Database: Netherlands Cancer Registry (NKR) (The Netherlands)

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[1]

Primary purpose: Record and monitor cancer statistics around the Netherlands.

Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).

Type of information: Data dictionary - Netherlands Cancer Registry (NKR) [2].

Available type of information: cancer incidence; Count, crude rate per 100,000 persons per year; European Standardized Rate (ESR) per 100,000 persons per year; World Standardized Rate (WSR); Revised European Standardized Rate (RESR); diagnosis; sex; age; region; year; cancer prevalence; cancer mortality; cancer survival; relative survival; period from diagnosis; (1 year and 10 years); age at time of diagnosis; tumor staging.

Also, there is a cancer atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011–2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender.

Source of information: Hospitals' reports [3].

Data level: patient level.

Available data level: regional level.

Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in the Netherlands.

Date range: varies according to the diagnosis and the type of information [4].

Cancer Areas of Interest: C00-D48: All neoplasms [5].

Data access: partially publicly available [6]. Instructions to request data for restricted content [7]. The cancer atlas access [8].

Contact information: Information [9].