Data Dictionary: Socialstyrelsen Cancer Registry: Difference between revisions

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Source: [https://www.socialstyrelsen.se/en/statistics-and-data/registers/national-cancer-register/ Click here to learn more].
Source: [https://www.socialstyrelsen.se/en/statistics-and-data/registers/national-cancer-register/ click here to learn more].


{| class="wikitable"
{| class="wikitable"
|-
|-
| Age of patient at diagnosis
! Variable Name !! Definition
|-
|-
| Year of diagnosis
| AGE || Patient's age at diagnosis
|-
|-
| Indicator of malignant or benign tumor based on morphology
| YEAR || Year of diagnosis
|-
|-
| Basis for cause of death statement, either clinical or forensic autopsy
| BEN* || Indicator for malignant or benign tumor according to morphology. (See link to the regulation)
|-
|-
| Date diagnosis was established
| DBGRUND1 || Basis for cause of death information. If clinical or forensic autopsy.
|-
|-
| Type of examination that formed basis of diagnosis
| DIADATE || Date when the diagnosis was established
|-
|-
| Date patient died, information from cause of death register
| DIADATEN || Date when the diagnosis was established
|-
|-
| Tumor spread at time of diagnosis for gynecological tumors
| DIGR* || Type of examination underlying the diagnosis.
|-
|-
| Patient's date of birth
| DEATHDATE || Date when the patient died, information from the cause of death register
|-
|-
| Patient's place of registration at time of diagnosis, forwarded to January 1 of last year
| DEATHDATEN || Date when the patient died, information from the cause of death register
|-
|-
| Error code for projecting patient's place of registration
| EXNR || Counter for breast cancer records in the registry, one line per reported breast cancer tumor.
|-
|-
| Location of tumor according to ICD-7 codes for leukemias and lymphomas according to ICD-8 during entire period (1958-)
| FIGO || Tumor spread at the time of diagnosis, gynecological tumors.
|-
|-
| Tumor location according to ICD-9
| DOB || Patient's date of birth
|-
|-
| Tumor location according to ICD-O/2 (with some elements of ICD-10)
| DOBN || Patient's date of birth
|-
|-
| Tumor location according to ICD-O/3
| HEMFR || Patient's registered residence at the time of diagnosis, extrapolated to January 1 of the latest year
|-
|-
| Information taken from A-form that was basis for hospital and diagnosis coding (may be blank)
| HEMFRF || Error code for extrapolating the patient's registered residence
|-
|-
| Clinic where patient's diagnosis was established
| ICD7 || Tumor location according to ICD-7, Codes for leukemias and lymphomas according to ICD-8 throughout the period (1958-).
|-
|-
| Patient's gender
| ICD9 || Tumor location according to ICD-9
|-
|-
| Patient's place of registration at time of diagnosis
| ICDO10 || Tumor location according to ICD-O/2 (with some elements of ICD-10)
|-
|-
| Tumor spread at time of diagnosis, distant metastases
| ICDO3 || Tumor location according to ICD-O/3
|-
|-
| Tumor spread at time of diagnosis, lymph nodes
| JNR || Information retrieved from the A-form underlying hospital and diagnostic coding. It may be blank.
|-
|-
| Tumor identified at autopsy
| CLINIC || The clinic where the patient's diagnosis was established
|-
|-
| Histopathological diagnosis of tumor according to C24.1
| GENDER || Patient's gender
|-
|-
| Diagnostic pathology and cytology department
| LKF || Patient's registered residence at the time of diagnosis
|-
|-
| Patient's social security number
| M || Tumor spread at the time of diagnosis, distant metastases.
|-
|-
| Variable showing quality of personal identification number (PNR), created using standard macro checking
| N || Tumor spread at the time of diagnosis, lymph nodes.
|-
|-
| Number of histopathological preparation including year
| OBD1 || Tumor identified at autopsy
|-
|-
| Healthcare region
| PAD || Tumor's histopathological diagnosis according to C24.1.
|-
|-
| Side indication for paired organs
| PATH || Diagnosing pathology and cytology department
|-
|-
| Healthcare facility where diagnosis was established
| SSN || Patient's social security number
|-
|-
| Morphological diagnosis of tumor according to ICD-O/3
| SSNQ || Variable showing the quality of a social security number (SSN). The variable is created using the standard macro checkssn.
|-
|-
| Morphological diagnosis of tumor according to ICD-O/2
| PREP || Number of the histopathological specimen including year
|-
|-
| Tumor spread at time of diagnosis, tumor size
| REGION* || Healthcare region
|-
|-
| Week when move was announced until 1997 (Statistics Sweden has translated year and week into the first day of the respective week. From 1998, the date refers to the day person declared move to Tax Authority)
| RTBDATUM ||
|-
|-
| Research that was the basis for TNM, indicated as pathological if any of T, N, or M is based on morphological examination
| MOVDATE || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
|-
| Clinical if only clinical examination was the basis and morphological examination is missing
| SENUTV || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
|-
| Tumor number in chronological order for all reportable tumors if the patient was diagnosed with multiple tumors
| SIDE* || Side indication for paired organs
|-
|-
| Tumor numbers in chronological order for malignant tumors only if the patient was diagnosed with multiple tumors
| HOSPITAL || The healthcare institution where the diagnosis was established
|-
|-
| Illness/injury that started a chain of events leading to death
| SNOMED3 || Tumor's morphological diagnosis according to ICD-O/3
|-
| SNOMEDO10 || Tumor's morphological diagnosis according to ICD-O/2
|-
| T || Tumor spread at the time of diagnosis, tumor size.
|-
| TIMEINV || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
| TIMEUTV || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
| TNMGRUND* || Examination underlying TNM. Pathological is indicated if any of T, N, or M is based on morphological examination. Clinical is indicated when only clinical investigation is the basis and morphological examination is lacking.
|-
| TN || Tumor number in chronological order, all reportable tumors. (If the patient has been diagnosed with multiple tumors)
|-
| TNMAL || Tumor number in chronological order, only malignant tumors. (If the patient has been diagnosed with multiple tumors)
|-
| ULTCASE || The disease/injury that initiated the chain of events that ultimately led to death.
|}
|}

Revision as of 16:18, 19 May 2024

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Source: click here to learn more.

Variable Name Definition
AGE Patient's age at diagnosis
YEAR Year of diagnosis
BEN* Indicator for malignant or benign tumor according to morphology. (See link to the regulation)
DBGRUND1 Basis for cause of death information. If clinical or forensic autopsy.
DIADATE Date when the diagnosis was established
DIADATEN Date when the diagnosis was established
DIGR* Type of examination underlying the diagnosis.
DEATHDATE Date when the patient died, information from the cause of death register
DEATHDATEN Date when the patient died, information from the cause of death register
EXNR Counter for breast cancer records in the registry, one line per reported breast cancer tumor.
FIGO Tumor spread at the time of diagnosis, gynecological tumors.
DOB Patient's date of birth
DOBN Patient's date of birth
HEMFR Patient's registered residence at the time of diagnosis, extrapolated to January 1 of the latest year
HEMFRF Error code for extrapolating the patient's registered residence
ICD7 Tumor location according to ICD-7, Codes for leukemias and lymphomas according to ICD-8 throughout the period (1958-).
ICD9 Tumor location according to ICD-9
ICDO10 Tumor location according to ICD-O/2 (with some elements of ICD-10)
ICDO3 Tumor location according to ICD-O/3
JNR Information retrieved from the A-form underlying hospital and diagnostic coding. It may be blank.
CLINIC The clinic where the patient's diagnosis was established
GENDER Patient's gender
LKF Patient's registered residence at the time of diagnosis
M Tumor spread at the time of diagnosis, distant metastases.
N Tumor spread at the time of diagnosis, lymph nodes.
OBD1 Tumor identified at autopsy
PAD Tumor's histopathological diagnosis according to C24.1.
PATH Diagnosing pathology and cytology department
SSN Patient's social security number
SSNQ Variable showing the quality of a social security number (SSN). The variable is created using the standard macro checkssn.
PREP Number of the histopathological specimen including year
REGION* Healthcare region
RTBDATUM
MOVDATE Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
SENUTV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
SIDE* Side indication for paired organs
HOSPITAL The healthcare institution where the diagnosis was established
SNOMED3 Tumor's morphological diagnosis according to ICD-O/3
SNOMEDO10 Tumor's morphological diagnosis according to ICD-O/2
T Tumor spread at the time of diagnosis, tumor size.
TIMEINV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
TIMEUTV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
TNMGRUND* Examination underlying TNM. Pathological is indicated if any of T, N, or M is based on morphological examination. Clinical is indicated when only clinical investigation is the basis and morphological examination is lacking.
TN Tumor number in chronological order, all reportable tumors. (If the patient has been diagnosed with multiple tumors)
TNMAL Tumor number in chronological order, only malignant tumors. (If the patient has been diagnosed with multiple tumors)
ULTCASE The disease/injury that initiated the chain of events that ultimately led to death.