Database: Socialstyrelsen Cause of Death Registry (Sweden)

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Type of database: registry.

Sponsor, manager or home institution: Socialstyrelsen.

Primary purpose: To describe the causes of death and track mortality trends in Sweden.

Type of information: cross-sectional. age, sex, marital status, place of residence, alcohol consumption, self-reported prevalence of chronic diseases, diagnosis, medical procedures, check-up examinations, number of deaths, causes of death, year.

Data Dictionary: Socialstyrelsen Cause of Death Registry.

Click here to learn more.

Available type of information: number of deaths; Deaths rates and deaths by 100,000 people; diagnosis; age; sex and region.

Source of information: The death certificates are sent by doctors to the Tax Agency or the Police, and then are sent to the Socialstyrelsen.

Data level: patient level.

Available data level: regional level and national level.

Number of records: Around 90,000 people per year.

Date range: 1969 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Data from 1969 to 1996 information: click here to access; Data from 1997 onwards information: click here to access. Instructions to request data for restricted content: click here to learn more. Data can be downloaded in the formats CSV, XLSX. Data has access costs.

Contact information: Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Socialstyrelsen databaseStructure::cross-sectional hasVariable::age hasVariable::sex hasVariable::marital status hasVariable::place of residence hasVariable::alcohol consumption hasVariable::self-reported prevalence of chronic diseases hasVariable::diagnosis hasVariable::medical procedures hasVariable::check-up examinations hasVariable::number of deaths hasVariable::causes of death hasVariable::year hasDataDictionary::Data Dictionary: Socialstyrelsen Cause of Death Registry availableVariable::number of deaths availableVariable::diagnosis availableVariable::age availableVariable::sex availableVariable::region dataLevel::patient level availableDataLevel::regional level availableDataLevel::national level dataStart::1969 dataEnd::onwards hasCancerType::C00-D48: All neoplasms dataAvailability::partially publicly available hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more hasDownloadableData::CSV hasDownloadableData::XLSX hasDataAccessCosts::Data has access costs isDatabase hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown