Ireland: Difference between revisions

From Beacon
 
(150 intermediate revisions by 6 users not shown)
Line 1: Line 1:
== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">irelandcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::Trinity St. James's Cancer Institute]]  


== [[Registries]] ==
[[hasCancerCenter::Beaumont RCSI Cancer Centre]]  


=== Database: Vital Statistics ===
[[hasCancerCenter::Saolta University Cancer Network Galway University Hospitals]]


'''Sponsor, manager or home institution:''' Central Statistics Office (CSO)
</div>


'''Primary purpose:''' Provide information about Marriages Registration, Death Registration, Stillbirths Registration, Live Births Registration and Mortality Differentials in Ireland.
== [[hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System]] ==


'''Type of information:''' Age of bride and groom, Previous marital status of bride and groom, Area of residence of bride and groom before and after marriage, Occupation of bride and groom, Place of marriage and Type of marriage ceremony, Date of death, Address of residence of deceased, Place of death, Cause of death, Occupation of deceased, Age of deceased, Sex of deceased, Marital Status of deceased and Birth weight, Gestational Age, Date of birth of infant, Date of birth of parents, Marital status of mother, Number of previous children, County of residence of mother, Multiplicity, Occupation of parents, Baby's forename.
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Available type of information:''' Births by age of mother and sex of child, area of residence, region, within and outside of marriage/civil partnership, average age of mother, within and outside of marriage/civil partnership, birth rate per 1,000 Population, date and month of occurrence, previous born children, period of gestation, birthweight, place of occurrence, nationality of mother, nationality of both parents, total number of hospital births, fertility rates, occupation of mother. Deaths occurring by area of residence, sex and age group, cause of death, sex and age group. Suicides by area of residence and sex. Published Suicide Deaths and Late Registered Deaths. Live Births and Stillbirths and Infant Mortality.
=== [[hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation]] ===


'''Source of Information:''' Methodology for each section of the Vital Statistics database can be found [https://www.cso.ie/en/methods/birthsdeathsandmarriages/ here].
=== [[hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System]] ===
</div>


'''Data level:''' Patient level.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry]] ===


'''Available data level:''' Regional, national level.
=== [[hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics]] ===
</div>


'''Number of Records:''' Unknown.
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date Range:''' Varies for each section and variable.
=== [[hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019]] ===


'''Cancer Areas of Interest:''' All.
=== [[hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey]] ===


'''Open data access:''' Data is partially publicly available. Data can be accessed [https://www.cso.ie/en/releasesandpublications/ep/p-vsar/vitalstatisticsannualreport2020/data/ here]. Information on how to access full database can be found [https://www.cso.ie/en/aboutus/lgdp/csodatapolicies/dataforresearchers/ here]. Reports can be found [https://www.cso.ie/en/statistics/birthsdeathsandmarriages/archive/publicationarchive2021/ here].
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/Contact for data request:''' Contact information can be found [https://www.cso.ie/en/releasesandpublications/ep/p-vsys/vitalstatisticsyearlysummary2021/ here].
=== [[hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation]] ===


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
=== [[hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation]] ===
</div>


=== Survey: Irish Health Survey 2019 ===
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution:''' Central Statistics Office.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023]] ===


'''Primary purpose:''' Is the Irish version of the European Health Interview Survey (EHIS), and the goal is to obtain reliable information about health care status and usage in order to create more effective policies.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Ireland)|Report: EU Country Cancer Profile 2025]] ===


'''Type of information:''' Health behavior and health care usage information, including smoking behavior; filtered by economic situation, gender, age, region, and disability status. Survey questions can be found [https://www.cso.ie/en/media/csoie/releasespublications/documents/ep/irishhealthsurveymainresults/2019/IHS_questionnaire.pdf here].
=== [[hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026]] ===


'''Source of Information:''' Responses to the survey questions conducted all over Ireland.
=== [[hasPolicyData::Studies_and_Data:_NCRI_Reports_and_Publications_(Ireland)|Studies and Data: NCRI Reports and Publication]] ===


'''Data level:''' Patient level.
</div>


'''Available data level: ''' Regional, national level.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Number of Records:''' 7,621 respondents.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Date Range:''' 2019. Survey was also conducted in 2015.
=== [[hasPatientAssociation::Patient Association: Irish Cancer Society (Ireland)|Patient Association: Irish Cancer Society]] ===


'''Cancer Areas of Interest:''' All cancer areas related to smoking.
=== [[hasPatientResource::Self-help_group:_East_Galway_&_Midlands_Cancer_Support_Centre_(Ireland)|Self-help group: East Galway & Midlands Cancer Support Centre]] ===


'''Open data access:''' Data is partially publicly available. Publicly available data can be accessed [https://data.cso.ie/product/IHS here]. Information on how to access full database can be found [https://www.cso.ie/en/aboutus/lgdp/csodatapolicies/dataforresearchers/ here].
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research]] ==
</div>


'''Information/Contact for data request:''' Contact information can be found [https://www.cso.ie/en/releasesandpublications/ep/p-ihsmr/irishhealthsurvey2019-mainresults/contactdetails/ here].
__NOTOC__
 
<span style="display:none">hasCancerCenter::Trinity St. James's Cancer Institute</span>
=== Survey: Healthy Ireland Survey ===
<span style="display:none">hasCancerCenter::Beaumont RCSI Cancer Centre</span>
 
<span style="display:none">hasCancerCenter::Saolta University Cancer Network Galway University Hospitals</span>
'''Sponsor, manager or home institution:''' Department of Health, Statistics and Analytics Unit.
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Compilation:_Department_of_Health_Databases_(CSO)_(Ireland)|Compilation: Department of Health Databases (CSO)</span>
'''Primary purpose:''' Obtain information about the health status and behavior of the irish population.
<span style="display:none">hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System</span>
 
<span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry</span>
'''Type of information:''' Survey responses about topics including general health, smoking, alcohol, weight management, health service utilisation, dental and oral health, skin protection, menstrual health and period poverty, suicide awareness, impact of COVID-19 on health behaviors. The survey questionnaire used for the 2022 survey can be found [https://www.gov.ie/pdf/?file=https://assets.gov.ie/241132/074cd4af-0103-4e6d-b65c-a4fa23afd83d.pdf#page=null here].
<span style="display:none">hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics</span>
 
<span style="display:none">hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019</span>
'''Available type of information:''' Survey reports for all the years.
<span style="display:none">hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Compilation: National Cancer Control Programme Guidelines</span>
'''Source of Information:''' Responses from survey questionnaire.
<span style="display:none">hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Compilation: Department of Health Guidelines</span>
 
<span style="display:none">hasReport::Compilation:_Cancer_Statistics_Reports_(Ireland)|Compilation: Cancer Statistics Reports</span>
'''Data level:''' Patient level.
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026</span>
'''Available data level:''' National level.
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Ireland)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research</span>
'''Number of Records:''' Around 7,500 respondents.
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Guidelines: Department of Health Guidelines Compilation</span>
'''Date Range:''' 2014-2022.
<span style="display:none">hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation</span>
 
<span style="display:none">hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation</span>
'''Cancer Areas of Interest:''' All cancer areas related to smoking.
<span style="display:none">hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation</span>
 
<span style="display:none">hasReport::Reports: Cancer Statistics Reports Compilation (Ireland)|Reports: Cancer Statistics Reports Compilation</span>
'''Open data access:''' Data is not publicly available. Reports can be found [https://www.gov.ie/en/collection/231c02-healthy-ireland-survey-wave/ here]. Information on how to access microdata can be found [https://www.gov.ie/pdf/?file=https://assets.gov.ie/7633/091ed7356f04477889be53cf38f5841f.pdf#page=null here].
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
'''Information/Contact for data request:''' Contact information was not found.
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
== [[Electronic Health Records]] ==
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
== [[Clinical Practices Guidelines]] ==
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
== [[Latest Policymaking Initiatives]] ==
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
== [[Cancer-related Patient Associations and Resources]] ==
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:02, 21 January 2026

forresearchers forpatients forproviders forpolicymakers irelandcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Trinity St. James's Cancer Institute

Beaumont RCSI Cancer Centre

Saolta University Cancer Network Galway University Hospitals

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Databases: Department of Health Databases (CSO) Compilation[edit | edit source]

Database: National Oncology Drugs Management System[edit | edit source]

Registries[edit | edit source]

Database: National Cancer Registry[edit | edit source]

Database: Vital Statistics[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: Irish Health Survey 2019[edit | edit source]

Survey: Healthy Ireland Survey[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: National Cancer Control Programme Guidelines Compilation[edit | edit source]

Guidelines: Department of Health Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: National Cancer Strategy 2017-2026[edit | edit source]

Studies and Data: NCRI Reports and Publication[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Association: Irish Cancer Society[edit | edit source]

Self-help group: East Galway & Midlands Cancer Support Centre[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Trinity St. James's Cancer Institute hasCancerCenter::Beaumont RCSI Cancer Centre hasCancerCenter::Saolta University Cancer Network Galway University Hospitals hasHealthcareSystem::Healthcare_System_(Ireland)|Healthcare System hasDatabase::Compilation:_Department_of_Health_Databases_(CSO)_(Ireland)|Compilation: Department of Health Databases (CSO) hasDatabase::Database:_National_Oncology_Drugs_Management_System_(Ireland)|Database: National Oncology Drugs Management System hasDatabase::Database:_National_Cancer_Registry_(Ireland)|Database: National Cancer Registry hasDatabase::Database:_Vital_Statistics_(Ireland)|Database: Vital Statistics hasDatabase::Survey:_Irish_Health_Survey_2019_(Ireland)|Survey: Irish Health Survey 2019 hasDatabase::Survey:_Healthy_Ireland_Survey_(Ireland)|Survey: Healthy Ireland Survey hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Compilation: National Cancer Control Programme Guidelines hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Compilation: Department of Health Guidelines hasReport::Compilation:_Cancer_Statistics_Reports_(Ireland)|Compilation: Cancer Statistics Reports hasReport::Report:_EU_Country_Cancer_Profile_2023_(Ireland)|Report: EU Country Cancer Profile 2023 hasReport::Report:_National_Cancer_Strategy_2017-2026_(Ireland)|Report: National Cancer Strategy 2017-2026 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Ireland)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Ireland)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Compilation:_National_Cancer_Control_Programme_Guidelines_(Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation hasClinicalGuidelines::Compilation:_Department_of_Health_Guidelines_(Ireland)|Guidelines: Department of Health Guidelines Compilation hasDatabase::Databases: Department of Health Databases (CSO) Compilation (Ireland)|Databases: Department of Health Databases (CSO) Compilation hasClinicalGuidelines::Guidelines: National Cancer Control Programme Guidelines Compilation (Ireland)|Guidelines: National Cancer Control Programme Guidelines Compilation hasClinicalGuidelines::Guidelines: Department of Health Guidelines Compilation (Ireland)|Guidelines: Department of Health Guidelines Compilation hasReport::Reports: Cancer Statistics Reports Compilation (Ireland)|Reports: Cancer Statistics Reports Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Ireland)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

Retrieved from "https://wiki.beaconcancer.org/index.php?title=Ireland&oldid=36136"
Powered by MediaWiki
Powered by Semantic MediaWiki