Belgium: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">belgiumcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
== Cancer Centers ==
== Cancer Centers ==
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== [[Healthcare System]] ==
[[hasCancerCenter::Institut Jules Bordet]]
 
Belgium's healthcare system is a compulsory, social health insurance system. It operates under a model that combines both public and private sectors, with a blend of universal coverage and income-based premiums.
 
The system is managed by the Ministry of Health at the national level, composed of the Federal Public Service for Health, Food Chain Safety, and Environment, and by regional governments in Flanders, Wallonia, and Brussels-Capital. Health insurance funds, known as "mutualities," are responsible for the management of the social health insurance system.
 
The Belgian population receives a wide range of healthcare benefits through the system, including primary care, specialist care, hospital care, mental health services, dental care, maternity care, rehabilitation services, and prescription medications. Preventive care and health promotion services are also provided. There is no gatekeeping system in place.
 
All Belgian residents are required to join a health insurance fund, which is typically linked to their employment or their family's employment. Access to healthcare benefits is granted upon registration with a health insurance fund, and coverage extends to dependents as well. The system is funded by income-based contributions from employees, employers, and the government, ensuring comprehensive coverage for all citizens.
 
Belgium has implemented a nationwide electronic health record (EHR) system called eHealth. This platform securely centralizes patients' medical records, allowing healthcare providers to access and update relevant information. Data from insurance claims, registries, and other sources is also collected and stored in the eHealth system, which aims to improve the overall efficiency and quality of care while maintaining patient privacy.
 
== [[Administrative or Claims Data]] ==
 
=== Database: AIM-IMA Healthcare Data ===
 
'''Sponsor, manager or home institution:''' AIM-IMA.
 
'''Primary purpose:''' To store information on health care services provided to members of Belgium's seven health insurance funds under compulsory health insurance.
 
'''Type of information:''' [[Data Dictionary: AIM-IMA Healthcare Data]]. More information about the database can be found [https://metadata.ima-aim.be/fr/app/bdds/Gz here].
 
'''Source of Information:''' Health insurance fund records.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 99% of the population of Belgium.
 
'''Date Range:''' Unknown.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://atlas.aim-ima.be/base-de-donnees/?rw=1&lang=fr here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.ima-aim.be/Contact here].
 
=== Database: AIM-IMA Pharmanet ===
 
'''Sponsor, manager or home institution:''' AIM-IMA.
 
'''Primary purpose:''' To store information on reimbursed drugs and medical devices dispensed in Belgian public pharmacies for members of the seven health insurance funds.
 
'''Type of information:''' [[Data Dictionary: AIM-IMA Pharmanet]]. More information about the database can be found [https://metadata.ima-aim.be/fr/app/bdds/Fu here].
 
'''Source of Information:''' Health insurance fund records.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 99% of the population of Belgium.
 
'''Date Range:''' Unknown.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://atlas.aim-ima.be/base-de-donnees/?rw=1&lang=fr here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.ima-aim.be/Contact here].
 
=== Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS) ===
 
'''Sponsor, manager or home institution:''' AIM-IMA.
 
'''Primary purpose:''' To provide a longitudinal compilation of administrative health insurance data for federal and regional partners in Belgium.
 
'''Type of information:''' In the EPS database are all the variables available in the Population , Healthcare , Pharmanet and Hospitalizations databases. More information about the database can be found [https://metadata.ima-aim.be/fr/app/bdds/Ps here].
 
'''Source of Information:''' Health insurance fund records.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 285,000 policyholders and 56,000 policyholders aged 65 and above.
 
'''Date Range:''' Unknown.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://atlas.aim-ima.be/base-de-donnees/?rw=1&lang=fr here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.ima-aim.be/Contact here].
 
== [[Registries]] ==
 
=== Database: Belgian Cancer Registry ===
 
'''Sponsor, manager or home institution:''' Belgian Cancer Registry.
 
'''Primary purpose:''' To collect and provide information about cancer in the country
 
'''Type of information:''' Data dictionary was not found.


'''Available type of information:''' Cancer incidence, sex, age-specific, age group, year, tumour type and region [https://kankerregister.org/default.aspx?PageId=642 [1]].
[[hasCancerCenter::Kortrijk Cancer Centre AZ Groeninge]]


'''Source of Information:''' Healthcare facilities that have oncology care programs and provide services for pathological anatomy are required by law to collaborate with cancer registration.
[[hasCancerCenter::Brussels Cancer Centre - Centre du Cancer Bruxelles]]


'''Data level:''' Patient level.
[[hasCancerCenter::King Albert II Cancer Institute]]


'''Available data level:''' National and regional level.
</div>


'''Number of Records:''' Unknown.
== [[hasHealthcareSystem::Healthcare_System_(Belgium)|Healthcare System]] ==
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'''Date Range:''' 1997 onwards.
== Administrative or Claims Data ==
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=== [[hasDatabase::Database:_AIM-IMA_Échantillon_Permantent(e)_Steekproef_(EPS)_(Belgium)|Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS)]] ===
</div>


'''Cancer Areas of Interest:''' Head and neck (C00-C14, C30-C32); Oesophagus (C15); Stomach (C16); Colon and rectum (C18-C20); Liver, galbladder and bile ducts (C22-C24); Pancreas (C25); Lung (C34); Bone (C40-C41); Malignant melanoma (C43); Breast (C50); Cervix uteri (C53); Corpus uteri (C54); Ovary (C56); Prostate (C61); Testis (C62); Kidney (C64); Bladder (C67); Meninges, brain and central nervous system (C70-C72); Thyroid (C73); Hodgkin lymphoma (C81); Non-Hodgkin lymphoma (C82-C86); Myeloma (C90); Leukaemia (C91-C95); Myelodysplastic syndromes – Myeloproliferative disorders (MDS-MPD); Invasive tumours (excl. non-melanoma) (C00-C43, C45-C97).
== Registries ==
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'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://kankerregister.org/default.aspx?PageId=642 here]. Information on how to access the complete database can be found [https://kankerregister.org/Requesting%20specific%20data here].
=== [[hasDatabase::Database:_Belgian_Cancer_Registry_(Belgium)|Database: Belgian Cancer Registry]] ===


'''Information/Contact for data request:''' Contact information can be found [https://kankerregister.org/default.aspx?PageId=614 here].
=== [[hasDatabase::Database:_StatBel_Cause_of_Death_Registry_(Belgium)|Database: StatBel Cause of Death Registry]] ===
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=== Database: StatBel Cause of Death Registry ===
== Databases for Clinical Trials, Surveys and Biobanks ==
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=== [[hasBiobank::Biobank:_The_Belgian_Virtual_Tumourbank_(Belgium)|Biobank: The Belgian Virtual Tumourbank]] ===
</div>


'''Sponsor, manager or home institution:''' Statistics Belgium.
== Clinical Practices Guidelines ==
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'''Primary purpose:''' To compile statistics on causes of death in Belgium using statistical declaration-of-death forms and WHO's ICD-10 coding.
=== [[hasClinicalGuidelines::Guidelines: KCE Guidelines Compilation (Belgium)|Guidelines: KCE Guidelines Compilation]] ===


'''Type of information:''' Cause of death and number of deaths, month, year, age group, sex, and region [https://statbel.fgov.be/en/open-data/causes-death-month-sex-age-group-and-region[2]].
=== [[hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Guidelines: Clinical Guidelines]] ===
</div>


'''Source of Information:''' Statistical declaration-of-death forms (Model IIIC and Model IIID) that are filled out by a certifying physician and completed by the municipal administration of the place of death for every death that occurs in Belgium, which are then forwarded to the Communities and aggregated by AD Statistics to compile the statistics at the federal level.
== Latest Policymaking Initiatives ==
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'''Data level:''' Patient level.
=== [[hasReport::Report:_Belgian_Cancer_Barometer_(Belgium)|Report: Belgian Cancer Barometer]] ===


'''Available data level:''' National and regional level.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Belgium)|Report: EU Country Cancer Profile 2023]] ===


'''Number of Records:''' Unknown.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Belgium)|Report: EU Country Cancer Profile 2025]] ===


'''Date Range:''' 1998 onwards.
=== [[hasReport::Report: KCE Reports about Organisation and financing of health care Compilation (Belgium)|Report: KCE Reports about Organisation and financing of health care Compilation]] ===


'''Cancer Areas of Interest:''' Neoplasms (C00-D48).
=== [[hasReport::Report:_Cancer_Care_and_Control_in_Belgium_(Belgium)|Report: Cancer Care and Control in Belgium]] ===


'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://statbel.fgov.be/en/themes/population/mortality-life-expectancy-and-causes-death/causes-death#figures here]. Information on how to access the complete database can be found [https://statbel.fgov.be/en/about-statbel/what-we-do/microdata-research here].
=== [[hasPolicyData::Fact_sheets:_Belgian_Cancer_Registry_(BCR)_–_Publications_&_national_cancer_statistics_(Belgium)|Fact sheets: Belgian Cancer Registry (BCR) – Publications & national cancer statistics]] ===


'''Information/Contact for data request:''' Contact information can be found [https://statbel.fgov.be/en/contact here].
=== [[hasReport::Reports:_WHO/European_Observatory_–_PACE_Belgium_(Belgium)|Reports: WHO/European Observatory – PACE Belgium]] ===
<!--
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==


Check https://docs.healthdata.be/HDBP0150 at a later date.


== [[Electronic Health Records]] ==
</div>


== [[Clinical Practices Guidelines]] ==
== Cancer-related Patient Associations and Resources ==
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== [[Latest Policymaking Initiatives]] ==
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Belgium)|Patient Guides: ESMO Patient Guides Compilation]] ===
-->


== [[Cancer-related Patient Associations and Resources]] ==
=== [[hasPatientAssociation::Patient Association: Europa Donna Belgium (Belgium)|Patient Guides: Europa Donna Belgium]] ===
=== Compilation: ESMO Patient Guides ===


'''Sponsor, manager or home institution:''' European Society for Medical Oncology
=== [[hasPatientAssociation::Patient_Association:_Lymphoma_Association_Flanders_(Belgium)|Patient Association: Lymphoma Association Flanders]] ===


'''Primary purpose:'''' To translate complex medical language into understandable information for patients.
=== [[hasPatientAssociation::Patient_Association:_Hodgkin_&_non-Hodgkin_(Belgium)|Patient Association: Hodgkin & non-Hodgkin]] ===


'''Available guides:''' Side Effects of Immunotherapy and Its Management; AML; Bone Sarcomas; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancers; CML; Stomach Cancer; Soft Tissue Sarcomas.
=== [[hasPatientResource::Self-help_Group:_Stand_Up_to_Cancer_(Belgium)|Self-help Group: Stand Up to Cancer]] ===
</div>


'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Belgium)|Quality of Life and Palliative Care Research]] ==
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'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-dutch].
__NOTOC__
<span style="display:none">hasCancerCenter::Institut Jules Bordet</span>
<span style="display:none">hasCancerCenter::Kortrijk Cancer Centre AZ Groeninge</span>
<span style="display:none">hasCancerCenter::Brussels Cancer Centre - Centre du Cancer Bruxelles</span>
<span style="display:none">hasCancerCenter::King Albert II Cancer Institute</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Belgium)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_AIM-IMA_Échantillon_Permantent(e)_Steekproef_(EPS)_(Belgium)|Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS)</span>
<span style="display:none">hasDatabase::Database:_Belgian_Cancer_Registry_(Belgium)|Database: Belgian Cancer Registry</span>
<span style="display:none">hasDatabase::Database:_StatBel_Cause_of_Death_Registry_(Belgium)|Database: StatBel Cause of Death Registry</span>
<span style="display:none">hasBiobank::Biobank:_The_Belgian_Virtual_Tumourbank_(Belgium)|Biobank: The Belgian Virtual Tumourbank</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_KCE_Guidelines_(Belgium)|Compilation: KCE Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Clinical Guidelines</span>
<span style="display:none">hasReport::Report:_Belgian_Cancer_Barometer_(Belgium)|Report: Belgian Cancer Barometer</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Belgium)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Compilation:_KCE_Reports_about_Organisation_and_financing_of_health_care_(Belgium)|Compilation: KCE Reports about Organisation and financing of health care</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Belgium)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Lymphoma_Association_Flanders_(Belgium)|Patient Association: Lymphoma Association Flanders</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Hodgkin_&_non-Hodgkin_(Belgium)|Patient Association: Hodgkin & non-Hodgkin</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Belgium)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: KCE Guidelines Compilation (Belgium)|Guidelines: KCE Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Guidelines: Clinical Guidelines</span>
<span style="display:none">hasReport::Report: KCE Reports about Organisation and financing of health care Compilation (Belgium)|Report: KCE Reports about Organisation and financing of health care Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Belgium)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 16:13, 20 January 2026

forresearchers forpatients forproviders forpolicymakers belgiumcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Institut Jules Bordet

Kortrijk Cancer Centre AZ Groeninge

Brussels Cancer Centre - Centre du Cancer Bruxelles

King Albert II Cancer Institute

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS)[edit | edit source]

Registries[edit | edit source]

Database: Belgian Cancer Registry[edit | edit source]

Database: StatBel Cause of Death Registry[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Biobank: The Belgian Virtual Tumourbank[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: KCE Guidelines Compilation[edit | edit source]

Guidelines: Clinical Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Report: Belgian Cancer Barometer[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: KCE Reports about Organisation and financing of health care Compilation[edit | edit source]

Report: Cancer Care and Control in Belgium[edit | edit source]

Fact sheets: Belgian Cancer Registry (BCR) – Publications & national cancer statistics[edit | edit source]

Reports: WHO/European Observatory – PACE Belgium[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Guides: Europa Donna Belgium[edit | edit source]

Patient Association: Lymphoma Association Flanders[edit | edit source]

Patient Association: Hodgkin & non-Hodgkin[edit | edit source]

Self-help Group: Stand Up to Cancer[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Institut Jules Bordet hasCancerCenter::Kortrijk Cancer Centre AZ Groeninge hasCancerCenter::Brussels Cancer Centre - Centre du Cancer Bruxelles hasCancerCenter::King Albert II Cancer Institute hasHealthcareSystem::Healthcare_System_(Belgium)|Healthcare System hasDatabase::Database:_AIM-IMA_Échantillon_Permantent(e)_Steekproef_(EPS)_(Belgium)|Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS) hasDatabase::Database:_Belgian_Cancer_Registry_(Belgium)|Database: Belgian Cancer Registry hasDatabase::Database:_StatBel_Cause_of_Death_Registry_(Belgium)|Database: StatBel Cause of Death Registry hasBiobank::Biobank:_The_Belgian_Virtual_Tumourbank_(Belgium)|Biobank: The Belgian Virtual Tumourbank hasClinicalGuidelines::Compilation:_KCE_Guidelines_(Belgium)|Compilation: KCE Guidelines hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Clinical Guidelines hasReport::Report:_Belgian_Cancer_Barometer_(Belgium)|Report: Belgian Cancer Barometer hasReport::Report:_EU_Country_Cancer_Profile_2023_(Belgium)|Report: EU Country Cancer Profile 2023 hasReport::Compilation:_KCE_Reports_about_Organisation_and_financing_of_health_care_(Belgium)|Compilation: KCE Reports about Organisation and financing of health care hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Belgium)|Compilation: ESMO Patient Guides hasPatientAssociation::Patient_Association:_Lymphoma_Association_Flanders_(Belgium)|Patient Association: Lymphoma Association Flanders hasPatientAssociation::Patient_Association:_Hodgkin_&_non-Hodgkin_(Belgium)|Patient Association: Hodgkin & non-Hodgkin hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Belgium)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Guidelines: KCE Guidelines Compilation (Belgium)|Guidelines: KCE Guidelines Compilation hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Guidelines: Clinical Guidelines hasReport::Report: KCE Reports about Organisation and financing of health care Compilation (Belgium)|Report: KCE Reports about Organisation and financing of health care Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Belgium)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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