Database: National Registry of Childhood Cancer (RNCCR) (Romania): Difference between revisions
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'''Primary purpose:''' To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. | '''Primary purpose:''' To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. | ||
'''Type of information''': The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext]. Data refers to people aged between 0 and 14 years. | '''Type of information''': [[hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR)]]. The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext]. Data refers to people aged between 0 and 14 years. | ||
'''Source of information''': Reports from pediatric oncologic centers. | '''Source of information''': Reports from pediatric oncologic centers. | ||
Revision as of 13:51, 29 November 2023
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Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania.
Type of information: Data Dictionary - National Registry of Childhood Cancer (RNCCR). The information contained in the registry follows the recommendations of ENCR [2]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [3]. Data refers to people aged between 0 and 14 years.
Source of information: Reports from pediatric oncologic centers.
Data level: patient level.
Date range: 2009 onwards.
Cancer areas of interest: unknown.
Data access: partially publicly available [4]. Instructions to request data for restricted content [5].
Contact information: Information [6].
