EHDEN Participation (Azienda Unità Sanitaria Locale di Reggio Emilia - IRCCS Istituto in Tecnologie Avanzate e Modelli Assistenziali in Oncologia)

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The Azienda Unità Sanitaria Locale di Reggio Emilia - IRCCS Istituto in Tecnologie Avanzate e Modelli Assistenziali in Oncologia is part of the EHDEN Network of Data Partners.

The European Health Data and Evidence Network (EHDEN) aims to standardize European health data using OMOP-CDM to facilitate research. The project creates a federated network of data sources for easy access by researchers and policymakers. Its goal is to improve healthcare outcomes through better data quality and interoperability.

Primary purpose: To comprehensively record and integrate COVID-19 related clinical and administrative data for research and healthcare management, compliant with regulations.

Type of information: The database from Arcispedale Santa Maria Nuova Clinical and Research Hospital includes extended COVID-19 related data, integrated with their existing EMR system and Clinical Data Repository, covering clinical and administrative details like lab results and therapies.

Data level: Regional level.

Number of records: 43,564 patients.

Data range: 2020 onwards.

Open Data Access: Data is not publicly available. Instructions for data request [1].

Cancer areas of interest: C00-D48: All neoplasms. Click here to access.

Contact information: Click here to access.