Database: National Registry of Childhood Cancer (RNCCR) (Romania): Difference between revisions
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Revision as of 14:24, 5 December 2023
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Sponsor, manager or home institution: Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.
Primary purpose: To compile and maintain a comprehensive database of cancer cases in children and young people in Romania.
Type of information: Data Dictionary - National Registry of Childhood Cancer (RNCCR). The information contained in the registry follows the recommendations of ENCR [2]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [3]. Data refers to people aged between 0 and 14 years.
Source of information: Reports from pediatric oncologic centers.
Data level: patient level.
Date range: 2009 onwards.
Cancer areas of interest: unknown.
Data access: partially publicly available [4]. Instructions to request data for restricted content [5].
Contact information: Information [6].
