Database: Andmebaas Cancer Registry (Estonia): Difference between revisions

From Beacon
No edit summary
m (Update categories.)
 
(12 intermediate revisions by 4 users not shown)
Line 1: Line 1:
{{forresearchers}}
<span style="display:none">forresearchers</span> <span style="display:none">estoniacountry</span>
Go back to [[Estonia]] page.
Go back to [[Estonia]] page.
'''Type of database:''' [[databaseType::registry]].


'''Primary purpose:''' The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.
'''Primary purpose:''' The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.
Line 6: Line 8:
'''Sponsor, manager or home institution:''' [[dataOwner::The Health Statistics and Health Research Database]]; [[dataOwner::The National Institute for Health Development]].
'''Sponsor, manager or home institution:''' [[dataOwner::The Health Statistics and Health Research Database]]; [[dataOwner::The National Institute for Health Development]].


'''Type of information:''' [[hasDataDictionary::Data Dictionary: Andmebaas Cancer Registry]]. [https://www.tai.ee/et/statistika-ja-registrid/vahiregister Click here to learn more].
'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::diagnosis]]; [[hasVariable::primary tumour localization]]; [[hasVariable::tumour staging]]; [[hasVariable::medical procedures]]; [[hasVariable::place of residence]]; [[hasVariable::sex]]; [[hasVariable::age]]; [[hasVariable::causes of deaths]].
 
[[hasDataDictionary::Data Dictionary: Andmebaas Cancer Registry]].  
 
[https://www.tai.ee/et/statistika-ja-registrid/vahiregister Click here to learn more].


'''Available type of information:''' [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::age]], [[availableVariable::cancer incidence]], [[availableVariable::place of residence]]. [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Click here to learn more].
'''Available type of information:''' [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::age]], [[availableVariable::cancer incidence]], [[availableVariable::place of residence]]. [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Click here to learn more].
Line 23: Line 29:
'''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/PK10.px/ Click here to learn more].
'''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/PK10.px/ Click here to learn more].


'''Data access:''' [[dataAvailability::partially publicly available]]. [https://statistika.tai.ee/pxweb/en/Andmebaas/ Click here to access], go to "Morbidity" > "Malignant neoplasms". Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.tai.ee/et/statistika-ja-registrid/vahiregister click here to access]]].
'''Data access:''' [[dataAvailability::partially publicly available]]. [https://statistika.tai.ee/pxweb/en/Andmebaas/ Click here to access], go to "Morbidity" > "Malignant neoplasms". Data can be downloaded in the formats [[hasDownloadableData::XLSX]]; [[hasDownloadableData::CSV]]; [[hasDownloadableData::PX]]; [[hasDownloadableData::XML]]; [[hasDownloadableData::JPG]] and [[hasDownloadableData::JSON]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.tai.ee/et/statistika-ja-registrid/vahiregister click here to access]]].


'''Contact information:''' [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/04PahaloomulisedKasvajad/PKinfo_en.htm#kontakt Click here to access].
'''Contact information:''' [https://statistika.tai.ee/Resources/PX/Databases/Andmebaas/02Haigestumus/04PahaloomulisedKasvajad/PKinfo_en.htm#kontakt Click here to access].
<span style="display:none">Mouth</span>
<span style="display:none">Throat</span>
<span style="display:none">Oropharynx</span>
<span style="display:none">Nasopharynx</span>
<span style="display:none">Hypopharynx</span>
<span style="display:none">Larynx</span>
<span style="display:none">Salivary glands</span>
<span style="display:none">Lips</span>
<span style="display:none">Tonsils</span>
<span style="display:none">base of tongue</span>
<span style="display:none">Voice box</span>
<span style="display:none">Esophagus</span>
<span style="display:none">Stomach</span>
<span style="display:none">Small intestine</span>
<span style="display:none">Large intestine</span>
<span style="display:none">Colon</span>
<span style="display:none">Rectum</span>
<span style="display:none">Anus</span>
<span style="display:none">Liver</span>
<span style="display:none">Gallbladder</span>
<span style="display:none">Bile ducts</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Lung</span>
<span style="display:none">Trachea</span>
<span style="display:none">Bronchi</span>
<span style="display:none">Pleura</span>
<span style="display:none">Mediastinum</span>
<span style="display:none">Bone</span>
<span style="display:none">Cartilage</span>
<span style="display:none">Osteosarcoma</span>
<span style="display:none">Ewings sarcoma</span>
<span style="display:none">Skin</span>
<span style="display:none">Melanoma</span>
<span style="display:none">Scalp</span>
<span style="display:none">Lips</span>
<span style="display:none">Hands</span>
<span style="display:none">Feet</span>
<span style="display:none">Muscle</span>
<span style="display:none">Fat</span>
<span style="display:none">Tendon</span>
<span style="display:none">Ligament</span>
<span style="display:none">Blood vessels</span>
<span style="display:none">Connective tissue</span>
<span style="display:none">Sarcoma</span>
<span style="display:none">Angiosarcoma</span>
<span style="display:none">Liposarcoma</span>
<span style="display:none">Lobular</span>
<span style="display:none">Breast</span>
<span style="display:none">Nipple</span>
<span style="display:none">Areola</span>
<span style="display:none">Ductal</span>
<span style="display:none">Vulva</span>
<span style="display:none">Vagina</span>
<span style="display:none">Cervix</span>
<span style="display:none">Uterus</span>
<span style="display:none">Ovary</span>
<span style="display:none">Fallopian tubes</span>
<span style="display:none">Endometrium</span>
<span style="display:none">Prostate</span>
<span style="display:none">Testicles</span>
<span style="display:none">Penis</span>
<span style="display:none">Kidney</span>
<span style="display:none">Ureter</span>
<span style="display:none">Bladder</span>
<span style="display:none">Urethra</span>
<span style="display:none">Eye</span>
<span style="display:none">Brain</span>
<span style="display:none">Spinal cord</span>
<span style="display:none">Thyroid gland</span>
<span style="display:none">Parathyroid</span>
<span style="display:none">Adrenal glands</span>
<span style="display:none">Pituitary gland</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Thymus gland</span>
<span style="display:none">Peritoneum</span>
<span style="display:none">Pericardium</span>
<span style="display:none">Retroperitoneum</span>
<span style="display:none">Mesothelium</span>
<span style="display:none">Blood</span>
<span style="display:none">Bone marrow</span>
<span style="display:none">Lymph nodes</span>
<span style="display:none">Spleen</span>
<span style="display:none">Leukemia</span>
<span style="display:none">databaseType::registry</span>
<span style="display:none">dataOwner::The Health Statistics and Health Research Database</span>
<span style="display:none">dataOwner::The National Institute for Health Development</span>
<span style="display:none">databaseStructure::longitudinal</span>
<span style="display:none">hasVariable::diagnosis</span>
<span style="display:none">hasVariable::primary tumour localization</span>
<span style="display:none">hasVariable::tumour staging</span>
<span style="display:none">hasVariable::medical procedures</span>
<span style="display:none">hasVariable::place of residence</span>
<span style="display:none">hasVariable::sex</span>
<span style="display:none">hasVariable::age</span>
<span style="display:none">hasVariable::causes of deaths</span>
<span style="display:none">hasDataDictionary::Data Dictionary: Andmebaas Cancer Registry</span>
<span style="display:none">availableVariable::diagnosis</span>
<span style="display:none">availableVariable::sex</span>
<span style="display:none">availableVariable::age</span>
<span style="display:none">availableVariable::cancer incidence</span>
<span style="display:none">availableVariable::place of residence</span>
<span style="display:none">dataLevel::patient level</span>
<span style="display:none">availableDataLevel::regional level</span>
<span style="display:none">numberRecords::unknown</span>
<span style="display:none">dataStart::1968</span>
<span style="display:none">dataEnd::onwards</span>
<span style="display:none">dataAvailability::partially publicly available</span>
<span style="display:none">hasDownloadableData::XLSX</span>
<span style="display:none">hasDownloadableData::CSV</span>
<span style="display:none">hasDownloadableData::PX</span>
<span style="display:none">hasDownloadableData::XML</span>
<span style="display:none">hasDownloadableData::JPG</span>
<span style="display:none">hasDownloadableData::JSON</span>
<span style="display:none">hasDataAccessInstructions::[https://www.tai.ee/et/statistika-ja-registrid/vahiregister click here to access</span>
<span style="display:none">isDatabase</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">Head</span>
<span style="display:none">Neck</span>
<span style="display:none">Oral</span>
<span style="display:none">Oral cavity</span>
<span style="display:none">Pharynx</span>
<span style="display:none">Pharyngeal</span>
<span style="display:none">Tongue</span>
<span style="display:none">Lingual</span>
<span style="display:none">Nasal cavity</span>
<span style="display:none">Nasal</span>
<span style="display:none">Sinonasal</span>
<span style="display:none">Sinus</span>
<span style="display:none">Sinuses</span>
<span style="display:none">Paranasal sinuses</span>
<span style="display:none">Ear</span>
<span style="display:none">Mandible</span>
<span style="display:none">Maxilla</span>
<span style="display:none">Jaw</span>
<span style="display:none">Esophageal</span>
<span style="display:none">Gastric</span>
<span style="display:none">Intestinal</span>
<span style="display:none">Bowel</span>
<span style="display:none">Colorectal</span>
<span style="display:none">Appendix</span>
<span style="display:none">Appendiceal</span>
<span style="display:none">Duodenum</span>
<span style="display:none">Jejunum</span>
<span style="display:none">Ileum</span>
<span style="display:none">Anal</span>
<span style="display:none">Perianal</span>
<span style="display:none">Hepatic</span>
<span style="display:none">Biliary</span>
<span style="display:none">Hepatobiliary</span>
<span style="display:none">Pulmonary</span>
<span style="display:none">Thorax</span>
<span style="display:none">Thoracic</span>
<span style="display:none">Chest</span>
<span style="display:none">Mediastinal</span>
<span style="display:none">Pleural</span>
<span style="display:none">Cutaneous</span>
<span style="display:none">Dermal</span>
<span style="display:none">Epidermal</span>
<span style="display:none">Subcutaneous</span>
<span style="display:none">Skeletal</span>
<span style="display:none">Osseous</span>
<span style="display:none">Chondral</span>
<span style="display:none">Extremity</span>
<span style="display:none">Axilla</span>
<span style="display:none">Axillary</span>
<span style="display:none">Mammary</span>
<span style="display:none">Cervical</span>
<span style="display:none">Uterine</span>
<span style="display:none">Endometrial</span>
<span style="display:none">Ovarian</span>
<span style="display:none">Tubal</span>
<span style="display:none">Fallopian</span>
<span style="display:none">Vaginal</span>
<span style="display:none">Vulvar</span>
<span style="display:none">Adnexal</span>
<span style="display:none">Renal</span>
<span style="display:none">Urothelial</span>
<span style="display:none">Ureteral</span>
<span style="display:none">Urethral</span>
<span style="display:none">Prostatic</span>
<span style="display:none">Testicular</span>
<span style="display:none">Penile</span>
<span style="display:none">Ocular</span>
<span style="display:none">Orbital</span>
<span style="display:none">Retinal</span>
<span style="display:none">Optic nerve</span>
<span style="display:none">Meninges</span>
<span style="display:none">Meningeal</span>
<span style="display:none">Cerebral</span>
<span style="display:none">Cerebellar</span>
<span style="display:none">Brainstem</span>
<span style="display:none">Lymphatic</span>
<span style="display:none">Lymphoid</span>
<span style="display:none">Lymphoma</span>
<span style="display:none">Hematologic</span>
<span style="display:none">Hematopoietic</span>
<span style="display:none">Myeloma</span>
<span style="display:none">Plasma cell</span>
<span style="display:none">Diaphragm</span>
<span style="display:none">Peripheral nerve</span>
<span style="display:none">Heart</span>
<span style="display:none">Cardiac</span>
<span style="display:none">Endocrine</span>

Latest revision as of 11:56, 14 December 2025

forresearchers estoniacountry Go back to Estonia page.

Type of database: registry.

Primary purpose: The main task of the cancer registry is to ensure the most complete and reliable registration of cancer cases.

Sponsor, manager or home institution: The Health Statistics and Health Research Database; The National Institute for Health Development.

Type of information: longitudinal. diagnosis; primary tumour localization; tumour staging; medical procedures; place of residence; sex; age; causes of deaths.

Data Dictionary: Andmebaas Cancer Registry.

Click here to learn more.

Available type of information: diagnosis, sex, age, cancer incidence, place of residence. Click here to learn more.

Source of Information: Data is updated from the Estonian population register (personal data, including time of leaving the country) from the register of causes of death (death data, including the cause of death). Reporting cancer cases is mandatory for all doctors working in Estonia who diagnose or treat cancer. Forensic experts also submit data to the register.

Data level: patient level.

Available data level: regional level.

Number of Records: unknown.

Date range: 1968 onwards.

Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.

Data access: partially publicly available. Click here to access, go to "Morbidity" > "Malignant neoplasms". Data can be downloaded in the formats XLSX; CSV; PX; XML; JPG and JSON. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::The Health Statistics and Health Research Database dataOwner::The National Institute for Health Development databaseStructure::longitudinal hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour staging hasVariable::medical procedures hasVariable::place of residence hasVariable::sex hasVariable::age hasVariable::causes of deaths hasDataDictionary::Data Dictionary: Andmebaas Cancer Registry availableVariable::diagnosis availableVariable::sex availableVariable::age availableVariable::cancer incidence availableVariable::place of residence dataLevel::patient level availableDataLevel::regional level numberRecords::unknown dataStart::1968 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::XLSX hasDownloadableData::CSV hasDownloadableData::PX hasDownloadableData::XML hasDownloadableData::JPG hasDownloadableData::JSON hasDataAccessInstructions::[https://www.tai.ee/et/statistika-ja-registrid/vahiregister click here to access isDatabase hasCancerType::C00-C97: All cancer types hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine