Database: National Registry of Childhood Cancer (RNCCR) (Romania): Difference between revisions
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'''Type of information''': [[hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR)]]. The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf Click here to learn more]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext Click here to learn more]. Data refers to people aged between 0 and 14 years. | '''Type of information''': [[hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR)]]. The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf Click here to learn more]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext Click here to learn more]. Data refers to people aged between 0 and 14 years. | ||
'''Available type of information:''' [[availableVariable::age]], [[availableVariable::sex]], [[availableVariable::place of residence]], [[availableVariable::region]], [[availableVariable::diagnosis]], [[availableVariable::primary tumor localization]], [[availableVariable::tumor histology]], [[availableVariable::tumor staging]], [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], [[availableVariable::causes of death]], [[availableVariable::number of deaths]], [[availableVariable::potential years of life lost]], [[availableVariable::hospital discharges]], [[availableVariable::number of visits]], [[availableVariable::year]]. | |||
'''Source of information''': Reports from pediatric oncologic centers. | '''Source of information''': Reports from pediatric oncologic centers. | ||
Revision as of 18:56, 14 June 2024
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Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. Click here to learn more.
Type of information: Data Dictionary - National Registry of Childhood Cancer (RNCCR). The information contained in the registry follows the recommendations of ENCR Click here to learn more. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus Click here to learn more. Data refers to people aged between 0 and 14 years.
Available type of information: age, sex, place of residence, region, diagnosis, primary tumor localization, tumor histology, tumor staging, cancer incidence, cancer survival, causes of death, number of deaths, potential years of life lost, hospital discharges, number of visits, year.
Source of information: Reports from pediatric oncologic centers.
Data level: patient level.
Date range: 2009 onwards.
Cancer areas of interest: unknown.
Data access: partially publicly available. Click here to access. Instructions to request data for restricted content are available. Click here to learn more..
Contact information: Click here to learn more.
