalities, social inequalities in cancer between countries, with a focus on cancer survival and perspectives from Africa; Social inequalities in cancer within countries, including Indigenous populations, refugees, and disparities between racial populations in the USA; Social inequalities in cancer risk factors and access to healthcare, mechanisms and context underlying social inequalities in cancer, theoretical frameworks, income inequality, the role of health systems, economics, and the law in addressing cancer inequalities, understanding socioeconomic determinants and biological factors, tackling social inequalities in cancer, assessing the impact of public health interventions, research priorities in different regions, low-cost approaches, lessons from the AIDS response, technology's role, and the concept of the inverse care law.
=== [[hasPatientAssociation::Patient_Association:_ENGAGe_(European_Union)|Patient Association: ENGAGe]] ===


'''Data level''': Global level.
=== [[hasPatientAssociation::Patient_Association:_European_Liver_Patient_Association_(European_Union)|Patient Association: European Liver Patient Association]] ===


'''Access to information:''' Access Information [https://publications.iarc.fr/580].
=== [[hasPatientAssociation::Patient_Association:_International_Brain_Tumour_Alliance_(IBTA)_(European_Union)|Patient Association: International Brain Tumour Alliance (IBTA)]] ===


=== [[hasPolicyData::Fact_sheet:_Alcohol_and_cancer_in_the_WHO_European_Region:_an_appeal_for_better_prevention_(European_Union_-_wide_Resources)|Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention]] ===
=== [[hasPatientAssociation::Patient_Association:_International_Kidney_Cancer_Coalition_(IKCC)_(European_Union)|Patient Association: International Kidney Cancer Coalition (IKCC)]] ===


'''Sponsor, manager or home institution:''' WHO Regional Office for Europe.
=== [[hasPatientAssociation::Patient_Association:_International_Neuroendocrine_Cancer_Alliance_(European_Union)|Patient Association: International Neuroendocrine Cancer Alliance]] ===


'''Primary purpose:''' To provide information and policy options for reducing the alcohol-attributable cancer burden in the WHO European Region and to emphasize the effectiveness of cost-effective alcohol control policies in achieving this goal.
=== [[hasPatientAssociation::Patient_Association:_Lymphoma_Coalition_Europe_(European_Union)|Patient Association: Lymphoma Coalition Europe]] ===


'''Type of information:''' The incidence of alcohol-attributable cancers within the WHO European Region; Age-standardized rates of cancer cases in Europe caused by alcohol, per 100.000; Proportion of cancer deaths, per cancer type, that are attributable to alcohol, by sex; Cancer cases and deaths caused by alcohol in the WHO European Region, by sex and cancer site; Proportion of cancer cases due to alcohol in the WHO European Region, by cancer type and drinking level;  Number of new cancer cases that could have been prevented in 2018 by increasing alcohol excise tax in four European countries;  Which cancers are caused by alcohol; Is there a safe level of drinking?; The combined risk of using alcohol and tobacco; Policy options to reduce alcohol-attributable cancers.
=== [[hasPatientAssociation::Patient_Association:_Melanoma_Patient_Network_Europe_(Europen_Union)|Patient Association: Melanoma Patient Network Europe]] ===


'''Data level''': European level.
=== [[hasPatientAssociation::Patient_Association:_Myeloma_Patients_Europe_(MPE)_(European_Union)|Patient Association: Myeloma Patients Europe (MPE)]] ===


'''Access to information:''' Access Information [https://www.who.int/europe/publications/i/item/WHO-EURO-2020-1435-41185-56004].
=== [[hasPatientAssociation::Patient_Association:_Pancreatic_Cancer_Europe_(European_Union)|Patient Association: Pancreatic Cancer Europe]] ===


=== [[hasGuide::Guide:_Screening_programmes:_a_short_guide._Increase_effectiveness,_maximize_benefits_and_minimize_harm_(European_Union_-_wide_Resources)|Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm]] ===
=== [[hasPatientAssociation::Patient_Association:_Sarcoma_Patient_Advocacy_Global_Network_(European_Union)|Patient Association: Sarcoma Patient Advocacy Global Network]] ===


'''Sponsor, manager or home institution:''' WHO Regional Office for Europe.
=== [[hasPatientAssociation::Patient_Association:_World_Bladder_Cancer_Patient_Coalition_(European_Union)|Patient Association: World Bladder Cancer Patient Coalition]] ===


'''Primary purpose:''' To provide guidance to policy-makers and public health leads in the WHO European Region on planning, designing, and implementing effective screening programs while considering evidence-based decision-making, quality assurance, and minimizing potential harm, costs, and burdens on the healthcare system.
=== [[hasPatientAssociation::Patient_Association:_Youth_Cancer_Europe_(European_Union)|Patient Association: Youth Cancer Europe]] ===


'''Type of information:''' Aims of screening programmes; Wilson & Jungner’s principles of screening; Screening programmes as pathways; Understanding how screening tests work in practice; Benefits and harm of screening; Balancing benefits and harm; Deciding whether to start or stop a screening programme; Designing effective screening programmes; Operational readiness; Operating a screening programme; Monitoring and evaluation.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (European Union)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Data level''': European level.
=== [[hasPatientResource::Resource:_EUropean_Cancer_Information_Portals_(EU-CiPs)_(European_Union)|Resource: EUropean Cancer Information Portals (EU-CiPs)]] ===


'''Access to information:''' Access Information [https://www.who.int/europe/publications/i/item/9789289054782].
=== [[hasPatientResource::Self-help_Group:_European_Youth_Cancer_Network_(European_Union)|Self-help Group: European Youth Cancer Network]] ===


=== [[hasInitiative::Initiatives:_The_European_Commission_Initiatives_on_Breast_(ECIBC)_and_Colorectal_Cancer_(ECICC)_(European_Union_-_wide_Resources)|Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC)]] ===
'''Sponsor, manager or home institution:''' European Commission.
'''Primary purpose:''' To enhance the quality and accessibility of breast and colorectal cancer prevention, screening, and care in Europe by developing evidence-based guidelines and a voluntary quality assurance scheme for these services.
'''Type of information:''' What is the initiatives; The Need for the Initiative; Beneficiaries; Implementation; European Cancer Guidelines;
Updating Strategy; European Quality Assurance Scheme; Requirements; Developing the Quality Assurance Scheme; Implementing the Quality Assurance Scheme; Additional Tools.
'''Data level''': European level.
'''Access to information:''' Access Information [https://healthcare-quality.jrc.ec.europa.eu/].
</div>
</div>


== Cancer-related Patient Associations and Resources ==
== Learning Resources ==
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=== [[hasPatientAssociation::Patient_Association:_European_Cancer_Patient_Coalition_(European_Union_-_wide_Resources)|Patient Association: European Cancer Patient Coalition]] ===
=== [[hasTraining::Training: OECI Academy (European Union)|Training: OECI Academy]] ===
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'''Primary purpose:''' To empower European cancer organizations and patients, foster cooperation, influence cancer-related policies, remain vigilant on emerging topics, and advocate for patient-centricity in cancer research to ensure equality in access to cancer treatment and care.
__NOTOC__
 
<span style="display:none">hasDatabase::Database:_European_Network_of_Centres_for_Pharmacoepidemiology_and_Pharmacovigilance_(European_Union)|Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance</span>
'''Contact information:''' Contact information [https://ecpc.org/contact/].
<span style="display:none">hasDatabase::Compilation:_Eurostat_(European_Union)|Compilation: Eurostat</span>
 
<span style="display:none">hasDatabase::Database:_OECD_Health_Statistics_(European_Union)|Database: OECD Health Statistics</span>
=== [[hasPatientAssociation::Patient_Association:_Digestive_Cancers_Europe_(European_Union_-_wide_Resources)|Patient Association: Digestive Cancers Europe]] ===
<span style="display:none">hasDatabase::Database: European Health for All database (HFA-DB) (European_Union)|Database: European Health for All database (HFA-DB)</span>
 
<span style="display:none">hasDatabase::Database: European mortality database (MDB) (European Union)|Database: European mortality database (MDB)</span>
'''Primary purpose:''' To improve early diagnosis, decrease mortality, and enhance overall survival and quality of life for patients with digestive cancers through a collaborative European network.
<span style="display:none">hasDatabase::Database:_Cancer_Incidence_in_Five_Continents_(European_Union)|Database: Cancer Incidence in Five Continents</span>
 
<span style="display:none">hasDatabase::Database:_European_Cancer_Information_System_(ECIS)_(European_Union)|Database: European Cancer Information System (ECIS)</span>
'''Contact information:''' Information [https://digestivecancers.eu/contact-us/].
<span style="display:none">hasDatabase::Database: EUROCARE (European Union) | Database: EUROCARE</span>
 
<span style="display:none">hasDatabase::Database:_NordScreen_(European_Union)|Database: NordScreen</span>
=== [[hasPatientAssociation::Patient_Association:_EUROPA_UOMO_-_The_European_Prostate_Cancer_Coalition_(European_Union_-_wide_Resources)|Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition]] ===
<span style="display:none">hasDatabase::Database:_NORDCAN_(European_Union)|Database: NORDCAN</span>
 
<span style="display:none">hasDatabase::Registry:_ECIR_-_European_Cancer_Inequalities_Registry_(European_Union)|Registry: ECIR - European Cancer Inequalities Registry</span>
'''Primary purpose:''' To advocate for prostate cancer patients across Europe, striving to enhance diagnosis, treatment, support, quality of life, research, and policy influence while fostering collaboration with healthcare professionals and member organizations.
<span style="display:none">hasDatabase::Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)|Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)</span>
 
<span style="display:none">hasDatabase::Database: Global Burden of Disease Study 2019 (European Union)| Database: Global Burden of Disease Study 2019</span>
'''Contact information:''' Information [https://www.europa-uomo.org/contact/].
<span style="display:none">hasDatabase::Compilation: European Federation for Cancer Images (EUCAIM) (European Union)|Compilation: European Federation for Cancer Images (EUCAIM)</span>
 
<span style="display:none">hasDatabase::Compilation: European Genome-phenome Archive (EGA) (European Union)|Compilation: European Genome-phenome Archive (EGA)</span>
=== [[hasPatientAssociation::Patient_Association:_EUROPA_DONNA_-_European_Breast_Cancer_Coalition_(European_Union_-_wide_Resources)|Patient Association: EUROPA DONNA - European Breast Cancer Coalition]] ===
<span style="display:none">hasDatabase::SHARE_-_Survey_of_Health,_Ageing_and_Retirement_in_Europe_(European_Union)|SHARE - Survey of Health, Ageing and Retirement in Europe</span>
 
<span style="display:none">hasDatabase::European_Health_Interview_Survey_(EHIS)_(European_Union)|European Health Interview Survey (EHIS)</span>
'''Primary purpose:''' To advocate for women in Europe by raising awareness of breast cancer, promoting education, advocating for screening, treatment, and research funding to improve breast cancer outcomes.
<span style="display:none">hasDatabase::Compilation: BBMRI-ERIC (European Union)|Compilation: BBMRI-ERIC</span>
 
<span style="display:none">hasDatabase::Compilation: CanServ Services (European Union)|Compilation: CanServ Services</span>
'''Contact information:''' Information [https://www.europadonna.org/].
<span style="display:none">hasDatabase::Compilation: Euro-BioImaging ERIC (European Union)|Compilation: Euro-BioImaging ERIC</span>
 
<span style="display:none">hasDatabase::Compilation: EMBL-EBI Databases and Resources (European Union)|Compilation: EMBL-EBI Databases and Resources</span>
=== [[hasPatientAssociation::Patient_Association:_LuCE_-_Lung_Cancer_Europe_(European_Union_-_wide_Resources)|Patient Association: LuCE - Lung Cancer Europe]] ===
<span style="display:none">hasDatabase::Database: IntoGen (European Union)|Database: IntoGen</span>
 
<span style="display:none">hasDatabase::EHR:_THIN_Database_(European_Union)|EHR: THIN Database</span>
'''Primary purpose:''' To be the voice of Europeans impacted by lung cancer, collaborating with members and stakeholders to destigmatize the disease, ensure access to optimal care, and empower lung cancer patient advocacy across Europe.
<span style="display:none">hasClinicalGuidelines::Compilation:_ESMO_Guidelines_(European_Union)|Compilation: ESMO Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_ESTRO_Guidelines_(European_Union)|Compilation: ESTRO Guidelines</span>
'''Contact information:''' Information [https://www.lungcancereurope.eu/contact-us/].
<span style="display:none">hasClinicalGuidelines::Compilation:_EUSOMA_Guidelines_(European_Union)|Compilation: EUSOMA Guidelines</span>
</div>
<span style="display:none">hasClinicalGuidelines::European_guidelines_on_colorectal_cancer_screening_and_diagnosis_(European_Union)|European guidelines on colorectal cancer screening and diagnosis</span>
<span style="display:none">hasClinicalGuidelines::2022_ESC_Guidelines_on_cardio-oncology_(European_Union)|2022 ESC Guidelines on cardio-oncology</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_Genetic_Tumour_Risk_Syndromes_Guidelines_(European_Union)|Compilation: Genetic Tumour Risk Syndromes Guidelines</span>
<span style="display:none">hasPolicyData::Data_Tool:_European_Core_Health_Indicators_(ECHI)_(European_Union)|Data Tool: European Core Health Indicators (ECHI)</span>
<span style="display:none">hasReport::Report: OECD EU Country Cancer Profile (European Union)|Report: OECD EU Country Cancer Profile</span>
<span style="display:none">hasReport::Report: WHO Cancer Country Profile (European Union)|Report: WHO Cancer Country Profile</span>
<span style="display:none">hasReport::Report:_Commercial_determinants_of_cancer_control_policy_(Eurohealth)_(European_Union)|Report: Commercial determinants of cancer control policy (Eurohealth)</span>
<span style="display:none">hasReport::Report:_Europes_Beating_Cancer_Plan_(European_Union)|Report: Europe's Beating Cancer Plan</span>
<span style="display:none">hasReport::Report:_Childhood_cancer_inequalities_in_the_WHO_European_Region_(European_Union)|Report: Childhood cancer inequalities in the WHO European Region</span>
<span style="display:none">hasReport::Report:_Cancer_Care:_Assuring_Quality_to_Improve_Survival_(European_Union)|Report: Cancer Care: Assuring Quality to Improve Survival</span>
<span style="display:none">hasReport::Report:_Cancer_screening_in_the_European_Union_(European_Union)|Report: Cancer screening in the European Union</span>
<span style="display:none">hasReport::Report:_Reducing_Social_Inequalities_in_Cancer:_Evidence_and_Priorities_for_Research_(European_Union)|Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research</span>
<span style="display:none">hasReport::Report:_Cancer_Care_for_the_LGBTQI+_Community:_Addressing_Inequalities_(European_Union)|Report: Cancer Care for the LGBTQI+ Community: Addressing Inequalities</span>
<span style="display:none">hasPolicyData::Fact_sheet:_Alcohol_and_cancer_in_the_WHO_European_Region:_an_appeal_for_better_prevention_(European_Union)|Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention</span>
<span style="display:none">hasGuide::Guide:_Screening_programmes:_a_short_guide._Increase_effectiveness,_maximize_benefits_and_minimize_harm_(European_Union)|Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm</span>
<span style="display:none">hasGuide::Guide:_Cancon_Guide_-_Improving_cancer_control_(European_Union)|Guide: Cancon Guide - Improving cancer control</span>
<span style="display:none">hasInitiative::Initiatives:_The_European_Commission_Initiatives_on_Breast_(ECIBC)_and_Colorectal_Cancer_(ECICC)_(European_Union)|Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC)</span>
<span style="display:none">hasPolicy::Screening:_Interactive_map_of_lung_cancer_screening_(European_Union)|Screening: Interactive map of lung cancer screening</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_European_Cancer_Patient_Coalition_(European_Union)|Patient Association: European Cancer Patient Coalition</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Digestive_Cancers_Europe_(European_Union)|Patient Association: Digestive Cancers Europe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_EUROPA_UOMO_-_The_European_Prostate_Cancer_Coalition_(European_Union)|Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_EUROPA_DONNA_-_European_Breast_Cancer_Coalition_(European_Union)|Patient Association: EUROPA DONNA - European Breast Cancer Coalition</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_LuCE_-_Lung_Cancer_Europe_(European_Union)|Patient Association: LuCE - Lung Cancer Europe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Acute_Leukemia_Advocates_Network_(ALAN)_(European_Union)|Patient Association: Acute Leukemia Advocates Network (ALAN)</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Childhood_Cancer_International_Europe_(European_Union)|Patient Association: Childhood Cancer International Europe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_ENGAGe_(European_Union)|Patient Association: ENGAGe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_European_Liver_Patient_Association_(European_Union)|Patient Association: European Liver Patient Association</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_International_Brain_Tumour_Alliance_(IBTA)_(European_Union)|Patient Association: International Brain Tumour Alliance (IBTA)</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_International_Kidney_Cancer_Coalition_(IKCC)_(European_Union)|Patient Association: International Kidney Cancer Coalition (IKCC)</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_International_Neuroendocrine_Cancer_Alliance_(European_Union)|Patient Association: International Neuroendocrine Cancer Alliance</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Lymphoma_Coalition_Europe_(European_Union)|Patient Association: Lymphoma Coalition Europe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Melanoma_Patient_Network_Europe_(Europen_Union)|Patient Association: Melanoma Patient Network Europe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Myeloma_Patients_Europe_(MPE)_(European_Union)|Patient Association: Myeloma Patients Europe (MPE)</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Pancreatic_Cancer_Europe_(European_Union)|Patient Association: Pancreatic Cancer Europe</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Sarcoma_Patient_Advocacy_Global_Network_(European_Union)|Patient Association: Sarcoma Patient Advocacy Global Network</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_World_Bladder_Cancer_Patient_Coalition_(European_Union)|Patient Association: World Bladder Cancer Patient Coalition</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Youth_Cancer_Europe_(European_Union)|Patient Association: Youth Cancer Europe</span>
<span style="display:none">hasDatabase::Compilation:_Eurostat_(European_Union)|Compilation: Database: Eurostat</span>
<span style="display:none">hasDatabase::Registry:_ECIR_-_European_Cancer_Inequalities_Registry_(European_Union)|Database: ECIR - European Cancer Inequalities Registry</span>
<span style="display:none">hasDatabase::Compilation: European Federation for Cancer Images (EUCAIM) (European Union)|Compilation: Database: European Federation for Cancer Images (EUCAIM)</span>
<span style="display:none">hasDatabase::Compilation: European Genome-phenome Archive (EGA) (European Union)|Compilation: Database: European Genome-phenome Archive (EGA)</span>
<span style="display:none">hasDatabase::Compilation: BBMRI-ERIC (European Union)|Compilation: Database: BBMRI-ERIC</span>
<span style="display:none">hasDatabase::Compilation: CanServ Services (European Union)|Compilation: Database: CanServ Services</span>
<span style="display:none">hasDatabase::Compilation: Euro-BioImaging ERIC (European Union)|Compilation: Database: Euro-BioImaging ERIC</span>
<span style="display:none">hasDatabase::Compilation: EMBL-EBI Databases and Resources (European Union)|Compilation: Database: EMBL-EBI Databases and Resources</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_ESMO_Guidelines_(European_Union)|Compilation: Guidelines: ESMO Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_ESTRO_Guidelines_(European_Union)|Compilation: Guidelines: ESTRO Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_EUSOMA_Guidelines_(European_Union)|Compilation: Guidelines: EUSOMA Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_Genetic_Tumour_Risk_Syndromes_Guidelines_(European_Union)|Compilation: Guidelines: Genetic Tumour Risk Syndromes Guidelines</span>
<span style="display:none">hasDatabase::Database: Eurostat Compilation (European Union)|Database: Eurostat Compilation</span>
<span style="display:none">hasDatabase::Database: European Federation for Cancer Images (EUCAIM) Compilation (European Union)|Database: European Federation for Cancer Images (EUCAIM) Compilation</span>
<span style="display:none">hasDatabase::Database: European Genome-phenome Archive (EGA) Compilation (European Union)|Database: European Genome-phenome Archive (EGA) Compilation</span>
<span style="display:none">hasDatabase::Database: BBMRI-ERIC Compilation (European Union)|Database: BBMRI-ERIC Compilation</span>
<span style="display:none">hasDatabase::Database: CanServ Services Compilation (European Union)|Database: CanServ Services Compilation</span>
<span style="display:none">hasDatabase::Database: Euro-BioImaging ERIC Compilation (European Union)|Database: Euro-BioImaging ERIC Compilation</span>
<span style="display:none">hasDatabase::Database: EMBL-EBI Databases and Resources Compilation (European Union)|Database: EMBL-EBI Databases and Resources Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: ESMO Guidelines Compilation (European Union)|Guidelines: ESMO Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: ESTRO Guidelines Compilation (European Union)|Guidelines: ESTRO Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: EUSOMA Guidelines Compilation (European Union)|Guidelines: EUSOMA Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::European_guidelines_on_colorectal_cancer_screening_and_diagnosis_(European_Union)|Guidelines: European guidelines on colorectal cancer screening and diagnosis</span>
<span style="display:none">hasClinicalGuidelines::2022_ESC_Guidelines_on_cardio-oncology_(European_Union)|Guidelines: 2022 ESC Guidelines on cardio-oncology</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation (European Union)|Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>
<span style="display:none">hasTraining::Training: OECI Academy (European Union)|Training: OECI Academy</span>

Latest revision as of 18:04, 28 January 2026

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Administrative or Claims Data[edit | edit source]

Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance[edit | edit source]

Registries[edit | edit source]

Database: Eurostat Compilation[edit | edit source]

Database: OECD Health Statistics[edit | edit source]

Database: European Health for All database (HFA-DB)[edit | edit source]

Database: European mortality database (MDB)[edit | edit source]

Database: Cancer Incidence in Five Continents[edit | edit source]

Database: European Cancer Information System (ECIS)[edit | edit source]

Database: EUROCARE[edit | edit source]

Database: NordScreen[edit | edit source]

Database: NORDCAN[edit | edit source]

Database: ECIR - European Cancer Inequalities Registry[edit | edit source]

Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)[edit | edit source]

Database: Global Burden of Disease Study 2019[edit | edit source]

Database: European Federation for Cancer Images (EUCAIM) Compilation[edit | edit source]

Database: European Genome-phenome Archive (EGA) Compilation[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

SHARE - Survey of Health, Ageing and Retirement in Europe[edit | edit source]

European Health Interview Survey (EHIS)[edit | edit source]

Database: BBMRI-ERIC Compilation[edit | edit source]

Database: CanServ Services Compilation[edit | edit source]

Database: Euro-BioImaging ERIC Compilation[edit | edit source]

Database: EMBL-EBI Databases and Resources Compilation[edit | edit source]

Database: IntoGen[edit | edit source]

Database: European Organisation for Research and Treatment of Cancer (EORTC) Compilation[edit | edit source]

Database: European Genome‑phenome Archive (EGA) Compilation[edit | edit source]

Electronic Health Records[edit | edit source]

EHR: THIN Database[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: ESMO Guidelines Compilation[edit | edit source]

Guidelines: ESTRO Guidelines Compilation[edit | edit source]

Guidelines: EUSOMA Guidelines Compilation[edit | edit source]

Guidelines: European guidelines on colorectal cancer screening and diagnosis[edit | edit source]

Guidelines: 2022 ESC Guidelines on cardio-oncology[edit | edit source]

Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Data Tool: European Core Health Indicators (ECHI)[edit | edit source]

Report: OECD EU Country Cancer Profile[edit | edit source]

Report: WHO Cancer Country Profile[edit | edit source]

Report: Commercial determinants of cancer control policy (Eurohealth)[edit | edit source]

Report: Europe's Beating Cancer Plan[edit | edit source]

Report: Childhood cancer inequalities in the WHO European Region[edit | edit source]

Report: Cancer Care: Assuring Quality to Improve Survival[edit | edit source]

Report: Cancer screening in the European Union[edit | edit source]

Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research[edit | edit source]

Report: Cancer Care for the LGBTQI+ Community: Addressing Inequalities[edit | edit source]

Report: Beating Cancer Inequalities in the EU: Spotlight on cancer prevention and early detection[edit | edit source]

Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention[edit | edit source]

Fact sheet: Cancer Factsheets in EU-27 countries - 2022[edit | edit source]

Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm[edit | edit source]

Guide: Cancon Guide - Improving cancer control[edit | edit source]

Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC)[edit | edit source]

Screening: Interactive map of lung cancer screening[edit | edit source]

Screening: EUCanScreen[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: European Cancer Patient Coalition[edit | edit source]

Patient Association: Digestive Cancers Europe[edit | edit source]

Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition[edit | edit source]

Patient Association: EUROPA DONNA - European Breast Cancer Coalition[edit | edit source]

Patient Association: LuCE - Lung Cancer Europe[edit | edit source]

Patient Association: Acute Leukemia Advocates Network (ALAN)[edit | edit source]

Patient Association: Childhood Cancer International Europe[edit | edit source]

Patient Association: ENGAGe[edit | edit source]

Patient Association: European Liver Patient Association[edit | edit source]

Patient Association: International Brain Tumour Alliance (IBTA)[edit | edit source]

Patient Association: International Kidney Cancer Coalition (IKCC)[edit | edit source]

Patient Association: International Neuroendocrine Cancer Alliance[edit | edit source]

Patient Association: Lymphoma Coalition Europe[edit | edit source]

Patient Association: Melanoma Patient Network Europe[edit | edit source]

Patient Association: Myeloma Patients Europe (MPE)[edit | edit source]

Patient Association: Pancreatic Cancer Europe[edit | edit source]

Patient Association: Sarcoma Patient Advocacy Global Network[edit | edit source]

Patient Association: World Bladder Cancer Patient Coalition[edit | edit source]

Patient Association: Youth Cancer Europe[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Resource: EUropean Cancer Information Portals (EU-CiPs)[edit | edit source]

Self-help Group: European Youth Cancer Network[edit | edit source]

Learning Resources[edit | edit source]

Training: OECI Academy[edit | edit source]


hasDatabase::Database:_European_Network_of_Centres_for_Pharmacoepidemiology_and_Pharmacovigilance_(European_Union)|Database: European Network of Centres for Pharmacoepidemiology and Pharmacovigilance hasDatabase::Compilation:_Eurostat_(European_Union)|Compilation: Eurostat hasDatabase::Database:_OECD_Health_Statistics_(European_Union)|Database: OECD Health Statistics hasDatabase::Database: European Health for All database (HFA-DB) (European_Union)|Database: European Health for All database (HFA-DB) hasDatabase::Database: European mortality database (MDB) (European Union)|Database: European mortality database (MDB) hasDatabase::Database:_Cancer_Incidence_in_Five_Continents_(European_Union)|Database: Cancer Incidence in Five Continents hasDatabase::Database:_European_Cancer_Information_System_(ECIS)_(European_Union)|Database: European Cancer Information System (ECIS) hasDatabase::Database: EUROCARE (European Union) | Database: EUROCARE hasDatabase::Database:_NordScreen_(European_Union)|Database: NordScreen hasDatabase::Database:_NORDCAN_(European_Union)|Database: NORDCAN hasDatabase::Registry:_ECIR_-_European_Cancer_Inequalities_Registry_(European_Union)|Registry: ECIR - European Cancer Inequalities Registry hasDatabase::Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe)|Database: European Prospective Investigation into Cancer and Nutrition (EPIC-Europe) hasDatabase::Database: Global Burden of Disease Study 2019 (European Union)| Database: Global Burden of Disease Study 2019 hasDatabase::Compilation: European Federation for Cancer Images (EUCAIM) (European Union)|Compilation: European Federation for Cancer Images (EUCAIM) hasDatabase::Compilation: European Genome-phenome Archive (EGA) (European Union)|Compilation: European Genome-phenome Archive (EGA) hasDatabase::SHARE_-_Survey_of_Health,_Ageing_and_Retirement_in_Europe_(European_Union)|SHARE - Survey of Health, Ageing and Retirement in Europe hasDatabase::European_Health_Interview_Survey_(EHIS)_(European_Union)|European Health Interview Survey (EHIS) hasDatabase::Compilation: BBMRI-ERIC (European Union)|Compilation: BBMRI-ERIC hasDatabase::Compilation: CanServ Services (European Union)|Compilation: CanServ Services hasDatabase::Compilation: Euro-BioImaging ERIC (European Union)|Compilation: Euro-BioImaging ERIC hasDatabase::Compilation: EMBL-EBI Databases and Resources (European Union)|Compilation: EMBL-EBI Databases and Resources hasDatabase::Database: IntoGen (European Union)|Database: IntoGen hasDatabase::EHR:_THIN_Database_(European_Union)|EHR: THIN Database hasClinicalGuidelines::Compilation:_ESMO_Guidelines_(European_Union)|Compilation: ESMO Guidelines hasClinicalGuidelines::Compilation:_ESTRO_Guidelines_(European_Union)|Compilation: ESTRO Guidelines hasClinicalGuidelines::Compilation:_EUSOMA_Guidelines_(European_Union)|Compilation: EUSOMA Guidelines hasClinicalGuidelines::European_guidelines_on_colorectal_cancer_screening_and_diagnosis_(European_Union)|European guidelines on colorectal cancer screening and diagnosis hasClinicalGuidelines::2022_ESC_Guidelines_on_cardio-oncology_(European_Union)|2022 ESC Guidelines on cardio-oncology hasClinicalGuidelines::Compilation:_Genetic_Tumour_Risk_Syndromes_Guidelines_(European_Union)|Compilation: Genetic Tumour Risk Syndromes Guidelines hasPolicyData::Data_Tool:_European_Core_Health_Indicators_(ECHI)_(European_Union)|Data Tool: European Core Health Indicators (ECHI) hasReport::Report: OECD EU Country Cancer Profile (European Union)|Report: OECD EU Country Cancer Profile hasReport::Report: WHO Cancer Country Profile (European Union)|Report: WHO Cancer Country Profile hasReport::Report:_Commercial_determinants_of_cancer_control_policy_(Eurohealth)_(European_Union)|Report: Commercial determinants of cancer control policy (Eurohealth) hasReport::Report:_Europes_Beating_Cancer_Plan_(European_Union)|Report: Europe's Beating Cancer Plan hasReport::Report:_Childhood_cancer_inequalities_in_the_WHO_European_Region_(European_Union)|Report: Childhood cancer inequalities in the WHO European Region hasReport::Report:_Cancer_Care:_Assuring_Quality_to_Improve_Survival_(European_Union)|Report: Cancer Care: Assuring Quality to Improve Survival hasReport::Report:_Cancer_screening_in_the_European_Union_(European_Union)|Report: Cancer screening in the European Union hasReport::Report:_Reducing_Social_Inequalities_in_Cancer:_Evidence_and_Priorities_for_Research_(European_Union)|Report: Reducing Social Inequalities in Cancer: Evidence and Priorities for Research hasReport::Report:_Cancer_Care_for_the_LGBTQI+_Community:_Addressing_Inequalities_(European_Union)|Report: Cancer Care for the LGBTQI+ Community: Addressing Inequalities hasPolicyData::Fact_sheet:_Alcohol_and_cancer_in_the_WHO_European_Region:_an_appeal_for_better_prevention_(European_Union)|Fact sheet: Alcohol and cancer in the WHO European Region: an appeal for better prevention hasGuide::Guide:_Screening_programmes:_a_short_guide._Increase_effectiveness,_maximize_benefits_and_minimize_harm_(European_Union)|Guide: Screening programmes: a short guide. Increase effectiveness, maximize benefits and minimize harm hasGuide::Guide:_Cancon_Guide_-_Improving_cancer_control_(European_Union)|Guide: Cancon Guide - Improving cancer control hasInitiative::Initiatives:_The_European_Commission_Initiatives_on_Breast_(ECIBC)_and_Colorectal_Cancer_(ECICC)_(European_Union)|Initiatives: The European Commission Initiatives on Breast (ECIBC) and Colorectal Cancer (ECICC) hasPolicy::Screening:_Interactive_map_of_lung_cancer_screening_(European_Union)|Screening: Interactive map of lung cancer screening hasPatientAssociation::Patient_Association:_European_Cancer_Patient_Coalition_(European_Union)|Patient Association: European Cancer Patient Coalition hasPatientAssociation::Patient_Association:_Digestive_Cancers_Europe_(European_Union)|Patient Association: Digestive Cancers Europe hasPatientAssociation::Patient_Association:_EUROPA_UOMO_-_The_European_Prostate_Cancer_Coalition_(European_Union)|Patient Association: EUROPA UOMO - The European Prostate Cancer Coalition hasPatientAssociation::Patient_Association:_EUROPA_DONNA_-_European_Breast_Cancer_Coalition_(European_Union)|Patient Association: EUROPA DONNA - European Breast Cancer Coalition hasPatientAssociation::Patient_Association:_LuCE_-_Lung_Cancer_Europe_(European_Union)|Patient Association: LuCE - Lung Cancer Europe hasPatientAssociation::Patient_Association:_Acute_Leukemia_Advocates_Network_(ALAN)_(European_Union)|Patient Association: Acute Leukemia Advocates Network (ALAN) hasPatientAssociation::Patient_Association:_Childhood_Cancer_International_Europe_(European_Union)|Patient Association: Childhood Cancer International Europe hasPatientAssociation::Patient_Association:_ENGAGe_(European_Union)|Patient Association: ENGAGe hasPatientAssociation::Patient_Association:_European_Liver_Patient_Association_(European_Union)|Patient Association: European Liver Patient Association hasPatientAssociation::Patient_Association:_International_Brain_Tumour_Alliance_(IBTA)_(European_Union)|Patient Association: International Brain Tumour Alliance (IBTA) hasPatientAssociation::Patient_Association:_International_Kidney_Cancer_Coalition_(IKCC)_(European_Union)|Patient Association: International Kidney Cancer Coalition (IKCC) hasPatientAssociation::Patient_Association:_International_Neuroendocrine_Cancer_Alliance_(European_Union)|Patient Association: International Neuroendocrine Cancer Alliance hasPatientAssociation::Patient_Association:_Lymphoma_Coalition_Europe_(European_Union)|Patient Association: Lymphoma Coalition Europe hasPatientAssociation::Patient_Association:_Melanoma_Patient_Network_Europe_(Europen_Union)|Patient Association: Melanoma Patient Network Europe hasPatientAssociation::Patient_Association:_Myeloma_Patients_Europe_(MPE)_(European_Union)|Patient Association: Myeloma Patients Europe (MPE) hasPatientAssociation::Patient_Association:_Pancreatic_Cancer_Europe_(European_Union)|Patient Association: Pancreatic Cancer Europe hasPatientAssociation::Patient_Association:_Sarcoma_Patient_Advocacy_Global_Network_(European_Union)|Patient Association: Sarcoma Patient Advocacy Global Network hasPatientAssociation::Patient_Association:_World_Bladder_Cancer_Patient_Coalition_(European_Union)|Patient Association: World Bladder Cancer Patient Coalition hasPatientAssociation::Patient_Association:_Youth_Cancer_Europe_(European_Union)|Patient Association: Youth Cancer Europe hasDatabase::Compilation:_Eurostat_(European_Union)|Compilation: Database: Eurostat hasDatabase::Registry:_ECIR_-_European_Cancer_Inequalities_Registry_(European_Union)|Database: ECIR - European Cancer Inequalities Registry hasDatabase::Compilation: European Federation for Cancer Images (EUCAIM) (European Union)|Compilation: Database: European Federation for Cancer Images (EUCAIM) hasDatabase::Compilation: European Genome-phenome Archive (EGA) (European Union)|Compilation: Database: European Genome-phenome Archive (EGA) hasDatabase::Compilation: BBMRI-ERIC (European Union)|Compilation: Database: BBMRI-ERIC hasDatabase::Compilation: CanServ Services (European Union)|Compilation: Database: CanServ Services hasDatabase::Compilation: Euro-BioImaging ERIC (European Union)|Compilation: Database: Euro-BioImaging ERIC hasDatabase::Compilation: EMBL-EBI Databases and Resources (European Union)|Compilation: Database: EMBL-EBI Databases and Resources hasClinicalGuidelines::Compilation:_ESMO_Guidelines_(European_Union)|Compilation: Guidelines: ESMO Guidelines hasClinicalGuidelines::Compilation:_ESTRO_Guidelines_(European_Union)|Compilation: Guidelines: ESTRO Guidelines hasClinicalGuidelines::Compilation:_EUSOMA_Guidelines_(European_Union)|Compilation: Guidelines: EUSOMA Guidelines hasClinicalGuidelines::Compilation:_Genetic_Tumour_Risk_Syndromes_Guidelines_(European_Union)|Compilation: Guidelines: Genetic Tumour Risk Syndromes Guidelines hasDatabase::Database: Eurostat Compilation (European Union)|Database: Eurostat Compilation hasDatabase::Database: European Federation for Cancer Images (EUCAIM) Compilation (European Union)|Database: European Federation for Cancer Images (EUCAIM) Compilation hasDatabase::Database: European Genome-phenome Archive (EGA) Compilation (European Union)|Database: European Genome-phenome Archive (EGA) Compilation hasDatabase::Database: BBMRI-ERIC Compilation (European Union)|Database: BBMRI-ERIC Compilation hasDatabase::Database: CanServ Services Compilation (European Union)|Database: CanServ Services Compilation hasDatabase::Database: Euro-BioImaging ERIC Compilation (European Union)|Database: Euro-BioImaging ERIC Compilation hasDatabase::Database: EMBL-EBI Databases and Resources Compilation (European Union)|Database: EMBL-EBI Databases and Resources Compilation hasClinicalGuidelines::Guidelines: ESMO Guidelines Compilation (European Union)|Guidelines: ESMO Guidelines Compilation hasClinicalGuidelines::Guidelines: ESTRO Guidelines Compilation (European Union)|Guidelines: ESTRO Guidelines Compilation hasClinicalGuidelines::Guidelines: EUSOMA Guidelines Compilation (European Union)|Guidelines: EUSOMA Guidelines Compilation hasClinicalGuidelines::European_guidelines_on_colorectal_cancer_screening_and_diagnosis_(European_Union)|Guidelines: European guidelines on colorectal cancer screening and diagnosis hasClinicalGuidelines::2022_ESC_Guidelines_on_cardio-oncology_(European_Union)|Guidelines: 2022 ESC Guidelines on cardio-oncology hasClinicalGuidelines::Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation (European Union)|Guidelines: Genetic Tumour Risk Syndromes Guidelines Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown hasTraining::Training: OECI Academy (European Union)|Training: OECI Academy

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