Denmark

Healthcare System

Denmark citizens have access to universal healthcare funded by income tax. The national government regulates, plans and assesses healthcare. Regional government provides most of the healthcare services, while municipalities are responsible nursing homes, home care, school health services, disease prevention, rehabilitation and non-specialized long-term care. Citizens must register with a general practitioner who will refer patients to other specializations according to need. The CPR-number is an unique electronic personal identifier of Denmark permanent residents and configures an important tool to connect data across registries and databases.

Administrative or Claims Data

The Medicines Statistics Register (LSR)

Sponsor, manager or home institution: The Danish Medicines Agency

Type of information: Information on prescriptions dispensed to residents of long-termcare institutions

Source of information: Reports from pharmacies, hospital pharmacies, the Statens Serum Institut and Denmark's Food Research, and convenience stores that do not sell over-the-counter medicines reserved for pharmacies.

Data level: Patient level

Number of records: Receives 96 million reports per year. Current total number unknown.

Date range: 1995 onwards

Data access: The access to data from this database is restricted, for this purpose read the instrunctions presented here

Information/contact for data request: Contact information

Pharmacies' sales of medicines

Sponsor, manager or home institution: The Danish Health Data Agency.

Type of information: Quantitative measures related to medications' sales (total quantity sold, total revenue, average shipping price per unit of quantity, regions' health insurance subsidy, pharmacy's total purchase price, pharmacy's purchase price per amount, number of buyers per quarter).

Source of information: The Medicines Statistics Register (LSR).

Data level: National level.

Number of records: Unknown.

Date range: 2018 onwards.

Data access: It is openly available here.

Information/contact for data request: Contact information.

Use of medicines during pregnancy

Sponsor, manager or home institution: The Danish Health Data Agency

Type of information: Quantitative measures related to medications' sales to pregnant women.

Source of information: The Medicines Statistics Register (LSR).

Data level: National level.

Date range: It is based on the year of birth, which ranges from 2001 to 2018.

Data access: It is openly available here.

Information/contact for data request: Contact information.

Registries

The Danish Cancer Register

[1]

Primary purpose: Collects and processes new diagnosed cancer cases in Denmark.

Sponsor, manager or home institution: The Danish Health Data Authority.

Type of information: Time of diagnosis, location and its type of disease, dissemination of the disease in relation to the time of diagnosis, diagnosis method.

Type of variables: ICD-10 diagnosis, tumor characteristics (morphology, topography, behaviour, laterality, stage), date of diagnosis, basis for diagnosis, tumour number.

Source of information: 1943 – 2003 on reports from hospitals and practicing specialists. From 2004 onwards, data was collected from the National Patient Register (LPR), the Danish Health Authority's Electronic Reporting System (SEI) and the National Register of Pathology (LRP).

Data level: Patient level.

Date range: From 1943 onwards.

Cancer areas of interest: Unknown.

Data access: It is available only for authorized researchers. To request data access contact the Danish Health Data Agency's Research Service. Contact information available below.

Information/contact for data request: Contact information can be found here.

New cancer cases report

Primary purpose: Display quantitative information about new cancer cases annually to political professionals, researchers and general public.

Sponsor, manager or home institution: The Danish Health Data Agency.

Type of information: Cancer incidence, prevalence, number of tumors per 100,000 citizens, age-standardized value for the number of tumors (per 100,000 citizens), age- and sex-standardized value for the number of tumors (per 100,000 citizens).

Source of information: The Danish Cancer Register.

Data level: National level.

Date range: From 1978 to 2020

Data access: It is openly available here.

Cancer areas of interest: The list can be checked here.

Information/contact for data request: Contact information.

Compilation: RKKP's Clinical Quality Databases

Primary purpose: Inform about the quality of Denmark's clinical treatment and contribute to improve the health care system.

Sponsor, manager or home institution: Regionernes kliniske kvalitetsprogram (RKKP).

Type of database: Quantitative indicators of cancer care quality and researches developed in the matter. All databases included can be found here.

Type of variables: The variables presented in each database can be checked in this link.

Source of information: Registered data from nationwide clinicians is managed by clinical epidemiologists and discussed by in clinical auditions to produce recommendations to increase health care quality.

Data level: Patient level.

Number of Records: Unknown.

Date Range: Varies.

Cancer Areas of Interest: Varies.

Data access: Annual reports are openly available in each database's website. More specific data can be obtained following the instructions presented here.

Information/Contact for data request: Contact information.

Hospital utilization information

Sponsor, manager or home institution: Statistics Denmark

Type of information: Inventory of annual public and private hospital utilization, hospital admitions, outpatient care and emergency admitions, including those related to neoplasic diagnosis related to sociodemographic factors.

Type of variables: Region, diagnosis, emergency/non emergency, age, sex, year, key figures

Source of information: National Patient Register, which is validated by the Danish Health Data Agency.

Data level: National level.

Number of Records: unknown.

Date range: Varies accordingly to the indicator selected.

Cancer Areas of Interest: It can be checked in this list.

Open data access: It is openly available here.

Information/contact for data request: Contact information.