Database: National Cancer Registry (RON) (Portugal)

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Type of database: registry.

Primary purpose: Centralize and uniform national cancer information that was previously stored regionally. Click here to learn more.

Sponsor, manager or home institution: Direção Geral da Saúde (DGS).

Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumour localization, tumour staging, risk of cancer, tumour histology, medical procedures, causes of death, year, sex, place of residence.

Data Dictionary: National Cancer Registry (RON) (Portugal).

Click here to learn more.

Available type of information: number of deaths and cancer incidence by year, sex, age, and region. Click here to learn more.

Source of information: Data from public and private health institutions in Portugal.

Data level: patient level.

Available data level: regional level.

Number of records: unknown.

Date range: 1989 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, click here to access. Data can be downloaded in the PDF format. Instructions to request data for restricted content click here to access. Data requires a grant proposal to be accessed.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Direção Geral da Saúde (DGS) databaseStructure::longitudinal hasVariable::types of visits hasVariable::number of visits hasVariable::periodicity of physician consultation hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour staging hasVariable::risk of cancer hasVariable::tumour histology hasVariable::medical procedures hasVariable::causes of death hasVariable::year hasVariable::sex hasVariable::place of residence hasDataDictionary::Data Dictionary: National Cancer Registry (RON) (Portugal) availableVariable::number of deaths availableVariable::cancer incidence availableVariable::year availableVariable::sex availableVariable::age availableVariable::region dataLevel::patient level availableDataLevel::regional level numberRecords::unknown dataStart::1989 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::PDF hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access hasGrantRequirement::Data requires a grant proposal to be accessed isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine