Database: Southern Regional Oncology Registry (ROR-Sul) (Portugal): Difference between revisions

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<span style="display:none">dataEnd::2017</span>
<span style="display:none">dataEnd::2017</span>
<span style="display:none">dataStart::1998</span>
<span style="display:none">dataStart::1998</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">dataAvailability::partially publicly available</span>
<span style="display:none">dataAvailability::partially publicly available</span>
<span style="display:none">hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access</span>
<span style="display:none">hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access</span>
<span style="display:none">isDatabase</span>
<span style="display:none">isDatabase</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
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<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Revision as of 19:00, 10 December 2025

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Type of database: registry.

Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.

Sponsor, manager or home institution: Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG).

Type of information: longitudinal. types of visits and number of visits to health care stablishments, periodicity of physician consultation, diagnosis, primary tumour localization, tumour staging, risk of cancer, tumour histology, medical procedures, causes of death, year, sex, region.

Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal).

Click here to learn more.

Available type of information: cancer incidence, number of deaths and cancer survival by year, age, diagnosis, sex, region, causes of death, primary tumour localization, tumour histology, tumour staging. Click here to learn more.

Source of information: Data from public and private health institutions of the region.

Data level: patient level.

Available data level: regional level.

Number of records: unknown.

Date range: Regional level is presented from 2002 to 2017, and 1998 - 2000/2001. The patient level date range is unknown.

Cancer areas of interest: C00-C97: All cancer types. Click here to learn more.

Data access: partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website: click here to access. Instructions to request data for restricted content: click here to access.

Contact information: Click here to access. databaseType::registry dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG) databaseStructure::longitudinal hasVariable::types of visits hasVariable::number of visits hasVariable::periodicity of physician consultation hasVariable::diagnosis hasVariable::primary tumour localization hasVariable::tumour staging hasVariable::risk of cancer hasVariable::tumour histology hasVariable::medical procedures hasVariable::causes of death hasVariable::year hasVariable::sex hasVariable::region hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal) availableVariable::cancer incidence availableVariable::number of deaths availableVariable::cancer survival availableVariable::year availableVariable::age availableVariable::diagnosis availableVariable::sex availableVariable::region availableVariable::causes of death availableVariable::primary tumour localization availableVariable::tumour histology availableVariable::tumour staging dataLevel::patient level availableDataLevel::regional level numberRecords::unknown dataEnd::2017 dataStart::1998 dataAvailability::partially publicly available hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access isDatabase hasCancerType::C00-C97: All cancer types hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start