Lithuania

Registries

Database: Cancer Registry

[1]

Primary purpose: Produce a complete registration of cancer cases across Lithuania.

Sponsor, manager or home institution: National Cancer Institute.

Type of information: Patient level information = cancer incidence, mortality, prevalence and survival. Patient information (full name, date of birth, personal identification number, place of residence), and primary tumor information (date of diagnosis, ICD10 code of primary site and topography, stage, pathological TNM, clinical TNM, ICD-O-3 code of morphology, behavior, most valid basis of diagnosis - has cancer histological verification or not -, date source and name of the doctor who has diagnosed cancer).

National level information =

Source of information: The register is continuouslly updated with reports about new cancer cases sent by primary, secondary and tertiary health care institutions from across the country.

Data level: National level (open access) and patient level (restricted access).

Number of Records: Contains information regarding the whole territory of Lithuania. Contains more than 500,000 reports and, each year, more than 20,000 new cancer cases are added to the registry.

Date range: Regarding patient level data, there is information from 1978 onwards regarding diagnosed cancer cases, and from 1990 onwards regarding cancer mortality. National level data is available from 2006 onwards.

Cancer Areas of Interest: IC00-C96, D00-D09, D32-D33, D39.1, D42-D43, and D45-D47 (ICD-10-AM).

Data access: National level data can be accessed in this website. To request access for patient level data, contact the National Cancer Institute (contact address bellow).

Information/contact for data request: Contact information.