The Netherlands: Difference between revisions

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'''Cancer Areas of Interest:'''  
'''Cancer Areas of Interest:'''  


'''Data access''':  
'''Data access''': Regional level data is available [https://iknl.nl/nkr-cijfers here]. Access to patient level data can be requested by following the steps described [https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag here].


'''Information/contact for data request''': [ Contact information].
'''Information/contact for data request''': [https://iknl.nl/over-iknl/contact-adres Contact information].
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=== Database: ===
=== Database: ===

Revision as of 19:41, 4 April 2023

Cancer Centers

Healthcare System

Administrative or Claims Data

Registries

Database: Netherlands Cancer Registry (NKR)

[1] [2]

Primary purpose:

Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).

Type of information:

Source of information: Hospitals' reports.

Data level: Regional level (open access) and Patient level (restricted access). . Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.

Date range: Varies according to the diagnosis.

Cancer Areas of Interest:

Data access: Regional level data is available here. Access to patient level data can be requested by following the steps described here.

Information/contact for data request: Contact information.

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives