Denmark: Difference between revisions

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== [[Administrative or Claims Data]] ==
== [[Administrative or Claims Data]] ==


== [https://sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/sygdomme-laegemidler-og-behandlinger/laegemiddelstatistikregisteret The Medicines Statistics Register (LSR)] ==
=== [https://sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/sygdomme-laegemidler-og-behandlinger/laegemiddelstatistikregisteret The Medicines Statistics Register (LSR)] ===


'''Sponsor, manager or home institution''': The Danish Medicines Agency
'''Sponsor, manager or home institution''': The Danish Medicines Agency
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'''Information/contact for data request''': [https://sundhedsdatastyrelsen.dk/da/kontakt Contact information]
'''Information/contact for data request''': [https://sundhedsdatastyrelsen.dk/da/kontakt Contact information]


 
=== [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler#tabpanel158AFB3B131B4E8CAD6AEDC787AE3F98 Pharmacies' sales of medicines] ===
== [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler#tabpanel158AFB3B131B4E8CAD6AEDC787AE3F98 Pharmacies' sales of medicines] ==


'''Sponsor, manager or home institution''': The Danish Health Data Agency
'''Sponsor, manager or home institution''': The Danish Health Data Agency
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'''Information/contact for data request''': [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler Contact information]
'''Information/contact for data request''': [https://www.esundhed.dk/Emner/Laegemidler/Apotekernes-salg-af-laegemidler Contact information]
=== [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanel7E2094C00E7D43AFBEEC71B851C3A8A7 Use of medicines during pregnancy] ===
'''Sponsor, manager or home institution''': The Danish Health Data Agency
'''Type of information''': Quantitative measures related to medications' sales to pregnant women.
'''Source of information''': The Medicines Statistics Register (LSR).
'''Data level''': National level.
'''Date range''': 1 January 2001 onwards.
'''Data access''': It is openly available [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanelD9F24CFC14FF4DC3BF89F53942438A68 here].
'''Information/contact for data request''': [https://www.esundhed.dk/Emner/Laegemidler/Brug-af-laegemidler-under-graviditet#tabpanelD9F24CFC14FF4DC3BF89F53942438A68 Contact information].


== [[Registries]] ==
== [[Registries]] ==
=== [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B New cancer cases report] ===
'''Primary purpose''': Display quantitative information about new cancer cases annually to political professionals, researchers and general public.
'''Sponsor, manager or home institution''': The Danish Health Data Agency.
'''Type of information''': Cancer incidence, prevalence, number of tumors per 100,000 citizens, age-standardized value for the number of tumors (per 100,000 citizens), age- and sex-standardized value for the number of tumors (per 100,000 citizens).
'''Source of information''': Cancer registries from the hospitals' reports to the National Patient Register, death registries, patology registries.
'''Data level''': National level.
'''Date range''': From 1978 to 2020
'''Data access''': It is openly available [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B here].
'''Cancer areas of interest''': The list can be checked [https://www.esundhed.dk/Emner/Kraeft/-/media/FF20D765CB9B4C0EBED76AA7AAD87B15.ashx here]
'''Information/contact for data request''': [https://www.esundhed.dk/Registre/Cancerregisteret/Nye-kraefttilfaelde#tabpanel25C3B9FFA4D24D21809446D5FD27810B Contact information].


== [[Clinical Study Databases]] ==
== [[Clinical Study Databases]] ==

Revision as of 23:44, 8 January 2023

Cancer Centers

Healthcare System

Denmark citizens have access to universal healthcare funded by income tax. The national government regulates, plans and assesses healthcare. Regional government provides most of the healthcare services, while municipalities are responsible nursing homes, home care, school health services, disease prevention, rehabilitation and non-specialized long-term care. Citizens must register with a general practitioner who will refer patients to other specializations according to need. The CPR-number is an unique electronic personal identifier of Denmark permanent residents and configures an important tool to connect data across registries and databases.

Administrative or Claims Data

The Medicines Statistics Register (LSR)

Sponsor, manager or home institution: The Danish Medicines Agency

Type of information: Information on prescriptions dispensed to residents of long-termcare institutions

Source of information: Reports from pharmacies, hospital pharmacies, the Statens Serum Institut and Denmark's Food Research, and convenience stores that do not sell over-the-counter medicines reserved for pharmacies.

Data level: Patient level

Number of records: Receives 96 million reports per year. Current total number unknown.

Date range: 1995 onwards

Data access: The access to data from this database is restricted, for this purpose read the instrunctions presented here

Information/contact for data request: Contact information

Pharmacies' sales of medicines

Sponsor, manager or home institution: The Danish Health Data Agency

Type of information: Quantitative measures related to medications' sales.

Source of information: The Medicines Statistics Register (LSR)

Data level: National level

Number of records: Unknown

Date range: Year of birth ranges by 2001- 2018

Data access: It is openly available here

Information/contact for data request: Contact information

Use of medicines during pregnancy

Sponsor, manager or home institution: The Danish Health Data Agency

Type of information: Quantitative measures related to medications' sales to pregnant women.

Source of information: The Medicines Statistics Register (LSR).

Data level: National level.

Date range: 1 January 2001 onwards.

Data access: It is openly available here.

Information/contact for data request: Contact information.


Registries

New cancer cases report

Primary purpose: Display quantitative information about new cancer cases annually to political professionals, researchers and general public.

Sponsor, manager or home institution: The Danish Health Data Agency.

Type of information: Cancer incidence, prevalence, number of tumors per 100,000 citizens, age-standardized value for the number of tumors (per 100,000 citizens), age- and sex-standardized value for the number of tumors (per 100,000 citizens).

Source of information: Cancer registries from the hospitals' reports to the National Patient Register, death registries, patology registries.

Data level: National level.

Date range: From 1978 to 2020

Data access: It is openly available here.

Cancer areas of interest: The list can be checked here

Information/contact for data request: Contact information.


Clinical Study Databases

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Cancer-related Patient Associations