Belgium: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">belgiumcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
== Cancer Centers ==
== Cancer Centers ==
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== Healthcare System ==
[[hasCancerCenter::Institut Jules Bordet]]
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Belgium's healthcare system is a compulsory, social health insurance system. It operates under a model that combines both public and private sectors, with a blend of universal coverage and income-based premiums.
[[hasCancerCenter::Kortrijk Cancer Centre AZ Groeninge]]


The system is managed by the Ministry of Health at the national level, composed of the Federal Public Service for Health, Food Chain Safety, and Environment, and by regional governments in Flanders, Wallonia, and Brussels-Capital. Health insurance funds, known as "mutualities," are responsible for the management of the social health insurance system.
[[hasCancerCenter::Brussels Cancer Centre - Centre du Cancer Bruxelles]]


The Belgian population receives a wide range of healthcare benefits through the system, including primary care, specialist care, hospital care, mental health services, dental care, maternity care, rehabilitation services, and prescription medications. Preventive care and health promotion services are also provided. There is no gatekeeping system in place.
[[hasCancerCenter::King Albert II Cancer Institute]]


All Belgian residents are required to join a health insurance fund, which is typically linked to their employment or their family's employment. Access to healthcare benefits is granted upon registration with a health insurance fund, and coverage extends to dependents as well. The system is funded by income-based contributions from employees, employers, and the government, ensuring comprehensive coverage for all citizens.
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Belgium has implemented a nationwide electronic health record (EHR) system called eHealth. This platform securely centralizes patients' medical records, allowing healthcare providers to access and update relevant information. Data from insurance claims, registries, and other sources is also collected and stored in the eHealth system, which aims to improve the overall efficiency and quality of care while maintaining patient privacy.
== [[hasHealthcareSystem::Healthcare_System_(Belgium)|Healthcare System]] ==
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== Administrative or Claims Data ==
== Administrative or Claims Data ==
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=== [[hasDatabase::Database:_AIM-IMA_Échantillon_Permantent(e)_Steekproef_(EPS)_(Belgium)|Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS)]] ===
=== Database: AIM-IMA Healthcare Data ===
 
'''Sponsor, manager or home institution:''' AIM-IMA.
 
'''Primary purpose:''' To store information on health care services provided to members of Belgium's seven health insurance funds under compulsory health insurance.
 
'''Type of information:''' [[Data Dictionary: AIM-IMA Healthcare Data]]. More information about the database [https://metadata.ima-aim.be/fr/app/bdds/Gz].
 
'''Source of Information:''' Health insurance fund records.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 99% of the population of Belgium.
 
'''Date Range:''' Unknown.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' Partially publicly available [https://atlas.aim-ima.be/base-de-donnees/?rw=1&lang=fr].
 
'''Information/Contact for data request:''' Contact information [https://www.ima-aim.be/Contact].
 
=== Database: AIM-IMA Pharmanet ===
 
'''Sponsor, manager or home institution:''' AIM-IMA.
 
'''Primary purpose:''' To store information on reimbursed drugs and medical devices dispensed in Belgian public pharmacies for members of the seven health insurance funds.
 
'''Type of information:''' [[Data Dictionary: AIM-IMA Pharmanet]]. More information about the database [https://metadata.ima-aim.be/fr/app/bdds/Fu].
 
'''Source of Information:''' Health insurance fund records.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 99% of the population of Belgium.
 
'''Date Range:''' Unknown.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' Partially publicly available [https://atlas.aim-ima.be/base-de-donnees/?rw=1&lang=fr].
 
'''Information/Contact for data request:''' Contact information [https://www.ima-aim.be/Contact].
 
=== Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS) ===
 
'''Sponsor, manager or home institution:''' AIM-IMA.
 
'''Primary purpose:''' To provide a longitudinal compilation of administrative health insurance data for federal and regional partners in Belgium.
 
'''Type of information:''' In the EPS database are all the variables available in the Population, Healthcare, Pharmanet and Hospitalizations databases [https://metadata.ima-aim.be/fr/app/bdds/Ps].
 
'''Source of Information:''' Health insurance fund records.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' 285,000 policyholders and 56,000 policyholders aged 65 and above.
 
'''Date Range:''' Unknown.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Open data access:''' Partially publicly available [https://atlas.aim-ima.be/base-de-donnees/?rw=1&lang=fr].
 
'''Information/Contact for data request:''' Contact information [https://www.ima-aim.be/Contact].
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=== Database: Belgian Cancer Registry ===
=== [[hasDatabase::Database:_Belgian_Cancer_Registry_(Belgium)|Database: Belgian Cancer Registry]] ===


'''Sponsor, manager or home institution:''' Belgian Cancer Registry.
=== [[hasDatabase::Database:_StatBel_Cause_of_Death_Registry_(Belgium)|Database: StatBel Cause of Death Registry]] ===
 
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'''Primary purpose:''' To collect and provide information about cancer in the country
 
'''Type of information:''' Data dictionary was not found.
 
'''Available type of information:''' Cancer incidence, sex, age-specific, age group, year, tumour type and region [https://kankerregister.org/default.aspx?PageId=642].
 
'''Source of Information:''' Healthcare facilities that have oncology care programs and provide services for pathological anatomy are required by law to collaborate with cancer registration.
 
'''Data level:''' Patient level.
 
'''Available data level:''' National and regional level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1997 onwards.
 
'''Cancer Areas of Interest:''' Head and neck (C00-C14, C30-C32); Oesophagus (C15); Stomach (C16); Colon and rectum (C18-C20); Liver, galbladder and bile ducts (C22-C24); Pancreas (C25); Lung (C34); Bone (C40-C41); Malignant melanoma (C43); Breast (C50); Cervix uteri (C53); Corpus uteri (C54); Ovary (C56); Prostate (C61); Testis (C62); Kidney (C64); Bladder (C67); Meninges, brain and central nervous system (C70-C72); Thyroid (C73); Hodgkin lymphoma (C81); Non-Hodgkin lymphoma (C82-C86); Myeloma (C90); Leukaemia (C91-C95); Myelodysplastic syndromes – Myeloproliferative disorders (MDS-MPD); Invasive tumours (excl. non-melanoma) (C00-C43, C45-C97).
 
'''Open data access:''' Partially publicly available [https://kankerregister.org/default.aspx?PageId=642]. Instructions to request data for restricted content [https://kankerregister.org/Requesting%20specific%20data].
 
'''Information/Contact for data request:''' Contact information [https://kankerregister.org/default.aspx?PageId=614].
 
=== Database: StatBel Cause of Death Registry ===
 
'''Sponsor, manager or home institution:''' Statistics Belgium.
 
'''Primary purpose:''' To compile statistics on causes of death in Belgium using statistical declaration-of-death forms and WHO's ICD-10 coding.
 
'''Type of information:''' Cause of death and number of deaths, month, year, age group, sex, and region [https://statbel.fgov.be/en/open-data/causes-death-month-sex-age-group-and-region].
 
'''Source of Information:''' Statistical declaration-of-death forms (Model IIIC and Model IIID) that are filled out by a certifying physician and completed by the municipal administration of the place of death for every death that occurs in Belgium, which are then forwarded to the Communities and aggregated by AD Statistics to compile the statistics at the federal level.
 
'''Data level:''' Patient level.
 
'''Available data level:''' National and regional level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1998 onwards.
 
'''Cancer Areas of Interest:''' Neoplasms (C00-D48).
 
'''Open data access:''' Partially publicly available [https://statbel.fgov.be/en/themes/population/mortality-life-expectancy-and-causes-death/causes-death#figures]. Instructions to request data for restricted content [https://statbel.fgov.be/en/about-statbel/what-we-do/microdata-research].
 
'''Information/Contact for data request:''' Contact information [https://statbel.fgov.be/en/contact].


== Databases for Clinical Trials, Surveys and Biobanks ==
== Databases for Clinical Trials, Surveys and Biobanks ==
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=== Clinical Practices Guidelines ===
=== [[hasBiobank::Biobank:_The_Belgian_Virtual_Tumourbank_(Belgium)|Biobank: The Belgian Virtual Tumourbank]] ===
=== KCE Guidelines ===
'''Sponsor, manager or home institution:''' Federaal Kenniscentrum voor de Gezondheidszorg.
 
'''Primary purpose:''' Provides evidence-based recommendations for management, diagnosing, treating, and following up of many types of cancer.
 
'''Type of information:''' Guidelines information about management of cancer, diagnoses, treatment and follow up of many types of cancers, such as breast cancer, renal cancer, ovarian cancer, bladder cancer, etc.
 
'''Access to information:''' List of guidelines [https://kce.fgov.be/en/publications/all-reports-0?f%5B0%5D=alle-kce-rapporten-general-domain%3Agood-clinical-practice&sort_by=paddle_publication_date&sort_order=DESC].
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== Clinical Practices Guidelines ==
== Databases for Clinical Trials, Surveys and Biobanks ==
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Check https://docs.healthdata.be/HDBP0150 at a later date.
=== [[hasClinicalGuidelines::Guidelines: KCE Guidelines Compilation (Belgium)|Guidelines: KCE Guidelines Compilation]] ===


== Electronic Health Records ==
=== [[hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Guidelines: Clinical Guidelines]] ===
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== Cancer-related Patient Associations and Resources ==
== Latest Policymaking Initiatives ==
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=== Compilation: ESMO Patient Guides ===
=== [[hasReport::Report:_Belgian_Cancer_Barometer_(Belgium)|Report: Belgian Cancer Barometer]] ===
 
'''Sponsor, manager or home institution:''' European Society for Medical Oncology


'''Primary purpose:''' To translate complex medical language into understandable information for patients.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Belgium)|Report: EU Country Cancer Profile 2023]] ===


'''Available guides:''' Side Effects of Immunotherapy and Its Management; AML; Bone Sarcomas; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancers; CML; Stomach Cancer; Soft Tissue Sarcomas.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Belgium)|Report: EU Country Cancer Profile 2025]] ===


'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
=== [[hasReport::Report: KCE Reports about Organisation and financing of health care Compilation (Belgium)|Report: KCE Reports about Organisation and financing of health care Compilation]] ===


'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-dutch].
=== [[hasReport::Report:_Cancer_Care_and_Control_in_Belgium_(Belgium)|Report: Cancer Care and Control in Belgium]] ===


== Latest Policymaking Initiatives ==
=== [[hasPolicyData::Fact_sheets:_Belgian_Cancer_Registry_(BCR)_–_Publications_&_national_cancer_statistics_(Belgium)|Fact sheets: Belgian Cancer Registry (BCR) – Publications & national cancer statistics]] ===
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=== Report: Belgian Cancer Barometer  ===


'''Sponsor, manager or home institution:''' Stichting Tegen Kanker.
=== [[hasReport::Reports:_WHO/European_Observatory_–_PACE_Belgium_(Belgium)|Reports: WHO/European Observatory – PACE Belgium]] ===


'''Primary purpose:''' To create a comprehensive reference work on cancer care in Belgium, providing a global overview and determining priorities for fighting cancer on all fronts, with the collaboration of various organizations and experts in the field.


'''Type of information:''' Number of new cancer diagnoses; Cancer incidence; Most frequent cancers; Cancer mortality, survival and prevalence; People invited, total coverage and response rate according to population survey and region of cancer screenings; Diagnoses, treatment and palliative care general information.
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'''Data level:''' National and regional level.
== Cancer-related Patient Associations and Resources ==
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'''Access to information:''' Access Information [https://www.kanker.be/kankerbarometer].
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Belgium)|Patient Guides: ESMO Patient Guides Compilation]] ===


=== Report: EU Country Cancer Profile 2023 ===
=== [[hasPatientAssociation::Patient Association: Europa Donna Belgium (Belgium)|Patient Guides: Europa Donna Belgium]] ===


'''Sponsor, manager or home institution:''' OECD and European Commission.
=== [[hasPatientAssociation::Patient_Association:_Lymphoma_Association_Flanders_(Belgium)|Patient Association: Lymphoma Association Flanders]] ===


'''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
=== [[hasPatientAssociation::Patient_Association:_Hodgkin_&_non-Hodgkin_(Belgium)|Patient Association: Hodgkin & non-Hodgkin]] ===


'''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
=== [[hasPatientResource::Self-help_Group:_Stand_Up_to_Cancer_(Belgium)|Self-help Group: Stand Up to Cancer]] ===
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'''Data level''': National level.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Belgium)|Quality of Life and Palliative Care Research]] ==
 
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'''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/landenprofiel-voor-kanker-belgie-2023_1700ff9f-nl].
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== Quality of Life and Palliative Care Research ==
__NOTOC__
 
<span style="display:none">hasCancerCenter::Institut Jules Bordet</span>
'''List of Articles:''' Quality of Life [https://pubmed.ncbi.nlm.nih.gov/?term=Quality+of+Life%5BMeSH%5D+AND+Belgium%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview] and Palliative Care [https://pubmed.ncbi.nlm.nih.gov/?term=Palliative+Care%5BMeSH%5D+AND+Belgium%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview].
<span style="display:none">hasCancerCenter::Kortrijk Cancer Centre AZ Groeninge</span>
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<span style="display:none">hasCancerCenter::Brussels Cancer Centre - Centre du Cancer Bruxelles</span>
<span style="display:none">hasCancerCenter::King Albert II Cancer Institute</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Belgium)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_AIM-IMA_Échantillon_Permantent(e)_Steekproef_(EPS)_(Belgium)|Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS)</span>
<span style="display:none">hasDatabase::Database:_Belgian_Cancer_Registry_(Belgium)|Database: Belgian Cancer Registry</span>
<span style="display:none">hasDatabase::Database:_StatBel_Cause_of_Death_Registry_(Belgium)|Database: StatBel Cause of Death Registry</span>
<span style="display:none">hasBiobank::Biobank:_The_Belgian_Virtual_Tumourbank_(Belgium)|Biobank: The Belgian Virtual Tumourbank</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_KCE_Guidelines_(Belgium)|Compilation: KCE Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Clinical Guidelines</span>
<span style="display:none">hasReport::Report:_Belgian_Cancer_Barometer_(Belgium)|Report: Belgian Cancer Barometer</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Belgium)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Compilation:_KCE_Reports_about_Organisation_and_financing_of_health_care_(Belgium)|Compilation: KCE Reports about Organisation and financing of health care</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Belgium)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Lymphoma_Association_Flanders_(Belgium)|Patient Association: Lymphoma Association Flanders</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Hodgkin_&_non-Hodgkin_(Belgium)|Patient Association: Hodgkin & non-Hodgkin</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Belgium)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: KCE Guidelines Compilation (Belgium)|Guidelines: KCE Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Guidelines: Clinical Guidelines</span>
<span style="display:none">hasReport::Report: KCE Reports about Organisation and financing of health care Compilation (Belgium)|Report: KCE Reports about Organisation and financing of health care Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Belgium)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 16:13, 20 January 2026

forresearchers forpatients forproviders forpolicymakers belgiumcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Institut Jules Bordet hasCancerCenter::Kortrijk Cancer Centre AZ Groeninge hasCancerCenter::Brussels Cancer Centre - Centre du Cancer Bruxelles hasCancerCenter::King Albert II Cancer Institute hasHealthcareSystem::Healthcare_System_(Belgium)|Healthcare System hasDatabase::Database:_AIM-IMA_Échantillon_Permantent(e)_Steekproef_(EPS)_(Belgium)|Database: AIM-IMA Échantillon Permantent(e) Steekproef (EPS) hasDatabase::Database:_Belgian_Cancer_Registry_(Belgium)|Database: Belgian Cancer Registry hasDatabase::Database:_StatBel_Cause_of_Death_Registry_(Belgium)|Database: StatBel Cause of Death Registry hasBiobank::Biobank:_The_Belgian_Virtual_Tumourbank_(Belgium)|Biobank: The Belgian Virtual Tumourbank hasClinicalGuidelines::Compilation:_KCE_Guidelines_(Belgium)|Compilation: KCE Guidelines hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Clinical Guidelines hasReport::Report:_Belgian_Cancer_Barometer_(Belgium)|Report: Belgian Cancer Barometer hasReport::Report:_EU_Country_Cancer_Profile_2023_(Belgium)|Report: EU Country Cancer Profile 2023 hasReport::Compilation:_KCE_Reports_about_Organisation_and_financing_of_health_care_(Belgium)|Compilation: KCE Reports about Organisation and financing of health care hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Belgium)|Compilation: ESMO Patient Guides hasPatientAssociation::Patient_Association:_Lymphoma_Association_Flanders_(Belgium)|Patient Association: Lymphoma Association Flanders hasPatientAssociation::Patient_Association:_Hodgkin_&_non-Hodgkin_(Belgium)|Patient Association: Hodgkin & non-Hodgkin hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Belgium)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Guidelines: KCE Guidelines Compilation (Belgium)|Guidelines: KCE Guidelines Compilation hasClinicalGuidelines::Clinical_Guidelines_(Belgium)|Guidelines: Clinical Guidelines hasReport::Report: KCE Reports about Organisation and financing of health care Compilation (Belgium)|Report: KCE Reports about Organisation and financing of health care Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Belgium)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown