Romania: Difference between revisions

hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer hasCancerType::D10-D36: Benign tumour hasCancerType::unknown

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+<span style="display:none">forresearchers</span>
+<span style="display:none">forpatients</span>
+<span style="display:none">forproviders</span>
+<span style="display:none">forpolicymakers</span>
+<span style="display:none">romaniacountry</span>
+[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
 == Cancer Centers ==
-<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-</div>
-== Healthcare System ==
 <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-The Romanian healthcare system operates under a social health insurance model, aiming for universal coverage. However, in practice, it covered 89% of the population as of 2017. The system is governed by the Ministry of Health and administered by the National Health Insurance House (NHIH). Both these bodies are represented locally through district public health authorities and district health insurance houses (DHIHs).
+[[hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology]]
-The healthcare system is financed from four main sources: national health insurance funds, the state budget, local budgets, and out-of-pocket (OOP) payments. OOP payments include direct payments for private services, co-payments for medicines, and potentially sizable informal payments.
+[[hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy]]
-The benefits provided by this system encompass a range of services. Primary care is provided by family physicians, who play a gatekeeper role, although direct access to specialists is possible for certain conditions. Specialist consultations, hospital care, and emergency services are provided by a network of various providers, such as outpatient departments, polyclinics, and specialized medical centers, but access can be uneven, with rural areas facing more challenges than urban areas.
+</div>
-To be eligible for these benefits, individuals must contribute to the national health insurance fund, a mandate that applies to employees, employers, and the self-employed. Certain groups like students, pensioners, and unemployed individuals receive state-funded health insurance.
+== [[hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System]] ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-Data management has been digitalized with the creation of national electronic systems for medical prescriptions and the insured. Hospitals and clinics are obliged to maintain patient records and are transitioning to Electronic Health Records (EHRs). The system faces challenges, including data standardization and interoperability across different healthcare providers.
 </div>
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 <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-=== Database: Mortality by cause of death ===
+=== [[hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network]] ===
-[http://80.96.186.4:81/metadata/viewStatisticalResearch.htm?locale=en&researchId=5162] [http://80.96.186.4:81/metadata/view.file?researchId=5162&type=questionnaire&file=Buletin%20statistic%20pentru%20deces%203.pdf]
-'''Sponsor, manager or home institution:''' National Institute of Statistics (Institutul Naţional de Statistică).
-'''Primary purpose:''' Registry the number of deaths for statistics purposes.
-'''Type of information:''' Commune; City; Municipality; Date; Number of the document from the civil status register; Code SIRUTA; Personal numeric code; Name and surname; Sex; Number of children born alive during life (for women only); Date of death; Date of birth; Marital status; Date of birth of the surviving spouse; Employee; Level of education; Citizenship; Ethnicity; Domicile; Place of death; Country where he died; Country where he was born; Causes of death; Antecedent causes; The initial morbid state; Other important morbid conditions; Manner of death; Status of the autopsy.
-'''Available type of information:''' Deceased by causes of death; Macro-regions, Development regions and counties; Gender; Deceased with usual residence in Romania.
-'''Source of Information:''' Death statistical bulletins made by the civil registry.
-'''Data level:''' Patient-level.
-'''Available data level:''' Regional and national level.
-'''Number of Records:''' Unknown.
-'''Date Range:''' 1990 onwards.
-'''Cancer Areas of Interest:''' Unknown.
-'''Open data access:''' Partially publicly available. To find statistics about death, on the domain page, go to the topic [http://statistici.insse.ro:8077/tempo-online/#/pages/tables/insse-table] "A.2 VITAL STATISTICS" > "DEATH", then choose the indicator you want to see. Instructions to request data for restricted content [https://insse.ro/cms/ro/content/solicitare-informa%C8%9Bii].
-'''Information/Contact for data request:''' Contact information [https://insse.ro/cms/ro/content/contactati-ne-prin].
-=== Database: Diagnosis Related Group (DRG) ===
-[https://www.drg.ro/index.php?p=drg]
-'''Sponsor, manager or home institution:''' National Institute of Health Services Management.
-'''Primary purpose:''' Characterize the hospital's patient care in order to evaluate the results, increase efficiency, and administrate the hospital's financing system. Classifies the patients simultaneously by type of pathology and cost of care.
-'''Type of information:''' [[Type of information - DRG Romania]].
+=== [[hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)]] ===
-'''Available type of information:''' [[Available type of information - DRG Romania]].
-'''Source of Information:''' Hospitals and ambulatory care reports.
-'''Data level:''' Patient-level.
-'''Available data level:''' National, regional, and hospital levels.
-'''Number of Records:''' Unknown.
-'''Date Range:''' 2002 onwards.
-'''Cancer Areas of Interest:''' [[Cancer areas of interest - DRG Romania]].
-'''Open data access:''' Partially publicly available. Medical and pediatric oncology data information [https://www.drg.ro/index.php?p=indicatori&s=2023_04]. The quarterly indicators for evaluating the activity of hospitals [http://www.drg.ro/indicatori/CNAS/indicatori.php]. Instructions to request data for restricted content [https://www.drg.ro/index.php?p=contact].
-'''Information/Contact for data request:''' Contact information [https://www.drg.ro/index.php?p=contact].
 </div>
@@ Line 78: / Line 31: @@
 <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-=== Database: National Registry of Childhood Cancer (RNCCR) ===
+=== [[hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death]] ===
-[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]
-'''Sponsor, manager or home institution''': Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
+=== [[hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)]] ===
+</div>
-'''Type of information''': The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext]. Data refers to people aged between 0 and 14 years. The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological/cytological examination: Behavior; Morphological code; Degree; Cod ICC3 primary; Cod ICC3 category; Cod ICC3 subcategory. Toronto staging: diagnostic class; level 1; level 2. TNM staging for solid tumors not included in Toronto staging: Stadium type; TNM classification. Treatment: Stadium type; TNM classification; Surgery date; Chemotherapy; Radiotherapy; Hormone therapy; Immunotherapy; Other treatments; Transplant; Diagnostic class; Therapeutic protocol; Another therapeutic protocol; Treatment abroad; Type of treatment abroad; Tara; end of therapy date; Response to treatment; Refusal; Reason for refusal; Abandon; Dropout reason). Tracking: Aate of last contact; Status; The last doctor; Death; The main cause; Secondary cause.
+== Clinical Practices Guidelines ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Source of information''': Reports from pediatric oncologic centers.
+=== [[hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline]] ===
+</div>
-'''Data level''': Patient-level.
+== Latest Policymaking Initiatives ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Date range''': 2009 onwards.
+=== [[hasReport::Report:_IOCN_(Romania)|Report: IOCN]] ===
-'''Data access''': Partially publicly available [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf]. Instructions to request data for restricted content [http://oncped.iocn.ro/].
+=== [[hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health]] ===
-'''Cancer areas of interest''': Unknown.
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023]] ===
-'''Information/contact for data request''': Contact information [https://srohp.ro/contact/].
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Romania)|Report: EU Country Cancer Profile 2025]] ===
-=== Database: North-West Regional Cancer Registry ===
+=== [[hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026]] ===
-[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]
-'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN).
+=== [[hasReport::Report:_National_Plan_to_Prevent_and_Combat_Cancer_2023-2030_(Romania)|Report: National Plan to Prevent and Combat Cancer 2023-2030]] ===
-'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
-'''Type of information:''' The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological / cytological examination: Date of examination and result; Tumor location; Topographical code; Laterality, Behavior, Morphological code, Differentiation degree, Stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer. Treatment: Type of treatment, Date of initiation. Informs if there was a refusal to the treatment. Tracking: Date of last contact, Name of the last doctor consulted, Date of death, Main cause and secondary cause of death.
+</div>
-'''Available type of information:''' Number of new cases of cancer; Region; Type of cancer; Year; Sex; Annual incidence by 100.000 inhabitants;
+== Cancer-related Patient Associations and Resources ==
-Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; Age group; Number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
+=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation]] ===
-'''Data level:''' Patient-level.
+=== [[hasPatientAssociation::Patient Association: Renasterea Foundation (Europa Donna Romania) (Romania)|Patient Association: Renasterea Foundation (Europa Donna Romania)]] ===
-'''Available data level:''' Regional-level.
+=== [[hasPatientAssociation::Patient_Association:_Federation_of_Cancer_Patients_Associations (FABC)_(Romania)|Patient Association: Federation of Cancer Patients Associations (FABC)]] ===
-'''Number of Records:''' Unknown.
+=== [[hasPatientAssociation::Association:_Asociatia_Heal_(Romania)|Association: Asociatia Heal]] ===
-'''Date Range:''' Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
+=== [[hasPatientAssociation::Patient_Association:_Dăruiește_Viață_(Romania)|Patient Association: Dăruiește Viață]] ===
-'''Cancer Areas of Interest:''' Cancer areas of interest [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc]. Some specific cancer locations are excluded [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc].
+=== [[hasPatientResource::Self-help_Group:_Comunitatea_Oncologică_din_România_(Romania)|Self-help Group: Comunitatea Oncologică din România]] ===
-'''Open data access:''' Partially publicly available [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html]. Instructions to request data for restricted content [http://nwcanportal.iocn.ro/OncReg/].
+</div>
-'''Information/Contact for data request:''' Contact information [https://www.old.iocn.ro/en].
+== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research]] ==
-<!--
-== Electronic Health Records ==
-== Databases for Clinical Trials, Surveys and Biobanks ==
-== Clinical Practices Guidelines ==
--->
 </div>
-== Cancer-related Patient Associations and Resources ==
+__NOTOC__
+<span style="display:none">hasCancerCenter::The Prof. Dr. Ion Chiricuta Institute of Oncology</span>
-=== Compilation: ESMO Patient Guides ===
+<span style="display:none">hasCancerCenter::SC RTC Radiology Therapeutic - Center Amethyst Radiotherapy</span>
+<span style="display:none">hasHealthcareSystem::Healthcare_System_(Romania)|Healthcare System</span>
-'''Sponsor, manager or home institution:''' European Society for Medical Oncology.
+<span style="display:none">hasDatabase::Database: Activity of medical and healthcare protection network (Romania)|Database: Activity of medical and healthcare protection network</span>
+<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Group_(DRG)_(Romania)|Database: Diagnosis Related Group (DRG)</span>
-'''Primary purpose:''' To translate complex medical language into understandable information for patients.
+<span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Romania)|Database: Mortality by cause of death</span>
+<span style="display:none">hasDatabase::Database:_National_Registry_of_Childhood_Cancer_(RNCCR)_(Romania)|Database: National Registry of Childhood Cancer (RNCCR)</span>
-'''Available guides:''' Adverse Reactions of Immunotherapy; Survival; CML; Colorectal Cancer; Endometrial Cancer; LAM; Follicular Lymphoma; Non-Small Cell Lung Cancer; Breast Cancer.
+<span style="display:none">hasDatabase::Database:_North-West_Regional_Cancer_Registry_(Romania)|Database: North-West Regional Cancer Registry</span>
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|IOCN Guideline</span>
-'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
+<span style="display:none">hasReport::Report:_IOCN_(Romania)|Report: IOCN</span>
+<span style="display:none">hasReport::Report:_Ministry_of_Health_(Romania)|Report: Ministry of Health</span>
-'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-romanian].
+<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Romania)|Report: EU Country Cancer Profile 2023</span>
+<span style="display:none">hasReport::Report:_National_Plan_to_Combat_Cancer_2023-2026_(Romania)|Report: National Plan to Combat Cancer 2023-2026</span>
+<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Romania)|Compilation: ESMO Patient Guides</span>
+<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Romania)|Quality of Life and Palliative Care Research</span>
+<span style="display:none">hasClinicalGuidelines::IOCN_Guideline_(Romania)|Guideline: IOCN Guideline</span>
+<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Romania)|Patient Guides: ESMO Patient Guides Compilation</span>
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
+<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
+<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
+<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
+<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
+<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
+<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
+<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
+<span style="display:none">hasCancerType::C50: Breast cancer</span>
+<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
+<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
+<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
+<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
+<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
+<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
+<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
+<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
+<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
+<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
+<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
+<span style="display:none">hasCancerType::unknown</span>