Austria: Difference between revisions
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'''Available data level:''' national level and regional level. | '''Available data level:''' national level and regional level. | ||
'''Number of Records:''' | '''Number of Records:''' unknown. | ||
'''Date Range:''' 1989 onwards. | '''Date Range:''' 1989 onwards. | ||
| Line 49: | Line 49: | ||
'''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Statistik Austria Patient Discharge|Statistik Austria Patient Discharge]] [https://statcube.at/statistik.at/ext/statcube/jsf/tableView/tableView.xhtml] | '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Statistik Austria Patient Discharge|Statistik Austria Patient Discharge]] [https://statcube.at/statistik.at/ext/statcube/jsf/tableView/tableView.xhtml] | ||
'''Data access:''' | '''Data access:''' partially publicly available [https://statcube.at/statistik.at/ext/statcube/jsf/tableView/tableView.xhtml]. Instructions to request data for restricted content [https://www.statistik.at/services/tools/services/amdc-mikrodaten-fuer-die-wissenschaft/mikrodatennutzung-fragen-und-antworten]. | ||
'''Contact Information:''' Information [https://data.statistik.gv.at/web/?page=contact]. | '''Contact Information:''' Information [https://data.statistik.gv.at/web/?page=contact]. | ||
Revision as of 19:33, 15 November 2023
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Cancer Centers
Healthcare System
Austria employs a social health insurance system based on mandatory contributions from employees and employers. The system provides universal healthcare coverage to its citizens and residents, ensuring access to a wide range of medical services.
The Federal Ministry of Social Affairs, Health, Care, and Consumer Protection is responsible for overseeing the healthcare system in Austria. The country's social health insurance is administered by regional health insurance funds called Gebietskrankenkassen. There are nine regional funds, one for each of Austria's provinces, and several smaller specialized funds for specific professional groups.
The population receives comprehensive healthcare benefits through the system, including access to primary care, specialist care, hospital care, dental care, and prescription medications. The system also covers preventive care, maternity care, and rehabilitation services. Additionally, it provides financial support for patients with chronic illnesses or disabilities. To access healthcare benefits in Austria, individuals must have health insurance, which is mandatory for all residents. Individuals may access any level of the healthcare system with no restrictions, as there is no formal gatekeeping system in place.
To access the benefits provided by the Austrian healthcare system, an individual must be a citizen or a legal resident of the country. They also must be enrolled in the social health insurance system, which is typically achieved through mandatory contributions from both employees and employers. Additionally, family members of insured individuals, such as spouses and children, can access healthcare benefits without any additional contributions.
Claims data in Austria is primarily collected and managed by the regional health insurance funds. The country maintains a Central Patient Registry, which contains anonymized data on hospital admissions and discharges. Electronic health records (EHR) are being increasingly adopted, with the Austrian ELGA system providing a secure platform for healthcare providers to access and share patient information, including medical history, laboratory results, and radiology reports. The ELGA system is designed to improve coordination and continuity of care, while also maintaining strict data privacy and security measures.
Administrative or Claims Data
Database: Statistik Austria Patient Discharge
Sponsor, manager or home institution: Statistik Austria;
Primary purpose: Provide open access information about patient discharge.
Type of information: Data Dictionary: Statistik Austria Patient Discharge [2].
Available type of information: hospital discharges (by sex, age, place of residence, hospital's care sector, hospital location, length of stay, type of discharge, type of tumor, medical procedure) [3].
Source of Information: Legal entities of hospitals with in-patient admissions are obliged to report.
Data level: patient level.
Available data level: national level and regional level.
Number of Records: unknown.
Date Range: 1989 onwards.
Cancer Areas of Interest: Statistik Austria Patient Discharge [4]
Data access: partially publicly available [5]. Instructions to request data for restricted content [6].
Contact Information: Information [7].
Registries
Database: Statistik Austria Cancer Registry
Sponsor, manager or home institution: Statistik Austria.
Primary purpose: Provide open access information about cancer incidence.
Type of information: Data Dictionary: Cancer Registry. More information and data dictionaries on this and other datasets can be found on the Search bar by typing "KRE 2020 - Krebsstatistik (Krebsregister)" and opening the file [9].
Available type of information: cancer incidence (by sex, place of residence, age, tumor staging, and tumor histology), cancer prevalence and the survival probability of cancer patients [10][11].
Source of Information: Hospitals are obliged to report cancer cases and deaths caused by cancer.
Data level: patient level.
Available data level: national and regional level.
Number of Records: Unknown.
Date Range: 1983 onwards.
Cancer Areas of Interest: Statistik Austria Cancer Registry
Data access: Data is partially publicly available [12][13]. Instructions to request data for restricted content [14].
Contact information: Information [15].
Database: Statistik Austria Cause of Death Registry
Sponsor, manager or home institution: Statistik Austria.
Primary purpose: Provide open access information about cause of death.
Type of information: Data Dictionary: Statistik Austria Cause of Death Registry. More information and data dictionaries on this and other datasets [17]. (To access the tables, click in the link -> type "STF - Statistik der Standesfälle einschließlich Todesursachenstatistik" in the search bar -> click to open the menus "Deceased - demographic characteristics" and "Deceased - causes of death").
Available type of information: cancer mortality for all malignant neoplasms (C00–C97, excl. C44) (by sex, time, tumor site, place of residence) [18].
Source of Information: Death data in Austria comes from registrar reports, including deaths of residents abroad since 2009. Results are classified by the person's last known residence.
Data level: patient level.
Available data level: national level and regional level.
Number of Records: Approximately 85,000.
Date Range: 1970 onwards.
Cancer Areas of Interest: Statistik Austria Cause of Death Registry
Data access: Data is partially publicly available [19][20]. Instructions to request data for restricted content [21].
Contact information: Information [22].
Database: The Austrian Brain Tumour Registry (ABTR)
Sponsor, manager or home institution: Austrian Society of Neuropathology and the Institute of Neurology (Neuropathology) of the Medical University of Vienna.
Primary purpose: Provide a population-based database on individual types of malignant and non-malignant brain tumours.
Type of information: Data Dictionary - ABTR Austria.
Source of Information: All Austrian pathology or neuropathology departments/units involved in brain tumour diagnostics and the Austrian National Cancer Registry.
Data level: patient-level.
Number of Records: 1,807 cases as of 2005.
Date Range: 2005 onwards.
Cancer Areas of Interest: The Austrian Brain Tumour Registry (ABTR) [25].
Data Access: Data is not publicly available.
Contact information: Information [26].
Databases for Clinical Trials, Surveys and Biobanks
Survey: Health Survey 2019
Sponsor, manager or home institution: Statistik Austria.
Primary purpose: Provides representative data on the state of health, health behavior, and use of health services for the Austrian population aged 15 and over.
Type of information: Data Dictionary: Variable descriptions of the 2019 health survey. To find the original data dictionary [27], go to Data Offering - Standardized Datasets (SDS) > Health Survey > Sample metadata > ATHIS 2019 - complete data set.
Source of Information: Survey responses.
Data level: Respondent level.
Number of Records: 15,461 respondents.
Date Range: 2019 and 2014.
Cancer Areas of Interest: Unknown.
Data access: Data is partially publicly available [28]. Instructions to request data for restricted content [29].
Contact information:Information [30].
Clinical Practices Guidelines
Compilation: ESMO Guidelines
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: Give providers recommendations prepared and reviewed by leading experts in each topic to help patients with the best care available.
Available guidelines: Available Guidelines: ESMO Guidelines
Type of information: Guidelines for each step in the cancer journey including information on incidence and epidemiology; diagnosis, pathology and molecular biology; staging and risk assessment; management of advanced and metastatic disease; personalised medicine; long-term implications and survivorship; among other information specific to each cancer type. All guidelines have references and methodology sections.
Access to information: List of guidelines [31].
Latest Policymaking Initiatives
Report: Austrian Cancer Report
Sponsor, manager or home institution: Österreichische Gesellschaft für Hämatologie & Medizinische Onkologie (OeGHO) and Österreichischen Krebshilfe.
Primary purpose: To present initiatives and innovations aimed at improving treatment concepts and care for people with cancer in Austria, providing an overview of epidemiological data and cancer research, and highlighting important innovations and challenges in the field of oncology.
Type of information: The most common tumor locations; Cancer survival; Development of hospice and palliative care per facility type.
Data level: National level.
Access to information: Access Information [32].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [33].
Patient Association: Europa Donna Austria
Primary purpose: To provide guidance and support to women diagnosed with breast cancer, while advocating for their interests in public and political forums.
Contact information: Information [35].
Self-help Group: Austrian Cancer Aid
Primary purpose: To serve as a comprehensive contact point for cancer prevention and early detection, providing support for patients and their relatives, promoting cancer research, and raising public awareness about cancer.
Contact information: Information [37].
Self-help group: SHG Brain Tumor Vienna
Primary purpose: To provide a supportive space for individuals affected by brain tumors and their relatives to share experiences, receive information, and interact with each other, both in person and virtually.
Contact information: Information [39].
Self-help group: Mamma Mia
Primary purpose: To offer support and information to those affected by breast cancer and their families, promote scientific research, and foster cooperation between health institutions and experts, all aimed at aiding women in this challenging life situation.
Contact information: Information [41].
Self-help group: Multiple Myeloma Self-Help Austria
Primary purpose: To provide support, foster community, enhance patient-doctor communication, and promote quality of life for multiple myeloma patients and their families.
Contact information: Information [43].
Self-help group: Myeloma and Lymphoma Aid Austria
Primary purpose: To provide extensive advice, foster patient-doctor communication, organize informative events, and promote the exchange of experiences to support those affected by myeloma and lymphoma and their relatives.
Contact information: Information [45].
Self-help group: Self-help Colon Cancer
Primary purpose: To provide support for people affected by colon cancer.
Contact information: Information [47].
Self-help group: Self-Help Prostate Cancer
Primary purpose: To provide support for people affected by prostate cancer.
Contact information: Information [49].
Self-help group: Austria's laryngeal and throat breathers registered association
Primary purpose: To support and advocate for individuals without a larynx or those who breathe through their throats, focusing on their rehabilitation and representation in public and within similar organizations.
Contact information: Information [51].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Cancer Therapy During the COVID-19 Pandemic; Immunotherapy related side effects and their management; Survivorship; Cancer pain; Multiple myeloma.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [52].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [53] and Palliative Care [54].
