The Netherlands: Difference between revisions
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'''Sponsor, manager or home institution''': Centraal Bureau voor de Statistiek. | '''Sponsor, manager or home institution''': Centraal Bureau voor de Statistiek. | ||
'''Type of information''': | '''Type of information''': [Data dictionary] | ||
'''Source of information''': Declaration of the cause of death and Basic personal registration (BRP) are sent from regional hospitals to the statistical organization. | '''Source of information''': Declaration of the cause of death and Basic personal registration (BRP) are sent from regional hospitals to the statistical organization. | ||
Revision as of 20:23, 10 April 2023
Cancer Centers
Healthcare System
Administrative or Claims Data
Registries
Database: Netherlands Cancer Registry (NKR)
Primary purpose: Registry and monitor cancer statistics around Netherlands.
Sponsor, manager or home institution: Comprehensive Cancer Center of the Netherlands (IKNL).
Available type of information:
- Incidence: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, region, and year.
- Prevalence: 5 year, 10 year, and 20 year prevalence by type of cancer, gender, age, region, and year.
- Mortality: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, and year.
- Survival: relative survival by type of cancer, Period from diagnosis (1 year and 10 years), age at time of diagnosis, stage at time of diagnosis (TNM), and gender.
Also, there is a cancer atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011–2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender.
Type of information: The type of information available to each type of cancer at patient level can be seen in this website.
Source of information: Hospitals' reports.
Data level: Regional level (open access) and Patient level (restricted access).
Number of Records: Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.
Date range: Varies according to the diagnosis and the type of information. It can be checked in this website.
Cancer Areas of Interest: Regional data includes all invasive cancers except basal cell carcinoma of the skin.
Data access: Regional level data is available here. Access to patient level data can be requested by following the steps described here. The cancer atlas can be accessed here.
Information/contact for data request: Contact information.
Database: Mortality by Cause of Death
Primary purpose: Publish data concerning the number of deaths by region of the territory.
Sponsor, manager or home institution: Centraal Bureau voor de Statistiek.
Type of information: [Data dictionary]
Source of information: Declaration of the cause of death and Basic personal registration (BRP) are sent from regional hospitals to the statistical organization.
Data level: Regional level (open access) and Patient level (restricted access).
Number of Records: Contains information regarding the whole territory of Lithuania.
Date range: 1996 onwards (regional level) and 1995 onwards (patient level).
Cancer Areas of Interest: Total neoplasms (C00-D48); Total malignant neoplasms (C00-C97); Malignant neoplasms of lip, oral cavity and pharynx (C00-C14); Malignant neoplasms of oesophagus (C15); Malignant neoplasms of stomach (C16); Malignant neoplasms of colon (C18); Malignant neoplasms of rectum, rectosigmoid and anus (C19-C21); Malignants neoplasms of liver and intrahepatic bile ducts (C22.0 - C22.8); Malignant neoplasms of galbladder and bile ducts (C23-C24); Malignant neoplasms of pancreas (C25); Malignant neoplasms of larynx (C32); Malignant neoplasms of trachea, bronchus and lung, Trachea (windpipe) including branchings (C33-C34); Melanoma skin (C43); Malignant neoplasms of breast (C50); Malignant neoplasms of cervix uteri (C53); Malignant neoplasms of corpus uteri and uterus unspecified (C54-C55); Malignant neoplasms of ovary (C56); Malignant neoplasms of prostate (C61); Malignant neoplasms of kidney, except renal pelvis (C64); Malignant neoplasms of bladder (C67); Malignant neoplasms of lymphoid, heamatopoietic and related tissue (C81-C96); Other malignant neoplasms (C17, C22.9, C26-C31, C35-C41, C44-C49, C51-C52, C57-C60, C62-C63, C65-C66, C68-C80, C97); Other neoplasms (D00-D48). [4]
Data access: The required proccess to access patient level data can be checked here.
Information/contact for data request: Contact information.
